Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where To Get Blood Tests Done?


ssauners

Recommended Posts

ssauners Newbie

:huh: Hi,

It's been a whlie since I've been here,but I'm glad to be back. Reading and learning here has been so helpful to me. I took myself off gluten 2 yrs. ago bec. someone suggested it might help me.I was suffering from constant gas,bloating,cramps,and constipation.Going gluten-free seemed to help but i didn't give me enough relief.

I went to a new GI dr. in Oct. and he listened to me list of symptoms and said I have IBS w/C.He gave me Zelnorm and that was it.I came home and researched what to do to help the IBS.The diet I found has made me feel so much better.

So I asked my dr. to do a new blood test to see if maybe I don't have celiac disease.(prev. tests were neg. but I had been gluten-free) Anyway,I ant to be sure this is done rt.

I see that certain labs are suggested as being better able to give accurate results.Does anyone know how I can have my blood work checked there? The dr.'s nurse said I could have it done anywhere,but not in his office.

Hope someone has some ideas.Thanks so much,Suzy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kalo Rookie

Hi Susz. Do a search for Enterolabs or celiac testing. Enterolabs has a non invasive stool test that is MUCH MORE reliable than the blood tests are. What sort of diet are you on? Hugs, Carol B

angel-jd1 Community Regular

Enterolab isn't covered by insurance (at least not most) and also isn't accepted by most mainstream medical doctors. So if you do get a diagnosis from Enterolabs, most doctors do not accept it(yet, maybe never?). If you have problems with either of those things, then it is not for you.

-Jessica :rolleyes:

kalo Rookie

That brings up another question. Why do we need a doctors blessing or diagnosis if we know for sure through the stool test that is what we have? I know it's expensive but I keep hearing how reliable it is and to me that means everything.

:-) Hugs, Carol B (just curious, not putting anyone down)

angel-jd1 Community Regular

Kalo-

Here is a whole thread full of reasons why to get a formal diagnosis:

Open Original Shared Link

-Jessica

ssauners Newbie

Hi all

Thanks for your helpful ideas.

I had Entrolab do my gene tests,but wasn't brave enough to do the stool test.

Since I have been doing so well lately I am questioning whether I really have celiac disease. The IBS idiet I am on is what I term the

A.F.M.C.C.C.IF(AVOID FATS,MILK,CAFFEINE,CHOCOLATE AND USE CAUTION W/INSOLUBLE FIBER--insoluable fiber needs to be cooked and eaten only w/soluable fiber) diet.

I am now adding gluten products so I can be retested.

It seems so strange to me that I can now eat these things w/out having a reaction.

Really makes me wonder if I only have IBS.

I figured I'd just do this challenge fr 3 months and then have blood work done to see.

Now I am wondering if I should go ahead and have the stool test done,or if since I am doing so well to just go w/the blood tests.

I saw that there are 4 or 5 places that are reliable for having the tests done,but none are near me.

Was just wondering if there is a way to have the blood drawn locally and sent to them(then again I know nothing about medical stuff so don't know if this is feasible)

kalo Rookie

I just saw the post on WHY you need a formal diagnosis. So HOW does one do that if they have negative blood tests but a positive stool test from enterolabs and their doctors don't accept it? I won't have any problems since my doctor put me up to this in the first place. Just wondering about others and why doctors won't accept Enterolabs. He is a doctor (Dr. Fine) and it seems pretty reliable. Maybe others can find a new doc that will accept it. We go through this on my thyroid group. Trying to find a doctor that thinks outside the box and listens to the patients. Just curious. Hugs, Carol B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

One reason there is so much skepticism about Dr. Fine's tests (and I'm still a skeptic), is that he doesn't not publish studies for peer review or share his process with the medical community. The responses from him that have been posted on the question that I have read imply the belief that other doctors should just believe him without going through the peer review process. The cynic in me thinks he's doing this for business reasons, to keep other labs from being able to do this testing and take business away from him, but that may not be the case at all.

European doctors, who are much more advanced in studying this disease, are starting to develop stool tests themselves, and are using a peer reviewed and scientifically accepted way of going about it, so there may be other stool tests available in the future, and it may possibly vindicate Dr. Fine's tests.

kalo Rookie

Is it possible he's to busy doing what he's doing to take the time for peer reviews? Treating thyroid with Armour is the same way. Doctors don't accept it. Or guaifenesin for Fibromyalgia. Dr. Paul R. St Amand hadn't been through the peer reviews either (he wrote the book on this treatment). However I was a part of a support group with many women who had improved by his treatment and didn't care about peer reviews. In my book if something works, that's proof positive. Don't even get me started in my UNBELIEF in the placebo affect. LOL Hugs, Carol B

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

    2. - The Logician replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

    3. - trents replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

    4. - RMJ replied to Alibu's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Latent celiac, need to go gluten free, advice on kitchen "reset?"

    5. - The Logician replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,992
    • Most Online (within 30 mins)
      7,748

    Jubaroo
    Newest Member
    Jubaroo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    • RMJ
      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
    • The Logician
      Thanks for the advice, if my sensitivity comes back i’ll do that but I am 74, in good health for my age and probably have been sensitive to gluten for over 30 years the beginning of which I didn’t even know or suspect It was gluten. I’m seen by my doctor every three months with fasting labs, he knows I avoid gluten and has never suggested I should be concerned. It is quite possible a doctor did those tests on me 30 years ago, I just don’t remember, if they did and they were negative that’s why I wouldn’t remember. If you are interested I’ll keep you posted, but from what i’ve read there is no cure for genetic celiac disease and right now I’ve never felt worse than diarrhea eating wheat or better than I do now eating wheat. If there is no cure I doubt my episode with an antibiotic is the cure which means I don’t have celiac. This antibiotic may be a cure for sensitivity however….i hope.
×
×
  • Create New...