Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Navigating gluten-free And Casein Free

teacher1578

Recommended Posts

teacher1578 Apprentice
teacher1578
Posted

I was Dx 11/04. Now thinking I need to avoid dairy. I am trying to educate myself about dairy free and casein free. I am a bit confused. Any advice would be much appreciated. For example, brands to eat, what to look out for, are eggs okay? Thanks again! ---Jessica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

i'm casein free, and i eat eggs, if i didn't, i would have like no protein. For milk, i like Almond Breeze vanilla almond milk, and then you pacific rice milk for baking. Rice Dream is NOT gluten-free, it has barley in it. I like Whole Fruit sorbet for my dessert, it is really good, and they are all gluten-free/CF, and very tastey. there is a website Gluten-free Casein-free.org i think, and they have a lot of good resources, w/ a recipe book and a shopping guide to buy online. they are for autistic children, but they have some really good resources for gluten-free/Cf diets.

To look out for. Sodium/potassium lactate is a really common preservative, whey is bad, and basically chese, milk, butter and other stuff like that.

YOu can PM me or e-mail me with some more questions,

it should make you feel better.

Nancym Enthusiast
Nancym
Posted

You need to look for casein, milk and possibly whey on labels. Eggs are ok, its just milk derived products that have casein in them.

teacher1578 Apprentice
teacher1578
Posted
  • Author
i'm casein free, and i eat eggs, if i didn't, i would have like no protein. For milk, i like Almond Breeze vanilla almond milk, and then you pacific rice milk for baking. Rice Dream is NOT gluten-free, it has barley in it. I like Whole Fruit sorbet for my dessert, it is really good, and they are all gluten-free/CF, and very tastey. there is a website Gluten-free Casein-free.org i think, and they have a lot of good resources, w/ a recipe book and a shopping guide to buy online. they are for autistic children, but they have some really good resources for gluten-free/Cf diets.

To look out for. Sodium/potassium lactate is a really common preservative, whey is bad, and basically chese, milk, butter and other stuff like that.

YOu can PM me or e-mail me with some more questions,

it should make you feel better.

Thanks so much for the advice. I am still deciding if I want to go that route because I love yogurt. Also, what to use instead of butter and cheese? I also dont know if casein is really the reason I dont feel well. I was diagnosed 11/05, not 11/04. So I still dont feel well even eliminating gluten. Just trying to figure it all out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,330
    • Most Online (within 30 mins)
      7,748
    TamSta214
    Newest Member
    TamSta214
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      Am I celiac or not?

      By trents · Posted

      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Am I celiac or not?

      By trents · Posted

      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Okay, that makes sense - so based off of the 90% odds that it is positive, it’s worth switching to fully gluten-free? How strict do I need to be with cross-contamination, handling, etc. Is it something that can go by feel, for instance if I feel okay making my family sandwiches and handling the bread as opposed to eating it, or is it something that is causing silent damage even if I feel fine? Also, do I make it clear to my rheumatologist and other medical providers that I am celiac? Or will they veto that due to negative endoscopy? Thanks again for the help!
    • Scott Adams
      Am I celiac or not?

      By Scott Adams · Posted

      If you look at the article that I shared you will notice that "The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease," so your results indicate that you very likely have celiac disease, especially if you also have symptoms while eating gluten that go away when you stop eating it (although many celiacs don't have obvious symptoms).
×
×
  • Create New...