Omg...i Might Be On To Something

[AndreaB]

Donna,

I'd definately look into getting the root canals pulled. I know you need to get the surgery done but maybe you can put the canals on the list for next year or the year after.

Have fun today. Starbucks and a dog to play with sound like fun to me too.

Lisa,

Sorry you are feeling so crummy. I hope that the cleaning doesn't set you back. Sounds like the house has been bad enough for you.

We've got another thunder storm going on so I might be turning off the computer.....hubby called and told me to turn off the computer.

Hopefully this storm won't last long.

[confused]

I have really bad neck pain right now too. Since moving with my grandma I have gotten bad neck pain, head pain, eye pain and nose pain. Real bad. I wonder if it's dust or mold or both. I wake up with swollen eyes and I can't sneeze this stuff out like my grandma can.

Me and my mom who has OCD are going to clean my grandmas house today. It's sooo bad. I'm sort of scared. Oh and my ears feel clogged up to. But the zeolite helps. I just put it in my nose and eyes and ears and it helps some.

That is me the last few days and it sucks. I know its the mold from the hay next door. We keep talking about putting up an fence there to block it, but havent gotten around to it yet with everything going on.

Another reason why i guess i need to get me some zeolite.

I have 2 sick boys this morning. My oldest had an golf tournament so i woke up at 5 to get him and he was like mommmmmm im puking. So I was so what you are not going lol. Then 2 hours later my other son was like mom both of the older boys are puking. I am nasuated now to, butnot sure if it is psycholmatic or not. I guess it is best they get sick the week before school starts lol.

Nora,

Thanks for all the info. I will look at the links when i can think straight.

Everyone,

About the motorcyle for detox. I use to love to ride motorcycles, til i crashed and ripped up my leg really bad. Hubby and I want some when we no longer have kids in the house lol. The kids said we cant get them til they are gone, in case something happens. I think they know that we wont get them when they are gone, cause we will be too old lol

paula

[confused]

We've got another thunder storm going on so I might be turning off the computer.....hubby called and told me to turn off the computer.

Hopefully this storm won't last long.

We have been having lots of those here lately. We have had tornados about 20 miles away also. The other morning i got up and thought we had suds from the fountain in my flower bed. Hubby came home and laughed at me, it was hail/sleet lol. My front yard has so many branches and leaves all over that it is driving me crazy. But i dont have the energy to clean it up lol

Ill pray that it wont last long.

paula

[confused]

I've been there before. I'ts good and a nice location. Right by the bay brige. There's a Gordon Birch right next to it and that's real good. I'ts on Embarcadero I think? I miss SF. I use to live in Daly City.

Maybe we should plan like a time in 2011 to met up and have lunch there. I am hoping to be healthy by then lol

paula

[confused]

Hum, I wonder if this is why my growth didn't change much in two years? I was taking a lot of vitamin D for a few months during that time.

I bet that is a good possibility. I am going to go threw all my supplements and vitamins and see if i have any vitamin D. Are you still taking the vitamin D.

What would be a good amount to take, and is it best to take it all alone.

paula

[dlp252]

Keep in mind that I was deficient in Vitamin D (blood tested), so they had me on a mega dose of 50,000 iu. That's a lot. I took D3, and ony took that high dosage for a couple of months. I bought it from my BioSET lady, so she was able to test me to make sure I could handle it and the dosage. I am not still taking it, but need to look into getting more, probably at a much lower dosage.

[confusedks]

Oh yeah...Kassandra....are you taking any type of toxin binder?

Maybe you can talk to your NAET practitioner about that?

I'm not...except Questran. I don't know if that counts. My NAET lady tested me for chlorella and a few other toxin binders and my body didn't want any! I will ask her to test me for more stuff when I see her tomorrow.

[Rachel--24]

Andrea,

Thanks for the reminder.

Suddenly we got busy right at 10:30....I got out late today.

I called the doctors office....and they were closed.

Closed Mondays and Fridays so I'll call tomorrow...hopefully there are still some time slots available.

Hope the storm isnt too bad!

[Rachel--24]

I'm not...except Questran. I don't know if that counts. My NAET lady tested me for chlorella and a few other toxin binders and my body didn't want any!

Hmmm...how long have you been taking the Questran??

Seems like when I read up on cholestyramine one of the side effects was constipation. It said it could cause or worsen constipation....so I was kinda figured right then and there that it wasnt gonna work for me.

If you havent been taking the Questran for very long it could be part of the problem.

