Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor
Your dad sems like hes happy you're coming for Thanksgiving too. :)

I'll look forward to it. :)

Actually...I will call...my weekend calls are free. :D

Yep. We'll miss the dinner but that's ok. We'll see him Friday-Monday. Mitch will probably be quite tired going to work on Tuesday morning. We get into the airport at 2 am. Seth's schedule will be totally out of wack, but it'll be worth it to see my dad. We should all be over our colds by then too.

Ok....I'll let you call me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Green12 Enthusiast

Andrea, I am really glad to hear you are making arrangements to go be with your Dad. I know it will mean a lot to him having you there, and it will be good for you too. Years from now you will look back and treasure the visit :)

CarlaB Enthusiast

Andrea, I'm glad you're going to see your dad.

Rachel, too bad it didn't work out with your ex ... friendship is nice to build a relationship on. It's good you have him as a friend.

I play flute at Church. When I first started playing I was constantly reminding myself not to sing during the parts of Mass that are sung, but when I don't play, because I'm standing in front of a microphone!! I need to remember this for the prayers, too. I "lip sinc" everything, prayers, etc. During most of the music though, I'm playing.

rinne Apprentice

Andrea, I'm glad you will get to see your Dad.

Rachel, I was always organized in regards to bill paying but at some point it became a source of anxiety for me and I began to avoid it. Like you, even though the money was there I would let it drag on, finally I asked my sweetie to take on the bill paying and he has. :(

I find I really have to work at getting small tasks done, chores are like mountains and I have to work myself up to climbing them, somedays even the smallest task seems like it will take too much energy and I let it slide.

The singing sounds wonderful. I never made the school choir :( they wouldn't even let me lip sync. :lol:

AndreaB Contributor
they wouldn't even let me lip sync. :lol:

:lol:

I used to sing in the school choirs and also in an ensemble my senior year of school.

Can't sing much anymore. :( My voice is way out of practice.

DingoGirl Enthusiast
:When I was healthy I was on top of everything. I paid my biils as soon as I got them....if something needed to be done I did it. I was soooo responsible and organized with everything. Ever since I got sick everything changed....I procrastinate on everything. I will let my bills just sit because its too hard to *think* or to balance my checkbook. I am unorganized and scattered and simple tasks are daunting to me.

Um.....hi, you could be describing MY WHOLE LIFE here :huh: .....well, not the whole of it but big chunks and esp. in the last 10 years. RACHEL - - you MUST set up online bill pay! Takes a bit of time to sep up, an hour or two, but is the EASIEST thing in teh world. No checks/stamps/envelopes.....just click and pay. My bills are paid every month in about 30 seconds.....I happen to have perfect credit and this may be part of it. :)

I find I really have to work at getting small tasks done, chores are like mountains and I have to work myself up to climbing them, somedays even the smallest task seems like it will take too much energy and I let it slide.

OMG Rinne.....some chores are like the last leg of Everest, the Hillary Step without supplemental oxygen....I know exactly what you mean.

Andrea....glad you've scheduled the trip to see your dad. :)

Everyone....I am so tired.....a short day at work, it was slow and they sent me home, I think I'm too hungry. Heading out to the garage to work on furniture. ;)

edit - ps - - WHAT is herxing and......does it hurt? :huh::lol:

rinne Apprentice

Hi Debbie. :)

Susan, herxing is the die off of the bacteria and the reaction you have to it flooding your system with toxins and generally making you feel ill, it is complicated by the fact that Lyme binds with mercury and pesticides so that when they are killed off the mercury and pesticides flush into your system as well. I don't think herxing has to be as severe as Rachel experienced but because nothing had been done to help her detox and given all the mercury from the bad dentist naturally she got really sick. Does that sound correct to you Rachel?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Hi Debbie :)

Yup....she was referring to you....we have no other Debbie's here. ;)

Where do we go from here? This is what we've been trying to figure out here for the past 7 months...how do we find and get on the right path to regain our health??

Rinne and I have just been diagnosed with Lyme this past month...now we are on the correct path. :)

Hopefully others will soon get their answers and join us on the "Wellness Path".

