Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Problems


PreOptMegs

Recommended Posts

munchkinette Collaborator

Does the "normal" range vary depending on your hospital? I'm just curious. I got all my test results back yesterday. I'm still really tired even though my iron levels are improving.

My TSH is 1.32, and the normal range says 0.49 - 4.67. I looked back at my tests from the past three years, and it looks like my tests are all 1.2 - 1.8.

My free T4 is 0.90, but I've never had this test before so I don't know what it means.

In fact, most of my tests (thyroid tests, iron and bloodcount tests) are in the "normal" range, but in the really low end.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 81
  • Created
  • Last Reply
PreOptMegs Explorer

TSH of 1.32 is pretty good. I also do no know about Free T3/4 and what is a good level for them. You say that you still don't have energy?

munchkinette Collaborator

OK, just wondering. My gran had to take thyroid supplements although I don't know at what age she started. She had problems with wheat too, so that's why I was curious. I have more of her problems (and looks!) than from any other family member.

Yeah, I'm still always tired. My ferritin test came back yesterday though. It's still very low, but it's in the normal range for the first time in three years!

My doctor kinda ticked me off though. I gained about 5 lbs since last time, which barely puts me into the overweight category. (Total BS, since my frame is so large.) Um yeah, NO kidding I should lose some weight. How about she help me figure out why I'm so freakin' tired all the time? Then maybe I could exercise more. It's not like I'm lazy. I used to be able to run 3-6 miles!

Lymetoo Contributor
Yeah, the damn TSH. Doctors think this is just the best thing in the world.... I hate it. "Normal" range is rediciulous --- from 0.3-5 or something. If my TSH is even around 2, I don't lose weight. It is so hard trying to get the right synthroid dose so I can actually lose weight.

My dr started me on Armour Thyroid several months ago. Can't say I've lost weight yet, but I'm still in the process of finding the correct dosage for me. My TSH is also within normal range. I think some people are unable to convert T3 to T4 or something like that.

I'm also in Missouri if you'd like to know who my dr is. He's awesome!

PS...Carrots contain alot of sugar and are fairly high on the glycemic index. This could be the problem.

ms-sillyak-screwed Enthusiast

I'm leaving in a few days to go to Boston / Havard to see a specialist in celiac disease. Before I go, I'm going to have my blood drawn and this time I'm going to have them test my T3 along with the thyroid panel they do. I have kept a chart of levels.

I also wonder if it has something to do with T4 converting to T3??? I don't know that difference in FREE T3 or FREE 4 ???

I will say this - alternating my doseage of medication has helped with my symptons. 75 mcg - 88 mcg - 75 mcg and so on.

munchkinette -- Yes, I have noticce that the number range are different if I go to the lab, or dr's office... I wish they would get it right... And the other thing one of my doc's brought up (my neurogist). The time of day you have the test done has something to the results. Like if you took your medication 12 hours before or 2 hour before... follow me?

jennifervan -- I looked up what was in those rice products you are eating. They don't list their ingredients. But say they are free of the deadly 8 allergens.

I know that after several years gluten and dairy free, around the time the hyper-nodule came about I was no longer able to eat, legume = soy, corn, potatos, rice, and night shade veggies. I since removed them from my diet and body from everything - my mouthwash, toothpaste, hair shampoo, make up, to the soap I wash my body with. You have no idea how hard it is to find a body soap that doesn't contain coconut or soy. Both effect the thyroid. Anyway, what I'm getting at - is - you might have a problem with a secondary food intolerance and not know it. Maybe it's rice? Or corn? Or the soy? Soy is hidden in almost everything. And they can call it natural flavoring, or etc. I have been working very hard at the rotation diet. I will say this, it is helping, slowly, but it is helping.

Lymetoo -- You are right about the carrots. They are also on my 3 day rotation now.

I have been able to eat, small amounts of rice and potato skins on my rotation of 5 days out...

Keep a food/body journal. I do. It is amazing what you learn.

zip2play Apprentice

Add me to the list of people who have WHEAT issues and Thyroid issues. After a year of testing, they finally found the problem. My numbers have always been in the normal range, although in the low end of normal. They did a sonogram last week, I have several nodules on my thyroid and a fairly good sized cyst. I am scheduled for a needle biopsy on July 26th. Hope to know more then.

So, is wheat issues and thyroid issue related?

MOnica

lindalee Enthusiast
I once read that going prematurely grey is a symptom of thyroid disease. Has anyone else read this? Has anyone else experienced this? I went totally grey in my early 20's (thank God for L'Oreal Preference!)

Karen

execellence is gluten-free too, right? Sorry, can't miss an opportunity :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,928
    • Most Online (within 30 mins)
      7,748

    Grams H
    Newest Member
    Grams H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.