Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

jerseyangel Proficient
The powdered sugar at the health food stores usually does not have corn starch as an anti-caking ingredient. As always, check labels.

Thanks Julie--I didn't know that. Is it just plain powdered sugar then?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
miamia Rookie
Heck no...you guys are stuck with me! :D

Rachel will stay in Rachelville with the geese, dingos, bats and all her Celiac friends...heck we havent even gotten our magical koalas yet....how could I leave??

I dont know if this is gonna get me "all" better but I think its a big step in the right direction.

My ice cream is very very good. :D

Rachel-

so besides ice cream what are you eating now?

Miamia

Green12 Enthusiast
I'm not feeling so hot, and it's all my own stupid fault. :angry: All the talk about ice cream earlier--I made some banana/chocolate chip/cinnamon ice cream (Vance's). I used confectioner's sugar instead of regular sugar. I had a nice bowl when it was fresh out of the machine--topped it with sliced almonds--it was so good! The bad news is that since about an hour after I ate it, I've been going back and forth to the bathroom :ph34r: . How is it that I didn't know that confectioner's sugar has cornstarch in it? :blink: Cornstarch <_<

So sorry Patti, a lot of you have upset stomachs, you, Tavi, Donna, Andrea, little Seth..I hope you guys all feel better real soon :)

jerseyangel Proficient
So sorry Patti, a lot of you have upset stomachs, you, Tavi, Donna, Andrea, little Seth..I hope you guys all feel better real soon :)

I noticed that--a bad stomach day all around, I guess. :unsure:

miamia Rookie

Ok I need some support from my rachelville coinhabitants. I had this great mini vacationa dn woke up today in the best mood. I don't get D when I get sick but the opposite and I was really scared flying would just kill me since it can affect normal people. But I woke up happy and then I went to the broom and was just on cloud nine( god the things that make me happy are so funny) Anyways Breakfast was fine but at lunce I got so sick I didn't have anything weird but I realized I used the same cucumber I ahd yesturday and yesturday I felt I was having a mild reaction to somehting and coulden't figure out what it was no I am sure it was th ecucumber. I feel so sick and have since 12 today . I am sos frustrrated because cucumber is the one thing that almost always sits welll with me . I'm alaways careful about where I buy tem and never buy them with that waxy crap on the outside. I feel so frustrated becaus ewhen I get sick from something like that I feel like I have no control over being sick at all. I was so happy this morning and felt like I had made a positive trun because it had been a few days without a major reaction to anything which is a big deal for me. I feel like I was just knocked back down.

Miamia

Green12 Enthusiast
Thanks Julie--I didn't know that. Is it just plain powdered sugar then?

Patti,

Yep, just plain powdered sugar, but since it doesn't have the corn starch in it it gets a little clumpy. I buy mine at Vitamin Cottage, a local health food store here, in their bulk packaged store brand- so I don't know if you can find any in your neck of the woods.

Wholesome Sweeteners, a brand carried at Whole Foods and Wild Oats now has corn starch in it, (it didn't use to that I remember) so definitely read the labels. :)

jerseyangel Proficient
Ok I need some support from my rachelville coinhabitants. I had this great mini vacationa dn woke up today in the best mood. I don't get D when I get sick but the opposite and I was really scared flying would just kill me since it can affect normal people. But I woke up happy and then I went to the broom and was just on cloud nine( god the things that make me happy are so funny) Anyways Breakfast was fine but at lunce I got so sick I didn't have anything weird but I realized I used the same cucumber I ahd yesturday and yesturday I felt I was having a mild reaction to somehting and coulden't figure out what it was no I am sure it was th ecucumber. I feel so sick and have since 12 today . I am sos frustrrated because cucumber is the one thing that almost always sits welll with me . I'm alaways careful about where I buy tem and never buy them with that waxy crap on the outside. I feel so frustrated becaus ewhen I get sick from something like that I feel like I have no control over being sick at all. I was so happy this morning and felt like I had made a positive trun because it had been a few days without a major reaction to anything which is a big deal for me. I feel like I was just knocked back down.

