Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Michigan And First Day Going gluten-free


guitarplayer4God

Recommended Posts

guitarplayer4God Explorer

Hi, I'm Beth and I'm 15 yrs old I'm new to the forms and celiac. Today is the first day that I am going gluten-free. I tested postitve on my blood test. Is anyone from Michigan? It would be really cool to meet another celiac in Michigan. Is vinegar ok to have? Like in ketchup and things?

Thanks,

Beth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Girl Ninja Newbie

Hi, Beth. I'm 26 and I'm in SE Michigan. What area are you in? I'm self-diagnosed (HATE my doctor) and I've only been gluten-free about 2 months myself, so I'm still learning. Glad to meet you. I believe *most* vinegars are ok. Malt vinegars are not ok.

The Delphi List has these Heinz condiments as gluten-free:

Heinz (Heinz) (800-255-5750) (www.heinz.com) (ve=03/24/04)

KETCHUP: Ketcup, Kick’rs (Hot & Spicy)

VINEGAR: Distilled White Vinegar, Red Wine Vinegar, Apple Cider Vinegar (NOTE: Apple Cider FLAVORED Vinegar is NOT gluten-free)

EZ MARINADER: Mr. Yoshida Teriyaki only

guitarplayer4God Explorer
Hi, Beth. I'm 26 and I'm in SE Michigan. What area are you in? I'm self-diagnosed (HATE my doctor) and I've only been gluten-free about 2 months myself, so I'm still learning. Glad to meet you. I believe *most* vinegars are ok. Malt vinegars are not ok.

The Delphi List has these Heinz condiments as gluten-free:

Heinz (Heinz) (800-255-5750) (www.heinz.com) (ve=03/24/04)

KETCHUP: Ketcup, Kick’rs (Hot & Spicy)

VINEGAR: Distilled White Vinegar, Red Wine Vinegar, Apple Cider Vinegar (NOTE: Apple Cider FLAVORED Vinegar is NOT gluten-free)

EZ MARINADER: Mr. Yoshida Teriyaki only

Glad to meet you 2 and thanks 4 the help! I'm from the Detroit area.

mommida Enthusiast

There are a lot of us from Mi. I'm a little further north than the Palace. We have been finding more diagnosed Celiacs every where we go. The lady at the party store, people at my husband's work, people at church and school there's Celiacs every where.

A nice place for you to start if it's close enough for you, is Belcibo. www.belcibo.com it is in Clawson, very close to Oakland Mall (I-75). Celiac Specialties in Chesterfield has the best doughnuts. Belcibo sells a limited supply of the doughnuts at their store. There is a Celiac store in Lovonia. I can't remember the name right now, but the owners are fantastic.

L.

Girl Ninja Newbie

I'm from Algonac, but I figured unless you were from nearby you wouldn't know where that was. :P I work out in Shelby Twp. I went to Celiac Specialties in C'field for the first time this week. It was good. I had a piece of banana cake and my son had "bread pudding" made from cut up donuts covered in chocolate. His was too sweet for me. :) I also bought some boxed pasta. They sell dry mixes, boxed mixes, candy, cereal, spices, and pastas in addition to their prepared baked goods. Their hours are kind of strange is all. I think they closed at 2 or 2:30 almost every day. I REALLY want to go to Belcibo!

Meijer has a good gluten-free selection and you can get a list of their gluten-free products online. Kroger has an ok selection in their Nature's Market section. The best bread I've found around here is Trader Joe's Ryless Rye. It's soo good!

mommida Enthusiast

The bread mixes I like are the Chebe bread (better for people with more sensitivities) and Manna from Anna ( had to adjust to the bean flour though ) :rolleyes:

L.

StrongerToday Enthusiast

Hi! I'm in Ann Arbor. I've been gluten-free and DF since August, and really feel amazing. The diet looks overwhelming at first, but now it's a piece of gluten-free cake :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



guitarplayer4God Explorer

How soon after going gluten-free did it take before you started to feel better?

StrongerToday Enthusiast

It was probably a couple weeks, but I distinctly remember the day I was driving to work and singing out loud and suddently it hit me "man, this is what it feels like to WANT to get up and go to work"!

There are lots of up and downs, don't get discouraged. Keep your diet simple. Check ALL your products - not just food, but lotions, make-up, etc. Find a group member called Nimi (or Nini?) she has a newbie kit that's supposed to be great.

guitarplayer4God Explorer
It was probably a couple weeks, but I distinctly remember the day I was driving to work and singing out loud and suddently it hit me "man, this is what it feels like to WANT to get up and go to work"!

There are lots of up and downs, don't get discouraged. Keep your diet simple. Check ALL your products - not just food, but lotions, make-up, etc. Find a group member called Nimi (or Nini?) she has a newbie kit that's supposed to be great.

Thanks!

How do I search for the group member Nimi or (Nini) ?

jerseyangel Proficient
Thanks!

How do I search for the group member Nimi or (Nini) ?

Here is the link to Nini's post--

Open Original Shared Link

guitarplayer4God Explorer
Here is the link to Nini's post--

Open Original Shared Link

Thank you!

ianm Apprentice

Another Ann Arborite. It took a couple of weeks to feel better but a good two years to get to the point where I felt completely healthy. It takes time.

aball2006 Newbie

i have a dietary specialist and she told me that the only vinegar thats ok it heinz's brand. the heinz white wine vinegar. also ive heard of some people getting sick form other brands of ketchup, so i stick with Heinz. French's mustard is the safe brand for mustard. it took me about 3 months to become familiar with celiac, and about 6 before i felt better every day. one day when i went to my doctor, i walked in and said "so this is what its like to be normal, your not supposed to be sick everyday!"

  • 1 year later...
SofiEmiMom Enthusiast

I'm from Michigan as well! I don't like being the bearer of bad news...but the wonderful Belcibo has closed. It's very unfortunate, as it was a Celiac's paradise.

Girl Ninja...do you work out at Lifetime? That's were I go...great gym:).

  • 1 month later...
dancer4jc Newbie

dont cheat!! itll make it that much harder for you to adjust, anyway, my biggest suggestion is start reading labels!!! b/c some brands of foods are gluten-free but other brands are not. also, while I am not celiac, my mom is. Last summer she lost all the reflexes in her legs and she started choking on fod b/c she couldnt swallow. Doctors said she would be in a wheelcahir with a feeding tube within 6 months to a year!! Major scary!!!!! Her doctor said she had MS, but the tests came back negative. so her GI doctor suggested a gluten-free diet, and with in a week she started feeling better, and now 13 months later she has almost recovered 100%.

Good luck and many prayers!!

dandelionmom Enthusiast

Hi! I'm in metro Detroit. GL with Gluten-free! We just started for my 3 year old who was just diagnosed.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,677
    • Most Online (within 30 mins)
      7,748

    Nancy Magil
    Newest Member
    Nancy Magil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.