Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question about wheat exposure in my profession


Grace Mattaliano

Recommended Posts

Grace Mattaliano Newbie

Hello everyone!

I am a college senior doing a capstone project on wheat starch paste being used in paper conservation labs as an adhesive. It is the most common adhesive used, and conservators make it every week, often multiple times a week. I realized that this might be a problem for aspiring conservators who have celiac disease or wheat allergy when I was making it during my summer internship in art conservation. I am gluten intolerant myself so was a bit cautious while handling, but realized it might pose a way bigger risk to people who have celiac and wheat allergies. My project will focus on viable alternatives to wheat starch paste so that aspiring conservators can safely work in a paper conservation lab with these diseases and allergies.

Before I go farther with my project, I wanted to ask you all if wheat starch paste actually is dangerous for people with celiac and wheat allergy to work with. I was operating under the assumption that it was, but was recently told that it might be wrong, so I would love to hear your input. 

We make wheat starch paste by scooping wheat starch into a pot, in which the wheat starch gets on our hands, on the table, and we also inhale it because it clouds into the air (for lack of better description). Then we heat and mix it for ~30 min. These exposures seem dangerous to me for people with celiac disease, because even microscopic particles could travel from your hands and clothes to food that you eat and make you sick.

Then, when it is ready to be used as an adhesive, conservators use their hands and tools to apply it to tears in paper, in which it also gets on hands.

So, what do you all think about this? Would handling wheat starch paste be dangerous for people with celiac disease and wheat allergies?

Also, please let me know if I should post this in another forum category, I wasn't sure which to post to.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome to the forum, @Grace Mattaliano!

In order to answer your question, we need to know more about the wheat starch. Not all wheat starch is the same. Has the wheat starch being used in these projects been processed and chemically treated so as to remove the gluten (or most of it) such as we see in some "gluten free" pizza products or some bulk laxative products for instance? 

When I was a kid we used to make paper paste out of ordinary wheat flour which, of course, would have contained both the protein component (gluten) and the starch component. Just mixed a little water with it. Is this the kind of wheat starch being used in your projects?

Edited by trents
Scott Adams Grand Master

Most wheat starch has most of the gluten removed, but only Codex wheat starch will test below 20ppm. It's clear that this type of work could never be done with someone who has a severe wheat allergy, not matter which wheat starch was used.

As for people with celiac disease, those who are highly sensitive or have dermatitis herpetiformis (the skin manifestation of celiac disease) would likely have issues doing this type of work, but many with celiac disease might be able to handle the wheat starch. It is very difficult to say exactly which celiacs might be ok, and which would not, but overall it's likely a job best avoided by those with celiac disease.

Grace Mattaliano Newbie

To @trents and @Scott Adams (sorry I don't know how to reply to specific posts!),

Thank you so much for your help! I did some research and have another question. It seems like all wheat starch used in most conservation labs should be gluten-reduced, but I am not sure if they are completely free of it. I found this description online: 

"AYTEX-P is an unmodified, highly purified wheat starch. It contains approximately 87% to 91% starch, 9% to 13% moisture, and less than 1% fibre, protein, and mineral matter from the wheat germ. Other sources of purified, food-grade wheat starch are available and may be more accessible." from https://www.canada.ca/en/conservation-institute/services/conservation-preservation-publications/canadian-conservation-institute-notes/wheat-starch-paste.html

Does this mean that there is less than 1% of gluten? It also seems that some labs will use less purified wheat starch because of accessibility issues, which could be a risk for people with celiac disease, especially with dermatitis herpetiformis as you mentioned. It sounds like it is less of a risk than I thought, but there is always a small chance of ingestion or skin contact if the conservator is highly sensitive. 

trents Grand Master

Yes, it would mean that the wheat starch contains less that 1% gluten. Gluten is not the only protein in the wheat kernel: https://engrain.us/understanding-wheat-protein-content/

It sounds like to me you have a good handle on the variables and hence the questions. The only way to nail this down any further would be to have the starch in question tested for gluten content. The FDA standard for "Gluten Free" is 20 ppm and the GFCO standard for "Certified Gluten Free" is 10 ppm. Even then, the question of safety could not be answered for all celiacs because of the huge range in sensitivity. For some, even 10 ppm is enough to generate a celiac reaction. So, I think it would be impossible to answer the question of safety of the wheat paste adhesive for 100% of celiacs but it might be possible to answer it for the majority, as does the FDA standard of 20 ppm.

