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Environmental sensitivity and celiac disease

Ida Oldford
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Ida Oldford Rookie
Ida Oldford
Posted

I am wondering how environmental sensitivity and celiac disease relate to each other. I have both ,first I started with the sensitivity issues which I am really struggling with and then recently being checked for the celiac issue.Anyone else dealing with these  issue ? Ida Oldford

 

 

 

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trents Grand Master
trents
Posted

Ida, what do you mean by environmental sensitivity? Can you be more specific?

Ida Oldford Rookie
Ida Oldford
Posted
  • Author

Any kind of sense,perfume,soap,laundry detergent everything I use has to be fragrance free.,any cleaning products are really bad,clean with vinegar and water. Lots of department stores have scented products and I am sick for days after I go in them. Side effects are head aches,joint pain and really tired.

Scott Adams Grand Master
Scott Adams
Posted

Lots of people with celiac disease also have certain environmental sensitivities to things like you mentioned. I am not sure whether these would be caused by celiac disease though. Have you been tested for celiac disease?

knitty kitty Grand Master
knitty kitty
Posted

@Ida Oldford,

I have environmental sensitivity like you describe.  I can't tolerate perfume counters or heavily scented cleaning supplies, scented fabric softeners and soap.  Most perfumes and scents contain Sulfites.  Some foods are high in Sulfites, too.

Sulfite HyperSensitivity prevents me from taking pharmaceuticals containing sulfite compounds.  I have to check ingredient labels to make sure Sulfites are not used as a preservative in food products.  

I believe it's from vitamin and mineral deficiencies that occur with Celiac Disease and even in the Standard American Diet.

I supplement with molybdenum, a trace mineral, which helps our bodies process Sulfites.  

I get headaches, joint pain, fatigue and skin problems when exposed.  With molybdenum, I can tolerate perfumes better. 

Hope this helps!

Ida Oldford Rookie
Ida Oldford
Posted
  • Author
3 hours ago, Scott Adams said:

Lots of people with celiac disease also have certain environmental sensitivities to things like you mentioned. I am not sure whether these would be caused by celiac disease though. Have you been tested for celiac disease?

 

3 hours ago, Scott Adams said:

Lots of people with celiac disease also have certain environmental sensitivities to things like you mentioned. I am not sure whether these would be caused by celiac disease though. Have you been tested for celiac disease?

I have recently been tested but got to wait a month to get in and see doctor. I had blood work done.

Scott Adams Grand Master
Scott Adams
Posted

So did you test positive for celiac disease on your blood test, and you are now awaiting an endoscopy? Feel free to share your blood test results with us if you would like to, and be sure to eat at least 2 slices of wheat bread daily for at least 2 weeks before an endoscopy.

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Charliexxx Contributor
Charliexxx
Posted
On 12/30/2022 at 6:15 PM, Ida Oldford said:

I am wondering how environmental sensitivity and celiac disease relate to each other. I have both ,first I started with the sensitivity issues which I am really struggling with and then recently being checked for the celiac issue.Anyone else dealing with these  issue ? Ida Oldford

 

 

 

Hi Ida, 

I am so sorry to read. I had childhood eczema until teens, I could not touch wool. I also would hide in my room on a Friday as I could not stand the smell of vegetable oil. When I became very unwell, smells became completely over powering making me nauseous and sick, such as favourite perfumes, washing liquid, household products. Even the smell of my own waste products.
A functional practitioner told me the last place, gut problems present is the skin (rashes, blisters). Also with celiac disease or non coeliac gluten sensitivity, we can have problems with histamine levels and can’t break it down properly. This may be the reason for not being able to tolerate smells.  There could be other reasons, I’m always happy to read and learn from others. I have had a quick look for some medical research but can’t at the moment. Hopefully, someone else will be able to do that.
Wishing you better soon. 

Sally Walker Newbie
Sally Walker
Posted
On 12/30/2022 at 3:24 PM, Ida Oldford said:

Any kind of sense,perfume,soap,laundry detergent everything I use has to be fragrance free.,any cleaning products are really bad,clean with vinegar and water. Lots of department stores have scented products and I am sick for days after I go in them. Side effects are head aches,joint pain and really tired.

A dermatologist said i have allergies to fragrance so only use All laundry soap. I have celiac disease and it seems to be connected to fragrance

Ida Oldford Rookie
Ida Oldford
Posted
  • Author
11 hours ago, Sally Walker said:

A dermatologist said i have allergies to fragrance so only use All laundry soap. I have celiac disease and it seems to be connected to fragrance

I use fragrance free laundry detergent. All scented laundry detergent is the worst for me to use.

  • 2 weeks later...
Ida Oldford Rookie
Ida Oldford
Posted
  • Author
On 1/1/2023 at 4:12 PM, knitty kitty said:

@Ida Oldford,

I have environmental sensitivity like you describe.  I can't tolerate perfume counters or heavily scented cleaning supplies, scented fabric softeners and soap.  Most perfumes and scents contain Sulfites.  Some foods are high in Sulfites, too.

Sulfite HyperSensitivity prevents me from taking pharmaceuticals containing sulfite compounds.  I have to check ingredient labels to make sure Sulfites are not used as a preservative in food products.  

I believe it's from vitamin and mineral deficiencies that occur with Celiac Disease and even in the Standard American Diet.

I supplement with molybdenum, a trace mineral, which helps our bodies process Sulfites.  

I get headaches, joint pain, fatigue and skin problems when exposed.  With molybdenum, I can tolerate perfumes better. 

Hope this helps!

 

Tks so much for this valuable information 

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