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Anyone From Michigan And First Day Going gluten-free

guitarplayer4God

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guitarplayer4God Explorer
guitarplayer4God
Posted

Hi, I'm Beth and I'm 15 yrs old I'm new to the forms and celiac. Today is the first day that I am going gluten-free. I tested postitve on my blood test. Is anyone from Michigan? It would be really cool to meet another celiac in Michigan. Is vinegar ok to have? Like in ketchup and things?

Thanks,

Beth

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Girl Ninja Newbie
Girl Ninja
Posted

Hi, Beth. I'm 26 and I'm in SE Michigan. What area are you in? I'm self-diagnosed (HATE my doctor) and I've only been gluten-free about 2 months myself, so I'm still learning. Glad to meet you. I believe *most* vinegars are ok. Malt vinegars are not ok.

The Delphi List has these Heinz condiments as gluten-free:

Heinz (Heinz) (800-255-5750) (www.heinz.com) (ve=03/24/04)

KETCHUP: Ketcup, Kick’rs (Hot & Spicy)

VINEGAR: Distilled White Vinegar, Red Wine Vinegar, Apple Cider Vinegar (NOTE: Apple Cider FLAVORED Vinegar is NOT gluten-free)

EZ MARINADER: Mr. Yoshida Teriyaki only

guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author
Hi, Beth. I'm 26 and I'm in SE Michigan. What area are you in? I'm self-diagnosed (HATE my doctor) and I've only been gluten-free about 2 months myself, so I'm still learning. Glad to meet you. I believe *most* vinegars are ok. Malt vinegars are not ok.

The Delphi List has these Heinz condiments as gluten-free:

Heinz (Heinz) (800-255-5750) (www.heinz.com) (ve=03/24/04)

KETCHUP: Ketcup, Kick’rs (Hot & Spicy)

VINEGAR: Distilled White Vinegar, Red Wine Vinegar, Apple Cider Vinegar (NOTE: Apple Cider FLAVORED Vinegar is NOT gluten-free)

EZ MARINADER: Mr. Yoshida Teriyaki only

Glad to meet you 2 and thanks 4 the help! I'm from the Detroit area.

mommida Enthusiast
mommida
Posted

There are a lot of us from Mi. I'm a little further north than the Palace. We have been finding more diagnosed Celiacs every where we go. The lady at the party store, people at my husband's work, people at church and school there's Celiacs every where.

A nice place for you to start if it's close enough for you, is Belcibo. www.belcibo.com it is in Clawson, very close to Oakland Mall (I-75). Celiac Specialties in Chesterfield has the best doughnuts. Belcibo sells a limited supply of the doughnuts at their store. There is a Celiac store in Lovonia. I can't remember the name right now, but the owners are fantastic.

L.

Girl Ninja Newbie
Girl Ninja
Posted

I'm from Algonac, but I figured unless you were from nearby you wouldn't know where that was. :P I work out in Shelby Twp. I went to Celiac Specialties in C'field for the first time this week. It was good. I had a piece of banana cake and my son had "bread pudding" made from cut up donuts covered in chocolate. His was too sweet for me. :) I also bought some boxed pasta. They sell dry mixes, boxed mixes, candy, cereal, spices, and pastas in addition to their prepared baked goods. Their hours are kind of strange is all. I think they closed at 2 or 2:30 almost every day. I REALLY want to go to Belcibo!

Meijer has a good gluten-free selection and you can get a list of their gluten-free products online. Kroger has an ok selection in their Nature's Market section. The best bread I've found around here is Trader Joe's Ryless Rye. It's soo good!

mommida Enthusiast
mommida
Posted

The bread mixes I like are the Chebe bread (better for people with more sensitivities) and Manna from Anna ( had to adjust to the bean flour though ) :rolleyes:

L.

StrongerToday Enthusiast
StrongerToday
Posted

Hi! I'm in Ann Arbor. I've been gluten-free and DF since August, and really feel amazing. The diet looks overwhelming at first, but now it's a piece of gluten-free cake :P

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guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author

How soon after going gluten-free did it take before you started to feel better?

StrongerToday Enthusiast
StrongerToday
Posted

It was probably a couple weeks, but I distinctly remember the day I was driving to work and singing out loud and suddently it hit me "man, this is what it feels like to WANT to get up and go to work"!

There are lots of up and downs, don't get discouraged. Keep your diet simple. Check ALL your products - not just food, but lotions, make-up, etc. Find a group member called Nimi (or Nini?) she has a newbie kit that's supposed to be great.

guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author
It was probably a couple weeks, but I distinctly remember the day I was driving to work and singing out loud and suddently it hit me "man, this is what it feels like to WANT to get up and go to work"!

There are lots of up and downs, don't get discouraged. Keep your diet simple. Check ALL your products - not just food, but lotions, make-up, etc. Find a group member called Nimi (or Nini?) she has a newbie kit that's supposed to be great.

Thanks!

How do I search for the group member Nimi or (Nini) ?

jerseyangel Proficient
jerseyangel
Posted
Thanks!

How do I search for the group member Nimi or (Nini) ?

Here is the link to Nini's post--

Open Original Shared Link

guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author
Here is the link to Nini's post--

Open Original Shared Link

Thank you!

ianm Apprentice
ianm
Posted

Another Ann Arborite. It took a couple of weeks to feel better but a good two years to get to the point where I felt completely healthy. It takes time.

aball2006 Newbie
aball2006
Posted

i have a dietary specialist and she told me that the only vinegar thats ok it heinz's brand. the heinz white wine vinegar. also ive heard of some people getting sick form other brands of ketchup, so i stick with Heinz. French's mustard is the safe brand for mustard. it took me about 3 months to become familiar with celiac, and about 6 before i felt better every day. one day when i went to my doctor, i walked in and said "so this is what its like to be normal, your not supposed to be sick everyday!"

  • 1 year later...
SofiEmiMom Enthusiast
SofiEmiMom
Posted

I'm from Michigan as well! I don't like being the bearer of bad news...but the wonderful Belcibo has closed. It's very unfortunate, as it was a Celiac's paradise.

Girl Ninja...do you work out at Lifetime? That's were I go...great gym:).

  • 1 month later...
dancer4jc Newbie
dancer4jc
Posted

dont cheat!! itll make it that much harder for you to adjust, anyway, my biggest suggestion is start reading labels!!! b/c some brands of foods are gluten-free but other brands are not. also, while I am not celiac, my mom is. Last summer she lost all the reflexes in her legs and she started choking on fod b/c she couldnt swallow. Doctors said she would be in a wheelcahir with a feeding tube within 6 months to a year!! Major scary!!!!! Her doctor said she had MS, but the tests came back negative. so her GI doctor suggested a gluten-free diet, and with in a week she started feeling better, and now 13 months later she has almost recovered 100%.

Good luck and many prayers!!

dandelionmom Enthusiast
dandelionmom
Posted

Hi! I'm in metro Detroit. GL with Gluten-free! We just started for my 3 year old who was just diagnosed.

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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