Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

International Walk For Celiac Disease

lisaemu

Recommended Posts

lisaemu Contributor
lisaemu
Posted

Not sure which message topic to put this in...but anyone doing the walk for celiac disease? Its may 21st in Michigan, but it seems like theres a few in other places around the country.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IronedOut Apprentice
IronedOut
Posted

I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

Rusla Enthusiast
Rusla
Posted

It is also in May in Calgary, Alberta.

Guhlia Rising Star
Guhlia
Posted

Oh my GOSH!!! When's the one in Baltimore?!?!?! Where in Baltimore?!?!?!? Is there a website?!?!?! Please please please, more info!!!

IronedOut Apprentice
IronedOut
Posted

Open Original Shared Link

Edit - Hit the post button way to fast on that one!!

Here is the info on the walk in Baltimore. Hope to see you there.

moonunit Apprentice
moonunit
Posted

It's in San Diego on May 20th. I plan to be there and bring as many friends and family with me as I can get!

Lauren M Explorer
Lauren M
Posted
I'm walking in Baltimore!!

I am way over the top with excitement about this and my family and friends are all tired of hearing about it. I am thrilled to feel well enough to do it. :P

Good luck to you up north. :D

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mart Contributor
mart
Posted

No walk going on here :( . I think we're the only people with Celiac in Miami!

Rusla Enthusiast
Rusla
Posted

I would like to do the walk here but I am not in my former race walking shape.

flagbabyds Collaborator
flagbabyds
Posted

i wish i could do the one in san diego, but i have a major all cali soccer tournament that and the next weekend.

Lauren M Explorer
Lauren M
Posted

For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

Corrine Rookie
Corrine
Posted

Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

carriecraig Enthusiast
carriecraig
Posted

Anyone walking in the Metro NYC one on June 4th?

Lauren M Explorer
Lauren M
Posted
For anyone who wants to walk but can't, remember that you can still donate for the cause ;)

Open Original Shared Link

Sorry to keep pushing it, but I'd appreciate whatever you can give, we're all working together! My goal is $2000 - help me achieve it! :blink::P

- Lauren

THANK YOU to whoever sponsored me! ;):D

- Lauren

plantime Contributor
plantime
Posted

I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Rusla Enthusiast
Rusla
Posted
Rusla,

When is the one in May? I hope to be visiting Calgary May 12th-16th. And thanks for the info on Moxi's. My daughter was happy to hear that.

Corrine

Corrine, unfortunately I just saw on the site that it has been postponed until 2007. I guess that gives me time to get in shape for it. I am glad it made your daughter happy. They don't have a big selection but they had somethings and it was good.

Lauren M Explorer
Lauren M
Posted
I have a bone to pick with the quiz on your website, Lauren. One of the questions is true or false: you have to have an intestinal biopsy to confirm diagnosis of celiac disease. The answer is FALSE!! The biopsy is the gold standard, but it is not the only way to diagnose celiac, nor is it required for confirmation.

Sorry, but that's not really "my" site - ie I didn't write that. That's the generic webpage for people who are participating in the walk, and I just added my name and a couple personal touches. I couldn't change everything though. Sorry for the confusion.

- Lauren

plantime Contributor
plantime
Posted

I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Lauren M Explorer
Lauren M
Posted
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

hehe, yes I know better than to put that answer! I wonder who made the quiz? I actually haven't looked at it, I hope it doesn't have any other inaccuracies!

And thank you!

- Lauren

carriecraig Enthusiast
carriecraig
Posted
We didn't know about it.

Where can I get more information about it? We're interested!

Postd by Julia's Husband

Hi Julia's husband,

Here is the link for the NYC walk: Open Original Shared Link

Rusla Enthusiast
Rusla
Posted
I wondered why you would put that answer! Thanks for the link, I can't do the walk, but I do want to sponsor someone. Now I just have to get my husband to say OK! (It's his money I'll be using, so I think I should clear it with him, first! :D )

Make him walk in it and sponsor him.

  • 4 weeks later...
Becky6 Enthusiast
Becky6
Posted

Belle and I will be walking at the one in MN!

  • 3 years later...
hsm123psu Newbie
hsm123psu
Posted

I'm doing the one in B-more too! I'm team Celiac4Life (which currently only consists of myself and my Mother haha). I was actually going to post on here to see if anyone would like to (pretty please) sponsor me.

You can sponsor by going to this site:

Open Original Shared Link

And if there are any individuals who would like to join my team, let me know!

- Lauren

is there a link that shows groups/teams for the Baltimore event? Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.