Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed...have Some ?

Guest Elizabeth19

By Guest Elizabeth19
in Coping with Celiac Disease

Recommended Posts

Guest Elizabeth19
Guest Elizabeth19
Posted

I WAS JUST DIAGNOSED WITH CELIAC DISEASE LIKE A MONTH AGO (IM 18 YRS OLD). I WENT THREW THE WHOLE BIOPSY STUFF AND NOW I AM ON MY GLUTON FREE DIET. WHICH I SEEM TO BE GETTING USED TOO. ANYWAYS I REALLY ONLY HAVE 2 QUESTIONS.

1. HOW LONG DOES IT TAKE BEFORE YOU FEEL BETTER?

2. IN THE FUTURE I DO WANT TO HAVE KIDS...WHATS THE CHANCE I WONT BE ABLE TO IN THE FUTURE? LIKE I KNOW RIGHT NOW SINCE I HAVE JUST FOUND OUT I HAD IT. I MAY BE INFERTILE.

I WOULD REALLY LIKE TO KNOW, SO IF ANYONE KNOWS THE ANSWER TO MY ??? PLEASE LET ME KNO!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Hi Elizabeth, and welcome to this board.

Some people start feeling better within a day of avoiding gluten, and for others it takes up to six months. So, unfortunately, it is impossible to tell what your body will decide to do.

I don't see any good reason why you wouldn't get pregnant when you want to, if you are gluten-free. celiac disease can be a reason for infertility and miscarriages, but ONLY while you eat gluten. So, stay gluten free, and you shouldn't have to worry about it.

Lisa Mentor
Lisa
Posted

Hey babe:

With gluten free new to you, I just wanted to make sure that you have gluten free shampoo, soap, lotions, some makeups....all can make you sick.

I know that someone here, (I am sorry that I cant remember..please forgive me, again) has a newbie kit that will get you started on our road to gluten free.

Also, I cannot to this, but there is a Delfi Forum List that someone can e-mail to you that has a list of gluten free PRODUCTs, by name.

The forum is usually quiet on the weekends.

Post as request for the Delfi Forum Product List and the Newbe Survival Kit and someone will get back to you very soon. That will be the most helpful to you as you are just beginning.

Remember, It is all doable, Lisa

Smunkeemom Enthusiast
Smunkeemom
Posted

as far as I know infertility caused by celiac should right itself when you are healthy, it's like your body knows you are too sick to carry a child so it revokes that option. If however your infertility is caused by something else, I have no clue.

As far as the newbie survival kit, you should PM nini, it's awesome. I just PM'd her with the subject "newbie survival kit" and in the body put my email address. It was a life saver. :)

Lisa Mentor
Lisa
Posted

Yeah, I thought it was nini, but not sure. Thanks for passing that one.

Lisa

Guest nini
Guest nini
Posted

yep it's me, I can also e-mail the new updated Delphi list as well. (the old Delphi list is part of the newbie survival kit)

rather than PM'ing me (which is fine) you can also e-mail me directly at nisla@comcast.net and put "request newbie survival kit" in the subject.

Guest Elizabeth19
Guest Elizabeth19
Posted
as far as I know infertility caused by celiac should right itself when you are healthy, it's like your body knows you are too sick to carry a child so it revokes that option. If however your infertility is caused by something else, I have no clue.

As far as the newbie survival kit, you should PM nini, it's awesome. I just PM'd her with the subject "newbie survival kit" and in the body put my email address. It was a life saver. :)

so as of right now, since i was just diagnosed, i could be infertile???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

What a god-send you are nini. Guess, what, I would like to have you survival kit.....after almost a year.

jimbaker@mchsi.com. xxoo Lisa

lonewolf Collaborator
lonewolf
Posted
so as of right now, since i was just diagnosed, i could be infertile???

Maybe, maybe not. There's no real way to tell. I had 3 kids before I found out I had problems with gluten.

Guest nini
Guest nini
Posted
so as of right now, since i was just diagnosed, i could be infertile???

possibly yes, but more than likely your Celiac was caught early enough that it hasn't affected that. Not everyone with undiagnosed Celiac is infertile

What a god-send you are nini. Guess, what, I would like to have you survival kit.....after almost a year.

jimbaker@mchsi.com. xxoo Lisa

you got it...

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I was supposedly infertile up til I got pregnant with my son. I had severe preclampsia and eclampsia and he was born severly premature. All is well now and he just turned 1. The doc said that my celiacs could have been a direct correlation with my pregnancy problems. I had all types, I was out of work in month 3. At that time though, I didnt know about my celiacs and I was told that I probably could get pregnant and have a normal and healthy pregnancy. I think every case is different. You should talk to your GYN about any concerns with infertility.

Ursa Major Collaborator
Ursa Major
Posted

I only figured out I have celiac disease at the age of 52, after having five healthy children, and eight miscarriages (my babies were never safe until five months pregnant). So, I had no problem GETTING pregnant on gluten, but rather STAYING pregnant. I just wished the doctors wouldn't be so clueless, having known about celiac disease and being gluten-free would have saved me from a lot of heartache (and I would have twins now, which I always wanted, Susie should have been a twin, I lost one).

