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Does Anyone Just Have Celiac Only?


Moongirl

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MallysMama Explorer

Before discovering this website - I, too, would have never thought myself to be "lucky" to just have Celiac. Now, however, after reading many other's stories - I am lucky to have been diagnosed so early in life. I hope to avoid so many of the other life threatening troubles that can plague our unhealthy bodies.


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TCA Contributor

I think my son only had Celiac. He used have an intolerance for dairy, but that seems to have gone away now that he's been gluten-free for a while. Hopefully he won't develop any problems since we caught it.

My daughter is a whole different story. We've yet to figure out all of her problems. Hopefully her problems will improve and she won't develop any more.

I'm sooooo thankful to have found the Celiac. It's so hard to watch your kids suffer. I'm praising God for the diagnosis! :)

num1habsfan Rising Star

i only wish I have just Celiac itself!! But like a lot of us in this post said, we went too long before being diagnosed. I have over 80 different problems that I didnt have before I got celiac and went gluten-free. and the list always seems to be growing!

maybe they should just come up with a cure for everything else, so we can finally all say we have just celiac :lol:

~lisa~

ebrbetty Rising Star

I wish... I have Fibro, chronic Fatique, discord lupus, 3 herniated disks in my neck, hypothyroid, gerd, Dyspepsia etc :blink:

luvs2eat Collaborator

I seem to only have Celiac... altho a year or so after diagnosis, my ANA blood level came back just high enough that my doc had me tested for Lupus. No symptoms or anything... just a tiny raised blood level that I get checked every year. Other than that... nothing but Celiac for me! (knocking on wood over here!!)

LaurieAnn13 Newbie

So far, it's only celiac for me also.... Thank God!!!

I was diagnosed when I was 21, sounds like that is fairly young?!

Carolita Rookie

I was told I had Candidysis one year before my celiac disease test came back +. I suffer from allergies and Raynaud's as well. My iron levels came back very low a few days ago (when my celiac disease test came back +) and that is making me feel miserable. I hope I don't see anything else coming on though, I think my nerves have been affected some as well since I'm always very jumpy and stuff (very nervous about everything).

I have a question. Have some of you gotten worst after going Gluten free then? I thought the damage was reversable. Now I'm really scared. I don't want to feel even worst.

Carol :(


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Lauren M Explorer
So far, it's only celiac for me also.... Thank God!!!

I was diagnosed when I was 21, sounds like that is fairly young?!

I was diagnosed at 21 also! I'm thankful it was at a fairly young age, and I think it was triggered only a couple of years before. At 21 I was old enough to take the diagnosis seriously, but young enough to (hopefully!) not have permanent damage.

- Lauren

par18 Explorer

Was Dx'd at 55 and as far as I can tell based on the positive diet results that is all I have.

Tom

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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
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