Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidental Glutening Again


Guest nini

Recommended Posts

Guest nini

ack... I got glutened yesterday... I only ate food at home that I prepared myself and the only questionable thing that I did was when I was getting food out of the fridge, touched something sticky and without even thinking put my finger in my mouth to taste it... (I should have known that hubby is not that careful with his gluten crumbs and it could've been jelly with biscuit crumbs in it...) I started getting really flushed in the face and my tummy really hurt then the big "D" came to visit and I itch ALL OVER MY BODY... hubby also woke me up during the night, said that I had TWO seizures in my sleep... Crap I hate this.

this morning all my joints are swollen and painful and I still freakin itch everywhere... I can't believe that it only takes a teeny tiny amount for me to get so sick...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Oh Nini--that sounds awful!!! Sorry you're so sick. I am always amazed at how little it takes to make us sick. Feel better :)

Guest cassidy

sorry you aren't feeling well. I think most of us have done this to ourselves.

I had a bad week last week. I went out to dinner with the entire family and let the waitress convince me they could make me a safe meal, which they couldn't. Three days later I went out to dinner for a business dinner at Bonefish, ordered off their gluten-free menu, and barely crawled to my car after dinner. Then, 3 days after that I was on vacation and let a waiter convince me that my specially prepared meal was gluten-free, when it certainly wasn't. That was a tough week that I haven't gotten over yet.

Hope you feel better soon!

Guest nini
sorry you aren't feeling well. I think most of us have done this to ourselves.

I had a bad week last week. I went out to dinner with the entire family and let the waitress convince me they could make me a safe meal, which they couldn't. Three days later I went out to dinner for a business dinner at Bonefish, ordered off their gluten-free menu, and barely crawled to my car after dinner. Then, 3 days after that I was on vacation and let a waiter convince me that my specially prepared meal was gluten-free, when it certainly wasn't. That was a tough week that I haven't gotten over yet.

Hope you feel better soon!

yikes Cassidy, that must've been one rough week...

yesterday was especially frustrating because my daughter and I had been out most of the day at two separate festivals and both had food, and since we couldn't eat any of them we were being so good and came home to eat... I guess I was just so tired from running around town that I just wasn't thinking... this itching is driving me crazy, but no visible rash...

happygirl Collaborator

nini, i am so sorry that you are having such a reaction. it makes me sad that some of us react to such miniscule amounts, but it does make me feel better to know that I'm not the only one!

i thought of you last night when I made my cheese sticks :) :) :)

Becky6 Enthusiast

Oh no! Im sorry!! I hate when stuff like that happens! I hope you feel better fast!

bluejeangirl Contributor

Its crazy isn't it Nini, I so sorry that it takes just that small amt. for such a reaction like that. Does it help to scarch the itch or do you just leave it alone? Make sure your taking your B-vits to get you back in balance. I'll have real light tremors lasting for about 15 seconds in my neck and shoulder area once in awhile and I never know what causes that. I'm sure its a nerve thing though because it happens when I start to fall asleep. Hope you recover fast.

{{{{{{{{hugs}}}}}}}} gail


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

thank you everyone... if I scratch, it actually makes me itch more, so I have to try to ignore it! I usually take b-vits anyway, so I'm good there... wondering if I should take some benedryl, if that will help...

aikiducky Apprentice

Sorry you got glutened Nini! Hope you feel better sooner rather than later... :(:)

Pauliina

flagbabyds Collaborator

don't scratch, that just makes it feel worse, and then makes you scar a lot more easily, i have scars on my stomach from scrathcing during an anaphalyxis reaction. I don't take benadryl 'cause it makes me throw up almost instantly, don't know if it is from gluten, or i am just alergic to the benadryl in general.

Hope you feel better soon!

Guest nini
don't scratch, that just makes it feel worse, and then makes you scar a lot more easily, i have scars on my stomach from scrathcing during an anaphalyxis reaction. I don't take benadryl 'cause it makes me throw up almost instantly, don't know if it is from gluten, or i am just alergic to the benadryl in general.

Hope you feel better soon!

thanks... I didn't take the benedryl cos it usually knocks me out and I don't need to sleep the day away.

it's taking all my willpower to not scratch which is why I'm spending too much time on the computer today

ms-sillyak-screwed Enthusiast

nini -- I know what the seizures are like, I get them too. I wouldn't know if I get them in my sleep. I'm all alone. But I will say they are frightening to say the least! Be well!

jerseyangel Proficient

Nini--can you take Claritan? When I get itchy with a reaction, I take one a day until I'm over it. It causes me no side effects.

wolfie Enthusiast

Oh no!!! I am so sorry that you are feeling so badly! I hope that you are feeling better soon!

(((HUGS)))

Ursa Major Collaborator

I'm sorry you feel so sick while being so careful most of the time! At least I know why I am sick today, I purposely glutened myself yesterday, to trigger DH (usually takes only a day or two for ugly, pus-filled blisters to appear) to get a positive biopsy from the dermatologist I am seeing tomorrow. Today I am feeling stupid for doing it.

Anyway, I hope you'll be better soon. I wished I'd know how to get rid of that itch myself, no good advice here.

Guest nini
Nini--can you take Claritan? When I get itchy with a reaction, I take one a day until I'm over it. It causes me no side effects.

It never seemed to help me in the past... I don't think it does anything for me... bummer though because THIS ITCHING HAS GOT TO GO!!! (oh and now I'm starting to get a bumpy rash that is visible)

jerseyangel Proficient

Darn! Well, hope you get over that itching soon--sounds like no fun at all :angry:

WGibs Apprentice

I take Ibuprofin for itchiness. I know it sounds crazy, but everyone I've told about it finds that they also get relief. All I can guess is that it blocks the itch receptors the same way it would block the pain receptors (?) I don't remember enough biology to know whether that idea is crazy. Anyway -- try it. It gives me more relief than things marketed for itchiness...I can't believe no one ever talks about it.

GreySaber Apprentice

How common are instant reactions? I tend to react about 20 minutes later myself. Basically if I eat something wrong as a restruant, I can usually predict my level of reaction on the way home from the way my stomache feels.

But then I might be an allergy and not a celiac. I'm not really sure.

Molly, you might be having a reaction to the antihistamines. I get weird reactions to sudafed.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    Jane02
    Newest Member
    Jane02
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.