Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk/gluten/what Else?

VydorScope

By VydorScope
in Related Issues & Disorders

Recommended Posts

VydorScope Proficient
VydorScope
Posted

Okay, I have not any any dairy at all since Sunday. SHould I still be feeling symptons?

Today for example, I had hard boiled eggs for break fast, an Orange and a Banananananana for 2nd breakfast, then Oscar Myer Roast Beef and Baloney for lunch. Then Rasins on and off since then. Drinking was only water. I am droping wieght like nuts, but I am jsut basicly trying to make it through with out spending TOO much on DF foods (inaddtion to the gluten-free, and EF we already buy...) .

But today.. I feel like I did on Sunday (not as a bad as Saturday that was the worst since going gluten-free). I started to feel better till today. Yesterday I did not have the RB or the Baloney, but did have cadian bacon and enjoy life begal with my eggs for breakfast. Beef stew for lunch that my wife made in our crock pot was left overs from the night before dinner.

In my mind I am wondering a few things...

1) It was never the milk, but instead it was CC with gluten somewhere. If it was CC, I would definitly still be feeling it today and yesterday was just a cruel trick.

2) It was somthing to do with the RB or Baloney. Niether should have gluten or dairy in them based on thier ingredients, but CC is always possible. I might or might not have had RB or baloney near the time I drank the milk.

3) It was the milk and yesterday was just a cruel trick.

4) I am just gonna be sick for the rest of my life and I need to get over it.

What do you all think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

If you're casein intolerant it might take longer until you stop feeling symptoms. To give you an idea, I've been dairy-free for well over ten years. Well, a couple months ago I decided to start eating raw goat cheese. I was doing so wonderfully with no GI type problems for several weeks. Then all of a sudden my throat started swelling and I was having weird cravings for it throughout the day and all sorts of other weird stuff was happening. So...I stopped eating it and that was about a month ago and yet my body is still in a highly reactive state. I am strongly reacting to soy lecithin and minute amounts of possible CC and having weird symptoms and I don't normally.

That was my really long-winded way of saying yeah - you could still be feeling symptions and you shoud stay off dairy for atleast 4-6 weeks. Then reintroduce it and see what happens. I'm not an expert - that's just based on my life-long experience with dairy allergies and intolerances. Be careful of things that might be cooked in butter. A lot of people overlook that for some reason.

Felidae Enthusiast
Felidae
Posted

I wonder too. I have been gluten-free with wonderful results and then I went dairy free also with great results. But every week I seem to be getting loose bm's. I keep a food diary but I can't see a pattern.

Beef bothers me and I haven't eaten it in at least a year now. You may have to look at various things you are eating. Also weren't you egg free for quite a while because of your son. Maybe your body is just reacting to the eggs being back in your diet.

VydorScope Proficient
VydorScope
Posted
  • Author

Yea on the eggs, but I am runnig out of foods I CAN eat heh. :( I REALY hope milk is not the issue... I can live wiht out bread, but ice cream??? :(

Carriefaith Enthusiast
Carriefaith
Posted

Maybe try a 100% dairy free diet for 2-3 weeks and then try introducing dairy again and see how you feel?

Mahee34 Enthusiast
Mahee34
Posted

vydorscope i'm going through the same thing.....i mean i have a reaction with ice cream but not so much with cheese and milk.....and there are some days where i am super careful about what i eat and it seems like those are my worst days. i had some tests done and aparently my body had too much bad bacteria and not even good bacteria, so i'm one some sweet greek named supplements and they scheduled more allergy tests and a complete scope for the first week in may.

honestly , my saving grace besides immodium, which is just a given. has been exercising. I was a college athlete who busted my knee all to hell and decided to take some time off from the whole working out business. i just recently got back into it and have been sticking with it and it has done wonders on how i feel...maybe it was the mental aspect for me but as the weather gets nicer and you get to go outside more with that adorable son of yours hopefully you'll start feeling better.

lonewolf Collaborator
lonewolf
Posted
Yea on the eggs, but I am runnig out of foods I CAN eat heh. :( I REALY hope milk is not the issue... I can live wiht out bread, but ice cream??? :(

Welcome to my life! No gluten, no dairy (except for occasional raw goat cheese), no soy, no eggs. You'll begin to appreciate sorbet, rice dream, tea dream and smoothies to satisfy your ice cream cravings.

You eat about 5 times as much as I do (and you're probably thin, too :angry: ), so it could be a challenge, but you can live quite nicely on meat, rice, rice pasta, rice bread, rice cakes, nut butter, nuts, fruit, vegies and water. Learn to bake lots of cookies and muffins and pancakes and eat planned leftovers and you'll be fine. Really, feeling good is way better than eating what you want, and your restrictions will probably be temporary.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted
1) It was never the milk, but instead it was CC with gluten somewhere. If it was CC, I would definitly still be feeling it today and yesterday was just a cruel trick.

