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Lara Bars

ebrbetty

By ebrbetty
in Coping with Celiac Disease

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ebrbetty Rising Star
ebrbetty
Posted

I was so happy to find these after reading the post about how good they are and ppl loving them..well, about an hour or so after eating one I got the most incrdible stomach pain, it lasted 6 hours then calmed down to something I could handle with out tears.

Has anyone else had trouble with them??

I can't figure out what could have done it

thanks, Betty

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Guhlia Rising Star
Guhlia
Posted

Could it be the dates in them? Dates give some people D and major D cramping even when eaten in moderation. Are you sure it was the Lara Bar?

I personally haven't had any trouble with Lara Bars. I love them! I hope you're feeling much better by now.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

yup, it was a lara bar, the chocolate coconut one..last time I had pain that bad I was glutened

elonwy Enthusiast
elonwy
Posted

I have one in front of me and the first engredient is dates, and they definitely can have a prune like effect on some people. Larabar is one of those where they are pretty hardcore about cross-contamination and I don't think they make anything with gluten in their plant.

THe other thing too, is it is raw food. The first time I ate raw food my body absolutely rebelled and I was in the bathroom for an entire afternoon. If you're not used to that much fiber all at once, it could just be that.

Elonwy

jerseyangel Proficient
jerseyangel
Posted

Yea--I was thinking the fiber and also possibly the nuts. Sorry you got so sick!

ebrbetty Rising Star
ebrbetty
Posted
  • Author

I didn't get D just severe pain..I know I can't eat salad and some nuts..oh well :unsure: just another food NOT to eat!

jerseyangel Proficient
jerseyangel
Posted

Raw veggies and nuts are probably too irritating for you. I'm sorry, Betty, I don't remember--have you been gluten-free for long? Quite possibly, if it hasn't been too long, your intestines are still healing. I had a lot of inflammation--the doctor could see it at the beginning of my intestine--he called it the antrium. It takes a while for that to heal.

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StrongerToday Enthusiast
StrongerToday
Posted

The do pack quite a bit of fiber into one little bar :rolleyes:

ebrbetty Rising Star
ebrbetty
Posted
  • Author

patti, I'm about 3 1/2 months gluten-free...still healing I think, though I did read an article yesterday saying with celiac the healing takes about 2 months and pain will stop within a week!! I get mad when I read that stuff.

My stomach is so raw and sensitive I can't even eat read meat anymore, god I miss burgers lol

Guest nini
Guest nini
Posted
patti, I'm about 3 1/2 months gluten-free...still healing I think, though I did read an article yesterday saying with celiac the healing takes about 2 months and pain will stop within a week!! I get mad when I read that stuff.

My stomach is so raw and sensitive I can't even eat read meat anymore, god I miss burgers lol

I think it took me at least 2 years before I could tolerate things like Larabars without having immense pain. They are raw and full of fiber and for someone still healing, it can be VERY hard on your poor damaged intestines. Stick to really mild foods for now... That is what I had to do. Rice, Potatoes, Baked Chicken, cooked veggies (simple ones like peas) Applesauce, Yogurt, and the only substitute product I would use was EnerG's crackers... plain. Yes it was bland and boring and yes I had to take supplements, but eventually I was able to start adding foods back in. Now I am thrilled when I can have taco night with spicy meat and taco sauce all over the tacos! (not just plain ground beef and cheese in the taco shell... oh, and it took a while before I could tolerate the corn taco shells too...

Judyin Philly Enthusiast
Judyin Philly
Posted

I TRIED THEM ONCE AND MY LIPS STARTED TO TINGLE AND FELT REALLY FUNNY.

GOT GASSY AND JUST DIDN'T FEEL THAT GREAT. DIDN'T EVEN FINISH IT.

JUDY IN PHILLY

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      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Russ H · Posted

      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
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      By Jane02 · Posted

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    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
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      Terrible Neurological Symptoms

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      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
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