Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Menstrual Irregularities

Guest Babbia

By Guest Babbia
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest Babbia
Guest Babbia
Posted

Just something you all might find interesting...... Since first getting my period at age 12 (am now 30), I have never had normal periods. I would literally get ONE period per year, unless I was on the pill. Doctors said I had PCOS. Well....over the last while (not on pill) I have had FOUR periods in 8 months. The only thing that I have changed was going gluten-free. I have always been a "healthy" eater, so problem was not that....it was the damn gluten all along! I have yet to relay this to my doctor and am wondering what he'll have to say about it.

Babbia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


corinne Apprentice
corinne
Posted

Gluten free changed mine too. My periods were the opposite of yours - very heavy and long (average 12-15 days). Since going gluten-free 3 months ago, they're now pretty normal, about 5 days. Woohooo.

Megan Rookie
Megan
Posted

WOW!! I've always had problems so hopefully this can change for me to!! (too bad I'm on the Gluten challenge!! NO FUN!!!)

Ann1231 Enthusiast
Ann1231
Posted

mine are much lighter and shorter since gluten free. thank goodness. I had times when I was anemic they were so bad!

plantime Contributor
plantime
Posted

Mine were quite regular, 5 days every 28 days, but very bad with cramps. Since going gluten-free, the cramps have let up significantly.

italiana1981 Newbie
italiana1981
Posted

I got my period when I was 10 years old-and ever since then have gone several years without getting my period!

No doctors could ever find a reason why. They would put me on BC pills, which gave me nasty mood swings.

I just go my enterolab test last week, and have not had gluten since.

Currently, I have not gotten my period in about five months and have quite a bit of hair loss.

I am 24!

How long has it taken people for their periods to regulate? Did you take any supplements or see any doctors that helped? Or should I just try a gluten free diet?

ehrin Explorer
ehrin
Posted

Just something you all might find interesting...... Since first getting my period at age 12 (am now 30), I have never had normal periods. I would literally get ONE period per year, unless I was on the pill. Doctors said I had PCOS. Well....over the last while (not on pill) I have had FOUR periods in 8 months. The only thing that I have changed was going gluten-free. I have always been a "healthy" eater, so problem was not that....it was the damn gluten all along! I have yet to relay this to my doctor and am wondering what he'll have to say about it.

Babbia

I find this very interesting. I have never had normal periods and they attributed it to my having PCOS as well. I've never found their diagnosis to be firm...meaning I just don't buy it. Yes, my testosterone levels are a bit high but I've had a hard time believing that I have PCOS. I don't have any of the other typical symptoms. And generally people with T2 diabetes have this, not T1, which is what I have. However, I can't go off the pill to find out if being gluten-free has helped regulate my periods. I am sexually active and I do not want kids yet and my BF certainly doesn't want kids yet so....I'd love to hear if others have found a similar experience as you, Babbia! Quite interesting!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


italiana1981 Newbie
italiana1981
Posted

I find this very interesting. I have never had normal periods and they attributed it to my having PCOS as well. I've never found their diagnosis to be firm...meaning I just don't buy it. Yes, my testosterone levels are a bit high but I've had a hard time believing that I have PCOS. I don't have any of the other typical symptoms. And generally people with T2 diabetes have this, not T1, which is what I have. However, I can't go off the pill to find out if being gluten-free has helped regulate my periods. I am sexually active and I do not want kids yet and my BF certainly doesn't want kids yet so....I'd love to hear if others have found a similar experience as you, Babbia! Quite interesting!!!

I was also diagnosed with PCOS b/c of my menstrual irregularities.

francelajoie Explorer
francelajoie
Posted

Oh my god!!

That's it!!!

I also had really really long periods (12 to 14 days), major cramping, and very heavy bleeding.

Now, they last 5-7 days, barely any pain, and its not heavy at all.

It's sooooooo much better now.

mookie03 Contributor
mookie03
Posted

Along these lines, has anyone ever had to take provera to induce period? (gluten-free 9 mos and havent gotten period yet). If you have, please pm me, i have questions :D

Mahee34 Enthusiast
Mahee34
Posted

mine have been lighter and shorter too since i've been diagnosed.....by shorter i mean like 2 days long.....although i still sometimes have cramping, depending on how badly i give into my chocolate and soda craving habits.....this month i've been good. some months are horrible!! but darn it, sometimes you just need some chocolate.

penguin Community Regular
penguin
Posted

My period was 10 days late last month, my first month gluten-free and I was coincidentally off the pill that month. Freaked me out. Before that, I started just spotting for my period and the dr blamed it on the pills (which I've been taking for 7 years) but I think the pill was the only thing making me have it to begin with.

