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    Do you have questions about celiac disease or the gluten-free diet?

Rachel--24

Omg...i Might Be On To Something

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Good morning all,

I'm so far behind, I don't know where to jump in.

How is everyone's stomach today? Everyone feeling better?

I love reading Cissie's and rinne's posts! They must be our town narrators- or something like that? They tell their stories, weaving their words in such a captivating way, effortless, but so interesting....Do you gals write? Sorry if that was asked before.

I have been thinking about Karen's "D" ever since she mentioned it, Karen I don't know if you are still popping in on this thread, but I wondered have you eliminated gliadin containing grains as well? Amaranth, quinoa, millet, etc. Some people react to these as badly as they react to gluten and I know it's hard to avoid gliadin as well since these grains are in so many gluten-free products. Just a thought I had.

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Julie,

I got rid of all our gliadin foods except millet. That wasn't mentioned among the first list of things pages back. Millet flour is used in Annalise Roberts bread so hopefully we won't have a problem with it. I am allergic to gliadin but don't remember if it was just high on the low allergy or low on the moderate allergy.

Talitha is thrilled to have bread to eat again.

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Morning all......wow, I had much to catch up on.....

ALERT - - -was feeling peckish for a couple of days, and had......get this.....A SORE THROAT - - very weird to not feel well and have it be something other than gluten poisoning and upset tummy.....but it is gone today, thank God, was just really dragging bottom and SO inordinately tired for the last three days - the sore throat combined with the funeral/family stress and our unmerciful heat (a "cooling" spell, we'll be 107 today instead of 112- 113, and no humidity, then down BELOW 100 by this weekend - YAY - but if all goes well I'm heading to the beach on Sunday :rolleyes: with my best friend....and NO DINGOS as have another friend staying here with them - - mommy needs a break from the bored, staring dogs - may bash their triangular-shaped heads in right now as they stare and pant endlessly when I am home..... ;) )

Enjoyed the posts, all - except of course from those of you who are not feeling well. :( NO bad days in R-ville!! Cissie - - you described my childhood exactly - - except that I had three brothers and hung with them quite a bit - - go-carts, minibikes, underground labrynthine tunnels in the field next door (with a track on top for our bikes and go-carts, this would be against the law now, of course), forts/treehouses all the time (one had electricity wired in somehow and we got busted for that one), secret clubs, one had a magic "elixir" in a giant kettle in the back to which we kept adding, God knows what.....we sipped this wicked brew, a viscous, dark fluid and somehow were not poisoned.....and in the summers, in the POOL all day long, literally 12 hours and no adults (at the club, lifeguards of course)....most the month of August up at Shaver Lake or Big Sur, weeds in our hair and barefoot day and night, fishing for crawdads, scrambling up granite outcroppings, surveying our domain.....those were the days. Total freedom and no, kids don't seem to be able to do that any more with all the psychos we have running around now, and structured programs. so sad.

Rinne - extremely poetic posting about your grandma - in my delirium I didn't fully savor that the other day.

Robbin - :lol::lol::lol: Love your description of yourself - - - so sorry your having difficulty with your son (is there more than one acting up now?? :blink: ).....

And Ryan - your son too - - my ADD or whatever the heck it is has vastly improved in the last few months. I can actually concentrate now, there is still talk of a small dose of concerta for me, but I don't even think I need it.

everybody else - - sending prayers of good health - - have to get about my day, too much to do.....the heat, it has taken so much of our strength, and even MANY LIVES :( . Just awful - - I was in Home Depot yesterday with a friend for one hour, Grrrrrrr :angry: we are writing a letter to corporate headquarters AND OSHA - no A/C and it was just unbelievable, a couple of pregnant employees were just swooning in there. And I - I was in bed at 8:30 last night, collapsed and delirious, unable to even get through a couple of pages of my book. -_-

MUCH BETTER TODAY - - :):):) And ready for some mischief..... ;)

Cecelia - - - kick your son off the computer and gitcher silly self on here.....Tavi pull your straw hat off and come on in and cause some trouble for us......you can't be just sleeping on the bench all day, you know, the town bum has to at least get drunk or something once in a while, and be found sleeping in a doorway or something.... :P

Love to all - - -

My butt hurts.

:lol::lol::lol: Morning Julie, our fair maiden of the floats and smiling welcome......

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Hi Susan, glad you are back! I heard that statewide there were 60 deaths attributed to the heat. Wow...I think that was a state number not nationwide.

