Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

CarlaB Enthusiast

Cool Lisa!

I take Nutramedix Zeolite. It's a capsule. It's taken every third night. The only side effect I've heard of is constipation.

Glad you're home Kassandra.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Green12 Enthusiast
With the drunken brainfog, two days! :) I had a lot of toxic acne where my lymp nodes are. I no longer have that toxic acne. The scares are even disappering. Everyone at the Waiora meetings are shocked. My ph balance even with candida has diminished greatly. My hair started growing back and getting more shine to it. It's awesome.

Lisa, this is awesome :D:D So glad you have experienced so many improvements with the zeolite!!

Paula, I'm thinking of you and your family, hope the situation with your stepson improves :)

AndreaB Contributor

Rachel,

Hope the zeolite works for you.

Lisa,

It's so good to hear how well you're doing now. :)

Rachel--24 Collaborator
Rachel,

Ill be waiting to see if u like the zeolite. I read on the website it only last 12 days, that is why im scared to pay 50 bucks for 12 days lol. But heck if it works, ill try it lol

Paula,

I have all kinds of stuff I spent alot of money on and then never used! I got a bottle of NDF for $100. I dont use it because my body hates chlorella. I got it before I started ART...so I wasnt able to test it first.

Then I've got transdermal DMPS....another one that wasnt tested first. I think that one was around $160.

So yeah....I can probably use these later if I get well enough to tolerate them.....that is if they dont expire first. :rolleyes:

Anyways, if I actually dont have any zeolite left in 12 days....then I think that would be a REALLY good sign. :D

At least it wouldnt be sitting with my huge stockpile of "rejected" supplements. :P

Rachel--24 Collaborator
Rachel,

Hope the zeolite works for you.

Thanks Andrea. :)

I need something to improve the food issues....if I'm gonna start working on the gut propblems I think it would be really good to be continuously moving toxins out. I dont wanna be treating these bugs forever. If I'm still toxic they're just gonna come right back.

I cant keep accumulating oxalates either (if thats actually happening). I think that problem could be wiping out alot of my beneficial bacteria. I didnt have *any* growth of Lactobacillus the last time I was tested. Its supossed to be the most predominant species!

And then I read this...

Acidophilus is an oxalate eating species, but if you get too much oxalate it kills off acidophilus. :o

So if oxalates turn out to be an issue...I think it would be a significant factor as far as why I havent been able to reestablish any growth of this bacteria....and also, I have nothing to "eat up" these stupid toxic "crystals". :(

Lactobacillus Acidophilus

By far the most well known species of probiotic bacteria is Lactobacillus acidophilus which has led many people to refer to probiotics simply as "acidophilus". This status is not without reason as the acidophilus species is the most prevalent in the human intestine and has been the most widely studied probiotic bacteria with research starting on L.acidophilus as long ago as 1925.

This is why I'm dying to get my OAT results back!

Anyways....I wanna be able to eat more foods. Its holding me back still and I'm ready to start having alot of FUN...I dont want my restricted diet getting in the way. <_<

I've been single ALL this time...and I think now its time to start enjoying it! :D

Hopefully the zeolite works some miracles. :lol:

aprilh Apprentice

Rachel,

So what does the Oat Test for? Test for good and bad bacteria's in the gut?

Does it test for yeast?

Rachel--24 Collaborator

It tests for yeast and bacteria metabolites in the urine.

The Organic Acid Test (OAT) provides a metabolic

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tabasco32 Apprentice
Lisa,

How much do you take? Is one bottle gonna last awhile. I havent looked into the dosing yet.

I just ordered it. :D

Everyone is different. Me being highly toxic started out at 60 drops a day. So one bottle would last about 5 days. But I would buy the 3 pack and I signed up as a distributor to save 600 dollars a year. After 3 weeks I lowered it to 45 drops. Then after 2 weeks 30 drops.

I know it's pricey but you want to move out as many toxins as possible and quick. Then you go on matinence. It's like when you give your car a major tune up. Then after that you just go for oil changes. Then you go for a maintenence job with the zeolite after 6 months.

On the bottle it says 3 drops 3 times a day. But this wouldn't be for highly toxic people. Don't take more than 15 drops at a time because it would just be wasted zeolite. It works in your body for up to 4 to 7 hours. So you want to be sure you take it again possibly after 4 to 5 hours.

If I were you I would, maybe since you have one bottle about 30 drops a day 10 in the morning 10 at midday and 10 at night. If you don't feel any change you might need more.

tabasco32 Apprentice
I take Nutramedix Zeolite. It's a capsule. It's taken every third night. The only side effect I've heard of is constipation.

I use to take Nutramedix but didn't really see results. I know that it did constipate me some. I know it's a powder form. Carla have you seen any results with this type of powdered form of zeolite?

Rachel--24 Collaborator

Thanks Lisa,

I'll try it like that....30 drops a day. :)

I'm still toxic....but not as bad as you were when you first started....so we'll see how it goes.

Who got you started on the zeolite?

Does it seem like its working pretty well for the people at your meetings??

Hey! If all goes well I can become a distributer too.....if I'm gonna stay on it I'll wanna be saving some $ for sure! ;)

We can meet up and go to a meeting. :)

Rachel--24 Collaborator

April,

Its the CDSA that tests for good/bad bacteria and other digestive markers.

I've done this test in the past but need to repeat it. Its a 3 day stool test. I had some complications with it last month because of constipation...so I have to start over. :(

Anyways, thats the test which lets you know about the levels of beneficial bacteria....as well as yeast and pathogenic bacteria.

aprilh Apprentice

I just ordered Wiora Zeolite! I am excited to see what this does for me!

Rachel--24 Collaborator

Cool April!