Miamia

I know how you feel! I had been feeling pretty well for the last couple of weeks and then today I made a mistake and bam! Definately knocked back down :(

I'm sorry that you got sick--I sure hope that it passes quickly. I understand how frustrating it is to have this happen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
Thanks Donna, I am still not used to my name and it's been 49 years!

Here are the ingredients in the orange chicken I ate:

Vegetables : should be ok

sauce: water, orange juice concentrate, distilled vinegar, modified corn starch, dehrdrated garlic, partially hydrogenated soybean oil, salt, sucralose non-nutritive sweetner, dehydrated bell pepper, xanathan gum, sodium benzoate flavor, spice, citric acid, and extractives of paprika chicken white meat, water, modified tapioca starch, salt, sodium phosphate.

Does anyone see something gluten here? I don't have the package of the taffy I ate. The only other thing I ate was frozen yogurt from Dryers, praline and cream.

Man I forgot how awful this is.

Tavi,

I'm not sure. I looked at Dryers and the only frozen yogurt they list is with Praline is Caramel Praline Crunch which has modified food starch.

Have you had this dish before, the orange chicken?

miamia Rookie
I know how you feel! I had been feeling pretty well for the last couple of weeks and then today I made a mistake and bam! Definately knocked back down :(

I'm sorry that you got sick--I sure hope that it passes quickly. I understand how frustrating it is to have this happen.

The frustrating thing is I really want to try out new foods to create more variety in my diet but I can';t when I am having a reaction becasue then I just react to everything. I hope this passes quickly. I'm sorry you also had a reaction - God I wish it wasen't food that we had to avoid - Imagine if it was just those spiders- now that owuld be easier

Miamia

AndreaB Contributor

Miamia,

Are you sensitive to msg too? I hope this clears up for you quickly. Don't let it get you down.

miamia Rookie
Miamia,

Are you sensitive to msg too? I hope this clears up for you quickly. Don't let it get you down.

God Andrea I think I may be sensitive to everything!!!!I don't know what to avoid anymore

miamia

Daxin Explorer

Lots to catch up on.

Vinecnt -- appranetly, we make up words in Rachelville all the time, so I guess we are not too worried about spelling.

Here is the updat on our son -- DW and I are not all evil like he says...we had an hour long meeting with his psychologist today, and when she double checked her math, he is on TOO SMALL a dosage for his medications....that could be causing the mood swings. He is still moody today, but we are going to let him get it out of his system, and get some sleep and we'll see. I also am trying to get him on the Gluten Free diet as I hear it does wonders for kids with ADD/ADHD.

I am at work tonight---stupid shift owrk---stupid air traffic shifts---- :angry::angry:

Talk to you all soon!

Camille'sBigSister Newbie

I'm premature posting (Learned that from Susan.) because I checked in very late today. Blame it on the cafergot, which destroys the migraine but puts me to sleep. I have read far enough along to catch up with all your good wishes for me. You are all so kind, and I love you! Whoa! What? Crushed ice? Lord have mercy! I never thought of that! How dumb can I be? :blink::blink::blink:

TAVI - what a lovely name! Is it pronounced Ta- (short "a" as in ah), and vi ("i" as the European "i" pronounced as the long "e" sound in Peep)? Accent on the first syllable?

Tavi, our entrenched bum. Love it!

Cissie

VydorScope Proficient
Lots to catch up on.

Vinecnt -- appranetly, we make up words in Rachelville all the time, so I guess we are not too worried about spelling.

Here is the updat on our son -- DW and I are not all evil like he says...we had an hour long meeting with his psychologist today, and when she double checked her math, he is on TOO SMALL a dosage for his medications....that could be causing the mood swings. He is still moody today, but we are going to let him get it out of his system, and get some sleep and we'll see. I also am trying to get him on the Gluten Free diet as I hear it does wonders for kids with ADD/ADHD.

I am at work tonight---stupid shift owrk---stupid air traffic shifts---- :angry::angry:

Talk to you all soon!

Daxin,

gluten-free diet does wonders for some ADHD cases. It depends on the root cause of the ADHD. In some cases its a physical issue that can be corrected, in others it is a mental issue that can only be learned to cope with as it can not be fixed.

