Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New


mis-chiff

Recommended Posts

mis-chiff Explorer

I am diagnosed (biopsy) 2 years ago. I am 41 years old.

I have been sick since giving birth in 1983....I am so grateful to

find this forum. I still don't know what I can and can't do!

But for what I see so far, looks like I'm in the right place!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

welcome to this board, feel free to vent away about frustrations, share joys and accomplishements and just chit chat with other celiac and gluten intolerant individuals!

jaten Enthusiast

Welcome! As a member just since December, let me say, you're in the right place. I've never found an online forum that was so helpful and worth my time. Ask whatever questions you have. This is a "there are no dumb questions" environment.

mouse Enthusiast

Welcome to the forum. I only joined summer of 2005 and had been gluten-free for over a year. But, I learned more here then I did with my over 300 hours of on line research. This is a great place to get answers. And as everyone said "there are no dumb questions".

Canadian Karen Community Regular

Hi! Welcome to the board!

You have found a place that has a great bunch of people who are supportive, helpful, knowledgeable and great listeners when you need to vent!

As the others have said, our motto is "The only stupid question is the one not asked". Also, don't be shy - we've had pretty candid discussions about every kind of poop out there! We're definitely not queezy here! We also enjoy celebrating when someone has a nice, normal "O'Henry"! :lol:

Karen

schuyler Apprentice

Welcome to the boards here! Everyone is awesome and really helpful, so as everyone else has said, don't be afraid to ask questions or join in on the discussions. You've joined a great group here!

Danielle

tarnalberry Community Regular

Welcome to the board. this helpful group of people will have you gluten-free in no time! :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



evie Rookie

:) welcome chiff. I have been here only a month and have learned so much from the very helpful members. some have had diagnosis a long time some only a few months like myself. we learn from all!!

Feel free to ask questions...you will probably get your answer. evie ;)

mis-chiff Explorer

Thanks everyone for your welcome. I was diagnosed in Dec 2003.

At that time, like the other member stated, over 300 hours of online stuff.

There is lots of information now, but as you all well know, it's hard

to get the right information. I struggled for the first while.

But - I still don't know how to cook fancy stuff. So, quick fixes for me...:)

I am looking forward to learning more, but still keeping my site

simple for the newbies. I needed a quick fix on an extremely tight budget, that of course

changed because of this. 3 family members and they hate my food...lol so lots of meal preping.

lots more information now though. thanks again :)

TinkerbellSwt Collaborator

Welcome to the board. I come here everyday to read the posts and I swear I still learn more and more everyday. I thought somethings I knew the answers too, and boy was I off!

Just dont be afraid to ask anything! someone here will know the answer

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...