We'll be doing this together. :D

Woo-hoo!! I'm excited too! :D

tabasco32 Apprentice
Who got you started on the zeolite?

Does it seem like its working pretty well for the people at your meetings??

Hey! If all goes well I can become a distributer too.....if I'm gonna stay on it I'll wanna be saving some $ for sure! ;)

We can meet up and go to a meeting. :)

Some little ole people named Kathy and John Rhodes. I met them at whole foods next to the avacado's. We started talking about illness and stuff and he told me about these drops that he takes.

I thought they were kooky. They also gave me a dvd. Do you have high speed internet?

www.thegiantdiscovery.com

This was on the dvd. I wasn't impressed with the business point of view just the products.

I met John Haremza at the last Waiora meeting. He was a real cool guy and I gave my testimony to about 60 people. It was a lot of fun. I now take the business seriously especially after what it has done for me. I want other people to experience less suffering and good days.

There is a meeting on Sept. 11th in Fresno. John, Rik Dietch and Eddie Stone will be there. It will be fantastic. You should go to this one. Rik a biochemist and can answer complicated questions.

confused Community Regular

April.

Thanks for caring, i didnt think of it as nosey, just that u cared. THings are crazy here with him. I know we will get threw it sometime, somehow.

Rachel

Im glad im not the only one with unopened stuff, Hey maybe we need to do an swap lol

paula

Rachel--24 Collaborator
There is a meeting on Sept. 11th in Fresno. John, Rik Dietch and Eddie Stone will be there. It will be fantastic. You should go to this one. Rik a biochemist and can answer complicated questions.

Thanks for the link....I'm gonna check it out.

Yeah...if it works for me...I'll totally be driving up to Fresno....and then you can make me one of those pizza's. :lol:

Seriously, it would be fun. :)

Green12 Enthusiast
At least it wouldnt be sitting with my huge stockpile of "rejected" supplements. :P

Rachel, you could open your own Medicinary :lol::lol:

That would be awesome if the zeolite works for you, good luck with it!

I met them at whole foods next to the avacado's.

I thought they were kooky.

Lisa, you crack me up!! :lol:

It's true if you find something that works you want to spread the word :)

Green12 Enthusiast
I just ordered Wiora Zeolite! I am excited to see what this does for me!

Exciting for you too April! I hope it will make a difference for you :)

Rachel--24 Collaborator
Rachel, you could open your own Medicinary :lol::lol:

:lol: I totally could! :P

ShadowSwallow Newbie

Kassandra,

I'm so glad you're feeling better. That's incredibly frightening. :(:wub: :wub:

Lisa,

Looks like I'm totally going to have to look into this Zeolite! :lol:

Rachel--24 Collaborator

If the Waiora works for me it'll be a really good thing....despite the cost.

So far I havent been able to stay on any type of binder/chelator/detoxifier.

I cant do the binders...especially chlorella.

Cant do NDF

No interest in DMSA (major aggravator of yeast)

Cant do anything with sulfur/cysteine (NAC, glutathione, whey, MSM, etc)

Cant do transdermal DMPS (glutathione)

The only thing I've tolerated is IV DMPS....and it wasnt doing enough....plus it wasnt a constant pull which is what Dr. Amy was wanting with the addition of transdermal DMPS.

The only negative with the DMPS was that I had to go through the heinous 3 hour mineral IV's. <_<

Loss of minerals is not an issue with Zeolite!. :D

After insurance I paid about $250 a month out of pocket for the treatments of DMPS/IV minerals.....and I dont think that the monthly cost of Zeolite would exceed this. So now I just have to see if the product itself works better for me than DMPS did.

In the audio files it does talk a bit about switching over from DMPS....and sometimes the zeolite is working when nothing else did....but that can be the case with any type of treatment.

The main benefits I can see right now would be not having to be concerned about chelating/replacing minerals....and not having the yeast flare ups which are common with chelation (but mostly with orals and especially DMSA).

dlp252 Apprentice

Okay I just heard from my GI's office...

My ampulla biopsy was ruled benign, but the cells showed some signs of precancerous changes. The doctor has sent the slides out for a second opinion and those results aren't back yet.

Sheesh, why can't anything be easy or cut and dry, lol. This is about what happened two years ago only it was the first lab who said it was okay...the second was the one who thought it was precancer.

So...still waiting. <_<

Green12 Enthusiast
Okay I just heard from my GI's office...

My ampulla biopsy was ruled benign, but the cells showed some signs of precancerous changes. The doctor has sent the slides out for a second opinion and those results aren't back yet.

Sheesh, why can't anything be easy or cut and dry, lol. This is about what happened two years ago only it was the first lab who said it was okay...the second was the one who thought it was precancer.

So...still waiting. <_<

Geesh Donna! More waiting :(:angry:<_<

Well I am glad they are looking at it further and getting a second opinion.

I'm sending lots of positive thoughts out your way that everything comes back ok! :)

AndreaB Contributor
My ampulla biopsy was ruled benign, but the cells showed some signs of precancerous changes. The doctor has sent the slides out for a second opinion and those results aren't back yet.

Sheesh, why can't anything be easy or cut and dry, lol. This is about what happened two years ago only it was the first lab who said it was okay...the second was the one who thought it was precancer.

So...still waiting. <_<

Do you know what they'll want to do if it's precancerous?

tabasco32 Apprentice
Geesh Donna! More waiting :(:angry:<_<

Well I am glad they are looking at it further and getting a second opinion.

I'm sending lots of positive thoughts out your way that everything comes back ok! :)

Yeah Donna I think the worst part of this illness is the waiting. Waiting for test results, waiting for supplements, waiting for the doctors visit. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    2. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    3. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    4. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,994
    • Most Online (within 30 mins)
      7,748

    KimberlyS
    Newest Member
    KimberlyS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.