Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help. Servre Cronic Canker Sores

hwmom

Recommended Posts

hwmom Newbie
hwmom
Posted

HI I am new to the board. My son is being tested next week. My son is 7 years old and has debilitating canker sores. I was wondering if anyone noticed a differance in canker sores when they took their child off Gluten.

Also, does anyone know of any good snacks that are dairy free and glutten free?

Thank you so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hwmom Newbie
hwmom
Posted
  • Author

Hi I am new to this board. My son is being tested next week. Has anybody's child had servre canker sores? If so, did taking your child off Glutten make a difference?

Also, does anyone know of any dairy free and glutten free snacks that kids like?

THank you.

aorona Rookie
aorona
Posted

My children did not have canker sores, but I had geographic tongue. This is basically many open sores on your tongue that never seem to heal. It is very painful. Going gluten free for almost one year has almost cured this problem. It comes & goes, but is getting better.

As far as snacks. My kids love air popped popcorn with butter; cheese crisps made with corn tortillas; rice pudding; corn chips with salsa; gluten-free rice crispy treats; just to name a few. Basically anything your child liked before going gluten free can be modified to be gluten free. My kids also like "sandwiches" made with a corn tortilla toasted in the toaster. Just be sure to buy a new toaster, since the old toaster will have gluten on it. (we have 2 toasters in our kitchen) You can put anything in these "sandwiches". My kids like peanut-butter & jelly; and turkey with ranch dressing.

jmengert Enthusiast
jmengert
Posted

I'm not a child, but I, too, had chronic canker sores before going gluten free. Now I don't get them at all unless I get glutened. Hopefully, your son's will clear up, too.

Ursa Major Collaborator
Ursa Major
Posted

Hi, well, I am certainly no child either :D , but I used to get canker sores while consuming gluten, and haven't had any since going gluten-free.

kabowman Explorer
kabowman
Posted

I have problems with canker sores and have had SINCE I went gluten-free. My pcp thought it was a vitamin B deficiency so now I take mega doses and but no effect...they just come (up to 10+ at a time) and go in waves (about a month at a time) but in the last few months have actually finally gotten better.

My dentist just prescribed me a mouthwash to use that is supposed to help but I haven't tried it yet - it is waiting for me to pick up at the Rx as we speak.

My son, dairy free, likes corn chips and chocolate sorbet as a treat (this is what he gets for easter and christmas now instead of chocolate).

Oh, I also have a geographic tongue and have had since I was young - mine doesn't hurt and I never notice changes but I don't spend a lot of time looking at my tongue. My DF son also has a geographic tongue.

Ursa Major Collaborator
Ursa Major
Posted

Sorry about the double initial post, that ocurred because I merged two duplicate posts, because they had both gotten responses.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lindalee Enthusiast
lindalee
Posted
I have problems with canker sores and have had SINCE I went gluten-free. My pcp thought it was a vitamin B deficiency so now I take mega doses and but no effect...they just come (up to 10+ at a time) and go in waves (about a month at a time) but in the last few months have actually finally gotten better.

My dentist just prescribed me a mouthwash to use that is supposed to help but I haven't tried it yet - it is waiting for me to pick up at the Rx as we speak.

My son, dairy free, likes corn chips and chocolate sorbet as a treat (this is what he gets for easter and christmas now instead of chocolate).

Oh, I also have a geographic tongue and have had since I was young - mine doesn't hurt and I never notice changes but I don't spend a lot of time looking at my tongue. My DF son also has a geographic tongue.

I had a bad cold sore before my big glutten outbreak(rash and D) Never had one before that. That was about 4 or 6 months ago. I'll find out what vit. I took. Can't remember right now. (brain fog) What's a geographic tongue? LindaLee

2kids4me Contributor
2kids4me
Posted

Prior to going gluten-free, my daughter would have severe canker sores - she would refuse to eat cause it hurt. They always seemed to be clearing up then a new bunch would arrive. We aave had ZERO canker sores since going gluten-free!

DeeTee33 Newbie
DeeTee33
Posted

I stick to Crest Toothpaste and haven't had a Canker Sore in years. I forget which exact one but Colgate Toothpaste gave me horrible ulcers or Canker Sores in my mouth!

My mother's cure for Canker Sores was to put Baking Soda directly on them. You would make a paste and pat it on and had to hold your mouth funny for a few minutes though. Do it a couple times in a day. Kinda stung, but it did get rid of them much quicker. Curious if anybody else heard of this?

jerseyangel Proficient
jerseyangel
Posted

I used to get canker sores frequently--since gluten-free, I have not had one :)

flagbabyds Collaborator
flagbabyds
Posted

My sister used to get canker cores all the time and she took Lysine tablets, they really helped her.

lindalee Enthusiast
lindalee
Posted
My sister used to get canker cores all the time and she took Lysine tablets, they really helped her.

That was it - Lysine. LLee

BRUMI1968 Collaborator
BRUMI1968
Posted
HI I am new to the board. My son is being tested next week. My son is 7 years old and has debilitating canker sores. I was wondering if anyone noticed a differance in canker sores when they took their child off Gluten.

Also, does anyone know of any good snacks that are dairy free and glutten free?

Thank you so much.

I haven't read through other answers, but I'll tell you that I immediately stopped getting canker sores when I quit gluten. I might've also quit citrus (trying to calm my gut down)...but the gluten definitely put an end to the canker sores.

