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Gluten-eaters Annonymous

MallysMama

By MallysMama
in Coping with Celiac Disease

Recommended Posts

tarnalberry Community Regular
tarnalberry
Posted
Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

Hot pastrami w/ extra peppers.... mmmm yeah, that was my fave! WAY better than any Subway sandwhich. :-) I eventually moved on to my favorite sandwhich being a homemade vegetarian sandwhich, but without the whole wheat bread (a particular variety) and cheese... it ain't the same... it just ain' t the same. Ah well, there's more to life than sandwhiches. :-)

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tiredofdoctors Enthusiast
tiredofdoctors
Posted

Rachel -- it IS a good thing you've never had a Krispy Kreme -- the craving for it is AWFUL. When they come off the conveyor, right after they've been glazed, then they box them up hot for you . . . Holy mackerel -- there's nothing better! Once you eat them, you're hooked . . . . :lol:

penguin Community Regular
penguin
Posted
Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

Ooooooh...I forgot about Togo's

The turkey avocado was my favorite, too :(

Guest nini
Guest nini
Posted

Krispy Kreme... it's an evil evil addiction... My parents used to take me and my sister up to Krispy Kreme when the HOT DONUTS light was on and OMG! Fresh off the conveyor hot and sticky! Crap. I really miss them

now I'm also craving those biscuits and cinnamon rolls that come in a can and you just pop em out of the can, into a pan and bake... oh man... why can't someone make a good gluten-free version of those???

JenAnderson Rookie
JenAnderson
Posted

I agree with Lollie and Nini--Croissants, and bagels, and OMG Krispy Kreme!! I'm the only one in the house currently on a gluten free diet and when I don't cook breakfast, my husband gets doughnuts...And I hide in the bedroom with a clothespin on my nose. <_< I also miss Subway and Quizno's...

My favorite day would be filled with Manicotti, Alfredo, Subs, Pizza, and Krispy Kreme doughnuts. If I could have one day where I could eat whatever I wanted, it would be an awesome day filled with every no-no I can think of.

cgilsing Enthusiast
cgilsing
Posted
I'd give a pinky toe for a McDonald's double cheeseburger...

I never even liked them that much! :rolleyes:

There was talk a little while ago about making me do a gluten challenge......I REALLY don't want to do that....but the first thing that popped into my mind was a big greasy Whopper! If I ate it for my first meal, I could enjoy it before everything fell apart! B)

schuyler Apprentice
schuyler
Posted

I'd give anything for flour tortilla's, the corn ones just don't measure up. Right now, I'm really craving spinach ravioli and homemade chocolate chip cookies, oh I'm so hungry! I was never a fan of bread before, but after tasting all of the gluten-free premade stuff, I really starting to appreciate how good the gluten filled stuff really was!

Danielle

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Mango04 Enthusiast
Mango04
Posted
Anyone familiar with Togo's sandwiches? Maybe its just in California but I used to work there as a teenager and I've had hundreds of Togo's sandwiches over the years. Today I was really craving one big-time. A large turkey avocado with lots of mayo and some cheese sounds sooo good. I like Subway too but Togo's rules....the bread and meat is WAY better.

The turkey avocado from Togo's was my favorite too. mmmmm

I've also never had a Krispy Kreme. Never ever. A few months ago I at a Nutrlicious Bakery gluten-free/vegan donut. haha just doesn't sound the same does it?

tarnalberry Community Regular
tarnalberry
Posted

I never liked Krispy Kreme. They opened one near my college when I was a junior, and a bunch of friends and I went out there, and I'm sitting in the back seat holding the fresh donuts, and they're all scarfing them down, and I tried one of them, and said... "ugh... it's like sugared grease". They all said "more for us!". :-P

CeliaCruz Rookie
CeliaCruz
Posted

My local deli has started selling peanut butter and jelly sandwiches. They literally make them up in the morning and then place them in the glass display case right next to the corn muffins, black and white cookies etc. I have never had THAT much of a problem abstaining from gluten. When I gluten myself it's usually accidental or forgetfullness -- not a temptation issue. But these sandwiches....on white bread. It's all I can do to keep from licking the glass.

StrongerToday Enthusiast
StrongerToday
Posted

There's this little Itallian hole in the wall place by me, the owner is straight from Italy - his accent alone is worth going ;) .... but oh, I so miss the Gnocchi Sorrento with extra garlicy bread. (drooling!)

The Jimmy Johns turkey avacado sam'which. McDonalds.

Sigh....

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
There's this little Itallian hole in the wall place by me, the owner is straight from Italy - his accent alone is worth going ;) .... but oh, I so miss the Gnocchi Sorrento with extra garlicy bread. (drooling!)

Sigh....

I miss Italian food and my family! Never liked Krispy Kreme donuts hard-like-rock. Yuck! Give me a cannolli and capuccino anyday! Just not today... :lol:

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Cannolli -- forgot about that -- mmmmmmm....... Also, if you have Pannera Bread -- they used to make, only in the summer time, Peanut Butter & Banana bagels. Man, they were good! It was like eating bread, nuts and candy with cream cheese -- what a bonus! I miss California Kitchen's Thai Chicken Pizza. We used to get those in (they sell them now at Kroger), and just the smell of them in the oven . . . it was great!

I used to make homemade yeast rolls from my grandmother's (and her mother's, and her mother's) recipe. They were like the ones you get in the restaurants, only better. Yum . . . . Okay, gotta stop talking about this . . . I've been very stringent for -- I don't know anymore -- but it has to be at least 8 months -- so I'm not going to tempt myself. Going to get some Annie Chun's pseudo-ramen noodles!

francelajoie Explorer
francelajoie
Posted
I never liked Krispy Kreme. They opened one near my college when I was a junior, and a bunch of friends and I went out there, and I'm sitting in the back seat holding the fresh donuts, and they're all scarfing them down, and I tried one of them, and said... "ugh... it's like sugared grease". They all said "more for us!". :-P

I'm with ya there. I moved to the States last year and always wanted to try them cause it's all everybody could talk about. Well, was I ever disappointed. It's was so disgusting. I had one bite and that was it. Thought I had swallowed raw sugar glazed dough. So heavy.

CMCM Rising Star
CMCM
Posted

I actually don't seem to be having uncontrollable cravings at this point in time. But distilling things down to my top favorites, it would be 1) The fabulous bear claws from a local bakery...to die for! 2) Krispy Kreme plain glazed donuts (sigh) 2) cake donuts with either chocolate or maple frosting 3) pizza (smelling it is torture).

Most other things I'm OK living without. Before going on this diet I had really eliminated most bad stuff from my diet because I felt so bad, so as a result, I didn't have any big withdrawal from anything. Even though I love all the stuff mentioned above, there was always a big price to pay for eating it, so that tempered my cravings quite a bit! :D

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  • Posts

    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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