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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator
Rachel! Wow! what a difference!! I hope you can have dairy-gives me some hope. Were you dx casein intolerant by enterolab? (I apologize if you mentioned this)

Robbin,

My Enterolab test for casein was negative. I also tested yeast and eggs and those were negative as well. I also had the IgG food intolerance test done (Great Smokies Lab) and out of over 100 foods I tested negative for everything except a very low intolerance to bananas and a handful of spices. My doctor was in disbelief cuz I was really really sick at that time and she thought I'd have alot of intolerances show up....she never saw such a blank test before. I also had lots of IgE allergy tests for food and also the pin prick stuff for pollens and dander and all that. I was negative for everything. Isn't that crazy! I was reacting to everything at that time. :blink:

The only thing that really came back positive was gluten IgA and tTG....and I had bad malabsorption. My casein test was close though...It was a 9 (10 being positive). My yeast and egg werent even close....even though I totally react to eggs.

This is why I'm thinking I'm not reacting to foods themselves....its more of a chemical thing. I seriously react to so much stuff and theres no way I could be sensitive to that many foods....its just not logical....even with leaky gut. I could eat something for the very first time and get a major reaction...that doesnt seem right to me.

Thats why I'm trying out this new diet. Dont get me wrong....I may be eating some dairy but this diet is still very very restricted. I'm focusing on chemicals though....not just food groups. Most dairy is still off limits for me and all soy is off limits too. I'm eating some eggs now but I'm using an egg seperator and only eating the yolks. I think I wanted to try this sometime at the beginning of this thread (we discussed how to seperate the eggs)....well I never got around to it until this week. So far so good with the eggs. I'm only doing them once or twice a week though.

The first day I ate the corn tortillas I got bloated and my stomach hurt. Since then I've been fine...no bloating at all. Not even with all this ice cream. The time I got bloated I ate the corn tortillas with avocado. I dont know how many times in this thread alone I've said avocados bother me but yet....I still "forget" because I love them. Avocados are also one of the foods I know I should NOT be eating if I'm trying to avoid foods containing histamines. Avacados are high. All of the foods that are high are the ones that get me sick and cause the loose stools, bloating and ovary pain....plus alot of other symptoms. Avocados has done this to me every single time I've had them the past year. They are not allowed on a histamine restricted diet. Thats what I'm sticking to now. I still have 3 more avocados in the kitchen but I'm gonna throw them out cuz I'm feeling sooo good right now....I hope I can stay this way. :D

MiaMia,

Bummer that you got tired. :(

He did say that most people experience that anywhere from 2 days to 2 weeks but it goes away. I hope it passes quick for you. Thanks for the update. :)


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rinne Apprentice
Anyways in the other thread it said that the grocery stores are primarily gluten-free and the gluten foods are hard to find and go bad quickly!! LOL... Also it said that the clerks give the gluten eating folks weird looks when they ask where the gluteney foods are located. LMAO!!

That is too, too, too funny. :lol:

Rachel I really hope the dairy works for you, I wonder if it might also mean that the medication you are on is working.

Thank you all for your kind thoughts, mostly I can manage and the ice packs do help. A friend with Crone's told me that she puts ice packs on her stomach and that they help with that also. I think ice helps with any kind of inflammation.

The link works, thanks, I do like "I'm a Believer" but I also like "Take a Giant Step", especially the line that something like, "come with me and leave the past behind, take a giant step outside your mind".

Oh and I thought more about my normal comment and really I don't think I was ever normal :lol::ph34r::lol: more like I had the semblance of normalacy.

This thread makes a real difference in my life, thank you all.

Camille'sBigSister Newbie

Celia and rinne, I'm so sorry you all are in so much pain tonight. Damn these horrid diseases!!! May God ease your pain and give you a good night's sleep.

