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Omg...i Might Be On To Something

Rachel--24

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CarlaB Enthusiast
CarlaB
Posted

I don't think the sauna is what's making me feel bad ... I felt this way before we got it. Last herx it was an hour in the sauna that pulled me out of it. Once I get up and work out, I feel pretty good the rest of the day.

As quickly as the treatment seems to be helping, I'm guessing I just need the rest. Then all of a sudden, out of the blue, I'll have a few good days where I get right up in the morning!

Today I didn't take a sauna and I'm still fried.

Umm, Addison called the alternative guy a quack... big mistake, but you'll have to watch to see. ;)

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DingoGirl Enthusiast
DingoGirl
Posted
Ummm, talking elevator on Grey's??? Okay, I'm just trying to bug you west coasters. :P

:lol: ha ha, bug us all you want, just don't TELL us what happens. ;)

Carla - - adorable pic, you actually look quite a bit like Kate Capshaw! (spielberg's wife) Now, if you only had their money, you could take ALL of us to that spa! :rolleyes:

BEV - - a thousand hugs to you, honey. I am feelign encouraged by your GI, who seems to have a clue. Hope you can figure out the answers SOON, it has been such a long road.

Hello to everybody else, and very cute photos!....I am SO SO tired but am actually contemplating going to the gym. Gotta be home for Gray's, of course.

What a trying week this has been... :( I am very tired.......but the weekend's coming. :) Love and hugs to all of you.

:)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Why would the sauna make things worse? That's intersting. Of course, if they aren't detoxing I could see that, but... :blink:

Saunas make things worse the same way too many drops of NDF make things worse or too much chlorella or too much of anything that loosens up metals. Its releasing toxins from wherever they're stored...not all of it can get detoxed.

Dr. K. recommends that mercury toxic people dont get into a sauna at all until they've done quite a bit of other detox stuff first. In other words....not at the beginning of treatment when someone is loaded with metals.

The concern is the same as it is with anything else that mobilizes metals...that they can get redistributed to more harmful areas...particularly the brain. Sometimes metals are stored in places where they're not causing alot of harm...but when they're mobilized they can always end up in the brain or causing damage to organs or whatever. Thats the risk involved.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I don't think the sauna is what's making me feel bad ... I felt this way before we got it. Last herx it was an hour in the sauna that pulled me out of it. Once I get up and work out, I feel pretty good the rest of the day.

Carla...the concern about too much sauna is mainly having to do with heavy metals.

CarlaB Enthusiast
CarlaB
Posted
:lol: ha ha, bug us all you want, just don't TELL us what happens. ;)
I know better than to do that!

Ugly Betty is on first, then a two hour Grey's. Here it started at 9, its normal start time, but goes till 11.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I I can rarely take a nap...it happens ocassionally, but not often.

OMG...my days were ALL about naps back when I was off work. I rarely could get through a day without naps. I actually slept off and on up to 15+ hours a day.....everyday!!

Its been 2 years now that I havent needed naps. I cant even imagine taking naps now!! :blink:

It sounds good though.. :P

AndreaB Contributor
AndreaB
Posted
or too much chlorella or too much of anything that loosens up metals.

That makes sense.

Speaking of chlorella. Talitha and I had some this morning. Ick is all I can say (her too). I had 1/8 tsp and she had less than that. I mixed it in water. She said her stomach felt weird but nothing else out of the ordinary.

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CarlaB Enthusiast
CarlaB
Posted

So, Donna, you really think you're going to be able to watch a half-episode of Grey's? :lol:

It was good. I think I like the new show, too. Great, that's all I need, another 'Grey's night'!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Patti and Carla...I love your pics!! Very nice. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
9) grilled cheese sandwiches- oohh maybe on sourdough bread!!

YES!!! Definately gotta have 1000 of these on my list too!! :D

Woah....I'm getting dizzy from food lust. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Uggg!!!! I ate a small bag of corn chips AND a small bag of potato chips. What the heck is wrong with me!?! :rolleyes::lol:

Dunno....maybe you're turning into me??? :lol:

CarlaB Enthusiast
CarlaB
Posted
Patti and Carla...I love your pics!! Very nice. :)

Thanks. That's the same one I had up before, it's just zoomed in on me. B's forehead looks like my shoulder.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
What a trying week this has been... :( I am very tired.......but the weekend's coming. :) Love and hugs to all of you.

YESSSS....the weekened is almost here...and its gonna be beautiful outside....perfect for bored and staring dingos. ;)

HUGS to you too. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Thanks. That's the same one I had up before, it's just zoomed in on me. B's forehead looks like my shoulder.