Okay everyone, for those who were interested in the Inflammation Syndrome book I have been reading (not finished yet...dreading reading the next few chapters on supplements, lol), here is some information:

From the Inflammation Syndrome, by Jack Challem (stuff not in quotes are in my own words):

Suggests high-sensitivity C-reactive protein test to measure level of inflammation and risk of suffering a heart attack and sed rate. Although both are general indicators rather than pointing to a specific type of inflammation.

I liked this statement from him, lol: “…though it may surprise you: while I believe the majority of physicians are sincere and well-meaning, most do not understand the fundamental role of nutrition in health. Medical schools teach virtually nothing about the practical, preventive, and therapeutic uses of nutrition and supplements.”

He says that people (both patients and doctors) routinely confuse the causes of inflammation with its triggers and that the causes of inflammation are often related to dietary imbalances or deficiencies, which prime the immune system for a powerful and chronic inflammatory reaction. “In contrast, inflammation triggers are the events that precipitate a specific inflammatory response after the body is already primed for an overreaction….” These are some of the triggers he mentions (and after each of these he gives some specific examples): Age-related wear and tear (oh no), physical injuries, infections, environmental stresses, allergies and food sensitivities, dietary imbalances and deficiencies.

He talks about pro- and anti-inflammatory counterbalances. For instance, the typical American diet is high in Omega-6 fatty acids, which are necessary and as long as they were balanced by the healthier Omega-3 fatty acids, aren’t bad. Common omega-6 foods: corn, safflower, peanut, cottonseed, and soy oils and in processed and packaged foods. He says: “The omega-6 fatty acids stimulate the body’s production of many other inflammation-causing chemicals, such as prostaglandin E2.” Omega-3: dark green leafy veggies and flaxseed, coldwater fish like salmon and herring. He says: “…the omega-3s encourage the body’s production of inflammation-suppressing compounds. They help remind the body to turn inflammatory reactions off when they are no longer needed.” He also says omega-9 fatty acids work with the omega-3s as anti-inflammatory compounds. Omega-9: olive oil, avocados, macadamia nuts, and macadamia nut oil.

He’s big on the paleo type diet with a “balanced intake (1:1 ratio) of pro- and anti-inflammatory fats and very high intake of anti-inflammatory vitamins and minerals.” (he said at least in at least one other place in the book that the paleos ate a huge amount of vitamins and fiber mostly from a HUGE intake of veggies and fruits)…not sure we could get that same nutritional value today from our current crops—that’s my personal take.

He mentions celiac and gluten intolerance in a few places and noted: “Archeologists have noted that the health of humans, based largely on analysis of ancient bones, took a turn for the worse after gluten-containing grains became popular foods. Osteoporosis, arthritis, and even birth defects became more common after people began eating grains.” And he goes on: “According to Smith (He’s talking about Melissa Diane Smith author of Going Against the Grain), a second family of grain (and legume) proteins, called lectins, may also damage the gut and interfere with nutrient absorption…The bottom line is that most grains are neither the much-heralded staff of life nor the breakfast of champions.”

He also addresses our meat, lol: “As long as livestock were exclusively grass-fed, their meat and milk yielded a balance of pro- and anti-inflammatory fatty acids. This changed when animals were fed corn, which, as previously noted, increases the animals’ overall fat and saturated fat and reduces anti-inflammatory omega-3 fatty acids.”

This helps me feel better because I tested positive to cow’s milk antibodies by Enterolabs, but the rest of you can ignore it, lol (he’s talking about points that are relevant in the context of our evolutionary diet): “One is that no species, other than humans over the past ten thousand years, has ever consumed milk beyond infancy. Another is that no species other than humans has ever consumed the milk of another mammal.”

So in a nutshell, his dietary steps for anti-inflammation are:

1. Eat a variety of fresh and whole foods.

2. Eat more fish, especially cold-water varieties.

3. Eat lean meats (not corn-fed) from free-range chicken and turkey, grass-fed cattle and buffalo, and game meats such as duck and ostrich.

4. Eat a lot of veggies, the more colorful the better.

5. Use spices and herbs to flavor foods, and limit your use of salt and pepper.

6. Use olive oil as your primary cooking oil.

7. Avoid conventional cooking oils such as corn, safflower, sunflower, and soybean oil, as well as veggie shortening, margarine, and partially hydrogenated oils.

