Enterolab

[JerryK]

Ok, I'm sure others have asked this question, but I'm curious about Enterolab.

Are these guys for real? Is the test really accurate or is just a money making scheme?

Sorry for being so blunt. Does anyone ever test negative when they send their sample

to Enterolab?

What do you all think, is it worth the $99??

How do I explain to my wife I want to spend $99 dollars to send of a poop sample?

[dlp252]

Here's one thread where some people posted that they or someone they know/family tested negative:

Open Original Shared Link

[JerryK]

Here's one thread where some people posted that they or someone they know/family tested negative:

Open Original Shared Link

Thanks Much! Now how do I explain to the little woman, what I'll be sending off in the

mail

[inquirer]

It was worth it for me to have my husband tested. It was also nice not to have to convince a doctor to do it. It would have been nice to have insurance pay for it but oh, well. If it comes back positive and you exclude gluten and get better you will save money in the long run. Less sickness equals less doctor visits and meds which cost money! People will waste $99 on all sorts of junk but somehow think their health isn't worth it. I'm sure you must be having problems of some sort or you wouldn't be doing this. Most people don't collect stool samples for fun!

[jerseyangel]

Thanks Much! Now how do I explain to the little woman, what I'll be sending off in the

mail

Just tell her that "this little package" could explain everything!

[penguin]

Thanks Much! Now how do I explain to the little woman, what I'll be sending off in the

mail

Maybe if you call her little woman while you're sending it she'll be too busy smacking you upside the head to notice the tupperware full of poop

[jerseyangel]

Maybe if you call her little woman while you're sending it she'll be too busy smacking you upside the head to notice the tupperware full of poop

That thought crossed my mind, too!

[JerryK]

That thought crossed my mind, too!

So any suggestions as to what's the best technique for getting it in there?

Sorry, I couldn't help myself...

[CarlaB]

I tested positive. I sent the results to my internist, who happens to be a friend of mine, and he responded that he was going to start using that lab for suspected celiacs because it seemed that for conventional testing you would have to be half-dead to come out positive. Since he is a friend of mine, he is someone who would see me often and knew how bad I had gotten.

We had two daughters tested. One was positive, one negative.

I'd rather be called "little woman" than "big woman"

[AndreaB]

Jerry,

When you place your order with Enterolab they send you a package with a container and instructions.

We had our testing done by Enterolab because of my allergy test results. The results from Enterolab are listed in the signature.

[Guest greengirl]

I replied on this thread:

Open Original Shared Link

Christine

[CarlaB]

My seven year old figured out how to get it in there without my help, so I would think you would have no problem. The thing is, it psyches you out, all of a sudden, after not being able to hold it for months, now you can't go at all!!! I drank a large cup of coffee ... it helped.

They send you all the stuff you need -- everything is actually a lot easier than it sounds.

[Nancym]

My seven year old figured out how to get it in there without my help, so I would think you would have no problem. The thing is, it psyches you out, all of a sudden, after not being able to hold it for months, now you can't go at all!!! I drank a large cup of coffee ... it helped.

They send you all the stuff you need -- everything is actually a lot easier than it sounds.

Heh, now that you mention it, right about the time I got my kit I couldn't go.

And afterwards, I was totally freaked out by having a container of poop in my freeezer. Even worse was the next day, when I had to take it to work so I could mail it out.

[dlp252]

Thanks Much! Now how do I explain to the little woman, what I'll be sending off in the

mail

Yep, fortunately I live alone and only had to worry about grossing myself out. I had to put it in the freezer, so wrapped it in plastic bags and old towels, lol. It IS a bit embarassing...I was wondering if the DHL guy could guess what was in there, lol.

[dionnek]

I replied on this thread:

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Christine

Just curious, at what age can you have someone tested (I have been dx by biopsy and blood tests but have a 20 month old daughter that I'm curious about)? My baby does not have most of the symptoms - she is 50th% weight/90 height, does not have D, only occassionally has eczema or some type of small rash on inside of her elbows/knees and one on the corner of her mouth - these rashed don't seem to bother her and her ped. thinks they are heat rash. She does have horrible boughts of C though about once a week - she is in extreme pain for a day or 2 and when she finally gets it out it is so large that I don't know how in the world it came out of such a small body! The thing that has concerned me is that for the past year or so, I have had HUGE BMs each morning similar to hers, and I think that mine are due to the celiac, so wondering if hers could be too.

I also have BCBS so would be very interested to find out if they paid for your test and how you went about that.