Cissie

rinne Apprentice

Celia, I'm so sorry that your stomach is hurting, if you have an ice pack perhaps it would help. :(

Rachelle I think I might have had my first auxi-gro experience today but I will have to test it out tomorrow. At the sort we got some large watermelons, organic of course, I had some and shortly afterwards I got very stuffed up and my first thought was sulfites but then I wondered about the auxi-gro. It didn't seem to last long but I have been edgy this evening and I am wondering if that is also part of it.

I have continued to look into the CT scan and the "contrast" they use which is iodine. What I have found is that about 4% of the population is sensitive to iodine and that while some react strongly initially there may be reactions down the road. The people who tend to be sensitive tend to have thyroid issues but it is unclear to me whether they had thyroid issues prior to the iodine contrast or are just generally vulnerable. I think what keeps my attention in this matter is the number of people I see here that do have thyroid issues and the fact that CT scans are used in the diagnostic process for Celiac. What I don't understand is if they know that a percentage of the population reacts so negatively to the iodine contrast, it has been known to kill people, why don't they test for sensitivity before administering the test?

I was talking with a woman at the sort today who has had 8 CT scans, she was diagnosed with colon cancer three years ago, and she told me that initially they had used the contrast but after a couple of tests it made her so sick that she refused and she said her doctor told her that was fine, that they would be able to read the scan without the contrast. :huh:

Here is a link:Open Original Shared Link

CONCLUSIONS

The human response to excess iodine is variable. Some people

tolerate large intakes without side effects, while others may

respond adversely to levels close to recommended intakes. Based on

the studies reviewed here, it is concluded that an iodine intake of

one mg per day or less [which has been deemed non-hazardous by the

American Medical Association (1980)] is probably safe for the

majority of the population, but will cause adverse effects for some

individuals. Those who are most likely to respond adversely are:

- those with other thyroid disorders (e.g., Hashimoto's Disease,

euthyroid Graves' Disease);

- those who are sensitive to iodine.

They say those who are sensitive to iodine but wouldn't an excessive dose sensitize someone?

I was thinking it might be fortuitous that I remembered the ice pack for tummy pain and what a good use of frozen spinach.

And thank you for your kindness Cissie.

DingoGirl Enthusiast

Evening, everyone....that silly photo is what I was working on in photoshop class tonight. We get quite goofy in there, and they wanted to know what in the world I was doing, tranposing a photo of geese onto my dingos....I just cackled and said, you wouldn't even believe it if I told you, but it might make some people laugh...in this magical secret gluten-free cult I've joined...

Cissie - the dingos are so glad to have their job descriptions fully detailed! they thank you. And, love your brilliant interjections of poetry...you will also be our resident literary savant, gracing us with timely words of exaltation and prose.

Robbin - hope it wasn't me that had you confused wtih somebody else - but I tend to do that :blink: .....we need pictures! All of you, we must see your faces so we can know our fellow citizens of the cult farm!

All of you, all your pains and issues and constant discernment of what you can and cannot eat....I really feel for you. I just read these things and can't believe what you all endure....blessings and better health to all and may you all get to the bottom of what ails you.

Love to all - -

edit - - removed all the sad paragraphs...was having a bad day and took the sad things out! only happy thoughts in R-ville....

christine 25 Newbie
Celia, I'm so sorry that your stomach is hurting, if you have an ice pack perhaps it would help. :(

Rachelle I think I might have had my first auxi-gro experience today but I will have to test it out tomorrow. At the sort we got some large watermelons, organic of course, I had some and shortly afterwards I got very stuffed up and my first thought was sulfites but then I wondered about the auxi-gro. It didn't seem to last long but I have been edgy this evening and I am wondering if that is also part of it.

I have continued to look into the CT scan and the "contrast" they use which is iodine. What I have found is that about 4% of the population is sensitive to iodine and that while some react strongly initially there may be reactions down the road. The people who tend to be sensitive tend to have thyroid issues but it is unclear to me whether they had thyroid issues prior to the iodine contrast or are just generally vulnerable. I think what keeps my attention in this matter is the number of people I see here that do have thyroid issues and the fact that CT scans are used in the diagnostic process for Celiac. What I don't understand is if they know that a percentage of the population reacts so negatively to the iodine contrast, it has been known to kill people, why don't they test for sensitivity before administering the test?