Grace Mattaliano Newbie

Thank you so much, this is extremely helpful! I will highlight this in my project and mention the huge range in sensitivity as well as the need for the paste to be below 10 ppm to be safe for most, but not all. I am going to focus my project both on finding alternatives for people with wheat allergies and celiac disease and also people who do not have access to wheat starch paste. Thanks again for all of your help.

trents Grand Master

You are more than welcome. Blessings on your work in this area and thank you for watching out for those of us with gluten disorders.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,678
    • Most Online (within 30 mins)
      7,748

    Celiac79
    Newest Member
    Celiac79
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten.  Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with Celiacs is that normal digestion will only break down gluten to the point where the small fragments will still cause a reaction. GliadinX will break down the fragments so that they are too small to start the autoimmune reaction.  The label on my bottle reads'it works in the stomach' and that is ver concentrated so 1 capsule is the recomm Hope this helps/Have a lovely cruise.ended dose for each meal. 
    • StevieP.
      Thanks so much for that information!! That helps me out alot!!
    • Scott Adams
      It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (like Crohn’s or colitis) is typically because it can irritate an already inflamed colon. Since you don’t yet have a confirmed diagnosis—but your brother has colitis—it might be worth calling your gastroenterologist’s office today to clarify if you should skip the senna given your symptoms and family history. Some clinics have an on-call nurse who can advise quickly. For the prep itself: Plenvu is strong, so if your bowels are already loose, the senna might be overkill. Stick to clear liquids tomorrow (broth, apple juice, etc.) and stay near a bathroom! For anxiety, remember the procedure itself is painless (you’ll likely be sedated), and the prep is the hardest part. Bring a phone charger or book to the clinic, and treat yourself afterward to something gentle on your stomach (like mashed potatoes or yogurt). Hang in there—this is a big step toward answers. You’re doing great advocating for yourself!
    • Scott Adams
      Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating cross-contact risks. To be safe, I’d recommend reaching out to the company directly to ask: 1) If their wheat straw material is tested to confirm it’s free of gluten proteins, and 2) Whether the production line avoids cross-contamination with gluten-containing ingredients. Many brands now cater to gluten-free consumers and will provide detailed answers. If you’re uncomfortable with the uncertainty, alternatives like bamboo, ceramic, or glass dishes are inherently gluten-free and worry-free. Always better to double-check—your diligence is totally justified!
    • Scott Adams
      I’m so sorry you’ve been struggling for so long without the answers or relief you deserve. It’s incredibly frustrating to have a celiac diagnosis yet still face debilitating symptoms, especially after decades of strict gluten-free living. Your history of chronic health issues—SIBO, food allergies, recurrent infections, and now potential complications like nerve pain (left leg) and mucosal ulcers—suggests there may be overlapping conditions at play, such as autoimmune comorbidities (e.g., Hashimoto’s, Sjögren’s), nutrient deficiencies, or even refractory celiac disease (though rare). Stanford is an excellent step forward, as their specialists may uncover missed connections. The medical gaslighting you’ve endured is unacceptable, and while legal action is an option, focusing on thorough testing (e.g., repeat endoscopy, micronutrient panels, autoimmune markers, skin biopsy for dermatitis herpetiformis) might be more immediately helpful. Menopause can absolutely exacerbate underlying inflammation, so hormonal imbalances should also be explored. For symptom relief, some in the celiac community find low-dose naltrexone (LDN) or mast cell stabilizers helpful for systemic issues, but a functional medicine doctor (if accessible) could tailor supplements to your needs. You’re not alone in this fight—keep advocating fiercely at Stanford. Document everything meticulously; it strengthens both medical and potential disability claims. Sending you strength—this shouldn’t be so hard, and you deserve real solutions.
×
×
  • Create New...