Ahhh...I thought it might be from that photo you had up before....but I couldnt see you that well in the last one. Sometimes if I zoom in on pictures they arent so clear....but yours is really clear and yeah...you look YOUNG!! :)

I knew that was your daughters head. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hey....I just saw that its Morgans Birthday!!

Happy 19th Birthday Morgan!!!!! :)

DingoGirl Enthusiast
DingoGirl
Posted
Woah....I'm getting dizzy from food lust. :lol:

Food Lust.......sigh....this is what happens when I go to my mom's, I make her watch the Food Channel, as we know that is PORN for Celiacs. :(:lol:

YESSSS....the weekened is almost here...and its gonna be beautiful outside....perfect for bored and staring dingos. ;)

HUGS to you too. :)

Hugs Rach, I cannot begin to digest all the scientificness of your posts and treatments. I can't keep up and am SO far behind! I just hope whatever you're doing is allowing you to feel a bit better AND eat your melted ice cream. Er, are you still on that, or onto something else wacky?? :) Watch out for that bougainvillea, they are gorgeous, I planted three white ones this year and they all died in the freeze.

No staring dingos this weekend. I will take them to the park and hikes and many things so as to elminate the need to stare at mommy. ;)

Gray's coming on - gotta go!

diamondheart Newbie
diamondheart
Posted

Happy belated page 1000!!

DH is lecturing me about going to bed, so I can't write much.

Tomorrow, I have more unnatural tests done to my body. Ohhh, can't wait :P .

Are we now on the the wedding pictures? Oh, I'd love to post mine, but they are super HUGE and it will take some doing to get them small enough.

Jin, whoa, that glam-girl shot is taking me back to the "Flock of Seagull" days. I have a good pic of me from that era, but don't think it's digital.

Hasta, Claire

tabasco32 Apprentice
tabasco32
Posted

Okay this is off the subject, but I have two salmon in the freezer I got from whole foods. They are from a alaska fishery and are whole foods brand. Should I eat them considering there might not be any mercury or just minimal. I need an idea on what to eat for lunch, My naturopath suggested I could eat salmon as long as it comes from a good source and not farmed. On the Happy Feet insert they list the best to the worst fish to eat and they put alaskan salmon as the best choice. So any suggestions would be great thank you.

LIsa

P.S.

Greg's anatomy is weird tonight.

AndreaB Contributor
AndreaB
Posted
Should I eat them considering there might not be any mercury or just minimal.

All salmon is going to have some mercury in it. The alaska wild salmon is the best and lowest in mercury concentration, but there is still some there.

I forget what else I wanted to say..... :ph34r:

Does chlorella make you feel kinda sick to your stomach and hungry and the same time?

miamia Rookie
miamia
Posted
Food Lust.......sigh....this is what happens when I go to my mom's, I make her watch the Food Channel, as we know that is PORN for Celiacs. :(:lol:

Hugs Rach, I cannot begin to digest all the scientificness of your posts and treatments. I can't keep up and am SO far behind! I just hope whatever you're doing is allowing you to feel a bit better AND eat your melted ice cream. Er, are you still on that, or onto something else wacky?? :) Watch out for that bougainvillea, they are gorgeous, I planted three white ones this year and they all died in the freeze.

No staring dingos this weekend. I will take them to the park and hikes and many things so as to elminate the need to stare at mommy. ;)

Gray's coming on - gotta go!

Susan

I love that analogy- I watch the food network all the time- and yes I guess it is the equivelant of porn -its also kind of masachistic.

I have always wanted to do epsom salt baths but never do - I goota get on the boat. I did buy this stuff I think it is called masters miracle it is like a low intesity detox bath I actually thik it was good for me I took them a few times this winter I will post info on the stuff later today it might be good for some of you guys.

Rachel-

Yeah rachel I could definitly see why the saunas would be too much for me . Like anything else its probably one of those things that are good for you to do everyonce in a hwile while you are so sensitive and than maybe can increase when your body gets acclimated to it. That sounds like a really intense appt. you had yesturday. Ohh not to sound like to much of a mommy but you need more sleep!!!!!

Donna-

I think your disability idea sounds really good for you- I think you should do it

Andrea-

I just coulden't take the chlorella it messed with me.

Ok last night I ate peanut butter well actually I made cold seseme noodles(using peanut butter- its one of those foods I have beeen craving for so long)- it was really good and (fingers crossed) I think it actually went ok!!

jerseyangel Proficient
jerseyangel
Posted

Miamia--Those noodles with peanut butter sauce sound incredible! I'm so glad that it is agreeing with you :)

dlp252 Apprentice
dlp252
Posted
Ugly Betty is on first, then a two hour Grey's. Here it started at 9, its normal start time, but goes till 11.

