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Omg...i Might Be On To Something

Rachel--24

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ShadowSwallow Newbie
ShadowSwallow
Posted
I'd be interested in hearing about the humaworm and what she thinks will work for you. Is she going to test the different herbs in that to help come up with what you should order?

Yes, Mom has an appointment next Tuesday, so I'll be tagging along then. Mom wanted to do diatomatius earth internally for the parasites, but I managed to convince her that we should test first, and it turns out it would just tear me apart now.

Doesn't Kyolic Garlic have wheat in it? :huh: My sister jokes that I eat enough garlic to ward off an army of vampires! :lol:

Oh, Naturopath also tested for mercury toxicity and I'm clean, thankfully!

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Rachel--24 Collaborator
Rachel--24
Posted
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Sherry...I also didnt have any binders on board at the time I was eating all that garlic. It could have been targeting the yeast and parasites and in the process dumping metals into my system. I'm not sure exactly what was going on but I was pushing it because back then I was only thinking about killing yeast. I thought *everything* was die-off. :rolleyes:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Doesn't Kyolic Garlic have wheat in it? :huh:

Not any that I've ever taken. Its pretty clean...just organic aged garlic. I gotta look at the bottle but I wouldnt have bought anything that contained wheat. I totally scrutinize labels.

Kinda funny considering I didnt care what the heck I was shoving into my mouth the past couple days at work. :P

I didnt touch the bread though. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Mia,

How was your Thanksgiving? I miss your posts. :)

I was thinking about the stuff you react to...like doing better with white rice and not tolerating the brown. Basically not doing well with the healthier foods.

Its alot like me...I've always done REALLY bad with the healthy stuff...all the veggies, alternative flours, etc.

I'm wondering if you might benefit from low oxalate?? I dont do well with brown rice either...its higher in oxalate content...whereas white rice is low. Alot of the veggies, fruits, all nuts and most grains are high oxalate. It might be worth looking into in your case.

I can provide some links if you're interested. :)

Its working for some autistic kids and it seems to be working for me. Obviously its just a "band-aid" but it can help reduce toxicity/inflammation.

confusedks Enthusiast
confusedks
Posted

So I had an interesting Thanksgiving. I went to the family gathering with 20 people and of course I couldn't have anything other than the cranberry sauce and steamed broccoli with NOTHING on it!!! LOL!! Everyone felt really badly though and requested that I tell them what I avoid so they can accommodate my needs. My concern is that I get sick really easily and I don't want to be their guinea pig while trying to get the gluten FREE thing right. My question is...what should I do? They said they would have not stuffed the turkey because then I would have been able to eat, but I am so worried about CC.

And, my grandma bought Pamela's gluten-free df cookies, but they had soy in them! I felt so bad! The thing is I don't really expect them to meet my crazy dietary restrictions...at all, but they really want to. Any ideas? (Sorry for the irrelevant post...well, it's about MULTIPLE food intolerances...lol :D)

Other than that, I feel awful again today. It sucks going through this. And, I'm not even treating anything substantial. The abx are KILLING my stomach. Does anyone else experience that with abx and Lyme? UGH!

Kassandra

mftnchn Explorer
mftnchn
Posted

Ok, the garlic is definitely working, saw the first long gross thing this morning. :ph34r: ..and I had barely taken the pumpkin seeds and pineapple so it couldn't have been that.

Yuk, probably more to come, but I am looking forward to the possible benefits!!

AndreaB Contributor
AndreaB
Posted
OMG...yesterday was the first time I didnt come home for lunch! I had lunch at work....with everyone else....like a "normal" person! :o

I'm glad you were able to enjoy some food with the rest of the bunch.

As long as you don't overdo it, it sounds like you're slowly progressing to the point where you can do that more often. Don't push it though you hear! ;) We don't want to add more of a burden to your body when we are trying to get these metals reduced.

Everyone felt really badly though and requested that I tell them what I avoid so they can accommodate my needs. My concern is that I get sick really easily and I don't want to be their guinea pig while trying to get the gluten FREE thing right. My question is...what should I do? They said they would have not stuffed the turkey because then I would have been able to eat, but I am so worried about CC.