Also, do most of you get all allergies tested when you send out (does Enterolab do that?)? I know I have celiac, but am curious about other allergies (suspect dairy but not really sure what else to think). Would it be better just to get all allergies tested from a dr, and if so, what kind of dr. do you go for for that (I've never had allergy problems before - think the labor/delivery of my baby is what set off my celiac symptoms since that's when all the D started).

[CarlaB]

Twenty months is old enough to be tested by Enterolab. I'd have her checked since you have it, especially since she has symptoms. I used to get those rashes in the corner of my mouth. Sometimes it was almost like my mouth was growing closed at the corners. I remember reading somewhere that it's a symptom.

They don't do allergy testing, but will check for casein sensitivity.

[AndreaB]

Also, do most of you get all allergies tested when you send out (does Enterolab do that?)? I know I have celiac, but am curious about other allergies (suspect dairy but not really sure what else to think). Would it be better just to get all allergies tested from a dr, and if so, what kind of dr. do you go for for that (I've never had allergy problems before - think the labor/delivery of my baby is what set off my celiac symptoms since that's when all the D started).

20 months old is plenty old to have enterolab do the testing. They have different panels that test for gluten, gene, malabsorption, milk, egg, soy, yeast. I think that all. They don't do full allergy tests.

[dlp252]

Also, do most of you get all allergies tested when you send out (does Enterolab do that?)? I know I have celiac, but am curious about other allergies (suspect dairy but not really sure what else to think). Would it be better just to get all allergies tested from a dr, and if so, what kind of dr. do you go for for that (I've never had allergy problems before - think the labor/delivery of my baby is what set off my celiac symptoms since that's when all the D started).

I decided to get the full panel. It was a bit pricey, but I had been tested for allergies to food and didn't show any, so I knew I was dealing with intolerances rather than allergies. I showed intolerant to gluten and casein, but not to the others that were tested.

[Guest greengirl]

I think that enterolab can test toddlers - my daughters are 6,9,11 yrs. so I don't know for sure. I also know they can test for egg, soy, casein intolerances, but for more complete allergy testing I think you'd have to go to a different lab.

I also have BCBS so would be very interested to find out if they paid for your test and how you went about that.

As far as BCBS - they said that as long as enterolab is the only provider in the country of a test of this kind then they can be considered for in-network coverage. Enterolab called BCBS for me and faxed them a letter stating that to the best of their knowledge they are the only lab that does this kind of testing. I filed a claim for my testing and now I am waiting to hear back from BCBS. My understanding is that if this is approved for me, then it would be accepted for others that file claims from enterolab. I hope this is the case because I want my daughters to be covered as well and don't want to go through the whole approval process again! I will definitely post if it is accepted so that others can file!!

Christine

[dionnek]

I hope BCBS pays! Do I really need to order all the tests for my 20 month old (not an issue if insurance pays, but if they don't it's quite pricey), or would one or 2 do? I'm not opposed to spending $400, I'm just afraid to do that and get false negative results b/c then my husband will feel that she is fine and won't need further testing (whereas if I only spend $99 then it's easier to swallow more testing later on.....)

[AndreaB]

We got the whole panel that costs $369 and included milk (if they are still offering the milk in with that). We also got the soy/yeast/egg panel for $199. Very pricey but as we had eaten a lot of soy we wanted to know about that as well.

I didn't even try and see if our insurance would cover it. I figured not because we haven't shown symptoms so to speak. We are also on state reduced premium insurance and they don't pay for a lot of stuff or pay very reduced fees.

[debbie-doodles]

I have a question about enterolab too....my daughter has been gluten free since april 2005. Can she still do the test and will it come back with correct results? Or has my daughter been gluten free for too long?

[AndreaB]

I have a question about enterolab too....my daughter has been gluten free since april 2005. Can she still do the test and will it come back with correct results? Or has my daughter been gluten free for too long?

They say that the IgA in the intestines is testable for awhile. It may depend on how old she is and how long she had ingested gluten and whether she had a celiac diagnosis or not. Check out www.enterolab.com and email or call Phyllis. She will be better able to answer that question.

[TCA]

I have to say that I'm still a bit skeptical of enterolab. I've taken a printout of the website to 3 drs. - pediatrician, ped. GI and an allergist - and all said it wasn't a good test. I'm NOT saying Drs. are always right, but it concerns me that I can't find anyone in the med. community that thinks enterolab really works. Anyone else come up against this?

[CarlaB]

No, my doctor said he was going to start using them because it seemed people had to be "half dead" to get a celiac diagnosis with the conventional testing.