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Thyroid Problems


PreOptMegs

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munchkinette Collaborator

Does the "normal" range vary depending on your hospital? I'm just curious. I got all my test results back yesterday. I'm still really tired even though my iron levels are improving.

My TSH is 1.32, and the normal range says 0.49 - 4.67. I looked back at my tests from the past three years, and it looks like my tests are all 1.2 - 1.8.

My free T4 is 0.90, but I've never had this test before so I don't know what it means.

In fact, most of my tests (thyroid tests, iron and bloodcount tests) are in the "normal" range, but in the really low end.


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PreOptMegs Explorer

TSH of 1.32 is pretty good. I also do no know about Free T3/4 and what is a good level for them. You say that you still don't have energy?

munchkinette Collaborator

OK, just wondering. My gran had to take thyroid supplements although I don't know at what age she started. She had problems with wheat too, so that's why I was curious. I have more of her problems (and looks!) than from any other family member.

Yeah, I'm still always tired. My ferritin test came back yesterday though. It's still very low, but it's in the normal range for the first time in three years!

My doctor kinda ticked me off though. I gained about 5 lbs since last time, which barely puts me into the overweight category. (Total BS, since my frame is so large.) Um yeah, NO kidding I should lose some weight. How about she help me figure out why I'm so freakin' tired all the time? Then maybe I could exercise more. It's not like I'm lazy. I used to be able to run 3-6 miles!

Lymetoo Contributor
Yeah, the damn TSH. Doctors think this is just the best thing in the world.... I hate it. "Normal" range is rediciulous --- from 0.3-5 or something. If my TSH is even around 2, I don't lose weight. It is so hard trying to get the right synthroid dose so I can actually lose weight.

My dr started me on Armour Thyroid several months ago. Can't say I've lost weight yet, but I'm still in the process of finding the correct dosage for me. My TSH is also within normal range. I think some people are unable to convert T3 to T4 or something like that.

I'm also in Missouri if you'd like to know who my dr is. He's awesome!

PS...Carrots contain alot of sugar and are fairly high on the glycemic index. This could be the problem.

ms-sillyak-screwed Enthusiast

I'm leaving in a few days to go to Boston / Havard to see a specialist in celiac disease. Before I go, I'm going to have my blood drawn and this time I'm going to have them test my T3 along with the thyroid panel they do. I have kept a chart of levels.

I also wonder if it has something to do with T4 converting to T3??? I don't know that difference in FREE T3 or FREE 4 ???

I will say this - alternating my doseage of medication has helped with my symptons. 75 mcg - 88 mcg - 75 mcg and so on.

munchkinette -- Yes, I have noticce that the number range are different if I go to the lab, or dr's office... I wish they would get it right... And the other thing one of my doc's brought up (my neurogist). The time of day you have the test done has something to the results. Like if you took your medication 12 hours before or 2 hour before... follow me?

jennifervan -- I looked up what was in those rice products you are eating. They don't list their ingredients. But say they are free of the deadly 8 allergens.

I know that after several years gluten and dairy free, around the time the hyper-nodule came about I was no longer able to eat, legume = soy, corn, potatos, rice, and night shade veggies. I since removed them from my diet and body from everything - my mouthwash, toothpaste, hair shampoo, make up, to the soap I wash my body with. You have no idea how hard it is to find a body soap that doesn't contain coconut or soy. Both effect the thyroid. Anyway, what I'm getting at - is - you might have a problem with a secondary food intolerance and not know it. Maybe it's rice? Or corn? Or the soy? Soy is hidden in almost everything. And they can call it natural flavoring, or etc. I have been working very hard at the rotation diet. I will say this, it is helping, slowly, but it is helping.

Lymetoo -- You are right about the carrots. They are also on my 3 day rotation now.

I have been able to eat, small amounts of rice and potato skins on my rotation of 5 days out...

Keep a food/body journal. I do. It is amazing what you learn.

zip2play Apprentice

Add me to the list of people who have WHEAT issues and Thyroid issues. After a year of testing, they finally found the problem. My numbers have always been in the normal range, although in the low end of normal. They did a sonogram last week, I have several nodules on my thyroid and a fairly good sized cyst. I am scheduled for a needle biopsy on July 26th. Hope to know more then.

So, is wheat issues and thyroid issue related?

MOnica

lindalee Enthusiast
I once read that going prematurely grey is a symptom of thyroid disease. Has anyone else read this? Has anyone else experienced this? I went totally grey in my early 20's (thank God for L'Oreal Preference!)

Karen

execellence is gluten-free too, right? Sorry, can't miss an opportunity :P


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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