Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Else Can Cause Lactose Intolerance Besides Celiac?


Sarah8793

Recommended Posts

Sarah8793 Enthusiast

On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

Lactose intolerance is quite common among many populations, and actually, the ability to digest lactose is a - evolutionarily speaking - recent change in some human populations. Humans don't generally (in the grand scheme of things) consume milk after weaning - milk is designed as a food for babies. Even in populations that can handle lactose, the ability to handle it (the quanitity of lactase, the enzyme that digests lactose) declines with age.

MySuicidalTurtle Enthusiast

I always thught it gets worse as you get older. When I was younger I could have milk- now I can't even cook with it.

Nancym Enthusiast
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

That probably isn't lactose intolerance then, probably casein intolerance.

Sarah8793 Enthusiast
That probably isn't lactose intolerance then, probably casein intolerance.

Forgive me if this is a silly question. What is the difference between lactose and casein? And can you have a casein intolerance and not a lactose intolerance or vice versa? confused :unsure:

tarnalberry Community Regular
Forgive me if this is a silly question. What is the difference between lactose and casein? And can you have a casein intolerance and not a lactose intolerance or vice versa? confused :unsure:

Lactose is a milk sugar, casein is a milk protein. You can have one, but not the other, or both.

Lactose intolerance occurs when you don't produce enough lactase, the enzyme which breaks down the milk sugar, and the lactose passes into the lower intestine where bacteria in the gut break it down instead, releasing gas as a byproduct. It won't harm you, but it can produce very uncomfortable symptoms. The production of lactase is genetically regulated, and declines overtime, and varies by ethnic group.

Casein intolerance occurs when your body reacts, via an IgG mediated immune response, to the casein milk protein. It is not a milk allergy, which is an IgE mediated immune response that releases histamine. Casein intolerance is less well understood than a casein allergy, which is in-turn less well understood than lactose intolerance.

If you are lactose intolerant, you can tact Lactaid, or another over-the-counter lactase supplement, which will supply you with the enzyme to break down the milk sugar. This will do nothing at all for a casein intolerance or allergy.

Sarah8793 Enthusiast

Are the symptoms of casein and lactose intolerance the same? For years I could take a lactose enzyme but now since I became more sensitive, they don't work. AND interestingly, when I became more sensitive, the symptoms changed. Now when I have had milk or milk product, the pain is in a different place and affects my upper digestive tract. I'm wondering if I started out lactose intolerant and then have now become casein intolerant additionally. Thanks for the info.! I can't believe I never distinquished between the two.

Sarah

Lactose is a milk sugar, casein is a milk protein. You can have one, but not the other, or both.

Lactose intolerance occurs when you don't produce enough lactase, the enzyme which breaks down the milk sugar, and the lactose passes into the lower intestine where bacteria in the gut break it down instead, releasing gas as a byproduct. It won't harm you, but it can produce very uncomfortable symptoms. The production of lactase is genetically regulated, and declines overtime, and varies by ethnic group.

Casein intolerance occurs when your body reacts, via an IgG mediated immune response, to the casein milk protein. It is not a milk allergy, which is an IgE mediated immune response that releases histamine. Casein intolerance is less well understood than a casein allergy, which is in-turn less well understood than lactose intolerance.

If you are lactose intolerant, you can tact Lactaid, or another over-the-counter lactase supplement, which will supply you with the enzyme to break down the milk sugar. This will do nothing at all for a casein intolerance or allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

My MIL is from Germany, with family and friends still there. She says that over there they don't drink milk. They put cream in their coffee, and cook with it, and use other dairy products of course, but they would never just drink a glass of milk. Kids don't drink milk after their weaned. They drink weak tea.

Nancy

eKatherine Apprentice

I've been lactose intolerant my whole adult life. When I first noticed it the symptom was abdominal bloating and gas. After being essentially gluten-free for a few years, I decided to try a 'challenge'. I drank a tall hot, flavored milk. Within half an hour I had diarrhea, then again about 6 hours later - classic lactose intolerance. At the six hour point, my feet and ankles were swollen so I couldn't see any shape at all - a sensitivity reaction which took about a week to go away.

ravenwoodglass Mentor
On my quest to figure out if gluten is my problem, I always think about the fact that I am lactose intolerant and have been for about 6 years, right after my first child was born. I became even more sensitive when my second child was born, and can no longer have ANY. Not even with a lactose enzyme pill. So then I wonder why is this progressing? :unsure: Can the villi become more sensitive to milk over time on their own without damage from gluten? I am getting ready to do tests with Enterolab for gluten.

With your pattern of excaberating symptoms after the birth of each child I feel your problem may be the gluten. I would totally eliminate the gluten and dairy both for a while and then do a challenge with them. I was told I was lactoese intolerant for years but after 6 months gluten-free could even drink a cold glass of milk with no ill effects.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.