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Omg...i Might Be On To Something

Rachel--24

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susieg-1 Apprentice
susieg-1
Posted

carla,

had forgotten about abc.com thanks for the reminder!!! can even connect laptop to the big screen :D

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  • Replies 33.4k
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confused Community Regular
confused
Posted

Mold guy is on his way. I am nervous to see what he is going to say, but happy at the same time. Will report when he is gone lol

jerseyangel Proficient
jerseyangel
Posted
patti

i see you. how are you?

Hi Mia :D So nice to see you too!

I'm doing pretty well--currently trying to get my blood pressure down but overall feeling much better than I had been. I'm working with a Chiropractor in conjunction with my new doctor on that and a couple other issues.

I am happy to hear you are able to begin trying some new foods, and hope that you are also doing better. :)

susieg-1 Apprentice
susieg-1
Posted
Mold guy is on his way. I am nervous to see what he is going to say, but happy at the same time. Will report when he is gone lol

Is he gonna check house for mold? I missed earlier post

confusedks Enthusiast
confusedks
Posted
Doctors and parents just don't understand how extreme and uncomfortable this bloating can be! I think in their minds they picture the kind of bloating they just take some Beano for :huh:

I can so relate to extremely painful bloating. My stomach gets so bloated, it literally adds up to 6 inches to my tummy...I look pregnant!

It is very painful. I almost want to go into my Dr's office, and look really bloated, because he'll think I'm pregnant! :lol:

confused Community Regular
confused
Posted

Mold update:

No visual mold anywhere in the house. But he said he does feel the air test for the boiler was correct. But he feels we can just clean the area from top to bottom and put an door on the boiler room and put vent in under the house and we will be fine. He said right now we have dead mold spores that are giving off the smell. But if it would get wet in there without cleaning then we would be in trouble with lots of live mold spores.

Im just confused why i get sick more in the house. Could my body just be so overwhelmed with something else (metal toxicity, parasites or candida), that I am more suspectible to the mold.

paula

aprilh Apprentice
aprilh
Posted

what about non-visual mold. It doesn't always flourish in places that we can see.

I do think that the body can become intolerant to the littlest things once the "bucket" gets full.

Seems like I read that dead spores are not good either - from a health standpoint.

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CarlaB Enthusiast
CarlaB
Posted

Paula, what about dust? I have to clean the blinds and other things that are often overlooked or the smell of the dust starts bothering me.

confused Community Regular
confused
Posted
what about non-visual mold. It doesn't always flourish in places that we can see.

I do think that the body can become intolerant to the littlest things once the "bucket" gets full.

Seems like I read that dead spores are not good either - from a health standpoint.

Yes he said we had the non-visual mold in the boiler room cause there is no moisture at this time. He Said he is positive if there was moisture in there, then we would be able to see them. He also said that dead spores can cause lots of breathing problems and be the cause of hte kids asthma.

Paula, what about dust? I have to clean the blinds and other things that are often overlooked or the smell of the dust starts bothering me.

I dust all the time. I try to keep my house spotless from allergens due to step-sons allergies. We dont have plants in the house or carpet for that reason. I make sure hubby keeps the fan blades free from dust.

I am just so tired and depressed today. My stomach has been hurting for 3 days now. I know its cause i have been eating chips and starburst like crazy cause im so stressed with everything going on.

I just keep hoping the hair analysis will have some answer for me.

paula

tabasco32 Apprentice
tabasco32
Posted

Sorry Paula,

I know what your going through. Some of my family members still wear cologne so everytime I go home I feel sick. I think that's another reason I would rather hang out at the library. I't always empty here and the air conditioner for some strange reason makes me feel better.

CarlaB Enthusiast
CarlaB
Posted
I dust all the time. I try to keep my house spotless from allergens due to step-sons allergies. We dont have plants in the house or carpet for that reason. I make sure hubby keeps the fan blades free from dust.

That's good. Same here, no carpet, just rugs. Carpet in one room only. The one thing I'm bad about are the fan blades because the fans are always on low. Many of my windows don't have window treatments, too, so that cuts down on the dust.

Lot's of my family members have seasonal/dust allergies. One of the few things that I'm allergic to is dust.

Sounds like it might be the invisible mold. Might also be a sum of a bunch of little things.

AndreaB Contributor
AndreaB
Posted
I am just so tired and depressed today. My stomach has been hurting for 3 days now. I know its cause i have been eating chips and starburst like crazy cause im so stressed with everything going on.

I just keep hoping the hair analysis will have some answer for me.

I hope the hair analysis has some answers for you too. I can certainly understand the stress and uncertainty.

I do know that once you start reacting, even tiny things can throw you over.

ShadowSwallow Newbie
ShadowSwallow
Posted

Paula,

I hope the mold situation all works out for you. :wub:

Everyone,

So... does the pizza craving ever go away? :P

Birdy

AndreaB Contributor
AndreaB
Posted
So... does the pizza craving ever go away? :P

I'd have to say no. :P

We buy a gluten free pizza crust so we can still have pizza. :D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

duplicate

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So I'm supposed to be on digestive enzymes, but I'm afraid to take them because I get sensitive to my supplements so fast, and you have to take so many in a day. They really help though? Perhaps I should try just one today.

I actually couldnt tolerate ANY enzymes....I was even tested for all sorts of different types and my practitioner couldnt find a single enzyme that my body responded well to. So for that reason I hadnt taken any in years. Ocassionally I would try a new brand but it never worked out for me.

Only recently I started researching some enzymes that were designed for people with similar issues...mainly autistic kids who are sensitive to phenols, gluten dairy, etc. The enzymes are not derived from fruits like most other brans and I've done so well on them!

