Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

What Do You Do When You Get Glutened?

coco-loco

By coco-loco
in Coping with Celiac Disease

Recommended Posts

jknnej Collaborator
jknnej
Posted

I take Zofran or Phenegran. Zofran is more expensive so I take it when I can't lay in bed. I take Phenegran and it works pretty well cus' it knocks me out and when I feel that bad I'd rather be sleeping, anyway!

Don't take the Ipecac or whatever syrup. It will keep you vomiting until you are just dry heaving and nauseated for days afterward. Not worth it by any means.

Usually I just lie in bed and sleep it off.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 56
  • Created
  • Last Reply
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

WARNING IMODIUM liquid is NOT GLUTEN FREE

I was reactive to the liquid IMODIUM so I called IOpen Original Shared Link and guess what-- Imodium liquid is NOT free of GLUTEN. BEWARE! It has SOY in it also and SPLENDA is in the liquid.

The woman was very very nice, and told me that CORN is what they use as a binder.

So for us celiacs that are at the stage of the disease with seconary food allergies to CORN. This product although we think it is helping us, we might be doing more unseen damage to our bidy with the corn. AND The liquid had GLUTEN!

CALL the number yourself and speak up.

penguin Community Regular
penguin
Posted
WARNING IMODIUM liquid is NOT GLUTEN FREE

I was reactive to the liquid IMODIUM so I called IOpen Original Shared Link and guess what-- Imodium liquid is NOT free of GLUTEN. BEWARE! It has SOY in it also and SPLENDA is in the liquid.

The woman was very very nice, and told me that CORN is what they use as a binder.

So for us celiacs that are at the stage of the disease with seconary food allergies to CORN. This product although we think it is helping us, we might be doing more unseen damage to our bidy with the corn. AND The liquid had GLUTEN!

CALL the number yourself and speak up.

Sorry? I found this confusing...

Please correct me:

it has gluten from wheat, barley, rye, or oats

It has corn

It has soy

It has sucralose (splenda)

If it does have gluten from WBRO, which component is it in? The only sketchy thing I saw was flavors?

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

I called the 1800 # on the IMODIUM web site.

I asked the lady the ingredients in the Imodium liquid and then the pills. She looked up the liquid and said

LIQUID IMODIUM - CONTAINS GLUTEN (from wheat and grains) she said there is also a flavoring that contains gluten. And SPLENDA is the sweetener they use and IS CROSS CONTAMINATED with SOY.

PILLS IMODIUM - CONTAINS CORN. That was as far as I got. I didn't ask about SOY I was so upset.

I used my time with her educating her on the simple things important to know. And, I went deeper in hopes my converstation was recorded and logged into the "EARS". I asked her to write down a title of a book, that the brains in their labs should read called "DANGEROUS GRAINS..." I told her of a large grass roots movement happening around the USA of people with celiac disease, their families and friends to provoke change and awareness to big business, drug companies and our government.

And how we are going to demand ingredient labels like on food, but for drugs, beauty products, skin care and everything else... just like us not knowing IMODIUM LIQUID has GLUTEN in it.

I spoke to her about how millions and millions of people with celiac disease rely on Imodium, and how we have believe their product to be a safe drug to use with celiac disease when in fact they are making use sick(er).

Think about this long and hard. Think of the impact this has had on our health.

Tomorrow I'm going to call my compound RX guy and ask if he can make it, caps or liquid without the poison in IMODIUM.

beelzebubble Contributor
beelzebubble
Posted

it's nausea that predominates for me. i have diarrhea too, but the nausea and stomach pain are what floors me. i've found that nothing works better for me than herbal tea with lots of honey and some lemon. it usually takes about an hour to work, but then i'm significantly better for at least the next few hours. then i just keep drinking tea and eating mild things like homemade chicken soup and i'm, if not okay, at least not ready to off myself.

:)

Generic Apprentice
Generic
Posted
If you look at my post, you'll see that Ive suffered alot with celiac disease (accidentally). What kind of "seizures' do you have? Because I think I was having them, but Im not sure. I wanted a hospital, but, didnt think it would help. Suffered terribly falling to the floor off the toilet bowl--couldnt even keep my head/body up. I was crying and basically freaking out.

Skin flared up with cystic acne, had constant dizziness, feeling like I had to black out if I wasnt laying in bed. And-----the nausea!!!!!! OMG!!!!! a nightmare

Can you share more info about what you (or anyone else) do during and after a CA?

Alot of people have recommended ginger. Never tried it, not sure about it. Immodium helps alot, lots of brown rice, baked potato and water helped me.

Look foward to hearing from you guys!!!!

Please check out my recent post.......thanks! I'd love for more people to read it and share.

erica

It sounds like you were severely dehydrated. I also get that way and have to go the E.R. Some times I start to hallucinate and actually passs out, also.

Girl Ninja Newbie
Girl Ninja
Posted

If I end up with bad D I use dark chocolate. The cocoa in 2 bars of quality dark chocolate is generally enough to clear it up. If not, repeat in a few hours. Conversely, if you are even the least bit C you should definitely avoid dark chocolate.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,940
    • Most Online (within 30 mins)
      10,442
    Sensible
    Newest Member
    Sensible
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      By Russ H · Posted

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Shaking/Tremors and Off Balance

      By suek54 · Posted

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      HLA-DQ2 POSITIVE it's nothing

      By Scott Adams · Posted

      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
    • Scott Adams
      Juce Super Fruit & Veggie Vitamin Blend

      By Scott Adams · Posted

      Yes, I don't recommend barley or wheat grass, even though technically speaking if it's made using ONLY the pure grass it is gluten-free, however, I've witnessed them make it at Jamba Juice and the seeds/kernels often get mixed into the grass before they juice it, so in that case would not be safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.