Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

confusedks Enthusiast
confusedks
Posted

Carla,

Would about 3.30 my time work? That's 6.30 your time...right? lol. That is unless we decide to go to the ER tonight. We are going to also call a new hematologist that is on our plan and see if they can get me in because Iron IVs are a series of treatments. So if we went to the ER, they'd only give me one out of 10 treatments.

Kassandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I'm wearing pink again today...

Things are looking up already...

My boss is making salsa today. :D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Also, how about ponytail holders or barrettes? I love those flip-clips, and if they have sparkles, even better!

:lol::lol:

I burst out laughing reading that!!

Barrettes and sparkly flip clips?? :huh:

OMG...I am way too tomboyish for anything sparkly in my hair. :lol:

I guess I better be quiet now...as I sit here in my pink shirt. :ph34r:

CarlaB Enthusiast
CarlaB
Posted

Rachel, when my son went to homecoming (stag .... so that he could dance with ALL the girls instead of JUST one! LOL), he wore my hubby's black suit (trendy, not a formal suit), and PINK shirt. So, even BOYS wear pink, surely a tomboy can. ;)

Kassandra, I have to have my son at wrestling pictures at 7PM, so 6:30 I'll be getting ready to drive him .... 7:30 or 8 would be better ... or else earlier, like 5:30 (so we have time to talk).

Rachel, BTW, someone started a thread to get a hold of you ....

dlp252 Apprentice
dlp252
Posted
Well, I have a date with an orange jug tomorrow ... testing to be sure we got all the metals. :)

Fortunately, with the kitchen torn out, the refrigerator is in the hallway right next to the bathroom! LOL :lol: :lol!:

:lol: Happy jug day tomorrow! :P

Thank you everyone for the well wishes. I don't know why...but I don't feel like I need to go to the ER. Maybe it's denial...again! :mellow:

...

They only needed 2 vials. Thank goodness!

Yes, me thinks you are in denial. :P Glad they only needed two vials! That's bad enough, especially one with your situation.

Donna...YAY...glad you're back! Could you tell you were missed?? :D

...

About the Snickerdoodles...Donna dont feel bad...be happy you're holding out for the pumpkin pie. :)

Yes, thanks, lol! I'm thinking it'll be worth it to wait for the PP!

Barrettes and sparkly flip clips?? :huh:

OMG...I am way too tomboyish for anything sparkly in my hair. :lol:

I guess I better be quiet now...as I sit here in my pink shirt. :ph34r:

You know...it starts with a pink shirt...next thing you know you'll be having glittery things all over. :lol:

covsooze Enthusiast
covsooze
Posted

Rachel,

I can't believe I typed overactive :o:P:rolleyes: Nope, I'm definitely hypothyroid. Also suffering a lot at the moment with things I'm trying to say coming out all wrong :lol: Seriously, I am, not just on this one occasion. Even DS has noticed it and sometimes despairs of me because I can't get my words out. Don't know what that one's about as I don't feel particularly foggy at the moment. Maybe it's just extreme tiredness (I think my adrenals could use some help).

Glad you didn't Rachel those cookies and hoping you feel better soon.

My neighbour had a sale at the weekend and I bought loads of almost new pink stuff for a very small amount of money :D Hoping it'll work lol

Susie x

CarlaB Enthusiast
CarlaB
Posted

Susie, I'm also Hypo and have to keep eating to keep the weight up ... weird.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Rachel,

Hope the salsa is as good as last time.

Donna,

Can't wait to see the photos. :) I love pumpkin pie too! :D

Carla,

Hope the metals test is clear and that you don't have to worry about more of those treatments.

Kassandra,

You definately need to get the iron done.......today!

Susie,

Hi! I don't have anything to add. I hope your appointments coming up go well and you start getting some answers.

melmak5 Contributor
melmak5
Posted

Rachel - I also react to the snickerdoodles, but I couldn't help myself. Whenever I eat I react, so at this point I am shooting for things I react less to. If I stick to two cookies, my tongue doesn't swell up too much, so I tried to keep it to a minimum.

Kassandra - I agree with the the others that the ER might be the best place for you, not the most fun, but the best for your body.

Diet update

Corn is out

I am trying rice tonight for the first time and we shall see how that goes

Overall I am burping way more than usual. I cannot figure it out.

But my energy is better today than it was Friday. I think the barium really did a number on my insides.

confusedks Enthusiast
confusedks
Posted

Ugh. Well we talked to my Hematologists' office and they also told me to go to the ER. I guess I have no choice. :ph34r: We are going to go when my mom gets home from her deposition (she's a court reporter).

Right now I am enjoying my iPod with no needles in me! LOL! I HATE EMERGENCY ROOMS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Carla, I will call you. Wait, so 7.30 is 4.30 my time? Right...or I will try you at 5ish. Depends on what happens with the ER and when we go.

