Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

susieg-1 Apprentice
susieg-1
Posted

carla,

had forgotten about abc.com thanks for the reminder!!! can even connect laptop to the big screen :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
confused Community Regular
confused
Posted

Mold guy is on his way. I am nervous to see what he is going to say, but happy at the same time. Will report when he is gone lol

jerseyangel Proficient
jerseyangel
Posted
patti

i see you. how are you?

Hi Mia :D So nice to see you too!

I'm doing pretty well--currently trying to get my blood pressure down but overall feeling much better than I had been. I'm working with a Chiropractor in conjunction with my new doctor on that and a couple other issues.

I am happy to hear you are able to begin trying some new foods, and hope that you are also doing better. :)

susieg-1 Apprentice
susieg-1
Posted
Mold guy is on his way. I am nervous to see what he is going to say, but happy at the same time. Will report when he is gone lol

Is he gonna check house for mold? I missed earlier post

confusedks Enthusiast
confusedks
Posted
Doctors and parents just don't understand how extreme and uncomfortable this bloating can be! I think in their minds they picture the kind of bloating they just take some Beano for :huh:

I can so relate to extremely painful bloating. My stomach gets so bloated, it literally adds up to 6 inches to my tummy...I look pregnant!

It is very painful. I almost want to go into my Dr's office, and look really bloated, because he'll think I'm pregnant! :lol:

confused Community Regular
confused
Posted

Mold update:

No visual mold anywhere in the house. But he said he does feel the air test for the boiler was correct. But he feels we can just clean the area from top to bottom and put an door on the boiler room and put vent in under the house and we will be fine. He said right now we have dead mold spores that are giving off the smell. But if it would get wet in there without cleaning then we would be in trouble with lots of live mold spores.

Im just confused why i get sick more in the house. Could my body just be so overwhelmed with something else (metal toxicity, parasites or candida), that I am more suspectible to the mold.

paula

aprilh Apprentice
aprilh
Posted

what about non-visual mold. It doesn't always flourish in places that we can see.

I do think that the body can become intolerant to the littlest things once the "bucket" gets full.

Seems like I read that dead spores are not good either - from a health standpoint.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Paula, what about dust? I have to clean the blinds and other things that are often overlooked or the smell of the dust starts bothering me.

confused Community Regular
confused
Posted
what about non-visual mold. It doesn't always flourish in places that we can see.

I do think that the body can become intolerant to the littlest things once the "bucket" gets full.

Seems like I read that dead spores are not good either - from a health standpoint.

Yes he said we had the non-visual mold in the boiler room cause there is no moisture at this time. He Said he is positive if there was moisture in there, then we would be able to see them. He also said that dead spores can cause lots of breathing problems and be the cause of hte kids asthma.

Paula, what about dust? I have to clean the blinds and other things that are often overlooked or the smell of the dust starts bothering me.

I dust all the time. I try to keep my house spotless from allergens due to step-sons allergies. We dont have plants in the house or carpet for that reason. I make sure hubby keeps the fan blades free from dust.

I am just so tired and depressed today. My stomach has been hurting for 3 days now. I know its cause i have been eating chips and starburst like crazy cause im so stressed with everything going on.

I just keep hoping the hair analysis will have some answer for me.

paula

tabasco32 Apprentice
tabasco32
Posted

Sorry Paula,

I know what your going through. Some of my family members still wear cologne so everytime I go home I feel sick. I think that's another reason I would rather hang out at the library. I't always empty here and the air conditioner for some strange reason makes me feel better.

CarlaB Enthusiast
CarlaB
Posted
I dust all the time. I try to keep my house spotless from allergens due to step-sons allergies. We dont have plants in the house or carpet for that reason. I make sure hubby keeps the fan blades free from dust.

That's good. Same here, no carpet, just rugs. Carpet in one room only. The one thing I'm bad about are the fan blades because the fans are always on low. Many of my windows don't have window treatments, too, so that cuts down on the dust.

Lot's of my family members have seasonal/dust allergies. One of the few things that I'm allergic to is dust.

Sounds like it might be the invisible mold. Might also be a sum of a bunch of little things.

AndreaB Contributor
AndreaB
Posted
I am just so tired and depressed today. My stomach has been hurting for 3 days now. I know its cause i have been eating chips and starburst like crazy cause im so stressed with everything going on.

I just keep hoping the hair analysis will have some answer for me.

I hope the hair analysis has some answers for you too. I can certainly understand the stress and uncertainty.

I do know that once you start reacting, even tiny things can throw you over.

ShadowSwallow Newbie
ShadowSwallow
Posted

Paula,

I hope the mold situation all works out for you. :wub:

Everyone,

So... does the pizza craving ever go away? :P

Birdy

AndreaB Contributor
AndreaB
Posted
So... does the pizza craving ever go away? :P

I'd have to say no. :P

We buy a gluten free pizza crust so we can still have pizza. :D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

duplicate

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So I'm supposed to be on digestive enzymes, but I'm afraid to take them because I get sensitive to my supplements so fast, and you have to take so many in a day. They really help though? Perhaps I should try just one today.

I actually couldnt tolerate ANY enzymes....I was even tested for all sorts of different types and my practitioner couldnt find a single enzyme that my body responded well to. So for that reason I hadnt taken any in years. Ocassionally I would try a new brand but it never worked out for me.

Only recently I started researching some enzymes that were designed for people with similar issues...mainly autistic kids who are sensitive to phenols, gluten dairy, etc. The enzymes are not derived from fruits like most other brans and I've done so well on them!

