Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Intolerance Test


katshow

Recommended Posts

katshow Rookie

So I'm convinced that I have some other food intolerances that are affecting how I feel. I am severely allergic to wheat though, and so the elimination diet is not recommended. I've heard about the Lame Advertisement and York tests and I know they are expensive, but if I can't do the elimination diet, would this be the best way to figure out what else is making me feel so bad? I would just love to get all of these food issues under better control!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eKatherine Apprentice
I am severely allergic to wheat though, and so the elimination diet is not recommended.

Who told you this? They're wrong, it's the best thing you can do. You just need to find somebody who can work with you on it.

VegasCeliacBuckeye Collaborator
So I'm convinced that I have some other food intolerances that are affecting how I feel. I am severely allergic to wheat though, and so the elimination diet is not recommended. I've heard about the Lame Advertisement and York tests and I know they are expensive, but if I can't do the elimination diet, would this be the best way to figure out what else is making me feel so bad? I would just love to get all of these food issues under better control!

Thanks!

Yeah, that diet is made for people with food allergies and intolerances.

You can also try the Specific Carbohydrate Diet also...

Rachel--24 Collaborator

I dont get why the doctor said you cant do it? :unsure:

Isnt that the purpose of the diet? If you already know you're allergic to wheat you wouldnt be eating it anyway....you would be eliminating other foods that could potentially be problematic for you.

Lister Rising Star

you could just go get a food allergy test done at your doctors office, i just had my doctor order for one since i dont want to try to eleminate foods and figure it out on my own, A. to lazy B.to hard and im really bad with keeping track of things

tarnalberry Community Regular

I too can't figure out why you couldn't do an elimination diet just because of a wheat allergy.

jerseyangel Proficient

A wheat allergy shouldn't have anything to do with an elimination diet. Find an allergist who will guide you through one. You may have to make many phone calls, but they are out there! My allergist has food intolerances himself. But in my search for him, I did come across allergists who did not deal in food issues at all--you need to ask. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

An elimination is one of the best tools at our fingertips! I advise you to keep a good food/symptom journal either way--it helps you link symptoms to specific foods.

katshow Rookie

I was told by my doctor that the elimination diet wouldn't be something that would work for me because I've had an anaphylactic reaction to wheat and that it would be too much of a risk to try this with other foods. That's all the information that I have and I took a regular allergy test, but all it showed was wheat.

I know that wheat and gluten are a problem for me and I've also cut out dairy. I still just don't feel the best and it seems to be directly related to foods. Has anyone taken an actual intolerance test? Or should I just try the elimination diet on my own.

I would love to have a DR to work through this stuff on, but everyone that I've spoken with A) Doesn't know much at all about Celiac and B) continually thinks that there must be something wrong with me mentally, because all of their tests show I'm fine. I know many people on this board have been through what I'm going through, so any imput is greatly apprciated!

kabowman Explorer

Well, my question would be, what are you eating now that is NOT causing AS and if you are eliminating foods - how would that increase your risk????

I agree with Patti - find an allergist who is willing to work with you more and understands food issues better.

katshow Rookie

I agree with all of you, I'd love to have a dr on my side that would work with me. However, I'm also tired of watching all the medical bills come in every month and having no progress made in my actually feeling better. I'm tired of going to dr's that just think I'm nuts and then paying hundreds for their quack opinion. I'm just looking for something I can do to be proactive in my own care since dr's in my area haven't helped.

AndreaB Contributor

You could try enterolab for a few tests. They run tests for soy, egg, yeast, milk and of course wheat/gluten and also do the gene test. It would only pinpoint whether your intestines are reacting to those foods. Check it out at www.enterolab.com if you are interested. :unsure::D

tarnalberry Community Regular

There is more than one way to do an elimination diet - removing items one at a time and seeing if you improve is on option that would not be adding a food to your diet that you are allergic too. I still don't entirely understand your doctor's concern over the anaphylactic allergy. Partially (in that you can become allergic to something you were not previously allergic to), but that can happen at any time, regardless of an elimination diet. Perhaps a food diary and rotation diet would help narrow down the source of the problem.

marciab Enthusiast

My daughter has anaphylactic responses to foods and was tested via skin prick and blood, but the allergy test results were inconclusive. She carries an epipen, inhalers, and benadryl in her purse just in case.

She's 18, so keeping a food list is out of the question for her. Since all this started a couple of years ago, she has started paying attention to foods that cause tingling in her mouth, hives, etc. She told me the other day that she has realized that a lot of the foods she has always said she didn't like were actually because she was allergic to them.

Starting the elimination diet isn't as hard as it is overwhelming. You just need to make a grocery list of allowable foods and pick up as many as possible while you are out. That way you have plenty of "safe" foods in your reach.

Marcia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.