Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Gfcf Diet Did You Start To Feel Better

terps19

Recommended Posts

terps19 Contributor
terps19
Posted

How long after Gluten-free Casein-free diet did it take for you to start to feel better?

I have no damage of my small intestines as we caught this early (about 2 yrs after starting to feel symptoms).

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

It varies greatly from person to person. Some start feeling some improvement in days, some in weeks, and some take months. Statistically, most see noticable improvement within two weeks, but many still take longer than that, and many don't see full recovery for months.

terps19 Contributor
terps19
Posted
  • Author

bump

flagbabyds Collaborator
flagbabyds
Posted

When i started CF i started to feel better the next day, my Cf symptoms were just heartburn this went away almost instantly and i noticed that night that it didn't wake me up that night for the first time in a long time, and sorry don't know about gluten-free was too young to remember it...

terps19 Contributor
terps19
Posted
  • Author

bump

jerseyangel Proficient
jerseyangel
Posted

I was sick for probably 20 years before finally being diagnosed. When I went on the gluten-free diet, I had already been dairy free for about a year. My GI issues began to improve very quickly. Other things like fatigue, brain fog, neuropathy, anxiety, and the anemia took longer. I feel I "turned a corner" around the 4th month. I had a few really good weeks, and then the other food intolerances began to show up. Now, at a year, I'm finally feeling somewhat normal (unless, of course I get CC!)

sillyyak Enthusiast
sillyyak
Posted

It took me about 6 months to really feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dionnek Enthusiast
dionnek
Posted

I'm in my third week and still no improvement - actually feel worse (headaches and sinus problems now, and ear aches) and have lost several pounds (not a problem since I'm not too skinny to begin with) b/c of cutting out the carbs. I haven't tried the gluten-free breads, etc. yet - I will do that when I need to put some pounds back on :)

Ursa Major Collaborator
Ursa Major
Posted

I showed a marked improvement by the next day. Until my other intolerances reared their ugly heads three months later. I am much better now, but may never get completely well due to being diagnosed so late in life.

emcmaster Collaborator
emcmaster
Posted

I noticed a huge improvement on the 3rd day and have gotten even better since then. Once being glutened (which has happened several times due to CC and accidental glutening), it takes me about a week to get back to "normal."

deco2339 Newbie
deco2339
Posted

Hi everyone:

I have had a history of ulcers since I was 18. In the last5 years they have bled 3 times. Came close to buying the farm. 5 months ago a blood test showed I had iron deficient anemia. I thought my ulcer was bleeding again. important to note that I have never had GI symptoms my entire life....no pain, no diarrhea or constipation. Stomach has been fine. The only way i knew my ulcers were bleeding was that I would faint due to having 1 pint of blood in me. My doc did an endoscopy and colonoscopy and only checked for celiac because I asked him to. A woman I worked with had just been diagnosed. Turns out I had it bad with my blood test showing levels over 100 but not sure of exact count. Is over 100 considered very high? Started diet immediately. Used to get very bad migraines every day, my guess is from malnutrition as I was eating wheat like crazy. I looked like crap with dark circles under my eyes. After 5 months on a gluten-free diet I can't really say I feel that much better on a day to day basis. My migraines are fewer and farther between but when I get one now it takes about 4 shots of Immitrex to get the sucker to leave me alone. I just started juicing every day. I think its helping. Thank God for Real Foods corn cakes. they are thin and crisp and much better than rice cakes. They satisfy my craving for something like a cracker. After about 2 months on the diet my blood tests come back normal so that's good but I have been suffering from severe depression. Not sure if it's menopause (I'm 48) or a result of having had celiac. Anyone else suffering from depression? I do have one weird symptom since I was diagnosed. If I lay on myleft side after I eat something small my stomach starts to growl really loud. Sometimes this happens after a meal. I did not have this problem prior to the endoscopy. anyone else experience this? It's driving me nuts!

Anyway, nice to talk to all of you. All my best

debbie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748
    Clare Durham
    Newest Member
    Clare Durham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.