I was talking with a woman at the sort today who has had 8 CT scans, she was diagnosed with colon cancer three years ago, and she told me that initially they had used the contrast but after a couple of tests it made her so sick that she refused and she said her doctor told her that was fine, that they would be able to read the scan without the contrast. :huh:

Here is a link:Open Original Shared Link

They say those who are sensitive to iodine but wouldn't an excessive dose sensitize someone?

I was thinking it might be fortuitous that I remembered the ice pack for tummy pain and what a good use of frozen spinach.

And thank you for your kindness Cissie.

Hi Rinne

Im really sensitive to iodine and I get ractions like metallic taste and nausea, increassed salivation, swollen toungue and glands, from consuming foods high in iodine, like kelp, seaweed, some dairy, iodized salt, white bread, etc.

I had a reaction to contrast die, and it was bad, thats why I dont want to get an MRI or CT done.

Usually CT's can be done without die, for instance with sinunses, but in the case of celiac disease im not sure.

I was diagnosed with hashimotos thyroiditis 2 years ago, but its slowly calming down now as the antibodies are decreasing to lower levels. Hopefully it will and has fully resolved itself.

But I atribuite a lot of my food and Multiple chemical sensitives problems to metabolism, and thyroid malfunction that happened along the way. The fact is I dont really know, and if I think about it too much ill just go crazy.

Trying to find a diet that works!

Why are you concerned with iodine anyway? Are you sensitive to it?

christine 25 Newbie

Floridian-

My tooth, is less sensitive than when they first put it in. And my cold sore is slowly healing.

I went to the store to get some abbriva for it.

I can't say im doing well tho.

Actually last night, the swelling and pain in my jaw and face, was so bad that I drove myself over to the ER.

They DX me with TMJ and gave me a prescription for Valium, to help relax my muscles. They referd me to an internist to do other work ups. I told the doctor the story about the chemical supplement that I reacted to that had metallic poising etc. and he said that maybe I have somthing that they dont know about, that science doesnt know about yet, and how to fix it. All he can do is treat the symptoms, he said, and in the ER, they didnt treat people with chronic pain, they handel trama, like "heart attacks and broken teeth"

broken teeth?

Anyway.

I did some research myself, cause im sick of mainstream doctors and I called and made an appt, today with a doctor in Dayton who specializes in Environmental medicine who is also an ENT, he does diet elimination, and uses a wholistic approach to treating his patients, and people with MCS. He happens to be an MD too which is promising.

Ill have to drive 2 hours, but I hope its worth it. Just to have a professional doctor take me seirously and understand and get me, would be nice.

Yeah, I do need this tooth out. Im very sensitive to these dental materials, the palsticers and acrylics they put in, its all artifical chemicals and Im not feeling too hot right now.

I agree with Rachel that a lot of intolerances to foods other than gluten arent from the foods themselves but the chemicals sprayed on them or leached out from the soil in the form of fertilizer, or lime, etc. Espically plants, I have problems with plant foods. All the healthy stuff.

Funnier yet, I even have sensitivies to vitamins and minerals.

I bought a bottle of Bolthourse farms mango juice called C-boost, "immune support" from the store, and it contains like 1200% vitamin C, 200% zinc, 100% vitamin A, 640 mg of potassium and right now after drinking it, (it was good tho) I have the worst headache, more worse than if I ate gluten. It has no added sugar, but 36g carbs per serving. So its comming from fruit sugar. Ohh it says 30g sugar. too.

I cant really tolerate juices and smoothies, or sorbet, anything sugary. But I think it has more to do with the fact

it also has a lot of potassium in it, my jaw pain gets worse when i eat high in potassium like banannas, and other potassium rich foods.

This may sound weird but they make me get cotton mouth, really dried up.

So, I react to a lot of vegitables and fruit juices. Which kind of confuses me, but not really because mainly I get cotton mouth from these foods. Initally I get a lot of saliva, then after 20 min I dry up and get cotton mouth, and the headache insues.