I dont test well for chlorella either...my body HATES it....does not want anything to do with it. I dont test well for any of the other binders either. I've been binder-free for a long time now.

It might be that since my pathway is blocked my body is rejecting everything...because it cant effectively eliminate this stuff.

Also, some of them (the algaes) are high sulfur. I had a MAJOR reaction to Modifilan...even worse than chlorella.

The only one that tested well for me was charcoal....my body was really wanting it for a short time...and then it had had enough. Maybe because I racheled it?

I'm kind of wondering about the zeolite I tried a few weeks ago. I wonder if its kind of "binderish".

It seemed to help a little but I cant confirm it without trying it again....which isnt gonna happen right now. Too much other stuff going on.

[dlp252]

Well, my outing was GREAT...great fun!! We sat outside with our Starbuck's and my friend's dog was great. Very smart pooch! She learned my name in just a few minutes. Everytime my friend said my name the dog would look at me, lol. It was good to talk with my friend again...we haven't seen as much of each other since she got married with dog (not the husband's fault...just busy lives, lol).

[confusedks]

Hmmm...how long have you been taking the Questran??

Seems like when I read up on cholestyramine one of the side effects was constipation. It said it could cause or worsen constipation....so I was kinda figured right then and there that it wasnt gonna work for me.

I've been taking questran on and off for a while. It doesn't constipate me at all...because lately I've had really bad D. But when I started the Alinia, constipation became a problem.

I test well for the questran, so I've stayed on it. I'm supposed to take it 3x/day, but that's impossible to do...since it has to be taken so far away from stuff. On a good day I take it 2x.

[AndreaB]

It is with great sadness that I have to say that I won't be able to get my teeth done for 2-3 years. We have another obligation (bill) we need to tend to and we are going to work on some other bills next year. We'll stay on the toxin binders so I'm thinking that will help keep me from getting worse. We've canceled our ART/ASYRA and won't be seeing Dr E for that long either.

I'll still be here reading along and contributing when I can though.

[mftnchn]

Well, it turns out my SAM/SAH results were done a whole month ago...apparently they were filed in my chart without giving me a copy and weren't found when they looked for me I guess.... My doctor marked them as being OK though they are out of range on the lab range. I need to see if I can figure anything out from them.

I picked up my Vitamin D levels and was shocked; the 25 OH Vit D dropped to 8 from 54 the beginning of July, which seems impossible given how I am supplementing. The office is checking with the lab as I suspect an error, and now I have an appointment next Monday to see my LLMD in case this is an accurate test.

Sherry

[mftnchn]

It is with great sadness that I have to say that I won't be able to get my teeth done for 2-3 years. We have another obligation (bill) we need to tend to and we are going to work on some other bills next year. We'll stay on the toxin binders so I'm thinking that will help keep me from getting worse. We've canceled our ART/ASYRA and won't be seeing Dr E for that long either.

I'll still be here reading along and contributing when I can though.

Andrea, I am so sad about that! I know those bills have been such a burden for you. Also I know you have been looking forward to these appointments for months.

Sherry

[mftnchn]

One thing is that about one-third of the patients get very low TSH when the ft4 and ft3 are right for them, so doctors tend to under-treat them to get the TSH within range.

My ft4 and ft3 are at the bottom of the range, or below when my TSH is in range.

That's me. My ft3 is right in the middle but TSH is very low. My LLMD is pleased with it, other doctors always want to cut way back on my T3 but I ignore them, LOL!

But on LDN my free's are just below midrange when TSH is in range.

On teh LDN forums, many have MS and they think that about 85% get significantly better on LDN, and that the rest just are misdiagnosed and have Lyme. They keep posting about LLMD's fr that reason. The people that are midiagnosed and really have Lyme, leave the LDN forums but the MS people theorize that LDN should still help the Lyme patients alongside with Lyme treatment. (LDN is very cheap, by the way)

Nora, this is very interesting. I was on LDN for several months but it didn't seem to do anything so my LLMD said to quit.

[Nanjkay]

I think my Graves definately figures in somehow. I dont know what its doing now...but definately in the beginning I think it played a role in stressing my pathway.

Graves accelerates everything.....my body was totally revved up. Epinephrine and other phenolic chemicals/hormones were probably stressing the sulfation pathway.

Funny how epinephrine/norepinephrine comes up for me ALL the time....theres gotta be a reason for it.

Norepinephrine is elevated in Graves Disease.

