Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Beat This


Claire

Recommended Posts

Claire Collaborator

Now to the rant: I recently decided to change doctors. A lady Korean doctor was recommended to me by several people. I called and asked if she was taking new patients and was told that she was. I was given an appointment date and I told them that my records would be forwarded. I signed a release at my current doctor's office for my records to be transferred. I wrote an overview of past history and current issues and sent it to the new doctor - to help speed up the initial consultation.

About three days later I got a call from her office. Her secretary said that the doctor had read my information and gone over the test results and that she felt she could not take me as there was nothing whatever she could do for me. She said that there were no more tests to be done. I personally know better than that. I can name a half a dozen at least. I was stunned. As I have shared this with others - some medical people - they too are stunned. If my records were accepted she should have accepted me - otherwise incoming patients should be told up front that the doctor may decline to accept you. She could have had me come in on a consultancy basis - as in second opinion.

I tried to go back to the previous doctor but wasn't surprised when she wouldn't accept me back into the practice. So I am high and dry with no family doctor! I have asked people for recommendations but so far no one is taking on new patients.

I continue to be stunned. Her office did call with a recommendation for an alternative medicine doctor but insurance won't cover that. I did call and you have to have a family physician even to get a consultation. As the saying goes, "up the creek without a paddle".

I think she read the records and my 'overview' and decided she didn't want the challenge.

As much as I hate doctors, I know that I need to have one in case of emergency. Right now my records are in two doctors' offices and neither one of those doctors consider me a patient.

Very unprofessional, I think. There should be a stated policy so that incoming patients don't wind up as I have with no medical representation at all. Claire


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

that sucks, just glad that you might be able to be better when gluten-free and start feeling better.

Guest nini

I ran into something similar with my daughter's former pediatrician's office. Her ped. decided to retire to be at home with her baby and since this Dr.s office was a bit of a drive for us I decided to temporarily have her records sent to our family Dr., after this happened I ran into an issue with her preschool (she swallowed a bead) and I couldn't get EITHER Dr.s office to talk to me. The old office said she was no longer a patient and I couldn't discuss anything with them, and the new Dr.s office said that it was a pediatric issue that should be dealt with by her former office. It took a ton of phone calls but eventually I got the Family Dr.s office to take on the case. Sometimes you just have to put the pressure on these "by the book" people. They don't realize (nor do they care) that they are putting you in a bind.

debmidge Rising Star

Just when I thought I heard it all (about doctors) ....

hope you find a great doctor who doesn't think he/she is "God."

jerseyangel Proficient

Claire--That is terrible, and this is truly "one for the books!" I hope that you find a suitable doctor soon--I can imagine how uneasy you must feel knowing you don't have one at the moment.

CarlaB Enthusiast

I can't stand the medical system! They have their procedures and stop using their heads somewhere along the way, probably due to the insurance companies and malpractice suits. I got really, really sick four years ago from a pet bird (right after that was when the gluten-intolerance worsened). I found out what was wrong with me from the veterinarian! I went home and researched what I needed, then went to the doc, told him what I had and what I needed to get better. He didn't want to do the testing; I think it was because since it was from a bird, there would have been so much reporting to do, not to mention, the disease is pretty obscure and he probably didn't have the resources for it. Anyway, three weeks of doxycycline and I started getting better. If it weren't for the veterinarian, I don't know that I'd be here today. The bird isn't ...

Your story is strange, but doesn't surprise me a bit!

Claire Collaborator
that sucks, just glad that you might be able to be better when gluten-free and start feeling better.

I am already gluten-free - since last August. 90% gluten-free from 2990 - when I was diagnosed with intolerance for wheat, barley and rye. No mention of gluten at that time.

I am complex food issues - Type II delayed food reactions that cause me endless problems. Everyone -sick or well - needs a family doctor - even a 'bad' one - otherwise you are really stuck if you are injured or have a sudden illness. Claire


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
I am complex food issues - Type II delayed food reactions that cause me endless problems. Everyone -sick or well - needs a family doctor - even a 'bad' one - otherwise you are really stuck if you are injured or have a sudden illness. Claire

Well, if you're sick or have a sudden illness, you can always go to your hospital emergency room, or a walk-in-clinic. The biggest problem comes, when you need a referral. At least here in Canada, you can't go to ANY specialist without a referral from your family doctor. No family doctor? Too bad, can't see you. I've had it happen when my former doctor retired, and I needed to see an orthopedic surgeon (who I had seen before, but for an issue with my knee, and that time was for my ankle, which wouldn't heal properly after fracturing it).

Nini, that's weird, that a family doctor (who, as the name implies, should look after the FAMILY, children included) would tell you they won't look after a pediatric issue! I've never even had a pediatrician for my kids, I saw no need for one. My family doctors always looked after it, when I would take a kid in (maybe once in ten years, I know what I am doing).

dlp252 Apprentice
Now to the rant: I recently decided to change doctors. A lady Korean doctor was recommended to me by several people. I called and asked if she was taking new patients and was told that she was. I was given an appointment date and I told them that my records would be forwarded. I signed a release at my current doctor's office for my records to be transferred. I wrote an overview of past history and current issues and sent it to the new doctor - to help speed up the initial consultation.

About three days later I got a call from her office. Her secretary said that the doctor had read my information and gone over the test results and that she felt she could not take me as there was nothing whatever she could do for me. She said that there were no more tests to be done. I personally know better than that. I can name a half a dozen at least. I was stunned. As I have shared this with others - some medical people - they too are stunned. If my records were accepted she should have accepted me - otherwise incoming patients should be told up front that the doctor may decline to accept you. She could have had me come in on a consultancy basis - as in second opinion.