Im pretty dry right now.

does anyone know about potassium?

Thanks for asking about me, yes im still alive. And im going through man problems too, and my AC broke its hot in here!

But Im livin the dream!

Ill get through this, I just need a little relief, which I hope ill get soon.

Ohh the dentist numbed me with lidocane.

Somthing systemic, is causing this TMJ, cause I dont grind my teeth at night. Its so frusterating you guys trying to figure this thing out!!

need your prayers!


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rinne Apprentice
Im really sensitive to iodine and I get ractions like metallic taste and nausea, increassed salivation, swollen toungue and glands, from consuming foods high in iodine, like kelp, seaweed, some dairy, iodized salt, white bread, etc.

I had a reaction to contrast die, and it was bad, thats why I dont want to get an MRI or CT done.

Usually CT's can be done without die, for instance with sinunses, but in the case of celiac disease im not sure.

I was diagnosed with hashimotos thyroiditis 2 years ago, but its slowly calming down now as the antibodies are decreasing to lower levels. Hopefully it will and has fully resolved itself.

But I atribuite a lot of my food and Multiple chemical sensitives problems to metabolism, and thyroid malfunction that happened along the way. The fact is I dont really know, and if I think about it too much ill just go crazy.

Trying to find a diet that works!

Why are you concerned with iodine anyway? Are you sensitive to it?

I'm wondering if the hashimotos thyroiditis diagnosis came before or after your reaction to the contrast die?

I suppose I'm interested for a number of reasons:

1) My mother has been ill for years and has had several CT scans and she has reacted very badly to the contrast. That was part of why I refused to take it.

2)I feel like we have lost our way and constructed a system which is poisoning us and we need to understand the ways in which we are vulnerable to being poisoned. If this is a test which can kill people then I want to alert people to the possible risks because no-one told me that this test could be that dangerous.

3) I don't want to feel crazy and paranoid because I am suspicious of the things I am told. The woman who told me about having 8 CT scans said that after getting very ill she refused to drink the contrast and a nurse told her that she would simply put a tube down her throat and administer it whether she wanted it or not. Then her doctor intervened with the assurance that they could still read the test. I think we are bullied into participating in a system which just makes us sicker.

4) Rachel, really it was Rachel that got me thinking about it once I looked into the CT scan and saw the relationship between the iodine in the contrast and thyroid problems. I think we all need to be more proactive in our health care, we know we can't assume that doctors understand Celiac but I also think we need to question whether or not they understand their procedures. I've been told that an excessive number of x-rays can be harmful and yet I have NEVER had any tech ask me how many I have had.

I know that day to day it doesn't matter how I ended up the way I am, there is no sense in regretting that I didn't respect my body's limitations or questioning how I may or may not have been poisoned (scary stuff about vaccinations and my generation of polio vaccines). I know that what I need to do is find the way to nourish myself and that is where most of my effort is.

rinne Apprentice

I'm really sorry that you are struggling Christine. I hope this Doctor can help. It looks like we cross posted, don't know if you read my last post but wondering about the timing of your diagnosis.

I told the doctor the story about the chemical supplement that I reacted to that had metallic poising etc. and he said that maybe I have somthing that they dont know about, that science doesnt know about yet, and how to fix it.

Please excuse me if I missed the information about the chemical supplement you reacted to, what was it?

Rachel--24 Collaborator

Rinne,

I think its great that you are proactive and not allowing yourself to be bullied into anything. We are in charge of our bodies and you're right, the doctors dont know everything about these tests. I think you need to foolow your instincts and like I said....dont allow them to "make" you do anything you dont feel is right for you.