8. Identify and avoid food allergens.

9. Avoid or strictly limit intake of food products that contains sugars, such as sucrose or high-fructose corn syrup.

10. Avoid or limit intake of refined grains.

11. Snack on nuts and seeds.

13. When thirsty, drink water (can fit in with our water challenge).

14. Whenever possible, buy and eat organically raised foods.

15. To lose weight, reduce both carbohydrates and calories (not much applicable to most in Rachelville, but applies to me, lol).

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Yes Julie, Sorry to hear about your butt :unsure:

I think I will edit that :lol: It's my gluteus maximus muscles, muscles I did not realize I had until now that they hurt. I guess pilates really does work.

Andrea, I am still a little confused frankly about the gliadin issue. When you do a search there is contradictory information about what grains contains gliadin. I found this definition:

"Gliadin: A glycoprotein (a carbohydrate plus a protein) within gluten. Gliadin is found in wheat and some other grains, including oats, rye, barley, and millet. "

And I have seen other sources including amaranth and quinoa. The only grains I have never seen mentioned are rice and corn.

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Andrea, I am still alittle confused frankly about the gliadin issue.

ME TOO!! I ate my Mesa Sunrise Cereal yesterday and....no problems and there IS amaranth. Where are our scientists to clear up this matter???

Yes Donna, SIXTY heat-related deaths in our state - about 15 in Fresno County so far. The morgues are full beyond capacity, doubling up on gurneys and working overtime.....so there will be more.... :(

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“…though it may surprise you: while I believe the majority of physicians are sincere and well-meaning, most do not understand the fundamental role of nutrition in health. Medical schools teach virtually nothing about the practical, preventive, and therapeutic uses of nutrition and supplements.”

Can I get an Amen!

Thanks for posting this Donna, it sounds like a very interesting read, lots of good info here.

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Wow Donna--thanks! :D I already do a lot of what the doctor suggests--if I could only give up the sugar....

Me too, that white powdery stuff is too addictive! :lol:

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Julie--Pilates most definately does work. I have my own machine here at home the Premier XP. I'm not using it right now because I have a large fibroid that causes pain, and since the Pilates focuses on the "core", working out on it aggrevates the situation.

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Yes Donna, SIXTY heat-related deaths in our state - about 15 in Fresno County so far. The morgues are full beyond capacity, doubling up on gurneys and working overtime.....so there will be more.... :(

I was starting to wonder if the reason I haven't been feeling well was because of the heat. I don't know what heat exhaustion symptoms are, but I wouldn't doubt it if some of what I was feeling was on the list. I went to bed at 7:30 last night!!!!

Julie--Pilates most definately does work. I have my own machine here at home the Premier XP. I'm not using it right now because I have a large fibroid that causes pain, and since the Pilates focuses on the "core", working out on it aggrevates the situation.

I got to use a reformer at my physical therapist's office last year...loved it and wished I had space at home. I haven't warmed up to the pilates floor work yet, but I keep trying to see if my mind has changed. :lol:

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I have to say, I have been following a histamine restricted diet for about 4 or 5 days now and I haven't had one reaction. :D I think there really might be something to this for me. I think that since my histamine levels have always been so high that eating something that naturally has histamine, or causes a release of histamine from mast cells, even if I only ate a small amount of it one time a week, was enough to just keep the state of reactivity going. I'm feeling really hopeful!

And Patti about the pilates, I have been doing yoga for about 3 years now and that really allowed me to transition nicely into pilates- they really have a lot of similar postitions and moves, so I took to it really well. I'm really happy to be moving again :D I hope you can get back to it as well.

I got to use a reformer at my physical therapist's office last year...loved it and wished I had space at home. I haven't warmed up to the pilates floor work yet, but I keep trying to see if my mind has changed. :lol:

Oh Donna.... Oh, Donna

:lol::lol:

You should try the mat workout, you might be surprised. I love it! Of course I was used to yoga and working out with the mat on the floor was familiar for me, but every single muscle on my body is talking to me, hello! It really is effective, and fun.

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Donna and Susan,

Heat will make you drowsy, make sure you stay well hydrated. Glad to hear things are cooling down.