Welcome to our "not so little" thread....we're a joyful and super supportive clan...we've had many good times here while we continue searching for answers until we all get better. :)

Yup...we WILL all get better. :D

AndreaB Contributor
hI,

hAVE COME IN THREE QUARTERS WAY THROUGH THIS THREAD. DONT HAVE ACLUE IF YOU MEAN ME BUT MY NAME´S DEBBIE. SO WHeRE DO WE GO FROM HERE??

Yes, the hi was for you.

Just jump in. Do you have a question you'd like to ask?

Yup...we WILL all get better. :D

:D Yes, we will.

rinne Apprentice

Hi Debbie 65, yes that hello was for you. :) It is always nice to see new faces in Rachelville.

Rachel--24 Collaborator
RACHEL - - you MUST set up online bill pay! Takes a bit of time to sep up, an hour or two, but is the EASIEST thing in teh world. No checks/stamps/envelopes.....just click and pay. My bills are paid every month in about 30 seconds.....I happen to have perfect credit and this may be part of it. :)

Susan...you are SO right...its only been suggested to me about 100 times but I shrug it off because it seems too complicated to set it up. :ph34r:

I am going to make this my mission for the week...to get my mom to help me so that I dont get overwhelmed by the whole "set-up" process. I think this will be REALLY helpful if I can just get it all set up......once I'm past that it should be a breeze. Thanks for reminding me. :D

When you have online banking do they still send you bills? One HUGE problem I have (which also deters me from bill-paying) is the fact that freakin Macy's sprays the heck out of the bill with PERFUME! :angry:

I asked them NOT to do this and suppossedely I am on the "perfume-free" list but they ALWAYS manage to screw it up. I HATE them right now and am seriously considering not shopping there after their obvious disregard for the health and concerns of their customers.

Two months ago they removed a $50 late charge in apology for their negligence. Then the next month they send my bill with perfume AGAIN. :angry:

Its not only the Macy's bill that is affected but ALL of my mail....because it contaminates all the mail its been sitting with. When this happens I get a big reaction...end up in tears....cant pay the bills....get frusterated....throw all the bills in the air....cry into a pillow and yell about how I hate Macy's. Its total drama. :ph34r:

And I wonder why my mom is stressed out with me in the house. :lol:

So....if I do online bill paying....will they stop mailing the bills and contaminating all my mail with their chemicals?? This would make me very happy. :D

Rachel--24 Collaborator
Hi Debbie. :)

Susan, herxing is the die off of the bacteria and the reaction you have to it flooding your system with toxins and generally making you feel ill, it is complicated by the fact that Lyme binds with mercury and pesticides so that when they are killed off the mercury and pesticides flush into your system as well. I don't think herxing has to be as severe as Rachel experienced but because nothing had been done to help her detox and given all the mercury from the bad dentist naturally she got really sick. Does that sound correct to you Rachel?

Yeah....it sounds right. I herxed and it was not fun. :(

Susan....yeah it can hurt. Its like every symptom you ever had hitting you at once or a milder herx reaction could just feel like the flu or you could just experiene headache or fatigue.

I think I got a big herx reaction.

DingoGirl Enthusiast

Rachel, you are SAVED by online bill-pay! Yes, you can request e-bills from each company you wish, no more paper bills , they just come via email. But, make sure your bank has free bill-pay (or very cheap - Bank of America is free) and request no paper bills......it will take 2 - 3 months and then...no more! This will save your life in so many ways! Listen, if *I* with my very flawed brain can do it, I know you can. ;)

Off to bed. Just got home from the pub where my niece works. I flirted - heavily - for the first time since the breakup. wow. It was so much fun....the nicest and kindest and most funny geologist.....but he is 10 years younger. Hah, he doesn't care but *I* do......... :o But the point is, I felt so free and recovered from that heinous relationship, it felt like such a step of healing for me. did I mention he is a fly-fisherman and wants a cabin more than anything? :o:lol: We had a lot in common.

Don't get all excited everyone....I mean Bev. :lol::lol::lol: But it was a great sign of progress for me. :)

goodnight friends.

rinne Apprentice

That's wonderful, flirting can be very good medicine. :ph34r::lol: I miss my German men friends, some of them were wonderful at flirting and flirting without any destination in mind.