I think it sounded like a glutening from your previous posts. In that case, I guess you should wait a couple more weeks with dairy, because you won't be able to tell symptoms apart otherwise. It's a good idea anyway, because that way you really have a good break from dairy, so you should react to it noticeably IF you indeed have a problem with it. So my opinion would be, wait a bit longer.

BTW, when I get glutened, I often feel the worst about a week after the glutening, even though I might start feeling better in between...

Pauliina

VydorScope Proficient
VydorScope
Posted
  • Author
Maybe try a 100% dairy free diet for 2-3 weeks and then try introducing dairy again and see how you feel?

:( Cause I wnat ice cream!

Been 100% DF since Sunday (to the best of my knowledge), so not off to a bad start, just dunno. If I can get to Wild Oats so I can at least get some varity of foods it wont be so bad....

bluejeangirl Contributor
bluejeangirl
Posted

Did you have the roast beef and bolongna meat on saturday/sunday? I stay away from processed meats especially bologna. It seemed like the older I got the more I had to eliminate processed foods and stick to foods in their naturally state. So I would have to roast the beef myself cool it and slice it for sandwiches.

There is a sausage I can tolerate. Its made with ground chicken. Its by al fresco and its 75% less fat no artificial ingredients and it comes in different flavors. Its wonderful and quick. You might have that in your store. Alot of times its in the freezer cases.

So consider the little hidden ingredients, the ones they put under flavorings etc and flavor inhancers. MSG will get me so sick its crazy.

Gail

VydorScope Proficient
VydorScope
Posted
  • Author

Do not think so BUT I think I did have OM Hotdogs, and the ingredients in thier hotdogs and baloney (only get all beef of each) are essentialy the same.

as mentioned (with a cute story) in this thread:

Open Original Shared Link

I gave blood this am for an IgE test, but I am struggling to remember what he tested for. I think it was Casien, Whey, Oat, Beef, Soy, And some other things that i realy do not recall. I should call and ask. Since that test is out there I think I am gonna back of the DF a bit and coast till results come in.

Rachel--24 Collaborator
Rachel--24
Posted
If you're casein intolerant it might take longer until you stop feeling symptoms. To give you an idea, I've been dairy-free for well over ten years. Well, a couple months ago I decided to start eating raw goat cheese. I was doing so wonderfully with no GI type problems for several weeks. Then all of a sudden my throat started swelling and I was having weird cravings for it throughout the day and all sorts of other weird stuff was happening. So...I stopped eating it and that was about a month ago and yet my body is still in a highly reactive state. I am strongly reacting to soy lecithin and minute amounts of possible CC and having weird symptoms and I don't normally.

That was my really long-winded way of saying yeah - you could still be feeling symptions and you shoud stay off dairy for atleast 4-6 weeks.

Thanks for your post Meredith :)

You answered some questions for me.

When I'm glutened I get highly reactive to other foods, chemicals, etc. Even though I've been gluten-free almost a year I'm still in this reactive state more often than not....I react to c.c. and have had to stick to whole foods. I know for a fact dairy is a problem...it messes me up just as much as gluten does but I never thought to check for all sources of casein. I just try to avoid the obvious but still tried stuff that was non-dairy like cool whip. I didnt realize it had casein and figured it was some other ingredient making me sick.

I have just figured out that I'm casein intolerant and this is probably why I've never fully healed and have stayed "reactive". I've never been casein free and both of my supplements contained dairy. I was having weird cravings for my supplement (tasted like milk) and this is what clued me into the intolerance. This was only 3 days ago and since I stopped taking them my energy level has skyrocketed and my headaches and brainfog have lessened. The past few months I was dragging through the day...not as bad as pre-gluten-free....but still pretty bad. Its been like this since the holidays when I ate a fair amount of dairy and even though I backed off I then started with the supplements.

My body is pretty messed up and still havent gained much weight since going gluten-free....could dairy have been holding me back all this time? I still have rumbling in my intestines, still feel reactive...but its a tiny bit better now. The fact that my brainfog lifted and my energy is good tells me something is happening because this is exactly what I experienced when I went gluten-free. If casein was the reason for all this how long do you think it could take to get out of this "reactive" state and maybe start gaining some weight?

I'm doing SCD right now so my diet is very plain and hypo-allergenic. Grain free, dairy free, chemical free, etc. Even though losing dairy is very sad for me (I'm an addict) I'm excited about whats occured over the past 3 days. :)

flagbabyds Collaborator
flagbabyds
Posted

when i get casein, i get reactions for up to a week. You should be feeling better soon, and you will not be sick for the rest of your life, that would just suck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    2. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    4. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
    5. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      It could be a fructan intolerance? How do you do with dates? https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748
    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.