Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Green12 Enthusiast
Hi everyone :D

Julie, I'm excited for you!!

I hope this really works for you....so far so good for me too! I'm feeling better than I have in a long time. I was having a bad streak since my vacation but I seem to have pulled myself out of it now. :D

I think I might really be on to something with this histamine thing. I feel like I've said it a thousand times but this time I think it might not be just a small piece of the puzzle but its like I can almost get a full picture now. I'm excited too. :D

I'm going to make another batch w/out vanilla and see what happens if I eat it on an empty stomach. If I dont react again it was probably the sensitivity to vanilla. If I do still react it probably has something to do with the sugar and/or dairy being eaten on an empty stomach. WOOHOO....I get to do another experiment. <_<

Oh....I totally forgot I had my ultrasound today...luckily they called to remind me. When I get off work I gotta come home and load myself up with tons of water again. :(

My tummy feels ok so hopefully there wont be any jumping intestines or alien babaies messing things up for me this time. :)

Be back later. :D

Rachel, I'm very excited for you as well!!!!!!

It's kind of weird to be feeling this way, like I have a solution! After so many years for me, I don't know what to do with myself :lol::lol:

A couple of things, have you checked your cream ingredients? I know that a few brands around here have carageenan added.

Also, how much water are you suppose to drink? Last time I remember you got a little sick, it might have been water overdose, which can be an issue. I think if you took in a glass every half hour, or space it out, it will give your body time to adjust to the water intake. Unless they have directions saying otherwise? I don't know, just a thought I had.

Good luck with your appt. :)

UGGGG!!!! Help! Slowly going crazy... have added two more kids to the house roster until 4pm. Not...Going....To....Make it.

Jeny, take a deep breath! Hang in there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
VydorScope Proficient

So then Rach.. I assume you liked it ? What recipe you use?

Green12 Enthusiast
but if all goes well I'm heading to the beach on Sunday :rolleyes: with my best friend....and NO DINGOS as have another friend staying here with them - - mommy needs a break from the bored, staring dogs - may bash their triangular-shaped heads in right now as they stare and pant endlessly when I am home..... ;) )

Give the girls to me, I will dingosit the bored staring dogs for you. They will have lots to do here, chase the squirrels and bunnies, and the 2 yappy scotties next door :lol:

I hope you are feeling better Susan, it's been a long couple of weeks for you and your family.

jerseyangel Proficient
:lol::lol: dingosit :lol::lol:
dlp252 Apprentice

Well, I am happy...as I was going over the list of low histamine foods (making a grocery list for Saturday), I noticed that plums are on there. Where I work there, they have quite a lot of shrubbery...last year someone told me that there were some plum trees on the property...never knew where they were until this morning. There are tons out there and they have lots of plums on them. I've had two so far...trying really hard not to eat the third one that is staring at me (staring dingos and staring plums)... They are sweet but are still pretty firm. Yum. Eeek, must eat the third one, lol.

DingoGirl Enthusiast
:lol::lol: dingosit :lol::lol:

:lol::lol::lol::lol:

thanks Julie and Patti.....love love LOVE my dingos beyond human comprehension - more like a pathology, really - as mentioned before I HAVE become a Crazy Old Dog Lady - - but they do wear on me at times.....oh, and they killed one of the two small baby doves :( whose mom - foolishly - built her nest in the tree near my back gate....been watching her and the eggs for weeks, and the babies were teenagers, learnign to fly, and the DINGBATS killed one of them.....I wanted to throttle them and am so sad for their grief-stricken mother, who sits now on an empty nest (I don't know where her other child is - they probably killed that one too OR WILL)....but, dogs will be dogs and any prey in their back yard is fair game, I guess..... :( How can I give prozac to a dove.....

Yeah, Julie, I will put them on a plane to Colorado and let YOU become annoyed with them - though sounds like there's more to do in your yard - - nary a squirrel in our Stepford/Pleasantville community (they aren't given the gate code ;) ) and they are clinically depressed with boredom - that's why we walk in the orchard almost eveyr day, where a lone squirrel submits to regular dingo torture (dont' worry, they'll never catch it) ;)

RACHEL - your side job is now Ice Cream Maker and Tester in R-ville :) so glad you're enjoying it! Let us know how the alien baby is doing after your ultrasound.....

What is the latest MEggan update?

must get back to work......

penguin Community Regular
Well, I am happy...as I was going over the list of low histamine foods (making a grocery list for Saturday), I noticed that plums are on there. Where I work there, they have quite a lot of shrubbery...last year someone told me that there were some plum trees on the property...never knew where they were until this morning. There are tons out there and they have lots of plums on them. I've had two so far...trying really hard not to eat the third one that is staring at me (staring dingos and staring plums)... They are sweet but are still pretty firm. Yum. Eeek, must eat the third one, lol.