I want to cry...this is so scary! I don't want to go to the ER. It's the freakin ER!!!! It's for emergencies! :wacko:

Kassandra

AndreaB Contributor
AndreaB
Posted

Kassandra,

I know ER's are not fun places. You need to get this taken care of though. Hopefully it won't be very busy there today.

Is the hematologist going to be able to give you the rest of the IV's? or do you have to go to ER each time?

confusedks Enthusiast
confusedks
Posted

I think the hematologist will give them to me after tonite. I am going to demand a PICC line though. I refuse to be poked every day for god only knows how long. I did it last time and it was terrible!

The thing is that we are going to see a new hematologist because the other one that was following me was not on our plan. So, anything he ordered was not covered.

We found a new one who will meet us at the ER tonite. (Poor man, has to give up his night for me...lol) His office can't get me in for another couple weeks, so once we get orders from the ER to have the treatments for 10 consecutive days, the hematologist HAS to see me and they will cancel other peoples appointments to get me in if they have to. Without the orders from the ER, they can't see me until they have an opening.

Kassandra

AndreaB Contributor
AndreaB
Posted
We found a new one who will meet us at the ER tonite. (Poor man, has to give up his night for me...lol) His office can't get me in for another couple weeks, so once we get orders from the ER to have the treatments for 10 consecutive days, the hematologist HAS to see me and they will cancel other peoples appointments to get me in if they have to. Without the orders from the ER, they can't see me until they have an opening.

10 days in a row! :o I assume they go in on the weekends for this type of thing then. I hope they'll do a PICC too. I'd hate to get stuck so many times in such a short time.

Green12 Enthusiast
Green12
Posted

Kassandra,

I'll be thinking of you.

Back to those Enjoy Life cookies, I think they taste good but I can't get away with eating them either. Something is amuck in them I think :lol: , a very suspicious ingredient....I suspect the sorghum flour or maybe the rice dextrin....highly reactive. The granola, omgosh completely tore up the roof of my mouth and I was sick for a couple of days from that venture.

It's odd that these are the products that are suppose to be free of all alergens but I seem to react to them the most compared to other product lines.

confusedks Enthusiast
confusedks
Posted

Carla,

I will call you tomorrow. Sorry, too much going on right now to think about school. :)

Kassandra

AndreaB Contributor
AndreaB
Posted
Back to those Enjoy Life cookies, I think they taste good but I can't get away with eating them either. Something is amuck in them I think :lol: , a very suspicious ingredient....I suspect the sorghum flour or maybe the rice dextrin....highly reactive. The granola, omgosh completely tore up the roof of my mouth and I was sick for a couple of days from that venture.

It's odd that these are the products that are suppose to be free of all alergens but I seem to react to them the most compared to other product lines.

Mitch doesn't do well with there product line anymore either. :(

It may be the sorghum for him. He doesn't do well with our homemade bread either. I don't know if it's sorghum or yeast at this point.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
It's odd that these are the products that are suppose to be free of all alergens but I seem to react to them the most compared to other product lines.

Yup...it soooo true!!

I can eat totally regular gluteney food with better results!! :blink:

My thoughts are that the mold toxins are higher in these foods. Most of the ingredients are pretty high in mold content...including the sorghum. They are sweetened with fruit juices rather than sugar (I do better with sugar). Then theres stuff like date paste. <_<

All I could think about when I read the ingredients was MOLD...but then I went ahead and ate them anyway. :rolleyes:

Whenever I've eaten the Enjoy Life stuff, Glutino breakfats bars, Lara Bars, etc...I get an instant tingling on my tongue. The common ingredients are always high in mold.

I'm thinking that the healthier lines actually have higher mold content because they arent using any preservatives and other things which might inhibit growth.

Thats why I think I do worse with these lines.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel, BTW, someone started a thread to get a hold of you ....

Thanks Carla....I found it. :)

Told you guys....I'm really bad with my pm's. :ph34r:

Ridgewalker Contributor
Ridgewalker
Posted
Kassandra,

I had an idea about your school situation ...

You mentioned that you are on an accelerated program, right? Well, how much of the standard school curriculum have you done?

Here's what I'm thinking, if you set your goals, which seem to be - 1) To get healthy, 2) To get into college - then you can establish a plan of action.

If you want to take a year to put getting healthy first in your life, obviously, as you have discovered, your current program isn't working ... so, how else can you get into college?

You can homeschool following the rules in your state, that's ONE way.

The other way would be to prepare on your own for the SAT and GED. I know at first glance, you think, "Gosh, no, GED?!!" BUT, it would legally get you finished with high school and then you could take some correspondence classes from a Community College to get the classes you were hoping to have in high school. Then, by second semester of next year, you will have been in treatment for a year and can go to the Community College for that semester.

With the high SAT score and the time in Community College, not to mention one heck of an impressive essay about your journey back to health and having to take your education into your own hands, you are sure to get into the college of your choice.

So, why you are primarily focused on getting healthy, you can finish Algebra II if you haven't already, take an SAT prep course online, and a GED prep course. You can fill in other HS requirements like American History, Government, Grammar, Writing, on your own, not as a class.

