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Need Recommendation Of A Doctor In Nw Chicago Area


SamRent

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SamRent Newbie

My daughter's Doctor left Children's Memorial Hospital and they no longer have a department that handles Celiac patients. We don't care to travel to Madison, Wi to keep the same doctor. If anyone has any suggestions, it would be appreciated. We live near Woodfield mall.

Diagnosed 12/03


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Guest greengirl
My daughter's Doctor left Children's Memorial Hospital and they no longer have a department that handles Celiac patients. We don't care to travel to Madison, Wi to keep the same doctor. If anyone has any suggestions, it would be appreciated. We live near Woodfield mall.

Diagnosed 12/03

We live in Plainfield and I've just made an appointment for my daughter (11 yrs.) with Dr. Gokhale at University of Chicago. They have a pediatric and adult Celiac research program. We haven't met the doctor yet and the first appointment I could get was July 18th, but I know U of C is a top of the line institution.

Dr. Gokhale actually has an office in Palos Heights, which is a little closer for us - from Woodfield it might be just as easy to get to the U of C campus. Below is the link for the doctor's profile:

Open Original Shared Link

Let me know if you pursue this or if you find success with another doctor! It's always good to compare notes with someone local!

Christine

jenvan Collaborator

Good idea Christine--I was also going to recommend U of C celiac disease center. I'm sure it would be worth the drive--even as just an initial visit.

hlm34 Apprentice

There is a doctor at U of C that specializes in children with celiac. Stefano Guandalini. He is world-renowned. Supposed to be one of the best (very well known speaker and author) and he will only see children. I see a doctor at U of C there, but I can't get into see him. He does children only.

See if you can get into him.

Guest greengirl
There is a doctor at U of C that specializes in children with celiac. Stefano Guandalini. He is world-renowned. Supposed to be one of the best (very well known speaker and author) and he will only see children. I see a doctor at U of C there, but I can't get into see him. He does children only.

See if you can get into him.

Dr. Gokhale works with Dr. Guandalini. I made the appointment with her for my daughter because it was a longer wait for Guandalini. I'm hoping that since she's in the same department, she will also be very good.

What doctor do you see at U of C, and are you happy with him/her? I'd like to make an appointment for myself, as well. I was given the name of Dr. Carol Semrad.

Christine

FinsUp Rookie

My son sees Dr. Guandalini. He is currently out on medical leave (he had hip surgery May 1 and is expected to be out 6 to 8 weeks). When we scheduled our appointments earlier this year, the nurse strongly encouraged us to hold out for an appointment with him rather than see Dr. Gokhale (who our pediatrician recommended). All of the doctors in the group are very capable and caring and can certainly help with celiac disease; however, Dr. Guandalini is THE go-to guy for pedi celiac. If you need a diagnosis and don't want to wait for Dr. Guandalini to return, I would see Dr. Gokhale. If you've already been diagnosed and are looking to establish a good relationship with a specialist, I would wait for him.

mouse Enthusiast

This is kind of an off shoot of the U of C, but New Grist beer was developed by one of the brewers after his father was diagnosed with Celiac at the U of C. When you talk to one of the owners of Lakefront Brewery they have nothing but praise for the U of C.


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Guest greengirl
My son sees Dr. Guandalini. He is currently out on medical leave (he had hip surgery May 1 and is expected to be out 6 to 8 weeks). When we scheduled our appointments earlier this year, the nurse strongly encouraged us to hold out for an appointment with him rather than see Dr. Gokhale (who our pediatrician recommended). All of the doctors in the group are very capable and caring and can certainly help with celiac disease; however, Dr. Guandalini is THE go-to guy for pedi celiac. If you need a diagnosis and don't want to wait for Dr. Guandalini to return, I would see Dr. Gokhale. If you've already been diagnosed and are looking to establish a good relationship with a specialist, I would wait for him.

Thanks for that information! I think I will cancel the appointment with Gokhale and make one with Guandalini, instead. The nurse would definitely be the one to know. It won't hurt to wait for an appointment since we don't really need a diagnosis -my daughter's enterolab results were very high and she's responded well to the Gluten-free Casein-free diet. Plus the Gokhale appointment falls smack dab in the middle of my husband's vacation time in mid-July!

Do you know anything about the adult celiac doctors at U of C? When I called I was given the name Carol Semrad, but I don't know anything about her.

Christine

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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