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Update On Drs. Appt.

jennyj

By jennyj
in Coping with Celiac Disease

Recommended Posts

jennyj Collaborator
jennyj
Posted

I went to the doctor today, follow up to last post, and he said since all the blood work was negative and since my neck still is swollen "WE" are going to a surgeon to have a needle biopsy next Tues. afternoon. (I hope it doesn't hurt him too much) He said this would give us some answers on what it could or not be. Thanks for all the thoughts and prayers.

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hez Enthusiast
hez
Posted

If it helps I have had a needle biopsy before. The doctor put some topical numbing medicine on and stuck the needle in. I felt some pressure but not pain. This was several years ago, they were trying to determine if I had thyroid cancer. It really was not a bad procedure. Good luck. My prayers are with you.

Hez

Guest Robbin
Guest Robbin
Posted

My prayers are with you. I had a needle biopsy too and it was not so bad. The worrying about it was worse. Take care :)

debmidge Rising Star
debmidge
Posted

I had half of thyroid removed in 1999; never had needle biopsy; it was a "cold" nodule but surgeon removed thryroid that was affected. He explained that sometimes the needle doesn't get the bad cells and you end up with a "false" negative. The final biopsy after surgery was negative anyway.

I am on thyroid med for rest of my life to prevent the other side of the thyroid from working and geting a nodule too.

zip2play Apprentice
zip2play
Posted

Thyroid issues seem really prevalent with people having Celiac or Gluten intolerance.

I hope your needle work goes well! Let us know.

Monica

chrissy Collaborator
chrissy
Posted

debmidge----my husband and i are both on thyroid meds for the exact reason you are!! kevin had half of his thyroid removed, also, because his needle biopsy was inconclusive. i had numerous small nodules, instead of one large one, like kevin had, so they did not do surgery on me. the doc that had treated kevin said to me, "i can't believe i am seeing you for the same thing i saw your husband for." his was called a folicular adenoma.

jenvan Collaborator
jenvan
Posted

My mom has those periodically to ck her Hashi's...they haven't been too bad for her. Will say a prayer for you!

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jennyj Collaborator
jennyj
Posted
  • Author

Thank you for all the thoughts and prayers. I am nervous but at least I will find out something. :)

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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