And, my grandma bought Pamela's gluten-free df cookies, but they had soy in them! I felt so bad! The thing is I don't really expect them to meet my crazy dietary restrictions...at all, but they really want to. Any ideas? (Sorry for the irrelevant post...well, it's about MULTIPLE food intolerances...lol :D)

I don't have any ideas. :( The thing is I believe most of these intolerances will clear up once the lyme is addressed......so the limitations aside from gluten and maybe dairy (just because that's not all that good for you) would be gone.

Ok, the garlic is definitely working, saw the first long gross thing this morning. :ph34r: ..and I had barely taken the pumpkin seeds and pineapple so it couldn't have been that.

Yuk, probably more to come, but I am looking forward to the possible benefits!!

We are taking chlorella so hopefully this won't be a problem for us. I don't know that Seth would like all the garlic in my system though. :ph34r:

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ami27 Apprentice
ami27
Posted

You all have me very interested in this Humaworm. I'm leery of seeing it working though :ph34r::blink: Also, we plan to try to get pregnant again in about 3 months. I wonder if it would be ok for me to do that in the meantime?

ShadowSwallow Newbie
ShadowSwallow
Posted
OMG...yesterday was the first time I didnt come home for lunch! I had lunch at work....with everyone else....like a "normal" person! :o

Yay for normal food! :D:P

Kassandra,

I know what you mean, we went over to our next door neighbor's and I just brought all of our own foods. She's a nurse and was very worried about CCing our stuff (new nothing about Celiac, but it's a start!) so we put it on a different table than the rest of the food. Hopefully all of these will clear up after your lyme's gone, maybe you'll be eating "normal" like Rachel by next year? :P

I'm feeling very discouraged at the moment. :( At the appointment I found out that I'd developed a sensitivity to dairy, mainly because I've been using it so much, and a sensitivity to chocolate, because it was out of my diet for about two weeks. I'm staking so much on the lyme right now. My metal levels are fine, I don't have candida or parasites other than these arthropods. I really can't face having my body acting like this for the rest of my life (I'm only 17, for goodness sake!), but what say do I have in that? :(

Ok, mini rant over (maybe there's some merit to me going on lithium like Mom and Naturopath want me to :rolleyes:). :)

AndreaB Contributor
AndreaB
Posted
You all have me very interested in this Humaworm. I'm leery of seeing it working though :ph34r::blink: Also, we plan to try to get pregnant again in about 3 months. I wonder if it would be ok for me to do that in the meantime?

I don't see that it would hurt.....it's only for a month and then you could take a break until some future time. At least you could clear out some of these guys.

I'm still debating the garlic.....for Seth's (still breastfeeding) and for the metals the worms release. I was told to take 10 chlorella (for me) before and after my tooth removal so I wonder if I could up my chlorella to 20 a day instead of 15, plus taking 10 close to when I take the garlic.

Any thoughts anyone......

AndreaB Contributor
AndreaB
Posted
I really can't face having my body acting like this for the rest of my life (I'm only 17, for goodness sake!), but what say do I have in that? :(

Ok, mini rant over (maybe there's some merit to me going on lithium like Mom and Naturopath want me to :rolleyes:). :)

I thought you looked young. I believe you and Kassandra are the same age.

I do think you're lyme is starting to cause food problems. Seems to be the way it works. <_<

I wouldn't go on lithium if you don't need to. Any psychological things can be attributed to lyme as well as gluten. How long have you been gluten free?

AndreaB Contributor
AndreaB
Posted

Quick update from Charlie.

His sister is back in the states. Her procedure went well. She developed pnuemonia afterwards and had to stay longer because of that. This is the first time she's been pain free since her teens. If anyone wants more info pm me and I'll send the info that Charlie gave me.

ShadowSwallow Newbie
ShadowSwallow
Posted

Andrea,

But would lyme cause all of those problems by itself? At this point it looks like I don't have any coinfections, at least in my intestines.

I've been gluten-free three months. The naturopath has found that it would be beneficial for me to go on it for about 6wks... I'd rather not, and we need to hunt down a gluten-free natural source, but at this point it seems like a patch since what I've been taking so far (St John's Wort) is becoming far less effective.

Your plan for taking chorella sounds like a good idea to me. :)

Wonderful news on Charlie's sister! :D

mftnchn Explorer
mftnchn
Posted

Andrea, that sounds like it could work. Can you add charcoal? Re Seth, you might just have to do a trial. Does he have a longer period of time in the day where he doesn't nurse? Maybe you could figure out how to time it so he would be less bothered?