Just trying to think outside the box ....

This is actually exactly what I did. I was home schooled through high school. I got my GED a year earlier than I would've normally graduated, and my scores were so high they actually earned me an academic scholarship to the local community college. I did that next, and took the SATs at my leisure, since they weren't required for community college anyway.

It worked out great for me.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
You know...it starts with a pink shirt...next thing you know you'll be having glittery things all over. :lol:

:lol::lol:

Its a scary thought.

CarlaB Enthusiast
CarlaB
Posted

Kassandra, tomorrow is probably better at this point for me anyway .... I take a Lariam for Babesia every five days, and tonight was the night. It makes me really LOOPY! OMGosh! I feel like I've been doing drugs ... I saw my neighbor at my son's wrestling pictures (I had been sitting out in the hall on the floor for an hour waiting .... it was HOT in the room where everyone else was) and he said "Hi", but I didn't know what to answer ... he asked if I was okay ....

So, a discussion of homeschooling might not go over very well tonight! ;)

I'm glad you're getting in with the Hemotologist tonight! It's a help having that lined up in advance ... at least it seems that it would be a help.

Sarah, I guess my plan works then! :lol::P I homeschooled my oldest straight through until she was a junior in HS .... except for a short time her freshman year ... She adjusted fine to both the rest of high school and college. I wasn't using a program (did for one of her HS years, but went back to doing my own thing). Being in Indiana at the time (a private school state), I wasn't going to have her take the GED .... she just wasn't going to have a diploma at all ... it was enough for me to say she finished school in Indiana.

Rachel, the mold theory sounds right on the money. I've never done well with fruit juice .... I've also limited my dried fruit and nuts/peanuts ... but beyond that, it doesn't seem to cause a problem ... and the other things are only a problem if I eat them more than a couple days in a row ... by the third or fourth day I'm feeling sluggish.

ShadowSwallow Newbie
ShadowSwallow
Posted

Hello, everyone. :-)

I've been "eavesdropping" on you for a few weeks now, and have just finally encouraged myself to post!

I've had terrible allergies all of my life (down to 10 foods at 2yrs old), bacterial dysbiosis, candida, metal toxicity (not very much, though), and adrenal fatigue. I've improved a lot after doing a bunch of alternative things (such as footbaths and BioSet), and found out I had celiac and went on the diet in mid-August (and eliminating Soy and other allergens).

After reading over this forum I found the Lyme thread, and discovered that I had 32 of the symptoms. :huh: I have an appointment with an LLMD tomorrow (it was either tomorrow or late January), and am really excited. :D

~ Birdy

CarlaB Enthusiast
CarlaB
Posted

Welcome! Birdy, that's GREAT!!! That's exactly why we all continue to talk about this stuff in such a public place, so other people can learn from our journey! Thank you for telling us and for finally joining us. :)

Please keep us posted on how it goes!

AndreaB Contributor
AndreaB
Posted
After reading over this forum I found the Lyme thread, and discovered that I had 32 of the symptoms. :huh: I have an appointment with an LLMD tomorrow (it was either tomorrow or late January), and am really excited. :D

Welcome Birdy! :D

I'm glad you posted. I've seen you reading. :)

I'll be one of the many on this thread waiting for news of your appointment tomorrow. I assume your going to have the full blood workup. That's what Carla's LLMD did.

Down to 10 foods at 2! :o My youngest has lots of food intolerances for his age (so I thought) but not nearly that bad!

Donna and Rachel have both done BioSet. Claire (who hasn't posted in a long time) has also done that. Julie has done the precursor to BioSET, BioScan. Some here have also done various forms of muscle testing, I think ART (autonomic response testing) has been the one used most.

I hope you'll join us frequently as we all go down the road to better health. :)

Green12 Enthusiast
Green12
Posted
My thoughts are that the mold toxins are higher in these foods.

Rachel, the mold theory sounds right on the money.

So it's the mold running amuck in the Enjoy Life products :lol:

Hello, everyone. :-)

I've been "eavesdropping" on you for a few weeks now, and have just finally encouraged myself to post!

I've had terrible allergies all of my life (down to 10 foods at 2yrs old), bacterial dysbiosis, candida, metal toxicity (not very much, though), and adrenal fatigue. I've improved a lot after doing a bunch of alternative things (such as footbaths and BioSet), and found out I had celiac and went on the diet in mid-August (and eliminating Soy and other allergens).

After reading over this forum I found the Lyme thread, and discovered that I had 32 of the symptoms. I have an appointment with an LLMD tomorrow (it was either tomorrow or late January), and am really excited.

~ Birdy

Hi Birdy, glad you decided to jump in!

Welcome to the maladapted milieu bunch :D

Best of luck with your appt.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt. I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for...
    5. catnapt
      - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,256
    • Most Online (within 30 mins)
      7,748
    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.