Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New

mis-chiff

Recommended Posts

mis-chiff Explorer
mis-chiff
Posted

I am diagnosed (biopsy) 2 years ago. I am 41 years old.

I have been sick since giving birth in 1983....I am so grateful to

find this forum. I still don't know what I can and can't do!

But for what I see so far, looks like I'm in the right place!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

welcome to this board, feel free to vent away about frustrations, share joys and accomplishements and just chit chat with other celiac and gluten intolerant individuals!

jaten Enthusiast
jaten
Posted

Welcome! As a member just since December, let me say, you're in the right place. I've never found an online forum that was so helpful and worth my time. Ask whatever questions you have. This is a "there are no dumb questions" environment.

mouse Enthusiast
mouse
Posted

Welcome to the forum. I only joined summer of 2005 and had been gluten-free for over a year. But, I learned more here then I did with my over 300 hours of on line research. This is a great place to get answers. And as everyone said "there are no dumb questions".

Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!

You have found a place that has a great bunch of people who are supportive, helpful, knowledgeable and great listeners when you need to vent!

As the others have said, our motto is "The only stupid question is the one not asked". Also, don't be shy - we've had pretty candid discussions about every kind of poop out there! We're definitely not queezy here! We also enjoy celebrating when someone has a nice, normal "O'Henry"! :lol:

Karen

schuyler Apprentice
schuyler
Posted

Welcome to the boards here! Everyone is awesome and really helpful, so as everyone else has said, don't be afraid to ask questions or join in on the discussions. You've joined a great group here!

Danielle

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the board. this helpful group of people will have you gluten-free in no time! :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


evie Rookie
evie
Posted

:) welcome chiff. I have been here only a month and have learned so much from the very helpful members. some have had diagnosis a long time some only a few months like myself. we learn from all!!

Feel free to ask questions...you will probably get your answer. evie ;)

mis-chiff Explorer
mis-chiff
Posted
  • Author

Thanks everyone for your welcome. I was diagnosed in Dec 2003.

At that time, like the other member stated, over 300 hours of online stuff.

There is lots of information now, but as you all well know, it's hard

to get the right information. I struggled for the first while.

But - I still don't know how to cook fancy stuff. So, quick fixes for me...:)

I am looking forward to learning more, but still keeping my site

simple for the newbies. I needed a quick fix on an extremely tight budget, that of course

changed because of this. 3 family members and they hate my food...lol so lots of meal preping.

lots more information now though. thanks again :)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Welcome to the board. I come here everyday to read the posts and I swear I still learn more and more everyday. I thought somethings I knew the answers too, and boy was I off!

Just dont be afraid to ask anything! someone here will know the answer

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748
    Michelle C.
    Newest Member
    Michelle C.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Is this celiac?

      By Wheatwacked · Posted

      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      Is this celiac?

      By trents · Posted

      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.