In my case ithe gluten-free diet does absolutly nutin ( I have been DX with ADHD by two indepent docs). Another thing to check besides gluten is food dyes and addtives. Many ppl react ot them and they cause ADHD like symptons. Also should check for Anemia, that could also cause ADHD like smptons. Another thing to check is Autism, esply AS. Its offten misdiag'd as ADHD and unfortunitly the ADHD meds do nothing for it. ( I think this is my case acutally as I did Ritilan and Concerta for a while and realy did not help).

Just some tips from someone that understands the ADHD world by personal experence.

Camille'sBigSister Newbie
OMG....Donna I need your help!!

I'm still having problems with these "biting" ants. No more being nice and swatting them away....I wanna squash these suckers right into the ground. :angry:

What the heck is going on?? How can regular black ants bite or sting me like this?? I'm finding the whole thing to be rather disturbing. These are some very mean ants. <_<

They are in a very bad mood! The heat has affected their wee brains, you see. Sprinkle a line of boric acid across doorways and/or windows, wherever they can gain entrance to your peaceful abode. :angry:

Cissie

Fiddle-Faddle Community Regular

My son's Asperger's symptoms overlap quite a bit with ADD/ADHD. He seems able to handle gluten and casein, but what works wonders for him is a scheduled day, with lots of exercise (bike rides after school, Tae Kwon Do twice a week, etc) scheduled in. Swinging on the swing set for ten minutes before school makes a big difference in his day. When he was very little, we got the school to agree to give him a break twice aday to walk around the school for five minutes.

I would like to suggest that in Rachelville, recess NOT be immediately after lunch!

Rikki Tikki Explorer
Tavi,

I'm not sure. I looked at Dryers and the only frozen yogurt they list is with Praline is Caramel Praline Crunch which has modified food starch.

Have you had this dish before, the orange chicken?

No I have never bought this chicken before, I just saw it at the grocery store and bought it because it looked ok. I am not sure, what about the distilled vinegar? I think I just won't try anything new. I am not sure about the frozen yogurt, I had thought all of their stuff was gluten-free except for the one's we would know weren't like cookies and cream and cookie dough. I usually but the regular ice cream so I just don't know. I can't believe I was so careless, I should of known better than that. :unsure:

I'm premature posting (Learned that from Susan.) because I checked in very late today. Blame it on the cafergot, which destroys the migraine but puts me to sleep. I have read far enough along to catch up with all your good wishes for me. You are all so kind, and I love you! Whoa! What? Crushed ice? Lord have mercy! I never thought of that! How dumb can I be? :blink::blink::blink:

TAVI - what a lovely name! Is it pronounced Ta- (short "a" as in ah), and vi ("i" as the European "i" pronounced as the long "e" sound in Peep)? Accent on the first syllable?

Tavi, our entrenched bum. Love it!

Cissie

Thank-you Cissie, Let's see I think you are saying it right, it would be the short a and vi sounds like a long e. My mom was reading a book and came across the name, it was actually a boy's name. The book was The Far Land, but I lost my copy years ago. I believe the man that gave her the book was George Boothalee or something like that, think he moved to Oregon someplace. I don't know why I am giving you that history lesson. Must be the gluten! :huh:

Camille'sBigSister Newbie
Susan, many wise words spoken. I'll add a story about my grandmother. About a month before she died we were having tea and I said to her, "do you know what I figured out Gramma" and she said "what?" and I said between birth and death there is just this one breath". She looked at me and her eyes kind of went "clang, clang, clang, like a cartoon character in a funny way, and then she laughed and she said, "that's true". So, a month later she went travelling and she went off her medication and she fell ill and died but not before 15 family members travelled to be with her and spent the day weaving a net of love that lifted her away. Twice she stood, after hours of nothing but death rattle for breath and announced she was going to her Lord. :)

Only in this breath do we have the opportunity to express our deepest heart, the past is gone, the future is not here. Please do not be too hard on yourself, the fact that your family loves you says much about the person you truly are and not the misery laid on you. :)

Profoundly beautiful story, well told, Rinne.