I found the pumpkin seeds whirled in water in the blender quite palatable, tasted like sunflower seeds. Then whirled some fresh pineapple with water and made a juice/puree and that was quite tasty. It looks like on some sites you just grind up the whole seeds, hull and all. I bought shelled ones, we'll see how it works. I am going to continue on with 20-30 seeds a day, for a couple of weeks I think.

What is interesting is that I am quite bloated after, and starting to feel like I am going to herx on this. So thanks for reminding me about these horrible things releasing mercury.

So, since I don't have chlorella here, I'll step up the charcoal.

Oh also, the pumpkin seed apparently paralyzes but doesn't kill the worms (at least tapeworms). So you are supposed to take a mild laxative. I looked over the list of possibilities I found online and chose to try licorice tea. Maybe the laxative will help with the mercury.

I bought some licorice root here, a very common and cheap Chinese medicinal herb, and boiled a tablespoon in a couple of cups of water for 20-30 minutes. It tasted quite good, I like licorice, and I already know that it helps my stomach.

At least all this doesn't cost much!!

mftnchn Explorer
mftnchn
Posted

Andrea, by the way, I forget what items your family can and cannot eat, but I wonder if you have tried finding anything at the Chinese markets in Portland, and whether it is cheaper. There's probably some in Vancouver too, but I haven't looked.

If not, when I get home I'll be checking them out and can let you know what I find. I can read the Chinese, so that makes it easier for me to find stuff.

AndreaB Contributor
AndreaB
Posted
Andrea, by the way, I forget what items your family can and cannot eat, but I wonder if you have tried finding anything at the Chinese markets in Portland, and whether it is cheaper. There's probably some in Vancouver too, but I haven't looked.

If not, when I get home I'll be checking them out and can let you know what I find. I can read the Chinese, so that makes it easier for me to find stuff.

I haven't looked at Chinese markets.

Do you think Vit C would work for clearing the system like a laxative? We have flax seeds which I could take as well. I was just planning on doing the garlic. I may have to find some licorice tea though if the flax doesn't work.

Seth goes 11-12 hours through the night so I'll probably take the garlic sometime after dinner. Can you take it with food or does it have to be by itself?

mftnchn Explorer
mftnchn
Posted

I didn't notice about whether you take it with food or without. I've followed with a little food sometimes, to help with the taste in my mouth. I figure by itself might be more impactful when it gets to the intestines.

It seems from what I read any laxative is fine. Castor oil was suggested several places. I just picked out the licorice from the list. I don't know how it will work.

Lots of water was mentioned too.

I wonder if you could find any info about how long the garlic would impact your milk. Wonder if it would help to pump once? My allergist told me that foods stay in our systems for 4 days, but there might be like a bell curve thing in terms of the amounts at various times.

AndreaB Contributor
AndreaB
Posted
I wonder if you could find any info about how long the garlic would impact your milk. Wonder if it would help to pump once? My allergist told me that foods stay in our systems for 4 days, but there might be like a bell curve thing in terms of the amounts at various times.

Seems up to a week. They just mention avoiding garlic (along with other similar foods) for the first 2 months.

I'll try it. I'll just have to play it by ear and hope he doesn't get slammed with more mercury. If I start having any symptoms I'll stop and go that route next year.

I'll have to talk to hubby more and see if he thinks I should wait. Affecting myself is one thing but affecting him even more than I am now, is another.

mftnchn Explorer
mftnchn
Posted

yes, I wonder what the amount of problem would be with the mercury release?

CarlaB Enthusiast
CarlaB
Posted
Carla---yep the humaworm would be easier, just hard to get for me now. Thought I'd try this--might relieve some of the parasitic load at least.

Birdy, sorry it wasn't so pleasant, but way to go for standing up for your own wellness and treatment! Maybe it will challenge her to research.

It IS a good idea! I hope it works for you! :)

Birdy, my LLMD is of the opinion that you have to beat down the bacterial load before the herbs will work. I plan on getting on the Cowden Protocol eventually, you can read about it at nutramedix's website.

And, yes, the Lyme can cause all that. However, Lyme usually doesn't exist alone. Lyme patients typically have things like heavy metal toxicity, or other imbalances, like in the gut. I think your naturopath will be excellent in helping you with these things, but I think an LLMD would be a good idea for the Lyme. Hopefully, your naturopath will be willing to work with an LLMD.