Yikes! Remember that prunes were plums before they were dried. :ph34r:

Keep it moving! Oh Yeah!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast
(staring dingos and staring plums

:lol::lol::lol:

dlp252 Apprentice

:lol:

Yikes! Remember that prunes were plums before they were dried. :ph34r:

Keep it moving! Oh Yeah!

Oh, almost saved me, but alas the stupid plum wins.

dlp252 Apprentice
:blink::blink: Reading the supplement section of the book. :blink: But did come across this quote from Linus Pauling, Ph.D. "If a doctor isn't 'up' on something, he's 'down' on it." :lol: Yep, I think we all got that one figured out too.
jerseyangel Proficient
:blink::blink: Reading the supplement section of the book. :blink: But did come across this quote from Linus Pauling, Ph.D. "If a doctor isn't 'up' on something, he's 'down' on it." :lol: Yep, I think we all got that one figured out too.

I love it!! :D

Green12 Enthusiast
Well, I am happy...as I was going over the list of low histamine foods (making a grocery list for Saturday), I noticed that plums are on there. Where I work there, they have quite a lot of shrubbery...last year someone told me that there were some plum trees on the property...never knew where they were until this morning. There are tons out there and they have lots of plums on them. I've had two so far...trying really hard not to eat the third one that is staring at me (staring dingos and staring plums)... They are sweet but are still pretty firm. Yum. Eeek, must eat the third one, lol.

Staring dingos and staring plums :lol::lol::lol:

You know, a thought on sugar (some of you mentioned about having a problem with sugar in the last couple of pages). I remember reading something at one of the links for a low histamine diet and it keeps coming back to me, like another piece of the puzzle:

"Its also important (at least initially) when on a low histamine diet to eliminate sugar from your diet. This is because sugar causes your body to release adrenaline. If your histamine level is high two things can happen when you eat sugar. The first is that your adrenaline level may spike causing; nervous energy, worsening dizziness symptoms, and possibly even a panic attack. The second is that the sugar may cause your body to use up its already (histamine) depleted supply of adrenaline. This may cause periods of very low energy or even exhaustion within an hour or so after eating sugar. Fruit sugar (fructose), honey, and real maple sugar won't increase your adrenaline level, so they're OK to use instead of sugar."

Not that "not eating" sugar is big news, but it puts it into perspective as it relates to histamine, allergies, reactions, and the nervous system.

Oooooh, my scientific self is coming back to me! It had gone away for a little while...

Green12 Enthusiast
How can I give prozac to a dove.....

:lol::lol: Susan!

I feel very bad about the dove too, but what can you do, nature took its course.

jenvan Collaborator

This thread is way over my head ;) Did I miss a discussion on Pilates? I am a moderately die-hard fan of it now. I haven't been taking for very long, but already the abs are becoming more defined. (As soon as I get my full six-pack I'll make a picture of it my avatar : ) Anywho, it is great form of exercise, esp for folks with fibromyalgia...one of my instructors has it, the other's mom has it. It has already improved my posture--seriously! I really enjoy it. If you are into it, I definitely recommend taking a few classes if you can, just to get the form right. It isn't a no-brainer exercise. Form is really important and affects what you get out of the exercises. I went to another studio previously where the classes are too big and later realized I was doing everything wrong...no wonder it seemed easy! :lol:

jerseyangel Proficient
This thread is way over my head ;) Did I miss a discussion on Pilates? I am a moderately die-hard fan of it now. I haven't been taking for very long, but already the abs are becoming more defined. (As soon as I get my full six-pack I'll make a picture of it my avatar : ) Anywho, it is great form of exercise, esp for folks with fibromyalgia...one of my instructors has it, the other's mom has it. It has already improved my posture--seriously! I really enjoy it. If you are into it, I definitely recommend taking a few classes if you can, just to get the form right. It isn't a no-brainer exercise. Form is really important and affects what you get out of the exercises. I went to another studio previously where the classes are too big and later realized I was doing everything wrong...no wonder it seemed easy! :lol:

Jen! How wonderful to have you here in Rachelville :D You need to come by more often. I can't wait to see your 6-pack avatar! I agree--Pilates is wonderful :)

jenyanderson Newbie

Pshew! Glad that babysitting nightmare is over. I had to watch not only my two kids and my two dogs, I had to watch my flaky neighbor's 10 month and 3 year old girls. It would not have been so bad if she hadn't fed the 3 year old candy for lunch. I can put up with cleaning dirty bottles and rear ends, but jeez! She brought over her psycho dog and asked if I could watch her too because she pooed in her crate this morning and by noon she hadn't had the time to clean it out. I know I'm ranting, but right now I really want to move far far away from her. :ph34r:

penguin Community Regular
Pshew! Glad that babysitting nightmare is over. I had to watch not only my two kids and my two dogs, I had to watch my flaky neighbor's 10 month and 3 year old girls. It would not have been so bad if she hadn't fed the 3 year old candy for lunch. I can put up with cleaning dirty bottles and rear ends, but jeez! She brought over her psycho dog and asked if I could watch her too because she pooed in her crate this morning and by noon she hadn't had the time to clean it out. I know I'm ranting, but right now I really want to move far far away from her. :ph34r:

:lol:

Repeat after me: "I'd love to, but I really can't"

Or: "No."

It'll save you plenty of butts, most of all your own ;)

DingoGirl Enthusiast

Hi Jen!! This thread, over your head??? Well.....then just skip past all the science lessons and join in on the lunacy, plenty of that here and you'll fit right in! We've created our own Gluten-Free Dairy-forSome Insect-free Paradise Cult Farm.......plenty of fun for all! (er, Celiacs and significant others, that is) ;)

Okay, I'm goign to take a pilates class and THEN see if my abs hurt...... :P

AndreaB Contributor

Jeny,

You survived.....we knew you would.....even if barely. :P

Jen,

Welcome to the thread, come back once in awhile.

Rachel,

Glad to hear that you are doing better. I would have had no sympathy for you either. :P

Susan,

Have a wonderful time at the beach! The dingo girls will be so jealous.

Julie,

Thanks for always having something to teach us.

Donna,

:ph34r: Plums are small so you can eat more of them right?

Patti,

Trust you are feeling better today.

Chelsea,

Hope your day is going well.

Cecile,

If I'm not on when you are.......HI! and miss you. :( We need to try and coordinate being on at the same time for even just a little bit.

I'm trying to cut back my time here. Doing a smidgen better. So much to keep up on. :P

Tavi, Miamia,

Are you feeling ok today?

Hello to everyone else. :P

dlp252 Apprentice
Staring dingos and staring plums :lol::lol::lol:

You know, a thought on sugar (some of you mentioned about having a problem with sugar in the last couple of pages). I remember reading something at one of the links for a low histamine diet and it keeps coming back to me, like another piece of the puzzle:

"Its also important (at least initially) when on a low histamine diet to eliminate sugar from your diet. This is because sugar causes your body to release adrenaline. If your histamine level is high two things can happen when you eat sugar. The first is that your adrenaline level may spike causing; nervous energy, worsening dizziness symptoms, and possibly even a panic attack. The second is that the sugar may cause your body to use up its already (histamine) depleted supply of adrenaline. This may cause periods of very low energy or even exhaustion within an hour or so after eating sugar. Fruit sugar (fructose), honey, and real maple sugar won't increase your adrenaline level, so they're OK to use instead of sugar."

Not that "not eating" sugar is big news, but it puts it into perspective as it relates to histamine, allergies, reactions, and the nervous system.

Oooooh, my scientific self is coming back to me! It had gone away for a little while...

I just know sugar is one of the keys for me, but I'm just so darned addicted! Fortunately I like fruit and honey (wonder if Agave is okay) and real maple syrup.

:ph34r: Plums are small so you can eat more of them right?

Hoping, hoping, hoping. :lol:

Daxin Explorer

Nikki-uk -- PGFCF is Paradise Gluten Free Cult Farm

Rachel -- Glad to hear about the ice cream..hope the nest batch is even better.

Julie -- I did not know carageenen (sp) had gluten in it. I will have to check the ice cream that DW bought for me and make sure. She is usually better at reading labels than most but we all have a "brain fart" from time to time. :D

Susan -- I am trying to switch him to a gluten free diet. Right now I am only at about "gluten reduced" He says the bread and baked goods smell funny. He may be right, but that cake my wife made the other night from the "Gluten free gourmet" was excellent, and he did not even know the difference. I hate to trick him like that, but sometimes that's what it takes. He is being taken of the Ritalin now and but on the one a day Straterra. They have similar side effects, but the new one is a non-stimulant base. Hope it works. it seems to be as they are having him on bith right now, but a shorter acting Ritalin than before. (thank god for military health care ;) )

Well, should go get ready for work now.