These are the first ones that tested for well for me. I've been on them for several weeks now with no problems. :)

Rachel-

I ahve been eating mac and cheeses too!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Yay for mac n cheese!! :D

Everyone comments on how weird it is to see me sitting in the breakroom eating lunch everyday! :blink:

It feels weird to me too....but I'm definately loving the fact that I can actually buy food where I work and eat it without getting sick! I'm totally careful about labels and its really only a few things I'm eating...and mostly the same stuff everyday. :rolleyes:

The mac n cheese actually came from Whole Foods though.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I have to agree with Carla. That's not really "normal" food but I'm glad you been doing ok with it. :)

I guess to me its normal food. :P

Its not "special"....its the normal stuff thats in every grocery store across the country. Its the stuff I used to eat before I got sick. :) To me....if I dont have to travel to another city just to get my dinner and I can just grab it off the shelf at work....well that seems so normal to me!! :D

I'm finding out that as long as I strictly avoid salicylates...and this means NO fruit (except occassionaly pears) NO spices, No herbs, NO nuts and hardly any veggies...I'm tolerating a whole bunch of other foods! Same goes for the sulfur foods. If I avoid the high phenols and the sulfur foods I do really well with some of the other stuff...even stuff like sandwich rolls and hot dogs containing nitrates. :o

I'm not even tempted to eat chocolate now because I realize that its only gonna cause my sensitivities to increase and I'll end up reacting to everything. I would never tolerate the mac n cheese if I were eating high phenol/salicylate foods.

Even one mango can cause my sensitivities to go up.

So yeah....it looks like I do better on the gluten foods as long as I'm not making myself totally toxic with the salicylates and other high phenol foods.

I also found out that I cant tolerate hot dog buns containing high fructose corn syrup....I get totally spaced out....but without the HFCS I'm fine. :)

I'm also eating those yummy cinnamon rolls everyday. I only eat one at a time though....2 per day max. ;)

I dont feel as if candida is an issue even with eating all these foods...and yet if I eat healthier foods which are high in salicylates I feel extremely toxic and the yeast is more of a concern.

what about non-visual mold. It doesn't always flourish in places that we can see.

I do think that the body can become intolerant to the littlest things once the "bucket" gets full.

I totally agree April....lots of times the mold is in places that are not visible.

And yes...once the bucket is full...anything can become a problem. People who have chemical sensitivities, food intolerances, sensitivity to smoke, extremely sensitive to mold, etc., etc.....tend to have a bucket which is overflowing and an immune system that is overwhelmed.

ShadowSwallow Newbie
ShadowSwallow
Posted
I'd have to say no. :P

We buy a gluten free pizza crust so we can still have pizza. :D

I'm actually considering doing this, despite my reaction to casein last time. :rolleyes: Yay vivid dreams. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So... does the pizza craving ever go away? :P

Definately not!!

I still LOVE pizza. :wub:

AndreaB Contributor
AndreaB
Posted
I'm actually considering doing this, despite my reaction to casein last time. :rolleyes: Yay vivid dreams. :P

Have you tried organic raw cheese. That may go over better for you.

confusedks Enthusiast
confusedks
Posted
Everyone,

So... does the pizza craving ever go away? :P

Birdy

I have to say...yes! I get nauseous just thinking about pizza! LOL! My whole life I've never liked pizza because from such a young age, I had terrible symptoms after eating it. When I would have pool parties for my bday, I would have steak and chicken and caesar salads. :lol::ph34r: My friends loved it! :lol:;)

miamia Rookie
miamia
Posted
I actually couldnt tolerate ANY enzymes....I was even tested for all sorts of different types and my practitioner couldnt find a single enzyme that my body responded well to. So for that reason I hadnt taken any in years. Ocassionally I would try a new brand but it never worked out for me.

Only recently I started researching some enzymes that were designed for people with similar issues...mainly autistic kids who are sensitive to phenols, gluten dairy, etc. The enzymes are not derived from fruits like most other brans and I've done so well on them!

These are the first ones that tested for well for me. I've been on them for several weeks now with no problems. :)

mine was from whole foods too!!!!!!!!!!Very homemade very yummy

Yay for mac n cheese!! :D

Everyone comments on how weird it is to see me sitting in the breakroom eating lunch everyday! :blink:

It feels weird to me too....but I'm definately loving the fact that I can actually buy food where I work and eat it without getting sick! I'm totally careful about labels and its really only a few things I'm eating...and mostly the same stuff everyday. :rolleyes:

The mac n cheese actually came from Whole Foods though.

CarlaB Enthusiast
CarlaB
Posted

Rachel, I'm glad you're enjoying foods now and don't have to drive across town. :D

Kassandra, I want to come to your b'day parties! :P

Have any of you seen this? Open Original Shared Link (if it's "lame advertisement" it's mercola)

susieg-1 Apprentice
susieg-1
Posted
Rachel, I'm glad you're enjoying foods now and don't have to drive across town. :D

Kassandra, I want to come to your b'day parties! :P

Have any of you seen this? Open Original Shared Link (if it's "lame advertisement" it's mercola)

watched this ad you all know the saying "If it sounds too good to be true..."

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
watched this ad you all know the saying "If it sounds too good to be true..."

Yes.....but the same can also be said about acupuncture. However, acupuncture is well known to have many benefits. Many people have experienced a complete resolution of symptoms from acupuncture alone.

Acupuncture is now even used in conventional medical facilities. They may not know *how* it works....but it clearly does work.

I'm one who prefers to keep an open mind and I do believe that treatments such as EFT can do some people ALOT of good. It may not work for every person....no treatment works for EVERY person...not even conventional treatments. However, I do believe that this type of treatment can be effective for some.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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