My sweetie suggested this morning that I should have a Volkswagon Beetle, lime green naturally. :lol:

nikki-uk Enthusiast
Hmmmm, I wonder about that. Although I was using sls free stuff (I think) last year. Seems my flareup is always in the fall.

Me too!!. Maybe it's the lack of sunlight (my eczema disappears in the summer) <_<

I have been busy booking flight/hotel/car for going down to see dad Thanksgiving weekend. We will all be going down....leaving the evening of the 23rd and coming back in the wee hours of the 28th. Talked to dad for a few minutes this morning and he agrees with us coming down over that weekend and Mitch will only have to take one extra day off w/o pay.

Glad you're gonna get to see your Dad - hope all goes well :)

CarlaB Enthusiast

Lime Green Beetle!! LOL

Susan, glad you had fun. I don't know if I could have a relationship with a guy 10 years younger either, but the flirting sounds fun.

Judyin Philly Enthusiast

SO HAPPY YOU GOT OUT AND HAD A GOOD TIME SUSIE "Q"

;) JUDY

AndreaB Contributor

Nikki,

Maybe also, the beginnings of using the furnace or central heating more. Of course, I've been in a/c'd air for the summer, you would think that would be dry too.

I love your new pic btw. :)

Susan,

Glad you got out and had a good time. :)

Rinne,

I could see you in a lyme green beetle. :) I know they have a pretty green one......don't think it's lyme colored though. :ph34r:

Judy,

HI!!!!

happygirl Collaborator

x

Rachel--24 Collaborator
Rachel, you are SAVED by online bill-pay!

WOOHOO....I'm gonna do it!

No more heinous nights of trying to pay bills and getting "perfumed". ;)

I felt so free and recovered from that heinous relationship, it felt like such a step of healing for me.

Yay Susan! It sounds like you had fun. I've never been much of a flirt...or maybe I just forgot how since I've been sick??? :unsure:

My sweetie suggested this morning that I should have a Volkswagon Beetle, lime green naturally. :lol:

:lol::lol:

You are so fuuny...they do have a lime green beetle...it would be perfect for you. :D

Susan, glad you had fun. I don't know if I could have a relationship with a guy 10 years younger either, but the flirting sounds fun.

My mom's hubby is 15 years younger....they are the perfect happiest couple ever...they do everything together. :)

I think my mom waited several years to agree to marry him though....wanting to make sure the age difference wouldnt be a problem.

Oh...did I mention The Dave is 13 years younger than me?? :o

Hehe....we are not in a relationship but yes....he is quite young....a baby actually. :unsure:

Just got back to VA....unpacking and such....wedding was beautiful!

Welcome back Laura!

Cant wait to hear about everything! :D

Judyin Philly Enthusiast

Hi Rachel, see your on...just passing through..

i ck on you every day but not really posting.

Laura can't wait to hear about your neat weekend.

hugs to all the other members of Rachel and OMG

judy

Rachel--24 Collaborator

Rinne,

How come all the people on that film site are so sick?? :unsure: It scares me. I never got to see the trailer but I read all the other stuff.....saw the sample characters, read the things that people write in and saw the "faces of Lyme". Everyone seemed real sick. Is this because of them using antibiotics??

It seems like they dont get better. :(

I have my Dr. appt. tomorrow....I wonder what he will say about treatment. Also, what about co-infections?? Dont we need testing for those now?? I think Igenix tests for co-infections. I'll have to ask the Dr. about it. I'm pretty sure there were co-infections in the bioset test but she never told me if I responded to any.

The BioSET lady is more positive about my recovery I think. My Dr. seems more grave and more serious about it. When I ask if I'll get better he just says "It will be HARD." :(

Is it even possible to get all the way better?? :unsure:

AndreaB Contributor

Can't wait to read your post when you get a chance Laura. :)

Rachel--24 Collaborator

Hi Judy,

Hugs to you too my friend. :)

rinne Apprentice

Rachel, I don't think that doctor understands that you wouldn't even be sitting there if you didn't have the strength of ten women and as for it being HARD, I think you can take hard any day. :)

So glad the Lime Green Beetle is appreciated, I am going to put it on my wish list. :lol:

Laura, glad you had a wonderful time, weddings are always a wonderful opportunity if you are already married to have that feeling of renewing your vows. I always cry. :)

Hello to everyone else.

And Susan, details?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.