Green12 Enthusiast
Julie -- I did not know carageenen (sp) had gluten in it. I will have to check the ice cream that DW bought for me and make sure. She is usually better at reading labels than most but we all have a "brain fart" from time to time. :D

Daxin,

Carageenan is a hidden source of MSG, a problematic ingredient for some of us.

Daxin Explorer
Daxin,

Carageenan is a hidden source of MSG, a problematic ingredient for some of us.

I have learned something new every day so far here! :D

Makes me wonder how I everlearned anything before <_<

VydorScope Proficient

Dax... did you see my reply to you? I know stuff gets lsot here fast :D

Open Original Shared Link

Rachel--24 Collaborator
A couple of things, have you checked your cream ingredients? I know that a few brands around here have carageenan added.

Also, how much water are you suppose to drink? Last time I remember you got a little sick, it might have been water overdose, which can be an issue. I think if you took in a glass every half hour, or space it out, it will give your body time to adjust to the water intake. Unless they have directions saying otherwise? I don't know, just a thought I had.

Good luck with your appt. :)

Julie,

My cream doesnt have any "extras" in it...its just organic cream. I'm totally careful...reading labels like a freak. :ph34r:

Working in a grocery store I've always seen people studying labels and being real choosy about their food. I thought they were "weird" cuz I couldnt understand why anyone would spend all that time looking at ingredients. See what happened....its karma....this is what I get for not being so understanding in my healthy days. Lesson learned....the hard way. <_<

It probably wasnt the water that got me sick last time. That was when I was gorging on dried fruit and jam with my Edward and Sons crackers....and what did I do? I blamed the water! :lol:

Now I know why I had so many mouth blisters and so much ovary pain. :ph34r:

I could never find a reason for those mouth sores...they were so random. I was thinking sulfites for awhile but then I would get them from stuff totally sulfite free. Now I'm noticing they just show up whenever I'm having any histamine reaction....maybe its part of the histamine reaction so doesnt really pertain to any specific food...just high histamine levels. :unsure:

So then Rach.. I assume you liked it ? What recipe you use?

Yeah...it was really good....better than store bought even. I never expected it to be so good!!

I used

1 cup whole milk

2 cups heavy cream

3/4 cup sugar

2 teaspoons vanilla

Have you tried this??

Well, I am happy...as I was going over the list of low histamine foods (making a grocery list for Saturday), I noticed that plums are on there.

Donna,

What list are you following? All the lists I seen show plums as being high in histamine. :huh:

"Its also important (at least initially) when on a low histamine diet to eliminate sugar from your diet. This is because sugar causes your body to release adrenaline. If your histamine level is high two things can happen when you eat sugar. The first is that your adrenaline level may spike causing; nervous energy, worsening dizziness symptoms, and possibly even a panic attack. The second is that the sugar may cause your body to use up its already (histamine) depleted supply of adrenaline. This may cause periods of very low energy or even exhaustion within an hour or so after eating sugar. Fruit sugar (fructose), honey, and real maple sugar won't increase your adrenaline level, so they're OK to use instead of sugar."

Maybe this is why I got that crazy reaction when I first ate the ice cream but on a full stomach with lots of carbs....no bad histamine reaction. :o

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      348

      Terrible Neurological Symptoms

    2. - Aretaeus Cappadocia replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

    4. - Scott Adams replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,995
    • Most Online (within 30 mins)
      10,442

    Jody Booker
    Newest Member
    Jody Booker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I respectfully disagree, @Scott Adams.   Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss.  The body will use stored fat and muscle to provide energy in thiamine deficiency.  This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass.  Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates.  Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain.  Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation.  Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on.  SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times.  SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients.   Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide).  High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing.  It improves "leaky gut".  High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria.  Thiamine TTFD is beneficial for neurological issues.  Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog.    Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together.  Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well.  Minerals like Magnesium, Calcium, Iron,  Potassium, and others may need to be supplemented as well.  Thiamine and Magnesium make life sustaining enzymes together.   Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome!  So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/
    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
    • JennMitchell79
    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
    • Scott Adams
      @Irishgirl5, it does sound possible for those numbers to fluctuate a bit, especially when they are near the upper end of normal, but ongoing symptoms still make it understandable that you are concerned. The fact that his tissue transglutaminase immunoglobulin A is still technically in range does not always make the picture feel any clearer, especially with tummy pain, nausea, constipation, and diarrhea still going on. Anxiety can certainly add to gastrointestinal symptoms, but I can see why you would not want to assume that explains everything. It sounds like keeping an eye on things and being cautious with diet changes makes sense, especially if symptoms continue. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.