Funny Smell?!

[coco-loco]

Hi Guys,

I'm new here. I apologise if this subject has been discussed before, I've read through the older posts and can't find mention of it.

I was diagnosed with celiac (through bloodtesting and endoscopy) about 3 and a half years ago at the age of 17, and since then have gradually got my health pulled together after years of feeling terrible with all the symptoms going! However, sometimes, no matter how careful I am, I end up eating a bit of gluten (usually as a result of sharing a food preperation area with my non-celiac university flatmates). This puts me out of action for a few days, with all the usual bloating, gas and loose bowels. What bothers me is that sometimes I think that having the gluten in my system makes me smell awful! I'm convinced that I produce a weird body odor that resembles something like animal dung. Has anyone else experienced this? I don't mean to worry anybody if I'm just being paranoid!

Thanks and take care x

[Guest nini]

ya know, before I went gluten-free I used to be so concernd with BO! I felt like I stunk all the time!

[coco-loco]

Thanks for your response. Maybe the gluten just gets us so run down that something like that can happen!

[Jenn2005]

Before my husband went gluten free he would sweat a lot and the arm pit area of his shirts was always yellow. Even on dark shirts (like navy or denim it would show a stain). He didn't have any different odor but the yellow stains were very annoying. We were just talking the other day about how this has completely disappeared. Don't know if it was related to gluten or just a coincidence (sp??).

Jennifer

[Guest nini]

I used to sweat so bad in my underarms that I had to start using MEN'S anti perspirant... I've gotten used to using the strong stuff for men, but I was thinking recently that I could probaly get away with a nice feminine deoderant cos I don't appear to be as stinky anymore!

[Guest Robbin]

Same problem here, and since going gluten-free 3 months ago, I just noticed I smell better! I used to shower in the am and before bed. I also noticed my urine was really stinky. That has gone too. Weirder and weirder

[kbtoyssni]

I used to smell no matter how much deodorant I put on. One day a few months after going gluten-free I noticed that I didn't smell anymore. Body odor is often related to things you eat.

[schuyler]

Same problem here, and since going gluten-free 3 months ago, I just noticed I smell better! I used to shower in the am and before bed. I also noticed my urine was really stinky. That has gone too. Weirder and weirder

Me too!

[ravenwoodglass]

Since gluten is a whole body toxin the body is going to try and release it through not just the bowels but also through the blood stream and urinary tract. The body is going to try and rid itself of this toxin in any way it can, I think this is the reason many notice a increase in urination and sweating when we get glutened, what we may be noticing is the byproducts of the process being excreted. Kind of like when people eat a lot of certain strong spices or have drank heavily the night before you can smell it on them

[nikki-uk]

Before dx I had to throw away a few of my hubbies T-Shirts and quilt covers.

Where he had sweat,it used to completely take the colour out of the material-like when you spill bleach.

Toxic sweat!

He also used to urinate very frequently before going G.F.It makes sense that the body was trying to 'flush' the toxin out.

He also had a peculiar smell about him back then.I can only describe it as an 'ill' smell.'Not well smell!!'

[coco-loco]

He also had a peculiar smell about him back then.I can only describe it as an 'ill' smell.'Not well smell!!'

[Rusla]

Same problem here, and since going gluten-free 3 months ago, I just noticed I smell better! I used to shower in the am and before bed. I also noticed my urine was really stinky. That has gone too. Weirder and weirder

I am not alone! My urine smelled so bad it would almost make me sick. It was a strange smell. I had a shower at least twice a day then. Now the only time it happens is when I am glutened.

[jerseyangel]

I can definately relate to the "smell" thing, too. It was much worse in the several months before diagnosis--(when I was at the absolute sickest)--that's when I first noticed it. Now, if I'm glutened and the reaction lasts more than a few days, I can detect it again. Like someone said, it's like the body is getting rid of the offending protein any way it can.

[Guest cd&dhspruehead]

Yes I know that smell well.The smell of old noodels that was out of the fredg to long.The wrong poison wheat noodles.People just don't get it do thay.GLUTEN is the cause of so many stuped things.It not just in food,but in other things as well.THE AIR because of wheat dust gets to me alot.IT SUCKS!!!!trying to get away.

[coco-loco]

That's funny you should mention noodles! I've ofter thought gluten makes me smell like a mixture of burnt toast and Chinese food. Must take extra, extra care in the future!!

Why isn't this mentioned as a symptom?

[Rusla]

It is not a symptom because they can't think outside the box. They don't think it can affect smell. Actually they probably don't list it because this is all in our heads.

[evie]

I am so glad this subject came up!! Have same problem, do rest of you have unusual chills and sweats too? I am so new at this celiac problem,biopsy did not show celiac but have many etc symptoms and am staying on gluten-free diet. My diarhea is better somewhat but am so very weak. With a sore mouth it is hard to eat but am trying to eat as much protein as I can.