I was also a late starter, two days before my 14th birthday.

corinne Apprentice
corinne
Posted

I didn't realize that 14 was a late start. I started at 15 and my mom at 16.

penguin Community Regular
penguin
Posted
I didn't realize that 14 was a late start. I started at 15 and my mom at 16.

I was on the late end of normal, but it also depends on the calendar year you got your first period. Over the last 50 years, the average age of menarche has gotten younger and younger. The average age is now 12, as opposed to 16 a hundred years ago...

jerseyangel Proficient
jerseyangel
Posted

Yes, my niece was only 9 when she started.

PreOptMegs Explorer
PreOptMegs
Posted

I just started on BC last week because it had been 2 years since my last period. First, I lost a lot of weight, then the gluten thing, then I continued to have thyroid problems, so finally I should be set up to have one in about 17 days. I hate the bc pills though... tons of bloating/ weight issues and it makes me totally nautious. It sucks because i just got synthroid increased, so I should be losing weight...

Ashley Enthusiast
Ashley
Posted

Mine's the opposite of everybody---mine are getting worse and worse. Ever since Celiac, my periods are much heavier and the pain is getting were I can't tolrate it very well at all. Until like the last two days (6-7), they're HEAVY. Except for those last two days, I'm miserable most of the time. If it's really bad, it's 8-9 days.

Ashley Enthusiast
Ashley
Posted

'Pose I'm gonna have to bump this up to get a reply. If it's better for anyone, just PM me instead.

jerseyangel Proficient
jerseyangel
Posted

Rinku--It interesting how your symptoms mirror mine when I was younger. You previously said that you feel dizzy a lot (like you could faint). I had this for years, along with progressively heavier and painful periods. This began in my teens, and went on (except for short periods after the birth of 2 children) until 2 years ago. I just lived with it, which , looking back was unnecessary. There are several things that can cause the heavy blood loss--but that, very possibly, is what is at the root of your dizziness--because it can lead to anemia. Have you seen a gynocologist? I would strongly suggest you do, and tell him/her about all of your symptoms--including the dizziness. These things can be dealt with--don't make the mistake that I did--I thought it was "just me"--and that I just had to live with it. Not true--Feel free to PM me anytime, and good luck with it :)

carriecraig Enthusiast
carriecraig
Posted

WOW! That is so interesting. I had spotting between periods for almost 3 years straight, and just thought it was my pill and I tried a million of them. Of course I was told I would have spotting when I switched pills - what a vicious cycle.

Now, I am on Yasmin, with lighter periods, no spotting, and they are light.

wolfie Enthusiast
wolfie
Posted

This is a really interesting thread. Since going gluten-free 3 months ago, my periods have definitely changed. First they were more frequent (every 20-21 days). Gyn ran a bunch of tests, nothing wrong, really. Now this month I am a week late (on day 35 now!!). WTH? I am fine with lighter periods b/c mine were ridiculous. I really think going gluten-free does change things. Oh and I am not pregnant, my tubes are tied (or if I am, DH is going to flip! LOL).

mick66 Newbie
mick66
Posted
Mine's the opposite of everybody---mine are getting worse and worse. Ever since Celiac, my periods are much heavier and the pain is getting were I can't tolrate it very well at all. Until like the last two days (6-7), they're HEAVY. Except for those last two days, I'm miserable most of the time. If it's really bad, it's 8-9 days.

Rinku, Mine are exactly like yours, why are we the only ones, is there really something that could be wrong? I have to go see gyno this summer for a pap, but I'm not sure I should wait that long.

This past fall I was in the hospital for something unrelated to this, and they did tests one of them an ultrasound and it showed fibroids, could this be what's causing the heavy periods and painful cramps?

Or is it the gluten free diet? They told me in the hospital that the fibroids should just shrink by themselves. When I have my period, coincidently now!, I feel like shrinking right into bed its so bad!!!!!!

Thanks for that post, I thought I was the only one, Mick

aorona Rookie
aorona
Posted

My cycles were 28 days, but my periods were long (12-17 days!!!). Since being on the gluten free diet for 9 months now, my period have gotten lighter and shorter (5-10 days.) I have also been taking Vitamin K, which I think has helped alot. The Vitamin K should not be taken with a multi-vitamin or Vitamin E, since these can block the effects of Vitamin K. Good Luck.

Guest MyKidsMom
Guest MyKidsMom
Posted

Wow! I could have written that first post...started the same time, am currently the same age and was also diagnosed with PCOS but didn't respond to infertility with conventional PCOS treatments. Before pregnancies I had about 2 periods a year, now I am almost regular. My problem is now I bleed in between and sometimes don't even stop. I think it was causing me to be anemic. I started taking iron and it seems better. One other possible cause for intermittent bleeding is that I now have an IUD.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,667
    • Most Online (within 30 mins)
      7,748
    AubreyMBSMartin
    Newest Member
    AubreyMBSMartin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.