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- knitty kitty replied to yellowstone's topic in Coping with Celiac Disease1Has someone experienced discrimination because of their illness?
No, @yellowstone, you are not alone. I've experienced such treatment throughout my life. Some people have the herd mentality, much like cattle, where the sick or lame are pushed to the fringes of the herd where wolves can pick them off easily, thus ensuring the health of the rest of the herd. Some people fear what they don't understand. They... -
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- Aretaeus Cappadocia commented on Scott Adams's article in Conferences, Publicity, Pregnancy, Church, Bread Machines, Distillation & Beer1Martha Stewart's Gluten Break: What Her Three-Day Experiment Says About Celiac Disease and Gluten Sensitivity
Yeah, gotta agree with this. Glad for the focus on gluten-free issues, hopeful that she develops some good recipes/techniques the rest of us can use, worried that the publicity around her "reset" will add to the perception that going gluten free is some kind of optional lifestyle choice, rather than a medical necessity. The point you made that moved...- 1
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- yellowstone posted a topic in Coping with Celiac Disease1Has someone experienced discrimination because of their illness?
My celiac symptoms are extra-digestive; if I had to classify them, I’d say they are predominantly neurological: extreme fatigue that prevents me from making physical or intellectual effort, brain fog, difficulty concentrating, clumsy movements, pain… When I’m at my worst, I notice that some people behave hostilely toward me: they speak to me rudely, beco... -
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By knitty kitty · Posted
No, @yellowstone, you are not alone. I've experienced such treatment throughout my life. Some people have the herd mentality, much like cattle, where the sick or lame are pushed to the fringes of the herd where wolves can pick them off easily, thus ensuring the health of the rest of the herd. Some people fear what they don't understand. They choose ignorance. Rudeness, contempt, hostility, and belittling are all behaviors meant to ostracize and control others. If you and your needs can be minimized or dismissed altogether, then they don't have to take on the responsibility of helping. Some are just mean and petty. They are so small, fearful, and insecure within themselves, they find some twisted satisfaction in putting you down so they can feel better about themselves. People can't give what they don't have. They have not developed the internal strengths, courage, and compassion required to help another person. Some are fearful of losing what little they do have if they attempt to help. Much like a drowning man may endanger a rescuer trying to pull them to shore, many choose to swim away instead of helping because they know they are not good enough swimmers. Many don't take the time to practice swimming, or giving of their heart. Many feel awkward and clumsy in their misguided helpful attempts, so they give up trying at all. Other diseases have been "glamorized" to some degree. Famous people have raised awareness of various diseases, resulting in greater social acceptance and monetary support, but this is superficial. The daily struggles are left unexamined behind a curtain of privacy. The crucible of Celiac Disease not only refines us and makes us stronger, it purges our lives of people who don't have the mettle required to positively contribute to and be included in our lives. Let them go. Their leaving will make room for more constructive relationships with people who are more enlightened and capable. You've found your tribe here. Be encouraged! Take care of yourself. Taking a B Complex, like Life Extension's Bioactive B Complex, is beneficial in boosting the absorption and utilization of these essential life sustaining vitamins. Benfotiamine helps heal the intestines along with Vitamin A, Theanine, and Tryptophan. Thiamine TTFD helps immensely with the neurological symptoms along with Neuromag, a form of magnesium that helps the brain function. Vitamin D helps regulate the immune system and supports the thyroid and bone health. https://www.lifeextension.com/vitamins-supplements/item01945/bioactive-complete-b-complex?srsltid=AfmBOoqCnzmSXIlbatQqayiGmhTJUFm-XVjOeIMcjAmJJ7mqWWpBbnUc -
By yellowstone · Posted
My celiac symptoms are extra-digestive; if I had to classify them, I’d say they are predominantly neurological: extreme fatigue that prevents me from making physical or intellectual effort, brain fog, difficulty concentrating, clumsy movements, pain… When I’m at my worst, I notice that some people behave hostilely toward me: they speak to me rudely, become authoritarian, belittle me, look at me and treat me with contempt… This made me question many aspects of my life and how others perceived me: What was it about me that seemed to bother others so much? What could I do to fix it? Paying closer attention, when I was sicker, others saw me as cold, distant, as not talking too much, less engaged, apathetic, sad… All of this, far from being intentional, was just how my symptoms—and my attempt to cope with them—manifested to others. But objectively, was my behavior harmful or detrimental to anyone? Did I deserve the treatment some people were giving me? No, my behavior doesn’t harm anyone, and if someone feels uncomfortable, the solution would be to walk away, not to treat me like s$#&. And here are the unanswered questions: What leads a person to interpret illness symptoms as something offensive? What kind of issues do these people have? How are people with degenerative or other types of illnesses who are in a situation of dependency treated? Am I the only one these things happen to? -
By knightayres · Posted
I was wondering if your shakes and off balance went away after stopping gluten? -
Thanks, yall! The tough part now is figuring out if I’m actually feeling better or is it some form of placebo effect. I do actually feel better but I’m not positive if I may just be gaslighting myself lol
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By Aretaeus Cappadocia · Posted
@drjay in addition to what @trents wrote, I wanted to comment on your statement, "Positive for DQ2 and homozygous for DQB1*02 but negative for DQ8" You don't need DQ2 >and< DQ8 in order to be susceptible to getting celiac. Either one is good enough. DQB1*02 is a specific genetic allele that encodes part of the DQ2 protein. "Homozygous" means two copies of the same allele (the opposite is "heterozygous", where the two copies are different alleles). If you are homozygous for DQB1*02, you couldn't have DQ8. In other words, your genetic test tells you that you definitely have the potential to get celiac.
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