So, not everybody with celiac disease will be infertile on gluten, it is just possible. I don't know what the percentages are.

cmom Contributor
cmom
Posted

I also had a miscarriage pre-diagnosis. I went through labor and the whole bit at 4 months, but there was no baby. It took me about 2 years to get pregnant again.

Ondine12 Newbie
Ondine12
Posted

<_<

Hey babe:

With gluten free new to you, I just wanted to make sure that you have gluten free shampoo, soap, lotions, some makeups....all can make you sick.

I know that someone here, (I am sorry that I cant remember..please forgive me, again) has a newbie kit that will get you started on our road to gluten free.

Also, I cannot to this, but there is a Delfi Forum List that someone can e-mail to you that has a list of gluten free PRODUCTs, by name.

The forum is usually quiet on the weekends.

Post as request for the Delfi Forum Product List and the Newbe Survival Kit and someone will get back to you very soon. That will be the most helpful to you as you are just beginning.

Remember, It is all doable, Lisa

Hey Lisa,

I read what you were saying about the gluten-free shampoo/lotions/makeup etc, is that really true??? :o I've never really thought about that before!!! I was always told by the Dr gluten had to be ingested to affet me - now i'm wondering if thats why my hair constantly falls out - wheat based shampoo!!!???!!! What are your (or anyone's) thoughts??? :(

Smunkeemom Enthusiast
Smunkeemom
Posted
<_<

Hey Lisa,

I read what you were saying about the gluten-free shampoo/lotions/makeup etc, is that really true??? :o I've never really thought about that before!!! I was always told by the Dr gluten had to be ingested to affet me - now i'm wondering if thats why my hair constantly falls out - wheat based shampoo!!!???!!! What are your (or anyone's) thoughts??? :(

my girls can't even touch gluten or they break out.

I hear conflicting advice, some say shampoos don't need to be gluten free because you don't eat them, others say anything you touch needs to be gluten free.

However, if you are having symptoms, and found wheat in your shampoo, I would toss it and get some gluten free shampoo and see if you feel better.

(oh, and check your makeup too, esp. your lipstick, my 4 year old got really sick once because grandma let her wear some lipstick and didn't know it had gluten in it)

Guest nini
Guest nini
Posted

I too had several miscarriages BEFORE my dx. My pregnancy with my daughter was also prior to my dx. I did however have an extremely complicated pregnancy and dd was born 6 weeks preterm. I had no problems GETTING pregnant, it was the staying pregnant that was a problem. I bet if I had been strictly gluten-free, I would have had no problems with any of the pregnancies.

lindalee Enthusiast
lindalee
Posted
Hey babe:

With gluten free new to you, I just wanted to make sure that you have gluten free shampoo, soap, lotions, some makeups....all can make you sick.

I know that someone here, (I am sorry that I cant remember..please forgive me, again) has a newbie kit that will get you started on our road to gluten free.

Also, I cannot to this, but there is a Delfi Forum List that someone can e-mail to you that has a list of gluten free PRODUCTs, by name.

The forum is usually quiet on the weekends.

Post as request for the Delfi Forum Product List and the Newbe Survival Kit and someone will get back to you very soon. That will be the most helpful to you as you are just beginning.

Remember, It is all doable, Lisa

Hi, I just joined and this group is so helpful. I would appreciate that list also. This makeup thing is another challenge. I'm working on make-up and vitamins today. Thanks, LindaLee

mouse Enthusiast
mouse
Posted

Welcome to the forum. If you have been buying gluten-free bread, be sure you do not use the family toaster, but buy a cheap one for yourself. When I was first told that I needed my own toaster (28 months ago), I thought that was overkill. It is not, as the crumbs from glutened bread stay in the toaster and then can get on your bread. Make sure you do not make your sandwiches where regular bread has been, unless you have throughly cleaned that area. I know some on here put paper towels down for theirs. I use a plate, even tho I am using a section of the counter that is designated for me. Do, not use condiments that others have double dipped into as their crumbs can then pass to you. My husband uses a large jelly and I use a small one and that way we know who's is who's. If you have a boyfriend do not kiss him if he has been eating or drinking anything with gluten. He should rinse his mouth throughly. One member on here was still being glutened and she could not figure it out. Then it dawned on her that her husband has a mustache and drank beer. He now rinses before kissing her. Once you get the hang of this, it will all come naturally and easily.

As far as the infertility. I would think you could still get pregnant, but sometimes it is not a healthy pregnacy. You need for your body to heal before you get pregnant and then you should be fine.

Lisa Mentor
Lisa
Posted

Yes,

Check anything that may get into your mouth. I use Dove shampoo and soap, Lubriderm lotion, Crest toothpaste, and burts bees lip glosses and some Clinique. Hope that will get you started.

Lisa

Guest nini
Guest nini
Posted
Hi, I just joined and this group is so helpful. I would appreciate that list also. This makeup thing is another challenge. I'm working on make-up and vitamins today. Thanks, LindaLee

did you e-mail me for the list? nisla@comcast.net

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.