I just wanted to clarify (in case my previous post confused you)....although I've had many CT scans they've all been recent. I never had any of these tests done prior to becoming sick. I do have thryoid disease but it couldnt have been a result of iodine in CT scans or x-rays because the Graves Disease was diagnosed in 1999....about 4 years before I got sick. I suppose you could say that the thyroid disease was my first symptom of what was yet to come. I had been healthy all my life and didnt fall ill until 2003.

rinne Apprentice

Rachel, I don't know if you missed this part of my quote:

CONCLUSIONS

The human response to excess iodine is variable. Some people

tolerate large intakes without side effects, while others may

respond adversely to levels close to recommended intakes. Based on

the studies reviewed here, it is concluded that an iodine intake of

one mg per day or less [which has been deemed non-hazardous by the

American Medical Association (1980)] is probably safe for the

majority of the population, but will cause adverse effects for some

individuals. Those who are most likely to respond adversely are:

- those with other thyroid disorders (e.g., Hashimoto's Disease,

euthyroid Graves' Disease)

- those who are sensitive to iodine.

Open Original Shared Link

It would seem to me that from the above information that you should never have been given the iodine contrast in the first place because of your diagnosis of Grave's Disease. The iodine may have poisoned you and be contributing to your difficulty in healing.

From what I am reading not everyone reacts negatively to the contrast immediately and as I said about my friend it took a couple of CT scans before she got really ill.

An extreme example of iodine poisoning:

. Tresch et al. (1974)

reported the case of a 54-year-old man who mistakenly ingested a

potassium iodide solution which contained 15,000 mg of iodine. He

survived the poisoning, but experienced ventricular irritability,

swelling of face, neck, and mouth, periorbital edema, serous

conjunctivitis, edematous nasal mucosa, and enlarged and tender

salivary glands.

Another point of I found of interest is that there is a relationship between histamines and iodine. It seems that an iodine reaction can be calmed with the use of Antihistamines.

Contrast dye may cause a rash, itching, or a feeling of warmth throughout the body. Usually, these side effects are brief and resolve without treatment. Antihistamines may be administered to help relieve symptoms.

I suspect that iodine for most Celiacs is not an issue but if you are part of the 2%, sorry made a mistake before and said 4%, and you are exposed to it in a large dose such as a CT scan it can result in a very negative reaction if not immediately then later on.

So, absolutely beautiful day, cool now but with enough heat in the sun to promise a hot afternoon. This morning I am off for my acupuncture appointment and I will ride my old "no speed" bike through the shady streets and past all the blooming gardens.

It is wonderful that Rachelville is growing, we could begin to plan our first community event and in the spirit of the thread it will have to be a PARTY.

jerseyangel Proficient
Patti-Do you know where Poland springs is bottled? I am curious since we have many springs here and I am wondering which is better. Zack loves Dannon, but I am thinking maybe he would be better off with something else, since the kid still has a few problems off and on.

Hi Robbin, I found this for you--

Open Original Shared Link

:)

dlp252 Apprentice

Gosh, forgot again what I was going to respond to...in Rachelville can we please have good memories, lol.

Anyway, I'm hoping all who were in pain yesterday are now feeling much better.

I am in denial about Mango leaving....forgive me if I haven't been commenting on that, lol. I've been having Mango sorbet (homemade) every day in honor of you. :lol:

Floridian - you simply MUST do something for me....please kiss Anna for everyone who has ever posted on this thread. :lol: I figure that must be at least 50 kisses. :lol:

Rachel - I'm still waiting for that blow by blow description of each bite of ice cream! :lol: Make it slow. :lol:

Christina - prayers said.

jerseyangel Proficient
I was able to get comfortable enough last night to get a little sleep... thanks to Cissi's prayers and Rinne's suggestion of the ice pack.

My Dingo buddy... you are doing a great job... and if we didn't feel all emotions good and bad we wouldn't be human... we wouldn't be living.... you are always in my prayers with the rest of you and I hope you feel a little better and stronger today!

