Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low MCHC


hayley3

Recommended Posts

hayley3 Contributor

So for years I've had a low MCHC, but the doctors never mentioned it.

It was not super low (just out of range) so I'm figuring that is why.....but it bothers me that no one ever questioned it, especially when I had low WBC, and low Vit D.  I take vitamins which I guess also disguised some issues.  I had cracked lip corners so I took a B complex.  I take calcium, magnesium and salt pills to stop the cramps.

You wait for a clue to help the doctors but then it seems they ignore the labs when they are out of range.  So just wondering what lab values they classify as anemia.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hayley3 Contributor

After doing a bit of research, the MCHC is meaningless, so not sure why it's on the lab work.

Scott Adams Grand Master

Anemia is a condition characterized by a decreased number of red blood cells or a decreased amount of hemoglobin in the blood, leading to a reduced oxygen-carrying capacity. The MCHC level is just one of the parameters that can be assessed to determine if anemia is present.

The typical blood test results that indicate anemia include:

Low Hemoglobin (Hb) Levels: Hemoglobin is the protein in red blood cells that carries oxygen. Low hemoglobin levels are a key indicator of anemia.

Low Hematocrit (Hct) Levels: Hematocrit is the proportion of blood that is occupied by red blood cells. A decrease in hematocrit can suggest anemia.

Low Red Blood Cell (RBC) Count: A reduced number of red blood cells can contribute to anemia.

Mean Corpuscular Volume (MCV): MCV measures the average volume of a red blood cell. Certain types of anemia may be associated with changes in MCV.

frieze Community Regular
5 hours ago, hayley3 said:

After doing a bit of research, the MCHC is meaningless, so not sure why it's on the lab work.

Actually may tie in with celiac.  What is your ferritin level?

hayley3 Contributor
1 hour ago, frieze said:

Actually may tie in with celiac.  What is your ferritin level?

I've never seen a ferritin test in the labs done.  My Vitamin D was 4 so I ask to have that one monitored.

hayley3 Contributor
1 hour ago, Scott Adams said:

 

The typical blood test results that indicate anemia include:

Low Hemoglobin (Hb) Levels: Hemoglobin is the protein in red blood cells that carries oxygen. Low hemoglobin levels are a key indicator of anemia.

Low Hematocrit (Hct) Levels: Hematocrit is the proportion of blood that is occupied by red blood cells. A decrease in hematocrit can suggest anemia.

Low Red Blood Cell (RBC) Count: A reduced number of red blood cells can contribute to anemia.

Mean Corpuscular Volume (MCV): MCV measures the average volume of a red blood cell. Certain types of anemia may be associated with changes in MCV.

All those are fine, thanks.

knitty kitty Grand Master

@hayley3,

Didn't your doctor recommend supplementing Vitamin D in order to correct your very low Vitamin D level?  

Low Vitamin D can cause an increased risk of fractures and falls.  Vitamin D deficiency can lead to osteoporosis, muscle weakness and parathesia.  Low Vitamin D is also associated with anemia and infertility.  

Vitamin D is instrumental in regulating and lowering inflammation.  Vitamin D helps maintain intestinal mucosal integrity (repairing leaky gut).  

Have you talked to a nutritionist?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hayley3 Contributor
3 hours ago, knitty kitty said:

@hayley3,

Didn't your doctor recommend supplementing Vitamin D in order to correct your very low Vitamin D level?  

Low Vitamin D can cause an increased risk of fractures and falls.  Vitamin D deficiency can lead to osteoporosis, muscle weakness and parathesia.  Low Vitamin D is also associated with anemia and infertility.  

Vitamin D is instrumental in regulating and lowering inflammation.  Vitamin D helps maintain intestinal mucosal integrity (repairing leaky gut).  

Have you talked to a nutritionist?  

The Endocrinologist gave me 50,000 iu for 2 weeks and that was it.  So I started taking it on my own which finally helped it to rise.  I took it a full year before it got to 50 and that helped me a lot.  No nutritionists at the VA.  But I still have a lot of muscle weakness and my ana is 1:640 which means my autoimmune stuff is active.   Derm clinic has offered to give me the celiac test today because my dermatitis herpetiformis biopsy was positive, but she said there's only one test at the VA, when I asked for the Celiac panel.

knitty kitty Grand Master

I like to keep my Vitamin D level above 80 because at that level Vitamin D can act like a hormone and regulate the immune system better and reduce inflammation.  