Cissie

Camille'sBigSister Newbie
Well, I have to agree. Our teachers on this board can probably chime in as well. Home Economics is gone for most schools. Schools are being forcrd to cut out programs such as art, music, home ec, etc over athletics. Due to high demands of organiized sports most children today cannot be just that CHILDREN.

Pardon this rant butt ....

Too many bloody parents think their children are the great athletes of all time and will 1) get a college scholarhip or 2) go pro. I cannot stand some uneducated parents on the sidelines of an 8 year old soccer match yelling at a 12 year referee. I get very mad and I want to smack the parent.

Too many "coaches" do not know what the F#$% they are doing. They read a book and think they "know" how to coach. Very frustrating. Team sports are supposed to show children how to work together and accept an outcome -- win or lose - -

Pardon the rant ...

Rave on, MacDuff!!! When you're right, you're right!

In my capacity as Distinguished Chair of Literary and Historical Oddities Department at UCCF, I bring to the attention of all citizens of Rachelville that there was a time, within recent memory, when children actually played. Alien though the concept may be to modern minds, children were not organized into structured activities, supervised by politically correct adults. Yes, dear ones, it's true; children once enjoyed the freedom to play as they pleased, and what's more, (I hope you are all sitting down.) they had FUN!

As you may have surmised, I was one of those children. We went bare-footed all summer; we climbed trees, hung from branches, and built tree houses from the planks of fallen fences; we grabbed hold of sturdy vines and swung down mountain sides; we played Capture the Flag, Crack the Whip, Mother May I, and Aunt Dinah's Dead; on extremely hot days we played Monopoly on a shaded porch; we played Pirates, Gypsies, Cowboys and Indians, and Little House on the Prairie - from the books, not from the TV adaptations; we pulled wagons along neighborhood sidewalks, collecting "tin foil" to support the war effort; we rode bikes and skated on those sidewalks, suffering our scrapes and bruises as just temporary nuisances; we played impromtu games of softball with scruffed-up balls and falling-apart mitts, and if our quarrels broke up the game, our mothers didn't rush out to impose peace; and sometimes we did the unthinkable - the thing that would raise horror in the minds of today's grownups - sometimes we lay on our backs in the clover, gazed upon the sky and clouds, AND DID NOTHING AT ALL!!!!! :D:D:D:D:D

FREEDOM, SWEET FREEDOM!

Cissie

Guest Robbin

Folic acid--that seems to be in most supplements-hmm-must be why vitamins of any kind make me feel sick-could be some of the problem. I force them down to get the nutrients, but maybe shouldn't be doing that.

EDITED :) FOR TOPIC RELEVANCE

AndreaB Contributor

Cissie,

I would love times like that. That sounds like a lot of fun, excercise, as well as healthy sunshine and fresh air.

VydorScope Proficient
My son's Asperger's symptoms overlap quite a bit with ADD/ADHD. He seems able to handle gluten and casein, but what works wonders for him is a scheduled day, with lots of exercise (bike rides after school, Tae Kwon Do twice a week, etc) scheduled in. Swinging on the swing set for ten minutes before school makes a big difference in his day. When he was very little, we got the school to agree to give him a break twice aday to walk around the school for five minutes.

I would like to suggest that in Rachelville, recess NOT be immediately after lunch!

Yes exercise release andrenile and its an all natural stimulant that helps wth alot of mental issues. :)

Rikki Tikki Explorer

Tavi-love your name-I think of rikki-tikki-tavi when I see the name. I don't know what the book is called, but I remember one of my kids read a book with a character called that. What a lovely name it is, you lucky bum. Geez, pretty much

I think that was the book rikki tiki tavi book from the Jungle Book and the mongoose was Tavi. I know I have heard that for a long time.

I am going to go lay down, I really don't feel well. It looks like the streets of r-ville might be rolled up so I am going to meander over to the park bench, pull my straw hat over my eyes and take a nap. Thank-you for all your kind words.

night

Guest Robbin

'Night All :)

Fiddle-Faddle Community Regular

Hey, if there are any computer geniuses here, how about making Rachelville the next Runescape? :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.