These are the first ones that tested for well for me. I've been on them for several weeks now with no problems. :)

Rachel-

I ahve been eating mac and cheeses too!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Yay for mac n cheese!! :D

Everyone comments on how weird it is to see me sitting in the breakroom eating lunch everyday! :blink:

It feels weird to me too....but I'm definately loving the fact that I can actually buy food where I work and eat it without getting sick! I'm totally careful about labels and its really only a few things I'm eating...and mostly the same stuff everyday. :rolleyes:

The mac n cheese actually came from Whole Foods though.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I have to agree with Carla. That's not really "normal" food but I'm glad you been doing ok with it. :)

I guess to me its normal food. :P

Its not "special"....its the normal stuff thats in every grocery store across the country. Its the stuff I used to eat before I got sick. :) To me....if I dont have to travel to another city just to get my dinner and I can just grab it off the shelf at work....well that seems so normal to me!! :D

I'm finding out that as long as I strictly avoid salicylates...and this means NO fruit (except occassionaly pears) NO spices, No herbs, NO nuts and hardly any veggies...I'm tolerating a whole bunch of other foods! Same goes for the sulfur foods. If I avoid the high phenols and the sulfur foods I do really well with some of the other stuff...even stuff like sandwich rolls and hot dogs containing nitrates. :o

I'm not even tempted to eat chocolate now because I realize that its only gonna cause my sensitivities to increase and I'll end up reacting to everything. I would never tolerate the mac n cheese if I were eating high phenol/salicylate foods.

Even one mango can cause my sensitivities to go up.

So yeah....it looks like I do better on the gluten foods as long as I'm not making myself totally toxic with the salicylates and other high phenol foods.

I also found out that I cant tolerate hot dog buns containing high fructose corn syrup....I get totally spaced out....but without the HFCS I'm fine. :)

I'm also eating those yummy cinnamon rolls everyday. I only eat one at a time though....2 per day max. ;)

I dont feel as if candida is an issue even with eating all these foods...and yet if I eat healthier foods which are high in salicylates I feel extremely toxic and the yeast is more of a concern.

what about non-visual mold. It doesn't always flourish in places that we can see.

I do think that the body can become intolerant to the littlest things once the "bucket" gets full.

I totally agree April....lots of times the mold is in places that are not visible.

And yes...once the bucket is full...anything can become a problem. People who have chemical sensitivities, food intolerances, sensitivity to smoke, extremely sensitive to mold, etc., etc.....tend to have a bucket which is overflowing and an immune system that is overwhelmed.

ShadowSwallow Newbie
ShadowSwallow
Posted
I'd have to say no. :P

We buy a gluten free pizza crust so we can still have pizza. :D

I'm actually considering doing this, despite my reaction to casein last time. :rolleyes: Yay vivid dreams. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So... does the pizza craving ever go away? :P

Definately not!!

I still LOVE pizza. :wub:

AndreaB Contributor
AndreaB
Posted
I'm actually considering doing this, despite my reaction to casein last time. :rolleyes: Yay vivid dreams. :P

Have you tried organic raw cheese. That may go over better for you.

confusedks Enthusiast
confusedks
Posted
Everyone,

So... does the pizza craving ever go away? :P

Birdy

I have to say...yes! I get nauseous just thinking about pizza! LOL! My whole life I've never liked pizza because from such a young age, I had terrible symptoms after eating it. When I would have pool parties for my bday, I would have steak and chicken and caesar salads. :lol::ph34r: My friends loved it! :lol:;)

miamia Rookie
miamia
Posted
I actually couldnt tolerate ANY enzymes....I was even tested for all sorts of different types and my practitioner couldnt find a single enzyme that my body responded well to. So for that reason I hadnt taken any in years. Ocassionally I would try a new brand but it never worked out for me.

Only recently I started researching some enzymes that were designed for people with similar issues...mainly autistic kids who are sensitive to phenols, gluten dairy, etc. The enzymes are not derived from fruits like most other brans and I've done so well on them!

These are the first ones that tested for well for me. I've been on them for several weeks now with no problems. :)

mine was from whole foods too!!!!!!!!!!Very homemade very yummy

Yay for mac n cheese!! :D

Everyone comments on how weird it is to see me sitting in the breakroom eating lunch everyday! :blink:

It feels weird to me too....but I'm definately loving the fact that I can actually buy food where I work and eat it without getting sick! I'm totally careful about labels and its really only a few things I'm eating...and mostly the same stuff everyday. :rolleyes:

The mac n cheese actually came from Whole Foods though.

CarlaB Enthusiast
CarlaB
Posted

Rachel, I'm glad you're enjoying foods now and don't have to drive across town. :D

Kassandra, I want to come to your b'day parties! :P

Have any of you seen this? Open Original Shared Link (if it's "lame advertisement" it's mercola)

susieg-1 Apprentice
susieg-1
Posted
Rachel, I'm glad you're enjoying foods now and don't have to drive across town. :D

Kassandra, I want to come to your b'day parties! :P

Have any of you seen this? Open Original Shared Link (if it's "lame advertisement" it's mercola)

watched this ad you all know the saying "If it sounds too good to be true..."

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
watched this ad you all know the saying "If it sounds too good to be true..."

Yes.....but the same can also be said about acupuncture. However, acupuncture is well known to have many benefits. Many people have experienced a complete resolution of symptoms from acupuncture alone.

Acupuncture is now even used in conventional medical facilities. They may not know *how* it works....but it clearly does work.

I'm one who prefers to keep an open mind and I do believe that treatments such as EFT can do some people ALOT of good. It may not work for every person....no treatment works for EVERY person...not even conventional treatments. However, I do believe that this type of treatment can be effective for some.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748
    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.