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Daughter's Enterolab Results

CarlaB

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CarlaB Enthusiast
CarlaB
Posted

Hi everyone! I had two of my daughter's tested with Enterolab. One came back fine. The other got a 30 for Fecal Antigliadin IgA, and a 14 for Fecal Antitissue Transglutaminase IgA. Both should be under 10. Her absorption was fine.

Her only symptoms are her small stature and a learning disability that could be due to brain fog as she is very smart. She also has a bm after every meal, which isn't necessarily bad in itself.

Her numbers are so much lower than mine -- and mine were taken after three months gluten-free-- that I keep having to convince myself that she really needs to go gluten-free as seriously as I do. Intellectually, I know that she needs to be gluten-free. It's just that it's one thing that I have to deal with this problem, it's a totally different thing having to watch my 13 year old deal with it.

Thanks,

Carla

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Ursa Major Collaborator
Ursa Major
Posted

Interesting, so many people have wondered if anybody ever comes back negative for gluten intolerance from Enterolab. You answered that question, with one of your kids coming back fine, and the other gluten intolerant.

I read that lower numbers (but too high to be normal) don't mean a lesser intolerance. She is probably just as intolerant as you are.

Wouldn't it be so nice if your daughter would grow, if her learning disabilities would go away, and she wouldn't have to go to the bathroom quite as often? Who knows what other symptoms she has that you aren't even aware of at this point! You might be surprised at the positive changes you will see once she is gluten-free.

Yes, she obviously needs to be gluten-free, just like you. And hey, since you're getting to be a pro at this already, it won't be so bad! Have her join this forum, and let her exchange ideas and 'talk' with other teenagers who have celiac disease.

skbird Contributor
skbird
Posted

I came back with a 9 on my antibodies from EnteroLab and I just wanted to point out that I am a week into a reaction due to eating rice crackers that were produced in a factory that also produces wheat products. And it's been really un-fun. My point being, numbers don't correlate to reactions or reaction strength, or the chance of having a reaction. My numbers indicate that I don't actually have a problem (though I was tested 6 months into a 99% gluten free diet) but believe me, I suffer as much as a full-blown Celiac.

It's tough to accept at first, but after time and trial and error, you will be more comfortable about what you need to do for your daughter. I don't even fret anymore about my not-positive results. I know the reality is I don't like being sick for two weeks because I ate something contaminated. That's enough to make me fight for feeling good! :)

Stephanie

CarlaB Enthusiast
CarlaB
Posted
  • Author

Thank you for your comments. I know this stuff, it's just good to hear it all again! By the way, the new pic is of me and my daughter. Not the best pic of me, I was still pretty ill, but it's cute of her!!

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you for your comments. I know this stuff, it's just good to hear it all again! By the way, the new pic is of me and my daughter. Not the best pic of me, I was still pretty ill, but it's cute of her!!

I think you both look great. I wish my kids were still that young. And especially that they had been diagnosed then. If they had my DS would not have had such a struggle in school, his learning disabilities while still present are no where near as severe. And he also would be more than 5 ft tall at 23. I am so glad that you sent for the Enterolab tests, and I am happy for both your children but for different reasons. It is so great that you can rest easy knowing that your celiac daughter will not have to suffer as you did.

CarlaB Enthusiast
CarlaB
Posted
  • Author
I think you both look great. I wish my kids were still that young. And especially that they had been diagnosed then. If they had my DS would not have had such a struggle in school, his learning disabilities while still present are no where near as severe. And he also would be more than 5 ft tall at 23. I am so glad that you sent for the Enterolab tests, and I am happy for both your children but for different reasons. It is so great that you can rest easy knowing that your celiac daughter will not have to suffer as you did.

Thank you. It's good to know that learning disabilities can improve with a gluten-free diet!

I know what you mean about kids growing up. Our oldest just graduated from HS and will be off to college in the fall! Just doesn't seem like it was that long ago she was little.

mouse Enthusiast
mouse
Posted

You both are so very pretty. I wish I had known about Celiac Disease when my daughter was young. She is now 42 years old and won't be tested. There is no doubt that she is Celiac as she has soooooooooooo many of the symptoms and also addictions. We could have avoided so much of the heartbreak that we and are granddaughter have expierenced. I guess I am happy for both of your daughters' test results. One does not have it and the other you have caught in time. I would give anything to be in your shoes and have that opportunity to change the future life of my child by treating her health problems before they had gotten this far.

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