So, Donna, you really think you're going to be able to watch a half-episode of Grey's?

It was good. I think I like the new show, too. Great, that's all I need, another 'Grey's night'!

I haven't watched Grey's yet...it came on at 9:00 here too so it was too late to even start watching. :P I'll watch it when I get home today...feel free to speak of whatever you wish about it now, lol. Knowing what happens doesn't ruin it for me...I'm the kind of person who reads the last page of a book first to see whether it's worth me spending my time reading it. :lol: I still enjoy the book and by the time I get to the end I've forgoteen what it was anyway...same with movies and shows. :P Hum, it seemed like maybe the new show might be a bit boring...I'm glad to hear you liked it.

Its been 2 years now that I havent needed naps. I cant even imagine taking naps now!!

It sounds good though..

I feel like I need a nap every day, but when I lay down, I just don't fall asleep. I feel like I need a nap now and I've only been awake for 2 hours...technically...I've actually been awake for hours because I DIDN'T SLEEP AGAIN, lol. :P

Speaking of chlorella. Talitha and I had some this morning. Ick is all I can say (her too). I had 1/8 tsp and she had less than that. I mixed it in water. She said her stomach felt weird but nothing else out of the ordinary.

Tastes awful doesn't it! I was mixing it with my other liquid vitamins which actually have a bit of sweetener in it and adding a little stevia in a glass of water. That made it palletable, but don't know what it did to the absorbtion of the vitamins, lol.

Dunno....maybe you're turning into me??? :lol:

:lol: Uggg, no more for me though...felt icky all day after that, and still do and gained TWO pounds! I just cannot metabolize carbs. :(

Thanks. That's the same one I had up before, it's just zoomed in on me. B's forehead looks like my shoulder.

It DOES look like your shoulder...I almost made a comment yesterday that my new picture is in keeping with the head to shoulder look in your picture. :lol:

Happy 19th Birthday Morgan!!!!!

Happy Belated Birthday to Morgan!!!!

Greg's anatomy is weird tonight.

:o

Does chlorella make you feel kinda sick to your stomach and hungry and the same time?

Yeah, I think my escapades with chlorella are documented. :lol: I was feeling nausea for a couple of weeks there and now I'm not. Chlorella or the other detox stuff are the only things I'm not taking now that I was then.

I think your disability idea sounds really good for you- I think you should do it

I'm glad your peanut butter concoction seemed to work, lol! I just long for peanut butter. :P

I actually hate the idea of disability...not because I want to work so much but mostly because I still feel like I'm able to work. The problem with that is that it is getting harder and harder to get myself to work every day and I'm afraid that at some point I'm going to get the point where I've pushed myself too much and that that will just make things worse and harder to recover from. My adrenals are just not coming back, and I can actually feel that process happening.

I can't sleep even taking four 3mg melatonin tablets, 2-4 valerian root tablets, two 100mg 5-HTP tablets. Somehow I keep thinking that if I could just sleep when my body WANTS to sleep, I'd get enough. The work schedule I have now just doesn't let me do that. :(

jerseyangel Proficient
jerseyangel
Posted

I sleep a decent amount most nights--I fall asleep easily by around 10:30-11:00, and usually wake up with a hot flash at about 1:30 (almost like clockwork :o ), go to the bathroom and go right back to sleep.

I still feel tired during the day---but I never nap and very rarely even lay down during the day, unless I'm feeling especially bad.

Right now it's 9:30 AM and My eyelids are feeling heavy. <_<

Maybe a Celiac thing?

CarlaB Enthusiast
CarlaB
Posted
...you look YOUNG!! :)

Thank you! I LOVE hearing that! :lol: People used to be shocked when they found out how old I was, but I haven't had that happen in a couple years ... I think I may be looking my age these days ... :o

I get grilled cheese sandwiches! They're really good on yeast-free Kinnikinnick bread! Usually Adam makes me egg sandwiches. What's particularly good about them is that fact that I don't have to make them!! That ALWAYS makes food taste better!

That picture is clear because it's cropped from a large picture. I had changed the picture size for the last avatar, but I used the larger one to crop for this. If I had cropped from the small picture it would be blurry.

CarlaB Enthusiast
CarlaB
Posted
Hey....I just saw that its Morgans Birthday!!

Happy 19th Birthday Morgan!!!!! :)

She had an exam last night at 7PM and is coming home today for the summer! YAY! Here's what I got her for her birthday (the blue one) ... Open Original Shared Link ... That's what Adam gets for being out of town when I went shopping! :P

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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