To lighten today up a little.... I HAVE to tell you all this......this morning Tony woke up with wet goop all over and on him and freaked out, he thought my insides were coming out.... all I had last night was a package of spinach so I used this instead of my ice pack... and this was a frozen cardboard box and I fell asleep with it on my tummy and of course rolled around during my sleep... well the spinach thawed and oozed out of the corners :lol:

But now I have to wash all my bed sheets <_<

E-w-w-w! I would have freaked out, too! Well, look at it this way, tonight you'll go to bed on all new, fresh linen :D I also tore my bed apart this AM--shook out all the sheets, cover, etc. I could not find one of my gold hoop earrings (my absolute favorites, wear them every day) last night. ;) Anyway, I just found it--all the way under the bed, almost to the other side :blink: I was not going to run the vaccum cleaner again until I found it! :D

Glad you're better today, Celia :)

jerseyangel Proficient
HA... and what were you DOING last night to get that earing almost to the other side :lol::lol:

:ph34r:

Guest Robbin

:) Celia, that is so funny :D:D lol. I would have freaked too! Patti-thanks so much for the link! I will see if it is in the stores here and try it. Susan I love the picture of the girls!! Good job !

The iodine connection scares me a little since I have had quite a few contrasts done. The last time I felt very itchy and had a swollen face afterwards and they did give me an anithistamine at the hospital. You know, it was around the time the FM kicked in full force. The whole system of giving people these chemicals makes me so mad. If they can read the scans without the stuff, then why in the heck do they push it so hard to get people to take it? Must be a little more effort .

Susan, I will get a picture up someday. I need to have my "tech support" son to show me how to use all the gadgets. He is not a patient teacher. Just show me once though and I will take notes :) . I am coloring my hair right now so I have 30 minutes of time to get sucked into this before I have to shampoo it out. I am NEVER doing it at home again. I stupidly touched the door to my bathroom (white door) with the stuff on the gloves and it will not come off. Lovely, now I have to paint the door. That means I will have to paint the bedroom, which means the hallway will look blah and I will have to paint that, which means... you get the picture. I am so weird, I know.

It looks like I didn't log off last night either. I am having a Monday "day" on a Friday. Tomorrow doesn't look good either--Zack is having a sleepover party. (Guys have sleepover parties--not slumber parties)

Also have a not so fun eye appt. I won't rehash that whole boring story, but long story short- right eye is clouding over again. :angry: I had some sort of weird fast-growing cataracts that younger people get (doctor said "younger" :) ) and it came in like swiss cheese with holes-- making everything distorted. I found this out after quite a few drs. misdx'd it. Then, had a reaction to the implants and have been on steroid drops. So, I am not looking forward to what may have to be done. Hopefully, just a zap with a lazer. :blink: Ok, timer went off --must rinse off the ugly and hello not so ugly. That's the best to hope for at this point--just not so ugly-- :lol: Have a great weekend everyone!!!! NO MORE NEW SICKNESSES ALLOWED PEEPS!!!!

DingoGirl Enthusiast
I stupidly touched the door to my bathroom (white door) with the stuff on the gloves and it will not come off. Lovely, now I have to paint the door. That means I will have to paint the bedroom, which means the hallway will look blah and I will have to paint that, which means... you get the picture. I am so weird, I know.

OMG, if you're weird, I'm weird Robbin......hair dye accidents and other project mishaps can lead to extreme home makeovers, can't they?? :lol:

OH I hope it is something so simple for your eye...

Yes, no more sickness! We must all get better! yay! :)

Patti and Celia - - cracking me up with spinach and earrings in bed....

Rachel--24 Collaborator
It would seem to me that from the above information that you should never have been given the iodine contrast in the first place because of your diagnosis of Grave's Disease. The iodine may have poisoned you and be contributing to your difficulty in healing.

Thanks for all this info Rinne. I remember being really scared the first time I had it injected because of how I react to everything. It turned out fine and I guess I got over the fear of it after that.

I think I would be really terrified of this info. if I hadnt already been sick before I had the CT scans. I've never gotten any worse after having it done. My symptoms are the same so I'm not too worried about the scans having made things worse.