I am so confused. I have been on a drug called Nortriptyline...a tricyclic anti-depressant in low doses for 15 years. I was put on it for the fibromyalgia to help me sleep. It is not in high enough levels to be an anti-depressant, but it does mess with my norepinephrine. Could this have caused the Graves?

If my Graves is still active I wonder if there could still be some "revving up" going on?

Norepinephrine also feeds pathogenic bacteria.

BioSET showed a problem with epinephrine and T3.

Could the Nortriptyline be why I can't take T3? I have tried to ween off of it many, many times and I get the worst eye symptoms when I do.

More to worry about!!!!

I think I NEED desensitization to epinephrine/norepinephrine...and other hormones that I've become sensitive to as a result of impaired sulfation.

I dont know if LDN would help with my Graves now....I guess it depends on whether or not antibodies are present. Its another thing for me to look into.

I read something yesterday that an Endo saw no improvement using LDN in patients with radioactive iodine induced hypothyroidism (me). But, since I did so poorly on ABX and they caused a worsening of my eye symptoms ( LDN is supposed to help with cytokines and the orbital fibroblasts with thyroid associated opthamology (I have bulging and painful eyes)) I asked my naturopath today if I could try it. What a mouthful!

We'll see.

Nancy

[Nanjkay]

Nancy, this is the lab I am waiting for, SAM/SAH results and also ammonia levels. I HOPE to get them this week. They were drawn June 30!!!!

Sherry

You have been waiting this long for that test!!! OMG. The researcher/scientist who will consult with me wants that test to be done first before he starts consulting me. Yikes.

What does the lab say when you call? Are they just really busy?

Does the methylation panel check for the SAM and ammonia levels or was that another test from the same lab? My naturopath ordered just the methylation panel today, but she is in San Diego and we talk over the phone, so I have to pay someone to draw my blood.

I am curious to hear what you find out.

Nancy

[mftnchn]

Nancy, it shouldn't have taken so long. It looks like the test was run about 2.5 weeks after the blood draw. Not sure when it actually arrived at my doctor's office but the lab took a 3 week vacation and my doctor took a 2 week vacation and it somehow got lost in there, came in and was put in my chart with my doc's signature but I didn't get a copy until today.

Sherry

[mftnchn]

Nancy, my doctor just ordered the SAM/SAH and ammonia levels from that lab. I don't know what the full panel includes.

Sherry

[aprilh]

I have really bad neck pain right now too. Since moving with my grandma I have gotten bad neck pain, head pain, eye pain and nose pain. Real bad. I wonder if it's dust or mold or both. I wake up with swollen eyes and I can't sneeze this stuff out like my grandma can.

Me and my mom who has OCD are going to clean my grandmas house today. It's sooo bad. I'm sort of scared. Oh and my ears feel clogged up to. But the zeolite helps. I just put it in my nose and eyes and ears and it helps some.

I have been having really bad neck and back pain lately. My legs hurt, too. They don't hurt just sitting, but I feel it when I go up the stairs. Its like I have muscle soreness but I haven't worked out!

[aprilh]

Hi Everyone! I am at the beach. I just now got caught up. We have to use dial up here.

So If I use energetic testing to detect parasites, do you think Naet or Bioset would be better.

I don't have access to ART. I think you are right though, the other testing might be a waste of money.

My stomach hasn't been good lately. I get so bloated after meals, nauseaus sometimes, and in general just a yuck feeling.

[dlp252]

Aw Andrea...I'm sorry to hear it...makes me sad too!

[mftnchn]

I have been having really bad neck and back pain lately. My legs hurt, too. They don't hurt just sitting, but I feel it when I go up the stairs. Its like I have muscle soreness but I haven't worked out!

Me, too. Especially when I get out of bed in the morning.

Sherry

[nora-n]

I ran across something on cytokines and celiac today: Open Original Shared Link

They cannot explain all celiac with the genes, the cytokines are involved too.

[Rachel--24]

I am so confused. I have been on a drug called Nortriptyline...a tricyclic anti-depressant in low doses for 15 years. I was put on it for the fibromyalgia to help me sleep. It is not in high enough levels to be an anti-depressant, but it does mess with my norepinephrine. Could this have caused the Graves?

I doubt that it would be a cause for your Graves Disease.

Something was already causing the Fibro pain...so most likely one of your underlying issues (Mercury? Copper? Lyme? Some other toxin or bug?) had a role in triggering the Graves.

Norepinephrine is elevated in Graves...so are the thyroid hormones (T4/T3). Those things dont cause Graves Disease though....they are a symptom of the Disease.