As to snacks - you can make trail mix...I'm still looking for a good tortilla chip that is gluten-free.

Vinegar and citrus might also cause canker sores.

DeeTee33 Newbie
DeeTee33
Posted

Tostitos Tortilla Chips are gluten-free. Tostitos are a product of Frito Lay. Frito Lay has a Gluten-Free list of all it's chips, dips, trail mixes etc. Check it out!

eKatherine Apprentice
eKatherine
Posted

I used to get canker sores regularly, but I haven't in years, which is about how long I've been gluten-free.

kaciemarie Contributor
kaciemarie
Posted

I used to get horrible canker sores before i went gluten-free as well. Now I only get them when I eat something that I shouldn't. Also, I only use toothpaste without Sodium Laurel Sulfate in it. I use Burt's Bees. I hope this helps!

  • 1 month later...
DiPal Newbie
DiPal
Posted

Even though your post is a month old now, I felt that I should reply. I am 46 an have suffered with canker sores all of my life. Neither doctors nor dentists could tell me why I got them. About 1 year ago, I went on one of those low carb diets. For the first several weeks, I could not eat any carbs except veggies. I suddenly realized that my canker sores dissapeared! I thought it was just a coinsidence so I did a little test. I took 1 bite of regular white bread and within hours, I broke out with 3 cankers. Since then I have gone gluten free and I no longer get them.

I have discovered however, that I can tolerate Spelt flour. Spelt flour has gluten in it but it is a different kind of glute than the gluten found in wheat, oats, rye and barley. There are some great breads out there that are made with spelt flour that are delicious. So, it might be worth it to try spelt bread for your son. He may be able to tolerate it too!

Good luck to you and your son!

penguin Community Regular
penguin
Posted
I have discovered however, that I can tolerate Spelt flour. Spelt flour has gluten in it but it is a different kind of glute than the gluten found in wheat, oats, rye and barley. There are some great breads out there that are made with spelt flour that are delicious. So, it might be worth it to try spelt bread for your son. He may be able to tolerate it too!

Good luck to you and your son!

No no no no no! Spelt has exactly the same kind of gluten that wheat, barley, rye, and oats have! It is definitely not safe for someone that is Celiac or gluten intolerant. Maybe, and a weak maybe at that, is that some people with wheat allergy (not celiac or gluten intolerance) might be able to handle spelt. Spelt is basically an anicient form of wheat.

  • 11 months later...
Sound Guy Newbie
Sound Guy
Posted
Even though your post is a month old now, I felt that I should reply. I am 46 an have suffered with canker sores all of my life. Neither doctors nor dentists could tell me why I got them. About 1 year ago, I went on one of those low carb diets. For the first several weeks, I could not eat any carbs except veggies. I suddenly realized that my canker sores dissapeared! I thought it was just a coinsidence so I did a little test. I took 1 bite of regular white bread and within hours, I broke out with 3 cankers. Since then I have gone gluten free and I no longer get them.

I have discovered however, that I can tolerate Spelt flour. Spelt flour has gluten in it but it is a different kind of glute than the gluten found in wheat, oats, rye and barley. There are some great breads out there that are made with spelt flour that are delicious. So, it might be worth it to try spelt bread for your son. He may be able to tolerate it too!

Good luck to you and your son!

I just wanted to say as a chronic major ulcer sufferer I intend to take your advise on converting to a Gluten Free diet. I am 37 years old and have been a sufferer of Major ulcerations for years (17+). It is a shame that so little information is available among health practioners in regards to PREVENTING these little but dehabilittaing demons. I don't mean to sound harsh as I realize it's not possible to be an expert on every subject but, who is suppose to know about this area??? Not a GP or a dentist or at least the ones I've experienced. Years ago I tried to seek help on the subject but shortly realized that I already knew the usual remedies/suspects: SLS, Vitamin B-12, Folic Acid, Zinc, Iron, Lysine, Niacin, food triggers, false food triggers... Literally for me, at any given time I would be uncomfortably housing 2-3 major ulcers at a time. I have to say it goes even beyond a minor annoyance or at least in my life. Besides the pain, if I am to get one on my tongue I find it can literally cause me to be incapable of speaking (although may be great for my wife, it's definately not for my business). I literally once reached a point in my early years where I felt like I would rather not even be, then to go through this painful lonely cycle over and over with no end in sight. I say lonely because I always felt the average person could not relate to what the pain actually felt like. However I did come up with a comparison for my wife (who does not suffer from canker sores thankfully) to relate how it makes me feel. It feels as if someone has taken a pair of pliers to the inside of your mouth that is wherever the ulcer decides to take up residency in your mouth (tongue, lip, cheek...). In a perfect world I would like to write a comprehensive book from the understanding of the canker sore sufferer that provides tangible plottable steps to clearly identify the root cause supported with content based on proven facts... All I know is that I would like to figure it out so I can potentially help others PREVENT this from happening to them... Anyway, thanks for reading my input and If you would like to share a remedy with me I would love to hear from you... Thanks. chris_maynard@lycos.com

wowzer Community Regular
wowzer
Posted

I used to get a lot of canker sores as a child. I never would have thought it was caused by gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    2. Jane02
      - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to...
    3. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    4. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    5. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.