I'm on vacation now. :)

OMG...yesterday was the first time I didnt come home for lunch! I had lunch at work....with everyone else....like a "normal" person! :o

YAY! But it sounds like you aren't ready to make a habit of it. ;)

I didnt touch the bread though. :)

I made all of Thanksgiving dinner gluten-free, except for the green bean casserole. BUT, I did have my turkey sandwiches on good ol' Wonder Bread! :D My tummy is doing fine!

So I had an interesting Thanksgiving. I

Everyone felt really badly though and requested that I tell them what I avoid so they can accommodate my needs.

Other than that, I feel awful again today. It sucks going through this. And, I'm not even treating anything substantial. The abx are KILLING my stomach. Does anyone else experience that with abx and Lyme? UGH!

Kassandra

Just tell them how difficult it was for you to cook gluten-free and that you don't want them to have to learn all the pitfalls of it just to cook for you a couple times per year. That when your food sensitivities are better, you will participate more fully .... and if you still can't eat like normal, at that point you will tell them how to cook for you. :)

I'm not surprised your stomach is killing you. If you're killing bugs there, it's bound to. I had terrible stomach pain until I treated the Bartonella. Are you taking a probiotic?

Ok, the garlic is definitely working, saw the first long gross thing this morning. :ph34r: ..and I had barely taken the pumpkin seeds and pineapple so it couldn't have been that.

Yuk, probably more to come, but I am looking forward to the possible benefits!!

This is great! Yuck.

You all have me very interested in this Humaworm. I'm leery of seeing it working though :ph34r::blink: Also, we plan to try to get pregnant again in about 3 months. I wonder if it would be ok for me to do that in the meantime?

If you use it for a month, it sounds like you'll have plenty of time off it before you start trying. I'd be taking lots of chlorella if you do take it, to bind the mercury that's released.

Quick update from Charlie.

I'd like it. How is he doing?

So you are supposed to take a mild laxative. I looked over the list of possibilities I found online and chose to try licorice tea. Maybe the laxative will help with the mercury.
My kids LOVE licorice tea! They drink it all winter. It tastes like sugar water.

Adam started the Humaworm today. He's feeling very fatigued this evening. I had him take some chlorella. I had a feeling he was pretty toxic. :)

mftnchn Explorer
mftnchn
Posted

Andrea, maybe the pumpkin seed plus laxative would be better, as it expels them live...at least some of them. I can't find info about what actually happens when they die re the mercury.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
YAY! But it sounds like you aren't ready to make a habit of it. ;)

Ummm...definately NOT...unless of course I wanna have major pain, brainfog and lots of missed work. :P

I've been doing so well...havent missed any work in months....well except for that one incident where my mom poisoned me with the carpet chemicals. <_<

Other than that I've been doing wonderfully. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
But would lyme cause all of those problems by itself? At this point it looks like I don't have any coinfections, at least in my intestines.

Personally, I dont think anyone has chronic Lyme without all of the additional problems which come with it. Chronic Lyme is multifactorial....its never *just* Lyme. Heavy metals are nearly always a part of the picture and coinfections are the rule rather than the exception.

It takes a very knowledgeable Dr. (usually an LLMD) to get a good picture of everything you might be dealing with.

confusedks Enthusiast
confusedks
Posted

Birdy,

We are the same age! I'm 17 too!!! :D It does sound like you need an LLMD to work with you maybe along side your naturopath? I have yet to see one, but all the naturopaths I have been to don't even really want to think about Lyme...or don't know enough about it and I don't want them to learn on me.

Carla,

That's what I was thinking of telling them about the diet. Thanks for the idea.

I am taking a probiotic. It's not super strong because we were worried that I wouldn't be able to tolerate it if it was too strong. I am eventually going to look into the really strong one you take at some point.

Everyone,

The abx are making me feel terrible. I am unlike Carla, usually when I'm not online, I am really feeling terrible...no strength to get up and go on the computer. :(

As I am typing this, my skin is getting really splotchy and itchy so I hope this isn't the beginning of an allergic reaction. :unsure::( Ugh, I am so tired of all of this crap! Not to mention my mom had to walk with me up the stairs to get to bed tonight because I am so weak. This is terrible.

Kassandra

mftnchn Explorer
mftnchn
Posted

Kassandra, that isn't great to hear about the skin itching. Are you pushing the water, and taking charcoal in between?

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      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
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