Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Celiac Here!

sweetp

By sweetp
in Coping with Celiac Disease

Recommended Posts

sweetp Rookie
sweetp
Posted

so, is it just me, or does anyone else feel like they are the ONLY person in the entire universe that has celiac disease!?? I mean...yah... you all have it (lol) but i mean like in "the real world" the people you meet in everyday life... (sigh)..... no one gets it... yesterday, this girl at my church ( trying so hard to be sweet!!)) said "i made some bread that you can have... it's called oat maple bread and it doesnt have WHOLE wheat flour..." i said.. wow, yah, thanks! :) um... i can't really have oats and i can't have any flour... she used bleached flour and thought it was okay.... :( anyways... so sometimes when i'm home alone, or even when i'm at a church potluck, but mostly when i'm home alone... i just want to tear into a loaf of great harvest honey whole wheat bread, ( i don't know why i buy it for my hubby-i torture myself!!!) anyways... i want to chuck the stupid "rice LOAF" that's so dense-and-hard-it-could-seriously-injure-someone-if-you-used-it-as-a-weapon, out the window and dump the soggy quinoa spiral noodles in the toilet where they belong and eat some good old top ramen! ai yai yai... i feel crazy sometimes, like this disease is not real and that if i believe that hard enough that i can go back to eating like a "normal person" i mean, i've been SOOOO stinkin good for SOOO long, it's been a while since i've had a bad reaction, and a few years since i've been constantly sick...i feel so healthy now!! :) i think i almost need to be glutened once in a while so i don't feel so deprived....anyhoo...so here i am home alone....barry left some cookies on the counter....RarrrRrr..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Sweetp,

try Kinnikinnick bread (www.kinnikinnick.com) for online ordering and Tinkyada noodles (taste like regular noodles)

hez Enthusiast
hez
Posted

I think all of us feel at times as if no one else has this disease. That is why we come here, there is comfort in numbers :)

sweetp-You need do dump the quinoa noodles. IMHO they are just nasty. Try tinkyada (I know I mispelled that) it tastes like real pasta and does not fall apart. I can not stand the rice loaf bread. I enjoy the Whole Foods bread toasted, I like Anna's bread from gluten evolution, and I tried Pamela's in my bread maker and that was good.

Sorry Barry left the cookies on the counter :( Make sure you have goodies for yourself for times like these.

Hez

Rachel--24 Collaborator
Rachel--24
Posted

I'm with everyone else on the Tinkyada.....get rid of the quinoa stuff...Tinkyada tatses like real pasta. Your hubby would probably like it too.

sparkles Contributor
sparkles
Posted

Sorry to hear that you are going crazy...but glad to hear that I am not alone. It does get to be overwhelming sometimes...and depressing....and I must admit, I am tired of explaining for the zillionith time this darn diet and why I can't just cheat "a little". Right now the whole celiac thing is really getting to me... I am supposed to go to a banquet on Sunday night and am dreading it because it will be typical banquet food.... and then there will be all the questions from those around me as to why I can't eat this or that and why would just a little hurt....etc..... I need a constructive outlet for these frustrations.... I wish I could run away!

Soo B Newbie
Soo B
Posted

The first celiac conference I went to, the thing I was most excited about wasn't the educational value -- I was excited to physically see other people (outside immediate family) with celiac disease. There was something SO comforting about being in a room full of human beings who go through the same things as me every day. I just wanted to hug everybody.

Guest nini
Guest nini
Posted

is there a local support group in your area? I find that is one of the most helpful things for me is to get together with local Celiacs and enjoy each others company and good food!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kabowman Explorer
kabowman
Posted

I know - I am the only one, oh wait, my dental hygentist and her daughter have food issues but I see her once every 6 months and my mouth is full of her hands so I can't really chat back, but other than that, people just don't get it and there is only me.

I love this MB and would have issues without it.

loraleena Contributor
loraleena
Posted

I hear you. You should buy and make Manna from Anna bread. It is on the web. It is crusty chewy and yummy like a real loaf!!

Green12 Enthusiast
Green12
Posted

I don't know about anybody else, but I feel now that I am aware of celiac and after a year and a half or so of eating a gluten-free diet it seems like more and more people I know are having digestive difficulties and exhibit signs and symptoms of celiac. Maybe it's just me though.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,340
    • Most Online (within 30 mins)
      7,748
    Rachel Hill
    Newest Member
    Rachel Hill
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten exposure when trying to conceive

      By trents · Posted

      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Gluten exposure when trying to conceive

      By Skydawg · Posted

      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      Gluten Free Cannabis Edibles

      By ShadowLoom · Posted

      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...