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Chances of being coeliac


JoJo0611

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JoJo0611 Rookie

I have had the tTG-IgA blood test my result are >250.0 

I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies. 
 
what are the chances it’s not coeliacs. 
waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 


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trents Grand Master

What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.

JoJo0611 Rookie

TTG IgA reference range 0.0 to 14.9 KU/L

trents Grand Master

If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 

Wheatwacked Veteran
5 hours ago, JoJo0611 said:

what are the chances it’s not coeliacs. 

Welcome @JoJo0611.

That is a valid question.  Unfortunately the short answer is slim to none. 

Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box.

Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease.

A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed. 

Wheat has a very significant role in our economy and society.  And it is addictive. 

Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease.

Milk protein has been connected to elevated levels.  

Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste.

The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac.

I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.

 

 

Scott Adams Grand Master

It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

JoJo0611 Rookie

Thank you all. 


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  • 2 weeks later...
JettaGirl Newbie

This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.

trents Grand Master

@JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 

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