Julie,

No pain no gain they always say. Doesn't make it much fun though when you hurt. We'll see how we do with the millet flour and millet. If that's the only gliadin food we have maybe it won't be so bad. I didn't think millet was classified as a grain. I'll need to look more into the reason behind no grains that people like Dr. Mercola promote. DogtorJ is also seemingly wary of all grains, aside from the main four to stay away from (gluten,dairy,soy,corn). We are still eating corn, rice and millet. Need to look more into the b-complex vitamins too.

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Oh Donna.... Oh Donna

You should try the mat workout, you might be surprised. I love it! Of course I was used to yoga and working out with the mat on the floor was familiar for me, but every single muscle on my body is talking to me, hello! It really is effective, and fun.

:lol: Yoga is the other one I haven't warmed up to yet, but keep thinking I should like it, so keep trying it. It hurts, lol. I lift weights and do cardio at home, but don't see a lot of muscle definition so keep thinking some of the yoga moves would help that.

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Wow Donna--thanks! :D I already do a lot of what the doctor suggests--if I could only give up the sugar....

You're welcome...I do a lot on that list too.

I do want to mention that he is actually not a doctor, he is a nutritional reporter and contributing editor for Body & Soul and Let's Live magazines. He has published some scientific articles in Free Radical Biology & Medicine, Journal of Orthomoloecular Medicine (say that 10 times fast), Medical Hypotheses and other journals. The forward in his book is written by two MDs. He says: "I have also published original research articles in medical journals, something rare for nutrition writers..."

What is "pilates" ? Sound liek an exercise program?

Yep, that's exactly what it is. Developed by Joseph Pilates many, many years ago...did I get that right Julie? :P

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ME TOO!! I ate my Mesa Sunrise Cereal yesterday and....no problems and there IS amaranth. Where are our scientists to clear up this matter???

Yes Donna, SIXTY heat-related deaths in our state - about 15 in Fresno County so far. The morgues are full beyond capacity, doubling up on gurneys and working overtime.....so there will be more.... :(

I'm confused, too--a bowl of oatmeal (eaten before I knew it was a no-no) brought my DH rash back (but much milder), while a WHEAT Chinese dumpling caused no discernable reaction whatever. :blink:

Also, my bread/wheat cravings disappeared completely after 2 weeks gluten-free, but I am STILL craving Corn Chex and Corn Pops big-time (but I'm not craving regular corn). Weird.

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What is "pilates" ? Sound liek an exercise program?

Yeah, you got it right Donna. It's a form of exercise that focuses on elongating and strengthening muscles- especially the core muscles, abs, glutes, back- without bulking up, with an awareness of breath and proper body alignment.

Julie,

I got rid of all our gliadin foods except millet. That wasn't mentioned among the first list of things pages back. Millet flour is used in Annalise Roberts bread so hopefully we won't have a problem with it. I am allergic to gliadin but don't remember if it was just high on the low allergy or low on the moderate allergy.

Talitha is thrilled to have bread to eat again.

I'm also eating a little bit of rice and a little bit of corn, since I've cut so much else out I need it for energy. I just try not to over do it, small amounts and not every day. So far it seems to be going ok.

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You're welcome...I do a lot on that list too.

I do want to mention that he is actually not a doctor, he is a nutritional reporter and contributing editor for Body & Soul and Let's Live magazines. He has published some scientific articles in Free Radical Biology & Medicine, Journal of Orthomoloecular Medicine (say that 10 times fast), Medical Hypotheses and other journals. The forward in his book is written by two MDs. He says: "I have also published original research articles in medical journals, something rare for nutrition writers..."

Yep, that's exactly what it is. Developed by Joseph Pilates many, many years ago...did I get that right Julie? :P

Oops--sorry for calling him a doctor :ph34r: I actually subscribe to Body and Soul Magazine :lol:

You're right on the Pilates--one of it's earliest uses was to rehabilitate ballet and other dancers who had injuries.

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I bought a pilates video, tried it, did it correctly.....felt NOTHING. I like to HURT after I work out, :) build muscle etc.......am I wrong or are the machines required for a great workout? don't get me wrong....I am all in favor of pilates technique and theory - - just didn't feel a thing from it.....maybe I needed to work up to the ADVANCED level ;) as I just worked through the beginning series a few times....but went back to my living room squats/lunges/pushups/situps and shoulder exercises....

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I bought a pilates video, tried it, did it correctly.....felt NOTHING. I like to HURT after I work out, :) build muscle etc.......am I wrong or are the machines required for a great workout? don't get me wrong....I am all in favor of pilates technique and theory - - just didn't feel a thing from it.....maybe I needed to work up to the ADVANCED level ;) as I just worked through the beginning series a few times....but went back to my living room squats/lunges/pushups/situps and shoulder exercises....

