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mis-chiff

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mis-chiff Explorer

I am diagnosed (biopsy) 2 years ago. I am 41 years old.

I have been sick since giving birth in 1983....I am so grateful to

find this forum. I still don't know what I can and can't do!

But for what I see so far, looks like I'm in the right place!


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Guest nini

welcome to this board, feel free to vent away about frustrations, share joys and accomplishements and just chit chat with other celiac and gluten intolerant individuals!

jaten Enthusiast

Welcome! As a member just since December, let me say, you're in the right place. I've never found an online forum that was so helpful and worth my time. Ask whatever questions you have. This is a "there are no dumb questions" environment.

mouse Enthusiast

Welcome to the forum. I only joined summer of 2005 and had been gluten-free for over a year. But, I learned more here then I did with my over 300 hours of on line research. This is a great place to get answers. And as everyone said "there are no dumb questions".

Canadian Karen Community Regular

Hi! Welcome to the board!

You have found a place that has a great bunch of people who are supportive, helpful, knowledgeable and great listeners when you need to vent!

As the others have said, our motto is "The only stupid question is the one not asked". Also, don't be shy - we've had pretty candid discussions about every kind of poop out there! We're definitely not queezy here! We also enjoy celebrating when someone has a nice, normal "O'Henry"! :lol:

Karen

schuyler Apprentice

Welcome to the boards here! Everyone is awesome and really helpful, so as everyone else has said, don't be afraid to ask questions or join in on the discussions. You've joined a great group here!

Danielle

tarnalberry Community Regular

Welcome to the board. this helpful group of people will have you gluten-free in no time! :-)


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evie Rookie

:) welcome chiff. I have been here only a month and have learned so much from the very helpful members. some have had diagnosis a long time some only a few months like myself. we learn from all!!

Feel free to ask questions...you will probably get your answer. evie ;)

mis-chiff Explorer

Thanks everyone for your welcome. I was diagnosed in Dec 2003.

At that time, like the other member stated, over 300 hours of online stuff.

There is lots of information now, but as you all well know, it's hard

to get the right information. I struggled for the first while.

But - I still don't know how to cook fancy stuff. So, quick fixes for me...:)

I am looking forward to learning more, but still keeping my site

simple for the newbies. I needed a quick fix on an extremely tight budget, that of course

changed because of this. 3 family members and they hate my food...lol so lots of meal preping.

lots more information now though. thanks again :)

TinkerbellSwt Collaborator

Welcome to the board. I come here everyday to read the posts and I swear I still learn more and more everyday. I thought somethings I knew the answers too, and boy was I off!

Just dont be afraid to ask anything! someone here will know the answer

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      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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