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Are These Symptoms?


thezoo17

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thezoo17 Apprentice

Hello,

Just wondering if someone out there has ever had these symptoms?

1). Blood shot eyes

2). Trapped gas in hips & buttocks

3). hands falling asleep in the middle of the night

4). leg and ankle completely numb and tingly all the time

Also, can anyone tell me if Celiac disease is also a rheumatic disease?

I had a brown spot with pea sized lumps in it on my ankle some years ago,

I went to a foot specialist and he did a biopsy and told me that I had some kind of

rhuematic disease. I have since been dx'd w/fibromyaglia and I just thought

fibro was the rheumatic disease he was talking about but now I am not so sure.

Thanks for any input you can give.

Thanks, Joyce


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mouse Enthusiast

Fibro can give you the pea size lumps. This can happen in various parts of your body. They come and then just leave. Fibro is a Arthritic syndrome. Mostly people with Fibro feel pain, tiredness and have bad sleeping patterns. It is like a viscious cycle - first the pain, then the pain wakes you up, then the fatigue sets in. Sometimes you can just get unbelivable fatigue that will last for days, then sometimes a depression sets in.

Celiac Disease is not an arthritic disease. It is inherited and is an auto-immune disease. Celiac Disease can cause many other auto-immune diseases. There are over 200 symtoms for Celiac and you do not have to have all of them nor do you have to have any symptoms to have the disease. Some people with Celiac have no symptoms, but were diagnosed because a family member was diagnosed.

Ursa Major Collaborator
Hello,

Just wondering if someone out there has ever had these symptoms?

1). Blood shot eyes

2). Trapped gas in hips & buttocks

3). hands falling asleep in the middle of the night

4). leg and ankle completely numb and tingly all the time

Also, can anyone tell me if Celiac disease is also a rheumatic disease?

I had a brown spot with pea sized lumps in it on my ankle some years ago,

I went to a foot specialist and he did a biopsy and told me that I had some kind of

rhuematic disease. I have since been dx'd w/fibromyaglia and I just thought

fibro was the rheumatic disease he was talking about but now I am not so sure.

Thanks for any input you can give.

Thanks, Joyce

Hi Joyce,

well, celiac disease is an autoimmune disease, and so is fibro. Undiagnosed celiac disease can lead to other autoimmune conditions, including fibro. So, it is entirely possible that your fibro may have been caused by celiac disease. All your symptoms are possible celiac disease symptoms.

To find out, there are two ways of going about it. If you are set on a firm medical diagnosis of celiac disease, get tested for it while you still consume gluten (otherwise you may get a false negative). If you don't care about that, just go on the gluten free diet and see if it helps. But don't expect instant results, sometimes it takes several weeks (even months) to feel a difference.

My pain went away within two weeks (after having it for at least 49 years), but not everyone responds that quickly.

Mind you, eventually the pain came back (when my intestines started absorbing nutrients again), because of other intolerances. Once I figured those out and avoided those foods, the fibro improved to the point where I rarely need painkillers now.

Margariti Newbie

Joyce,

This is a sympathy e-mail, I have no solutions for you. But I do experience all of these, so I am meeting with a nutritionist at the end of the month. I know for myself that I have dry eyes. They are scratchy and gluey all the time unless I drink vast amounts of water. My feet go tingly mostly after I have been exercising for any length of time. I've also noticed that my hands and wrists and arms go tingly when my shoulders are tight - at first I thought it was carpal tunnel. The tingling mostly happens when I am laying down - I notice it before I fall asleep, when I sit for too long, and sometimes when I get up in the morning.

I have found that yoga helps as does massage and stretching - mostly calves and hamstring stretches.

I have tested negative for celiac's. I know that I am lactose intolerant so my diet has changed radically in the last year. I think the changes in diet have everything to do with my present symptoms and I suspect that I am gluten intolerant as well.

Have you had major changes in your diet recently?

I wish you the best!

Margaret

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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