I tried to go back to the previous doctor but wasn't surprised when she wouldn't accept me back into the practice. So I am high and dry with no family doctor! I have asked people for recommendations but so far no one is taking on new patients.

I continue to be stunned. Her office did call with a recommendation for an alternative medicine doctor but insurance won't cover that. I did call and you have to have a family physician even to get a consultation. As the saying goes, "up the creek without a paddle".

I think she read the records and my 'overview' and decided she didn't want the challenge.

As much as I hate doctors, I know that I need to have one in case of emergency. Right now my records are in two doctors' offices and neither one of those doctors consider me a patient.

Very unprofessional, I think. There should be a stated policy so that incoming patients don't wind up as I have with no medical representation at all. Claire

Not only unprofessional, but just plain weird! It almost sounds like there was some notation in your file (but don't go by me--I tend to have a slight "conspiracy theory" mentality at times).

If you can find a doctor taking new patients, you can always make the consultation appointment and get the relationship established and THEN have the records forwarded.

The whole thing is just weird to me.

megsylvan2 Apprentice

I'm sorry that this happened to you, and I wonder the same things. I wonder if when you have your records sent to another doctor if they call one another or send a note along telling the other doctor what they think of you as a patient. You know, like - watch out - this one thinks she has Celiac disease and won't stop till she gets a diagnosis - or something to that effect. I wouldn't be surprised.

I also wondered if you went to see another doctor if your original doctor would be ticked off about it and wouldn't take you back. Or if your original doctor didn't like you as a patient if they would use that as an excuse to not take you back.

I recently went to another doctor for similar reasons regarding Celiac. BUt I still liked my original doctor very much for everything else except the exploration of the possibility of Celiac. I didn't like the other doctor, and would still like to keep my original doctor, but I wonder if I will have similar issues. If so, it is too bad that doctors have to be this way. Doesn't seem like a professional attitude to me. Especially that you are not given the chance to explain your reasons.

judy05 Apprentice
Now to the rant: I recently decided to change doctors. A lady Korean doctor was recommended to me by several people. I called and asked if she was taking new patients and was told that she was. I was given an appointment date and I told them that my records would be forwarded. I signed a release at my current doctor's office for my records to be transferred. I wrote an overview of past history and current issues and sent it to the new doctor - to help speed up the initial consultation.

About three days later I got a call from her office. Her secretary said that the doctor had read my information and gone over the test results and that she felt she could not take me as there was nothing whatever she could do for me. She said that there were no more tests to be done. I personally know better than that. I can name a half a dozen at least. I was stunned. As I have shared this with others - some medical people - they too are stunned. If my records were accepted she should have accepted me - otherwise incoming patients should be told up front that the doctor may decline to accept you. She could have had me come in on a consultancy basis - as in second opinion.

I tried to go back to the previous doctor but wasn't surprised when she wouldn't accept me back into the practice. So I am high and dry with no family doctor! I have asked people for recommendations but so far no one is taking on new patients.

I continue to be stunned. Her office did call with a recommendation for an alternative medicine doctor but insurance won't cover that. I did call and you have to have a family physician even to get a consultation. As the saying goes, "up the creek without a paddle".

I think she read the records and my 'overview' and decided she didn't want the challenge.

As much as I hate doctors, I know that I need to have one in case of emergency. Right now my records are in two doctors' offices and neither one of those doctors consider me a patient.

Very unprofessional, I think. There should be a stated policy so that incoming patients don't wind up as I have with no medical representation at all. Claire

Thsi is totally unacceptable, I think I would notify the AMA or the state board of licensing, no one should be treated this way.

  • 2 weeks later...
2kids4me Contributor
I can't stand the medical system! They have their procedures and stop using their heads somewhere along the way, probably due to the insurance companies and malpractice suits. I got really, really sick four years ago from a pet bird (right after that was when the gluten-intolerance worsened). I found out what was wrong with me from the veterinarian! I went home and researched what I needed, then went to the doc, told him what I had and what I needed to get better. He didn't want to do the testing; I think it was because since it was from a bird, there would have been so much reporting to do, not to mention, the disease is pretty obscure and he probably didn't have the resources for it. Anyway, three weeks of doxycycline and I started getting better. If it weren't for the veterinarian, I don't know that I'd be here today. The bird isn't ...

Your story is strange, but doesn't surprise me a bit!

Not as strange as oyu might think, my husband isa vet. We have had to send info with clients to take to their physicians about psittacosis, salmonella, tonsilittis, and pinworms to name a few.

Physicians told this family that the dog was a source of pinworms for their kids (pinworms are very speices specific and dogs DONT get pinworms) and to get rid of the dog.

Dogs and kids CAN share tonsilittis (dogs lick faces of kids most often) so if the dog has it and the kid hasa sore throat - we tell parents to og to the doctor. Doc's office will phone us and wonder why we think this kid needs to be seen.... we tell them.

Vets ahve to read body language and look at symptoms, we dont dismiss our patients as neurotic sicne they are sick - when blood tests come back normal, it doesnt mean the animal is healthy, esp when symptoms persist. It means we have not diagnosed the problem and we need to dig deeper.

I wish more GP's thought like vets. Believe it or not, I was often placated at the doc's office ("you read too much, or you worry too much") UNTIL my husband would come with me, suddenly the DR in front of his name (even though he was "just a vet") got more respect than the title "MOM". and tests got done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.