Have you considered supplementing the eight essential B vitamins?  These are important because our body cannot make them, so we need to get them every day from our diet.  Since malabsorption is a problem of Celiac Disease, boosting the B vitamins by taking supplements can improve your health, too.  

Does the VA have a nutritionist available?  A nutritionist can guide you to a nutritionally dense diet.  

Checking for and correcting nutritional deficiencies is part of proper follow up care for Celiacs.

hayley3 Contributor
34 minutes ago, knitty kitty said:

I like to keep my Vitamin D level above 80 because at that level Vitamin D can act like a hormone and regulate the immune system better and reduce inflammation.  

Have you considered supplementing the eight essential B vitamins?  These are important because our body cannot make them, so we need to get them every day from our diet.  Since malabsorption is a problem of Celiac Disease, boosting the B vitamins by taking supplements can improve your health, too.  

Does the VA have a nutritionist available?  A nutritionist can guide you to a nutritionally dense diet.  

Checking for and correcting nutritional deficiencies is part of proper follow up care for Celiacs.

I read that too, that it needs to be at least in the middle of the range so when I saw that my level was only raised to 21, I started buying my own Vitamin D from Amazon.  When I got cracks in the corners of my mouth, I was taking Vitamin B complex but something in there has a horrible smell with a horrible burp aftertaste.   I need to find a different one.   VA hospitals do not have nutritionists.

knitty kitty Grand Master
(edited)

That's sad the VA has no nutritionists available.  

I like the brand Life Extension Bioactive Complete B Complex, also available from there.

Yes, there are some vitamins that are smelly due to the sulfur content in a few of them. I take mine as I sit down to a meal.  With food behind it, there's less burping. 

Are you taking Vitamin D 3?  Vitamin D 2, which doctors prescribe, are synthetic and don't work as well as the natural form D 3.  I felt much better switching to D 3.

P. S. Have you tried a low histamine diet to lower your inflammation level? 

Edited by knitty kitty
Added post script
hayley3 Contributor

@knitty kitty  Thanks and yes, I"m taking a Dr Berg Vit D3 with K2.  My house is full of vitamin bottles, taking all of them may have delayed my diagnosis , in addition to doing water fasting to heal my SIBO.

I'll check the Life Extension Brand out..I currently take Solaray.  The smell actually turns my stomach, I"m not sure what it is about these B vitamins. LOL

I can't eat anything really.  Meat, chicken and some pork with simple veggies, such as broccoli, lettuce, peas, and green beans.  If I'm not allergic to it, it makes me sick, so really I am on a low histamine diet. 

knitty kitty Grand Master

@hayley3,

I've tried that brand, but didn't like it.  It's got whole rice flour listed as an ingredient, including the rice bran.  Mine smelled like the bran had gone rancid.  

I couldn't eat iceberg lettuce without a lot of gastrointestinal distress.  I switched to Romaine lettuce.  Romaine is a veggie that has thiamine!  

When I was down to just green beans and lamb (easily digested), I started taking Tryptophan.  I also took an amino acid, Theanine, and Benfotiamine.  All of these help calm and heal the intestines.  And Zinc helps, too.  Zinc is a mineral we are commonly low in.  

What are you allergic to?  Is it a medically diagnosed allergy?  Is the pork in the form of ham, or bacon, salted, aged, as in high histamine?  

hayley3 Contributor
1 hour ago, knitty kitty said:

@hayley3,

I've tried that brand, but didn't like it.  It's got whole rice flour listed as an ingredient, including the rice bran.  Mine smelled like the bran had gone rancid.  

I couldn't eat iceberg lettuce without a lot of gastrointestinal distress.  I switched to Romaine lettuce.  Romaine is a veggie that has thiamine!  

When I was down to just green beans and lamb (easily digested), I started taking Tryptophan.  I also took an amino acid, Theanine, and Benfotiamine.  All of these help calm and heal the intestines.  And Zinc helps, too.  Zinc is a mineral we are commonly low in.  

What are you allergic to?  Is it a medically diagnosed allergy?  Is the pork in the form of ham, or bacon, salted, aged, as in high histamine?  

It's a tyramine buildup.  I lack the enzymes on my lining to digest the tyramine.

knitty kitty Grand Master

I can't tolerate phenylalanine which results in tyramine excess.  I avoid tyramine foods, too.  

So don't take Tryptophan.  Take the Benfotiamine and Theanine.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,345
    • Most Online (within 30 mins)
      7,748

    Louise Sullivan
    Newest Member
    Louise Sullivan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...