I think what they are saying is that the excess iodine can adveresly affect someone who already has thyroid disease....this would likely be due to the fact that the thyroid absorbs iodine. The thyroid gland requires iodine in order to function properly. If someone like myself (with Graves) were to take an excessive amount of iodine I think it would speed up the production of hormone.

This is how they confirm overactive thyroid....they give a tablet of iodine and then measure how much of that iodine has been absorbed by the thyroid after a period of time...I think it was 2 hours. My thyroid had absorbed almost all the iodine in my test, which proved what the bloodtests had already shown....that my thyroid was overactive. At that time I chose not to have my thyroid ablated and chose meds to control it instead of completely nuking it.

I took meds when needed for 4 years and all was well. When I got sick everyone assumed the symptoms were due to the thyroid being overactive again...only, the meds did not have any affect as they had in the past. I kept getting worse and was unable to work. I got desperate and went ahead with the thyroid ablation. It did nothing to fix my problems or relieve symptoms...I just continued to worsen.

By the time doctors started testing for other things and giving x-rays and CT scans....my thyroid had already been completely destroyed from the ablation treatment. My thyroid doesnt function anymore...which was the point of the ablation...there is no way it could be affected by the iodine in a CT scan because it cant absorb iodine anymore....my thyroid takes nothing in and puts nothing out.

I think the quote is likely referring to people who have active thyroid disease at the time of the CT scan. Had the scans been done while my thyroid was very overactive I'm sure it would have been rapidly absorbed by the thyroid and sped things up for me tremendously. I'm not sure how it would affect someone with Hashi's but for Graves it would worsen symptoms because it would cause the thyroid to put out way more hormone than what the body needs.

Obviously with my thyroid being gone the info. probably doesnt apply to me but I'm curious if the radiologist would have still injected dye if I still had active Graves Disease at the time with a fully functioning thyroid gland. Kind of makes me wonder. <_<

Anyways whatever it was that was making me sick is still unknown and my thyroid got nuked for nothing. Could be as my doctor says....30 years of sub-clinical gluten intolerance leads to much damage and also leads to autoimmune disease. He says even though the thyroid disease was diagnosed first....the gluten intolerance would have been there much longer and it would have caused the thyroid disease. It makes sense since we know people with anti-gliadin antibodies tend to have other autoimmune stuff going on as well.

I cant remember if you'd said you already have thyroid problems?? I definately wouldnt take the dye then...trust your instincts on that.

Rachel--24 Collaborator

I could definately see how the dye could affect someone with Euthyroid Graves. That would be someone who's Graves is not active. Their thyroid has somehow gotten back to normal functioning and is no longer overproducing....then along comes this big rush of iodine that is injected into the blood.....I can totally see how that could trigger the thyroid to go into overdrive and cause active Graves Disease.

I'm sure this has probably happened to lots of people....unfortunately. :(

penguin Community Regular

Geeeeeeze...I leave R-ville for a while to actually work at work (a novel idea :rolleyes: ) and I come back to 500 more pages. Sheesh!

Susan- Nice photoshopping!

Celia- Sorry you aren't feeling well, although since the page you said what was wrong was about 20000 pages ago, I can't remembery why you aren't feeling well

Patti- Next time you :ph34r: , make sure to take your earrings off first! ;) That's why I wear posts, not hoops :)

Not really, that makes me sound like a certain gardening tool, but you know what I mean. :rolleyes:

Rachel- Hope the dairy thing keeps going well! Take it easy, though! That much dairy would make anyone sick!

Robbin- Nice excuse to renovate!

To everyone else - good afternoon!

