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Guest nini

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psawyer Proficient
psawyer
Posted

I accessed the revised zip file and extracted all of it with no problems to my NTFS hard drive under XP. :)

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Brilliant, Nini!

Guest nini
Guest nini
Posted
I accessed the revised zip file and extracted all of it with no problems to my NTFS hard drive under XP. :)

YAY!!!!

Turtle Enthusiast
Turtle
Posted

Thanks so much! You've been working hard. Very impressive and helpful!

Guest nini
Guest nini
Posted

bump

celiac3270 Collaborator
celiac3270
Posted

For the 50 things you can eat now... I didn't have any ask-for-password issues. I did, however, have to specify in which format I wanted to open it. Add .doc to the file name and it might be ok.

TCA Contributor
TCA
Posted

Nini,

I have a list of companies on the thread I started for the Newly Diagnosed. thanks for doing all this!

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Lymetoo Contributor
Lymetoo
Posted

I found your file, but all I saw was lists of OK foods. Didn't you have more than that when you first posted it here?? I'm sorry....I'm not good at navigating new sites ...this one still has me confused at times!!

Guest nini
Guest nini
Posted
I found your file, but all I saw was lists of OK foods. Didn't you have more than that when you first posted it here?? I'm sorry....I'm not good at navigating new sites ...this one still has me confused at times!!

along with lists of ok foods there are some restaurant menus, some info about Celiac to pass on to family members and friends from the Celiac Disease Foundation, an article from Time magazing about Celiac, safe school supplies for kids and naturally gluten-free meal suggestions...

it's just a compilation of files I have collected over the past three years and I wish that I had them when I was first dx'ed... It's not perfect by any means, but it's a start.

you have to extract the files from the zip file, and there should be 15 files... as I add things to it it will change, but I'm not that computer smart so it takes me a while to update stuff...

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    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
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      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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