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steveindenver

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steveindenver Contributor
steveindenver
Posted

Just want to officially say hi to everyone and let them know this message board has been a huge help for me. I received my blood work results almost a week ago, and am awaiting my biopsy results, but the doc said for the most part, "You've got Celiac". So, I will trying to bring awareness to this disease among family and friends. I know my mom will not understand, and will be worried. Typical Jewish mom! :-) I am just looking forward to my first day of not having the trots and having a solid BM again.

I've found a support group but the next meeting is on June 1 (so over a month from now!). So until then, this board is my support.

Thanks everyone

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lonewolf Collaborator
lonewolf
Posted

Welcome! Hope we can be of help to you!

Rusla Enthusiast
Rusla
Posted

Welcome to the group. I have been unable to make it to any of my support meetings because of when they are held. I am sure glad I have this place for support.

jerseyangel Proficient
jerseyangel
Posted

Hi Steve--I just wanted to welcome you in! :) You have come to the right place! Feel free to ask any questions that might come up along the way--and that goes for your mom, too :D If you need any help going gluten-free, just let us know.

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the group. It's a tough transition at first, but like all new skills, once you get the hang of it, it'll be easier. You've found a wonderful, supportive, informative, helpful bunch of people who'll have lots of information and support for you - and will welcome any information and support you have as well! :-)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hi and welcome! I am still kind of new at this myself. I just wanted to let you know from my own experiences that this is a place full of wonderful people with some great advice. Any questions you might have you can ask here and someone somewhere will have somesort of answer. Its amazing! The support you receive here is golden. Again, welcome to our group!

DingoGirl Enthusiast
DingoGirl
Posted

Hi Steve - - this is a great place for questions and answers, really nice people. I am new also and pleased to report that my bowels "shaped up" nicely and pretty quickly on the gluten-free diet. Welcome!

Susan

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TCA Contributor
TCA
Posted

Welcome! Let us know what we can do to help!

steveindenver Contributor
steveindenver
Posted
  • Author

Thanks, everyone. It's nice to have this kind of support. I can't imagine doing this without the Internet. I got a little scared today, since I am moving into the "unknown zone" but then I calmed down and realized, there is no reason to be scared. This is a healthy change, one I am in control of with my diet, so no reason to be scared.

Guest nini
Guest nini
Posted

welcome to this board! you will find all kinds of useful information here and lots of joking around and tons of emotional support! ask any questions you may have and we will do our best to answer!

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  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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