Since i have milk allergy + several other foods finding food to eat is hard. My Dr. thinks i should go on gluten for months, have biopsy again but I do not think I could take that. Have lost 20 lbs, should not lose more. Anyone have similar experience?

Sorry to go gloomy gus but still trying to adjust to situation!! THX for listening.... Keep up the good work all.

evie

[nikki-uk]

I am so glad this subject came up!! Have same problem, do rest of you have unusual chills and sweats too? I am so new at this celiac problem,biopsy did not show celiac but have many etc symptoms and am staying on gluten-free diet. My diarhea is better somewhat but am so very weak. With a sore mouth it is hard to eat but am trying to eat as much protein as I can

evie

Hubbie (who has celiac disease )used to suffer constantly from 'night sweats' (so bad he would have change his top),but also suffered from chills ,when everyone else in the house was hot.It's like his thermostat went haywire.

These symptoms went away after a couple of months G.F.

My husband also found it hard to eat adequate amounts.He had a sore mouth and found it very difficult to swallow-it was such an effort.Again,a few months in these symptoms subsided and his appetite has increased.

Hang in there!

[Guest BERNESES]

I am so glad this subject came up!! Have same problem, do rest of you have unusual chills and sweats too? I am so new at this celiac problem,biopsy did not show celiac but have many etc symptoms and am staying on gluten-free diet. My diarhea is better somewhat but am so very weak. With a sore mouth it is hard to eat but am trying to eat as much protein as I can.

Since i have milk allergy + several other foods finding food to eat is hard. My Dr. thinks i should go on gluten for months, have biopsy again but I do not think I could take that. Have lost 20 lbs, should not lose more. Anyone have similar experience?

Sorry to go gloomy gus but still trying to adjust to situation!! THX for listening.... Keep up the good work all.

evie

Oh yeah! I had horrible chills/night sweats for the longerst time. Even after 6 months gluten free I still had goosebumps all the time. Last summer, it could have been 90 degrees out and I was in a sweatshirt. And it wasn't a "normal" kind of cold either. My body temperature, I think, is finally returning to normal. I'm still not as warm as I used to be, but it's much much better.

Night sweats that would wake me up, I'd have to change the sheets in the middle of the night, take a shower and then try to go back to sleep. Those are all but gone- except when glutened, but even now they are not nearly as bad as they were when I was healing.

I lost 20 pounds too. And then was gluten-free for 2 months before I did the gluten challenge for the biopsy (which came back negative). It was really, really hard. I'm not trying to talk you out of it because only you can ultimately decide if that's the kind of diagnosis you NEED. In retrospect, I wish I hadn't done it because it was a miserable time and my biopsy still came back negative. hang in there! B

[Rachel--24]

Hubbie (who has celiac disease )used to suffer constantly from 'night sweats' (so bad he would have change his top),but also suffered from chills ,when everyone else in the house was hot.It's like his thermostat went haywire.

These symptoms went away after a couple of months G.F.

Me too. I had the same thing with body temp. being off and real bad night sweats/chills. I dont get the night sweats anymore and only rarely get chills.

As far as the smell thing goes...its really weird but for a couple of years before I even got sick I started having more body odor only under my right arm....left arm was pretty much odor free but right arm was NOT. This got sooo much worse as I started having symptoms but mainly just on that one side. If I eat something wrong the odor comes back and as I start feeling better it goes away. It must be the body trying to detox or something. Maybe since this started happening while I still felt healthy the gluten was already causing me problems on the inside...I just didnt know it yet.

[jojoe72]

I can completely relate. Before going gluten-free I would smell like ammonia after I would go to the gym. I never saw a connection to the diet but now that I think about it, I haven't had this happen in about 3 months. Maybe there is a connection.

Joe

[Guest cd&dhspruehead]

Noodles is what I use to eat ALOT OF before going gluten-free.Wheat was also in the sope,shampoo,ect.,ect.so what ever I did to ''smell better''just was an all out war.Coeliac UK says that it's ok to use these things as long as its not ingested.OOOOOOOOOYYYYYYYYAAAAAAAHHHHHHHHHH RIHGT!!!! Here in the US were saying don't use ANY thing with ANY wheat product.There are gluten-free products that are safe to use.Wheat is also in meds.as a filler.Exsplaining the smell to people is another drag.Us gluten celiac know the stories of smelly poop and passing of gas,so why not this subject.Will for some of us its the stegma. ph34r: Some have lost jobs over smelly poop,body oder,passing gas.Celiac is one of the things keeped quiet by doctors.MONEY!!!!!! is spent on tests,but not the one that needs to be run.gluten-free means food not meds.Don't get me wrong there are some docters who are worth there salt.NOT THAT MANY.The way I found out about celiac disease was though a Diabtic Self Maneger magizane.My doctor didn't tell me a @#$%^^**thing.In being off gluten I smell great [unless the room air is wheat fogy],my energy is almost back,and I am glad to know I'm not alone.

[SHE]

When I take magnesium to help w constipation, eliminations smell