I know what you mean Susan! I felt this way about yoga before I started it, it looked like to me a bunch of people rolling around on the floor stretching. :lol: I quickly learned that it can be very strenuous depending on what kind of form you do, and you really are using all of your muscles and several of the poses require great athletic ability and strength.

I've only done 3 pilates sessions so far, but it seems to have worked muscles that the yoga wasn't getting to for me. I went to a class so maybe there is a difference with the class setting rather than the video, I don't know.

If you did a beginners video, thaere might be something to that. You might need to familiarize yourself with the basic movements and poses and then work up to the advanced levels to be challenged by it.

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UGGGG!!!! Help! Slowly going crazy... have added two more kids to the house roster until 4pm. Not...Going....To....Make it.

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Hi everyone :D

Julie, I'm excited for you!!

I hope this really works for you....so far so good for me too! I'm feeling better than I have in a long time. I was having a bad streak since my vacation but I seem to have pulled myself out of it now. :D

I think I might really be on to something with this histamine thing. I feel like I've said it a thousand times but this time I think it might not be just a small piece of the puzzle but its like I can almost get a full picture now. I'm excited too. :D

Last night when I made my ice cream I used alcohol free vanilla. I was a little worried because one of the few sensitivities that showed up in testing was vanilla...with a very mild reaction. I always avoid vanilla. I reacted right away to the ice cream...pretty much felt it right after my first spoonful. It was so darn good I couldnt stop myself. I pigged out anyway. My reactions are only noticeable after eating....not usually during. I can eat one bite...wait a minute and either feel the reaction or not. If I do notice a reaction but continue eating the reaction stops as long as I'm continuing to eat. As soon as I stop I know the reaction will reappear. Thats what happened last night. I got hit with chest pain, back pain, jaw pain and major brainfog. The brainfog was the worst part. I ate a bunch of other food and I think it lessened the reaction. My mom said she didnt feel sorry for me cuz I kept eating the ice cream even after I knew I was reacting...my friend said the same so I got no sympathy. :(

The reaction didnt last long at all...2 hours at the most. I went to the batting cages and wacked some balls around. I felt pretty good. :D

When I got back home I wanted my mom to taste the ice cream and since it had been in the freezer the texture was firmer than when I first ate it. I had to try a little bit to see if it tasted even better than the first time. :ph34r:

I did not react to it so I kept eating it and ended up pigging out again. :blink:

I never got a reaction!! :o

I was worried I'd feel like crap when I woke up this morning but I feel fine today. I've been mulling over this all morning and decided that maybe I reacted because of 2 things... first, I was eating it on an empty stomach...having just got off work. Second I had just taken the Keto, only about 5 minutes before eating the ice cream.

The next time I ate the ice cream the Keto had already been in my system for a few hours plus I had a full stomach from all the other food I ate in between. Right now on my lunch break I took my Keto, ate some hot cereal and THEN pigged out on ice cream. No reaction. I think a high carb meal allows me to eat it without reacting. I should be waiting 30 minutes before eating anything after taking the Keto but on my lunch break I just dont have time to wait that long....plus I'm hungry.

All of my ice cream is gone now. :P

I'm going to make another batch w/out vanilla and see what happens if I eat it on an empty stomach. If I dont react again it was probably the sensitivity to vanilla. If I do still react it probably has something to do with the sugar and/or dairy being eaten on an empty stomach. WOOHOO....I get to do another experiment. <_<

Oh....I totally forgot I had my ultrasound today...luckily they called to remind me. When I get off work I gotta come home and load myself up with tons of water again. :(

My tummy feels ok so hopefully there wont be any jumping intestines or alien babaies messing things up for me this time. :)

Be back later. :D

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UGGGG!!!! Help! Slowly going crazy... have added two more kids to the house roster until 4pm. Not...Going....To....Make it.

Hang in there, Jeny :D Tell yourself that after 4, you'll get a little computer time, and come back and chat ;)

Hey Rachel--Great news on the diet!

Good luck with the ultrasound this afternoon--and good luck with trying not to pee your pants :lol:

I will be interesting, though to see if your intestines are still active. If not, that would give you further proof that the diet/Keto is working. Let us know!

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