Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Internal Itching Anyone?

discountshopper

Recommended Posts

discountshopper Rookie
discountshopper
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gointribal Enthusiast
gointribal
Posted

oh man I totally get that, but I thought it was just me. Some times my stomach itches, its weird but I know what you are talking about!

Ursa Major Collaborator
Ursa Major
Posted

Sometimes I get a terrible itch in my throat, and yes, inside the torso as well. It's maddening when it happens.

  • 1 year later...
lukewarmandbothered Newbie
lukewarmandbothered
Posted

Wow. This is the first I've ever heard of people having this same problem. I get that when I ingest something I have some sort of allergy towards. It's happened with a certain protein powder in the past and with some other things. I feel like there's this itch inside your esophagus that you JUST can't get to...you try and try to like clear your throat or itch your chest/throat, but nothing works.

Glad to see I'm not alone. :-)

pugluver31902 Explorer
pugluver31902
Posted

I get it in the exact same spot. Really wierd.

  • 4 months later...
RMARS Newbie
RMARS
Posted
Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

fedora Enthusiast
fedora
Posted

When I first gave up wheat in 1995 it was because of internal itching ALL OVER. It was terrible. I thought I would go crazy. It went away in a week after giving up wheat. I stupidly went back to eating but never had as severe issues with internal itching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I've had problems with internally itchy ears. I know it if because of allergies though. Have also had it deep in the tissues of my toes and fingers...it coincided with a sudden drop in temperature last summer, so I had chalked it up to maybe being raynauds...likely tied to seasonal allergies.

Wouldn't be surprised if it happens elsewhere in the body too!

Michelle

ShayFL Enthusiast
ShayFL
Posted

Ive had the inner ears and my upper mouth (pallet) itch like crazy. I hate when it happens.

Oh and sometimes the bottom of my feet. But I think that has to do with my neuropathy.

johnfrancis Newbie
johnfrancis
Posted

I used to get sever itching on the muscle just above my knee, it was so bad that I wore a hole in two pairs of jeans scratching it.

Thankfully it went away when I started on a gluten-free diet.

The first doctor I told said it was a build up of lactic acid and I should make sure that I stretched and warmed down properly after excercise. But I still excercise without proper strectching and the itching has never returned!

AliB Enthusiast
AliB
Posted

I used to get a really itchy tip of my nose! It would drive me mad! Sometimes it would just come on out of nowhere, I mean even when I hadn't eaten anything for ages. I have had it occasionally since but rarely. I got it a couple weeks ago - I hadn't eaten anything for at least 3 hours so what the heck triggered it I haven't a clue. Weird.

I've had that itching in the roof of the mouth and in the hands and feet too. I used to get it in the balls of my feet and it would drive me so mad I'd want to dig something into it! That went away quite a while before going gluten-free and I never knew what caused it or why it went!

I did get restless legs virtually every night and itching in other areas of my feet like the heels (so bad my husband and I have separate rooms - between my thrashing and his snoring we were keeping each other awake all night!). I realised when I looked at a Reflexology chart that those areas equated with the colon and the RLS was linked to that too. I had a bad stomach one night and my legs were thrashing about in the bed like something possessed! Around 5am I had to 'evacuate'. I went back to bed and slept like a baby for what was left of the night. I slept and so did my legs.

Since going gluten-free, apart from when I have been affected by something, either gluten or some other something that has disagreed, not only has the itching gone, so has the RLS. Bliss. (PS. My husband joined me on gluten-free and he no longer snores to wake the dead!)

cupid Newbie
cupid
Posted

Hi, I just experienced the internal ichy stomache when I tried to do the candidia diet but assumed it was from getting rid of the toxins but also started a digestive pill @ same time so now I'm wondering about which caused it. Need to do the diet again but since haven't been on gluten-free/cf diet very long found it very hard!!

Megra Newbie
Megra
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)?

Sometimes I itch like crazy all over! I scratch so hard I can make myself bleed. Gross, Gross, Gross,. I try to take something to make me sleepy, and then go to bed so I'll stop! (most always happens at night )

  • 5 years later...
doya Newbie
doya
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

kareng Grand Master
kareng
Posted

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

Sorry but the OP hasn't been here in 7 years.

GF Lover Rising Star
GF Lover
Posted

The member Doya who posted last has started a new thread.  I will go ahead and end this thread for being dated.

 

Colleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.