Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Ever Done A Gluten Challenge...

stephk

Recommended Posts

stephk Newbie
stephk
Posted

Hi,

my name is Stephanie and I'm 27 years old. About 2 years ago I was told that I probably had Celiac Disease and started a gluten free diet (not realizing how stupid that was at the time). I am still having problems to this day and am considering doing the gluten challenge under the care of my doctor, so that I can have the biopsy and blood test done and know forsureif I have celiac disease. I was wondreing if anyone has done this and how bad it is.

I have also been reading about this enterolab test and was wondering how/where I would get it. It sounds like it would be helpful as well. I really would like to get some answers either way so that I don't have to guess anymore.

If anyone has any advice, I would greatly appreciate it.

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Megan Rookie
Megan
Posted

I only did the gluten free diet for a weekish before they decided to do testing and now I need to eat gluten. Just be prepared. Don't do it the big week of ANYTHING! pick a calm week...

other than that I think it depends on which symptoms you have when you are glutened!?! and how well you can handle them and go on with daily life!

Guhlia Rising Star
Guhlia
Posted

I did a gluten challenge last summer and got violently ill. It took me almost two months until I was starting to feel somewhat normal again. Of course, they had me do the gluten challenge for over a month, so that may have played a part in it. I don't think you need to be eating gluten for quite that long. If you're still having problems and they can't figure out what else it could be, I'd say go for it. You'll probably want to make sure that you can take vacation from work on short notice if it gets too bad though. Good luck! I hope you get some answers soon.

par18 Apprentice
par18
Posted
Hi,

my name is Stephanie and I'm 27 years old. About 2 years ago I was told that I probably had Celiac Disease and started a gluten free diet (not realizing how stupid that was at the time). I am still having problems to this day and am considering doing the gluten challenge under the care of my doctor, so that I can have the biopsy and blood test done and know forsureif I have celiac disease. I was wondreing if anyone has done this and how bad it is.

I have also been reading about this enterolab test and was wondering how/where I would get it. It sounds like it would be helpful as well. I really would like to get some answers either way so that I don't have to guess anymore.

If anyone has any advice, I would greatly appreciate it.

Thanks

Stephanie

Who told you to go on gluten-free diet?

Tom

plantime Contributor
plantime
Posted

If you decide to do the challenge, choose a time when you have a couple of weeks free to be sick. If your problem is not gluten, then you might not get sick. However, for some, being without gluten for a couple of years then eating it again leads to severe illness. I believe that if you become ill after eating gluten, since you have been off of it for so long, is a positive reaction. Are you sure that you cut out all sources of gluten, including malt flavoring and cross contamination? You could also be intolerant to something else that you are eating. Good luck with your testing!

par18 Apprentice
par18
Posted
Hi,

my name is Stephanie and I'm 27 years old. About 2 years ago I was told that I probably had Celiac Disease and started a gluten free diet (not realizing how stupid that was at the time). I am still having problems to this day and am considering doing the gluten challenge under the care of my doctor, so that I can have the biopsy and blood test done and know forsureif I have celiac disease. I was wondreing if anyone has done this and how bad it is.

I have also been reading about this enterolab test and was wondering how/where I would get it. It sounds like it would be helpful as well. I really would like to get some answers either way so that I don't have to guess anymore.

If anyone has any advice, I would greatly appreciate it.

Thanks

Stephanie,

Did you respond to the gluten-free diet in a positive way? Are you saying you have been gluten free for the past 2 years and still have problems?

Tom

Felidae Enthusiast
Felidae
Posted

I know what you mean about wanting it on paper. I went gluten-free because I was sick of being sick. My doctor saw me about three months after being gluten-free and she said it was not worth it to do a gluten challenge because of how sick I would be again. And what if the results came back negative anyways, then what. The gluten-free diet itself has told me what I need to know in the way that my body has responded.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

If you really need an official diagnosis of celiac, then I would say go for it. But if you think that maybe other foods might be bothering you, then you might want to try the elimination diet and slowly add foods back in one at a time, and then if they don't make you sick, then you know that you can have that food, but if it makes you sick, then you know to aviod it. My mom would never put me on gluten when I was a baby, and they wanted to do the challenge, now they don't do that anymore because it makes people so sick.

Ursa Major Collaborator
Ursa Major
Posted

Stephanie, if you have been gluten free for two years, it could possibly be at least a year of eating gluten for enough damage to show up again for a positive test result. It is very likely you would get a false negative unless you eat gluten for a long time. Is it really worth it?

Did you initially feel better when you went gluten free? If yes, once your intestines healed and absorbed nutrients again, they would also have absorbed other things again that you are intolerant to. That is what happened to me. When I started feeling worse again after three months, I had to figure out my other food intolerances. So now, being gluten-free and having eliminated the million other things I am intolerant to, I feel much better again.

I agree with the elimination diet idea. That would be much better than going back on gluten. Or try having some and see if it makes you sick. If it does, you know that gluten is a problem, no testing needed there, just a need to hunt down the other problems.

Try cutting out all dairy for starters. And as somebody else said, have you eliminated ALL gluten? Did you buy a new toaster, new cutting board, replaced wooden cooking utensils, non-stick cookware, shampoo, soap, toothpaste, lipstick, lip balm? Did you avoid everything that says 'malt flavouring', natural flavours, hydrolyzed vegetable protein, soy sauce?

Its a jungle out there for us, you have to be vigilant and on your guard at all times! :ph34r:

I hope you figure it out, all the best.

tarnalberry Community Regular
tarnalberry
Posted

yes, but it was after about three weeks gluten free, was for a dietary result, and not of the magnitude that you would need to do. you can try it if you want to, but I would encourage you to play close attention to your body, and consider stopping the experiment short if it becomes apparent that your body is telling you the answer sooner than the tests need you to consume gluten for.

jenvan Collaborator
jenvan
Posted

https://www.celiac.com/st_prod.html?p_prodid=1281

Read the article above--helpful info on the pros and cons of doing a gluten challenge...isn't always accurate or effective unfortunately.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,749
    • Most Online (within 30 mins)
      7,748
    Harri
    Newest Member
    Harri
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Tea Bags and Gluten

      By Beverage · Posted

      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.