Difficulty to breath without taking a deep breath

[NoMoreBreadForMe]

Hey, i have been diagnosed with celiac disease recently (like 4 days ago), did a tTG-IGA test and got a result superior to 250 U/ml so yhea i don't really know how to react to this, i'm from EU and a lot of our alimentation is arround wheat and all but i guess i have no choice

But the real probleme is that i need to take deep breath / yawn to fully breath. It's not like i can't breath at all but it really feel like i'm not breathing enough, i saw some topics talking about it but it doesn't seem to appear in the symptom list (when i search about it i only find 4-5 forums talking about it).  I tried to go to the ER and they did a lung scan with some blood test but no anemia (my first thought when the symptoms appeared) and no problem in my lungs either, everyone just chalked it up to anxiety or stress but

I since started to go gluten free (only been 3 days) and i'd like to know if this happened to any of you too and how much time did it take for this breathing problem to disappear ? i wonder if this breathing problem is really because of celiac disease or another issue with me

i'm very sorry if my english is bad or incoherent english isn't my first language.

 

[trents]

Welcome to the forum, @NoMoreBreadForMe!

You said you are not anemic but are your blood oxygen saturation levels within the normal range?

Edited August 30, 2024 by trents

[NoMoreBreadForMe]

4 minutes ago, trents said:

Welcome to the forum, @NoMoreBreadForMe!

You said you are not anemic but are your blood oxygen saturation levels within the normal range?

Hello trents, yes my oxygen saturation was normal when they took it, i did some bllod test too (don't know the english equivalent of them sorry) but everything was good 

[Wheatwacked]

6 hours ago, NoMoreBreadForMe said:

how much time did it take for this breathing problem to disappear ? i wonder if this breathing problem is really because of celiac disease or another issue with me

I am unsure, did the breathing issue start with eating gluten free, or was that the reason you were tested for Celiac?

• Shortness of breath can be a symptom of thiamine (vitamin B1) deficiency, particularly when accompanied by other symptoms.
• Vitamin D deficiency can cause breathing symptoms in children and adults.

Since Celiac Disease causes malabsorption,  there are several vitamins that can cause shortness of breath.

This is an older post, but may help you understand:

"The addictive nature of gluten is often overlooked. For some, the first days and weeks of following a gluten-free diet are characterized by food cravings, disorientation, irritability, sleepiness, depression, mental fogginess, fatigue, and/or shortness of breath."  

 

[NoMoreBreadForMe]

Well i'm not sure either, i started recently the gluten free diet but the shortness started before that, i will se this with my gastroenterologist (appointment in 5 days) 

[knitty kitty]

@NoMoreBreadForMe,

Yes, I've experienced this"air hunger" and yawning.  My "air hunger" was caused by nutritional deficiencies that occur in Celiac Disease due to malabsorption of nutrients. 

A deficiency in Thiamine Vitamin B1 causes such symptoms as "air hunger" and lower leg or arm edema, balance issues and mental changes, forgetfulness and irritability.  

Sailors at sea, eating a poor diet, developed this "air hunger" and so it historically was named "sailors' asthma". 

Celiac Disease causes malabsorption of essential nutrients, like the eight B vitamins.  Thiamine deficiency disorder symptoms can present first because thiamine is stored the shortest amount of time, and runs out quickly.

Unfortunately, many doctors are not very knowledgeable about nutritional deficiencies and nutritional deficiency symptoms can go unrecognized.  Checking for nutritional deficiencies is part of proper follow up care for us.

References:

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

 

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

 

[Wheatwacked]

If you eat a gluten free diet, and increase your essential vitamin intake, it will get better.  Vitamin D, Choline (formerly known as B4), Iodine (if you don't have Dermatitis herpetiformis- it can exasperate dermatitis herpetiformis outbreaks).

1. Quote

    

   1. B1 (thiamine): Thiamine plays an essential role in metabolism by helping convert nutrients into energy. The richest food sources include pork, sunflower seeds
   2. B2 (riboflavin): Riboflavin helps convert food into energy and also acts as an antioxidant. Foods highest in riboflavin include organ meats, beef, and mushrooms.
   3. B3 (niacin): Niacin plays a role in cellular signaling, metabolism and DNA production and repair. Food sources include chicken, tuna and lentils.
   4. B5 (pantothenic acid): Like other B vitamins, pantothenic acid helps your body obtain energy from food and is also involved in hormone and cholesterol production. Liver, fish, yogurt, and avocado are all good sources.
   5. B6 (pyridoxine): Pyridoxine is involved in amino acid metabolism, red blood cell production and the creation of neurotransmitters. Foods highest in this vitamin include chickpeas, salmon and potatoes.
   6. B7 (biotin): Biotin is essential for carbohydrate and fat metabolism and regulates gene expression. Eggs, salmon, cheese, and liver are among the best food sources of biotin.
   7. B9 (folate): Folate is needed for cell growth, amino acid metabolism, the formation of red and white blood cells and proper cell division. It can be found in foods like leafy greens, liver, and beans or in supplements like folic acid.
   8. B12 (cobalamin): Perhaps the most well-known of all the B vitamins, B12 is vital for neurological function, DNA production, and red blood cell development. B12 is found naturally in animal sources like meats, eggs, seafood, and dairy.

   Long Lost B Vitamins