Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Numb/tingles


Lister

Recommended Posts

Lister Rising Star

My head keeps getting these wierd cold feelings followed by tingles its on the top of my head, im trying to figure out if maybe its a gluten reaction even though i dont know what i may have gotten glutened from since, all i just ate was a burger patty, and some ketsup (heinz in packets) i know regular heinz is fine but are packets ok i remember reading something about sealign glue containing gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GravStars Contributor
My head keeps getting these wierd cold feelings followed by tingles its on the top of my head, im trying to figure out if maybe its a gluten reaction even though i dont know what i may have gotten glutened from since, all i just ate was a burger patty, and some ketsup (heinz in packets) i know regular heinz is fine but are packets ok i remember reading something about sealign glue containing gluten.

i get similar sensations in my head and other parts of my body. i don't think it's a gluten reaction, not for me anyway. feeling cold or heat sensations, numbness or tingling in hands, feet, face, head, or any other places on the body can be symptomatic of anxiety. so can lots of things: Open Original Shared Link

i have also experienced similar things during meditation and bodywork (like yoga and qigong) so for myself i relate it to some psychophysical effect. wasn't your blood work negative? i know you can get a false negative, but can you really conclude that its gluten yet when it could be other things? (not saying you should eat gluten again)

indyceliac Newbie

I used to get tingly feeling in my arms and legs...and then i started taking sublingual b-12 pills and it went away the next day.

But also, anxiety can definitely cause what you are describing. Try not to worry over every symptom and being overly aware of what your body is feeling....it just makes it worse.

penguin Community Regular

I get that too, it kind of feels like my hair is falling out or something (it's not, although I could stand to lose some). I also get a feeling like my shoes are too tight when they're not, like my toes are falling asleep. I don't know what the heck causes it, though for me it seems to happen more when I'm eating gluten.

You're still VERY early into the diet, and you'll have random things happen for quite some time.

mart Contributor

My son often complains of this even though he's been gluten-free for almost a year. In his case, I can honestly tell you that its not a glutening. Maybe this kind of thing just happens even though you're totally gluten-free?

ravenwoodglass Mentor
My son often complains of this even though he's been gluten-free for almost a year. In his case, I can honestly tell you that its not a glutening. Maybe this kind of thing just happens even though you're totally gluten-free?

Are you having him take the sublingual B12? Is he having any problems with 'clumsyness'? Is he diabetic? Are his shampoos, soaps etc. gluten-free. At his age he may also be getting cross contamination or actual glutening at school. Many art supplies are not safe and in some schools the old fashioned chalk can get us. It can take a long time for the neuro problems to go away completly and for some of us they are the first indications that we got got.

Lister Rising Star

"Are you having him take the sublingual B12? Is he having any problems with 'clumsyness'? Is he diabetic? Are his shampoos, soaps etc. gluten-free. At his age he may also be getting cross contamination or actual glutening at school. Many art supplies are not safe and in some schools the old fashioned chalk can get us. It can take a long time for the neuro problems to go away completly and for some of us they are the first indications that we got got."

that would explain my "out of body" experinces i have had in the past where i will just lay my head down and the next thing i know i think im up and doing things then i snap out of it, scares the crap out of me but i have not had those for over 2 years


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Becky6 Enthusiast

I def get that after gluten. It is a very odd feeling.

AnnieMarie Apprentice

Lister,

If you see my post about the ALK PHOP. One of my complaints to my Dr. at my six month appt. was the "buzzing" type feeling I am getting in my feet I can occasionally get it in my hands and parts of my face. I also have raynauds though and that complicates a diagnosis. It feels to me like some kind of electric static.

The low ALk... reading might be a B12 thing, I am waiting to see the GI as my rhuematoligist has reeferd me back to him.

Mine seems to worsen when I try to warm the area up.

AnnieMarie

gfp Enthusiast
"Are you having him take the sublingual B12? Is he having any problems with 'clumsyness'? Is he diabetic? Are his shampoos, soaps etc. gluten-free. At his age he may also be getting cross contamination or actual glutening at school. Many art supplies are not safe and in some schools the old fashioned chalk can get us. It can take a long time for the neuro problems to go away completly and for some of us they are the first indications that we got got."

that would explain my "out of body" experinces i have had in the past where i will just lay my head down and the next thing i know i think im up and doing things then i snap out of it, scares the crap out of me but i have not had those for over 2 years

Many of us get this ... we call it "brain-fog" or similar but no Dr. seems to beleive it....

For me its almost like I'm on remote control except every so often my body does something I didn't tell it to do... like the RC batteries are on the way out.

For me its not so much out-of-body as in-body/out-of-body... I don't look down from the ceiling or anything, just feel like I am observing my own body but from inside? If that sounds weird, yeah its freaky.

Lister Rising Star

i get brainfog all the time but these out of bodys only come when i put my head down

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,189
    • Most Online (within 30 mins)
      7,748

    Kate Long
    Newest Member
    Kate Long
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.