OK - As far as I go...I conked out at about 9 (managed to stay awake 3 hrs after taking phenergan, woohoo!), but managed half a banana shake and some crackers before then. I was already so out of it when DH came in at 9:30 that I was hallucinating. It was wierd. It was like he had some sort of sparkly contrapion made out of copper wires, no idea. I think I actually asked him what he had, and he said "nothing" and I said, "oh great, I must be hallucinating" :blink:

With the red face, it's not rosacea. It just looks like I'm blushing all the time with no change in skin texture, I've always been that way. My mom blames my irish complexion and she's probably right. I think she's starting to worry about me, until now I think she halfway thought my celiac/gluten intolerance was something I didn't have. She even said that my stomach pain might go away after a while on the diet since it takes so long to heal (she must have done more research, she didn't believe me when I told her that)

My stomach still hurts today, but it's not unbearable yet. I think taking the phenergan so early helped me. I still slept like a rock though, DH even turned off the alarm to let me get more sleep, but didn't think I would stay asleep, because I normally don't. He was surprised when I slept an extra hour, and so was I! I was almost late for work!!! :o

Our landlord is reconfiguring our fence because of flood issues in the next building, it's going to make our patio smaller and more inaccessible <_< . As if that wasn't bad enough, they didn't even tell us they were doing it! And they're not even replacing the 20 year old splintery wood, they're just moving it around. :rolleyes: Jerkfaces.

jerseyangel Proficient

Robbin--Before you paint the whole door, try the Mr. Clean Magic Eraser.

Chelsea--Glad to see you up and around today! Sorry about your jerkface landlord :angry:

rinne Apprentice
To lighten today up a little.... I HAVE to tell you all this......this morning Tony woke up with wet goop all over and on him and freaked out, he thought my insides were coming out.... all I had last night was a package of spinach so I used this instead of my ice pack... and this was a frozen cardboard box and I fell asleep with it on my tummy and of course rolled around during my sleep... well the spinach thawed and oozed out of the corners

I cannot stop laughing about this. :lol::lol::lol: I am glad it helped given it made such a mess, not glutened, spinached. :lol:

The iodine connection scares me a little since I have had quite a few contrasts done. The last time I felt very itchy and had a swollen face afterwards and they did give me an anithistamine at the hospital. You know, it was around the time the FM kicked in full force. The whole system of giving people these chemicals makes me so mad. If they can read the scans without the stuff, then why in the heck do they push it so hard to get people to take it? Must be a little more effort .

Robbin, I share your anger, I'm so sorry that you had a reaction to this and I too wonder about the FM kicking in. My mother has FM also and as I said before had a bad reaction to the contrast. The question I have is if someone has been poisoned by iodine what is the treatment?

Rachel, thank you for your post explaining what happened with you, it helped me to understand more about this. I see now why you wouldn't think that this is contributing to your problem.

My stomach still hurts today, but it's not unbearable yet. I think taking the phenergan so early helped me. I still slept like a rock though, DH even turned off the alarm to let me get more sleep, but didn't think I would stay asleep, because I normally don't. He was surprised when I slept an extra hour, and so was I! I was almost late for work!!!

Penguin, such an adorable name, I'm so glad you got some deep sleep. I think the last time I did that was last summer, I'm jealous. :( I think it is very rude of your landlord to do that and doesn't doing it change your rental agreement, wouldn't part of why you rented the place be the patio? Is it in your lease? I suppose the reality is that landlords get away with a lot and sometimes fighting them is not worth it but it still makes me mad.

dlp252 Apprentice
:lol: I suppose this also needs to be added to my already growing sig :lol:

:lol::lol::lol: Spinached! :lol::lol::lol:

Green12 Enthusiast
:lol::lol::lol: Spinached! :lol::lol::lol:

:lol:

It's very quiet in here......

Where is Andrea?

DingoGirl Enthusiast
:lol:

It's very quiet in here......

Where is Andrea?

I know...kinda lonely in r-ville today....how are you, our fair Queen? I am sewing my curtains and when each panel is done (there are eight) I am allowed to make a phone call or check the board....but heading out now with my mom for some bargains.

Andrea is being mommy today, I think. She IS a good mommy, as we know! :rolleyes:

Celia is being grand-mama and cracking the baby up...of course!

But, I must tell any of you who don't know what our Vincent is doing.....check out Tanya's Meggan's Gaggin isn't getting better thread - - vincent has gone and donated blood for her little girl, whose surgery is upcoming. It's amazing how this board connects people....and what a hero Vincent is!

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    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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