Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed - Vegan


vfaith

Recommended Posts

vfaith Newbie

Hi everyone,

I was recently diagnosed with celiac. I am still eating gluten because I have to get my endoscopy in a couple of weeks but I am trying to get prepared for the transition. I am 27 years old and I have been a type 1 diabetic since the age of 11.

I have been a vegetarian for 13 years and a vegan for 7. I am wondering if anyone has experience with doing the gluten-free, vegan diet? I am scared that I will never be able to eat out anymore.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacgirls Apprentice

I don't have a lot of experience with this but my 8 year old daughter is gluten-free, trialing CF, and is a vegetarian. By eliminating the dairy, she is almost a vegan. I am trying to find other protein sources for her without relying so much on soy because apparently lots of celiacs also have trouble with soy.

When we eat out, she eats a baked potato and a salad. Or beans and rice if they are known to be gluten-free.

We have not tried the vegetarian restaurants here yet but some of them are listed as good places to go for gluten-free dining. My sense is that the vegetarian restaurants may be more accomodating than others.

The sad truth is that with this diagnosis, eating out will probably never be the same. I am also gluten-free and used to love to eat out. While I miss the convenience of being able to eat whatever, I am enjoying the way I feel now and it makes up for the lack of convenience. :)

eKatherine Apprentice
I was recently diagnosed with celiac. I am still eating gluten because I have to get my endoscopy in a couple of weeks but I am trying to get prepared for the transition. I am 27 years old and I have been a type 1 diabetic since the age of 11.

I have been a vegetarian for 13 years and a vegan for 7. I am wondering if anyone has experience with doing the gluten-free, vegan diet? I am scared that I will never be able to eat out anymore.

Why are they telling you you need an endoscopy if they have already given you the celiac diagnosis?

Mango04 Enthusiast
Hi everyone,

I was recently diagnosed with celiac. I am still eating gluten because I have to get my endoscopy in a couple of weeks but I am trying to get prepared for the transition. I am 27 years old and I have been a type 1 diabetic since the age of 11.

I have been a vegetarian for 13 years and a vegan for 7. I am wondering if anyone has experience with doing the gluten-free, vegan diet? I am scared that I will never be able to eat out anymore.

Thanks!

Hi -

I'm not vegan, but vegan restaurants are my favorite. I usually don't have a very hard time getting gluten-free food at vegan restaurants (and I'm soy-free too). There's also an entirely vegan market near me and I love shopping there for gluten-free foods. I especially love raw vegan food.

AndreaB Contributor

Welcome! :D

I was vegan before being diagnosed with allergy and later through enterolab intolerance to gluten and soy. I am also allergic to some beans and my hubby is allergic to pinto and not willing to try others again. Please if you feel you must remain on the vegan diet, don't rely on soy to fill the gap. Soy can cause as much damage to the villi as gluten and it is a cummalative allergen. If you can tolerate any meat at all, please consider buying only the organic or natural meat that hasn't been fed antibiotics or hormones. It is very expensive but worth it for better health. If you don't feel you can go back to eating meat than you will need to rely on beans for your protein with a little soy thrown in. Please be advised that pinto beans are also one of the highest allergenic beans (soy is highest). Also if you don't want to eat meat, maybe you could return to a ovo vegetarian diet and start eating eggs again. Again be picky about what you buy and only buy the cage free, organic eggs. We buy the ones with omega 3 from wild oats. Wild Oats brand and they are also organic.

You will find a wealth of information of this site.

lorka150 Collaborator

i follow a closely related vegan diet (the only non-vegan food i use it honey, and sometimes egg whites in baking and actually find it easier that anything else with eating. because i eat a whole foods diet, i never worry about cross contamination.

regarding eating out, i cannot answer your question as every time i have, i have gotten cross contaminated, however, most vegan restaurants, i am sure, are more diet aware than anywhere else.

BRUMI1968 Collaborator

I have been a vegan eater (except for honey and salmon - I know the salmon is a big one...but other than that I fit the diet well) for two years, vegetarian (except the salmon) for fifteen years.

I did find that when I had to go gluten-free, it was more challenging than if I was a meat/cheese eater. Lots of folks on here would talk about yummy meaty/cheesy things they were eating instead of gluten things...but all I had was veggies, fruits, nuts, etc.

All was fine, actually, until I decided to quit grains and beans altogether, to see if that would help some ongoing problems I was having. Suddenly, I didn't have enough to eat, and especially in the protein department.

I made the choice to TRY eating farm-raised ethically treated chickens and eggs (I visited the farm to check) to see how I felt, both ethically and physically. So far it is going alright, though it's only been a few days.

This diet is totally DOABLE as a vegan - it just requires more diligence. And I would definitely stay away from soy - whatever you use now for protein that has obviously been working for you for some time, should work the same. I guess the combining to get full amino acid profiles might be an issue. Well, beans and corn make a complete protein, so that's one way. Nuts and seeds of course, and quinoa is a full protein. Plus, not all folks need a huge amount of protein. If you've been at this vegan thing as long as you have, you must be doing alright.

Do you ever get the magazine Herbivore. I LOVE that magazine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.